Dysautonomia :: Feeling Faint, Extreme Weakness And Tired


Nov 5, 2014

Hi, my daughter was just diagnosed less than a week ago with DA. I am heavily in the research phase and would love all the input I can get. I am wondering whether to skip our local cardiologist and go straight to finding a specialist, which I am not have much  success with yet. She has been symptomatic for a long time on and off again. Recently, in the last 1.5 mos her symptoms have worsened. She was have "spells" of dizziness, feeling faint, extreme weakness and tired. Over the past week she has gotten worse and has not been able to go to school for 2 weeks now., She gets really faint, very weak and exhausted with ambulation. She has difficulty getting out of the bed.

So my questions are: Since we have seen a progression does this mean it is getting worse and worse? Anyone know any specialist in SC or NC or close by to those states? She was started on Florinef. How long before we see improvements? Her doctor said 1 or 2 weeks? feeling sad and overwhelmed by this diagnosis. This is my 15 yr who was a competitive gymnast and looking forward to team sports in HS. I am sorry for all who are having to deal with this. Thank you in advance for your input.

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Hormones :: Feeling Like Im Dying, Tired,headaches, Feeling Sick

I'm only 17 years old. I have felt the way i feel now for months. I am not pregnant before anyone suggests that!

I suffered from a disease/illness where my glands swelled up til they were huge and you could clearly see them. I had a fever all day, i would go cold and the hot, i had no energy at all and was generally sick! The doctor gave me some antibiotics and it cleared up.

Ever since then i have not been myself. I feel sick at some point during the day, i constantly have a weird feeling in my head, its not pain as such, but like a numbing feeling and irritation. I feel like im going to faint all the time, im weak and very tired, i also get chest pains from time to time & my breathing is rubbish, its hard to breath at times, i generally feel like im dying

I have had countless blood tests and all of them showed nothing!

This totally upset me because im frustrated, i just want it to be over!!

The doctor told me just to have lots of water and exercise.

My family were convinced that i suffer from anxiety and panic attacks!

As i had a panic attack due to the fact i felt so ill i thought i was dying!

It wasn't just happening to me for no reason the attack.

so they took me to the doctor where he told me my symptoms were that of anxiety and panic attacks so he gave me some tablets to take.

But i still feel the same!!

I do not believe that i have anxiety

I am sick if people believing that is what it is!!
.......

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Any suggestions on how to control this feeling and I am already on anxiety meds but for the past week my anxiety has been really high

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I've been seeing my doc lately about some extreme fatigue I've been having. I've had issues with fatigue for a few years now, but about 6 months ago it has gotten to the point where I could hardly make it to school as I have fallen asleep at the wheel for a split second. So my doctor put me on Prozac because of my history of depression. I tried it for the 8 weeks to no avail, and at this point I doubt it is depression. I've been there before, and I have been doing fine. I'm young and very motivated. Since I've been off of Prozac, my fatigue has only gotten worse. I initially thought it was just because I was getting off of the meds, but about a month later, I continue to feel worse. To the point I can hardly function at my job anymore, let alone get anything else done. I then had my Thyroids tested only to be told they look fine

Then I start to notice that I have been feeling faint a lot lately. Mostly when I make sharper turns, but at times it can come on out of nowhere, like when I'm sitting still! The only thing that really helps this is to lay down until it goes away, and sometimes it will not so I'm forced to go to bed early.

On top of this my periods have been rather irregular. They always have been a little irregular, so sometimes I will miss a period entirely, but mostly I will just have a longer wait until my next period. Lately, they have been coming early. Generally they will be 6 weeks apart, but then I had one that was 4 weeks apart.But everything seemed normal so I brushed it off since I'm used to being irregular anyways. But then my last period started just barely 2 weeks after my last one began! It was a lot lighter (and the blood was a bit thinner) and lasted a couple days less than normal which would be 6-7 days. I also haven't had sex in about 3 months or so.

Along with this I started to notice some muscle soreness and the occasional headache. At first the soreness was random and all over my body, then about a week ago, it all seemed to be in my lower back and lower legs/feet. Now, in the past several days, I've been having severe cramping just like menstrual cramping along with the lower back and leg/feet pain. I'm not due for another period anytime soon, in fact, I just ended my "period" not even a week ago. I've never had cramping in between periods, never this bad, and never for this long.

I am in the process of setting up a sleep study, and I scheduled another doc appointment for June 23rd to discuss my more recent symptoms, but I wanted to know if anyone might have an idea as to what this could be, or if I should try and see someone sooner?

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I try to be an informed consumer. Current rheum just wants to throw more pills at the issue without getting to the root of it. It seems like if I go in with a fibro dx, everything must be fibro. How do I approach this new appointment (in September!!) to finally figure things out? This new doctor will be in the UH system as are all my other docs. I think she'll have access to previous lab results, if not I can pull them up in my EMR.

I could use words of wisdom, advice, a kick in the butt (if necessary), etc.

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