Arthritis :: Ringing In The Ears With Hydroxychloroquine
Apr 22, 2015
I was diagnosed with OA in my lumbar & cervical spine 10+ years ago although it has not caused me any severe problems. I am now in a new state & under the care of a new rheumatologist. She has diagnosed me with Sjogren's & also "probable lupus" (I have many of the symptoms but nothing has shown up in blood tests as of yet.)
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Over the past few months my knuckles have gotten bigger so that I cannot put on rings or remove my wedding band. My fingers also swell, & there are some nodules on the knuckles of 2 fingers up near the fingernails. My rheumatologist told me I now have RA.
I have been taking prednisone bursts every now & then to help with my problems. I have also taken it for several weeks at a time, either 10 mg/day or 5 mg/day. Most recently I had been taking 5 mg/day but it was not helping me. I asked at my last appointment about bumping it up to 10 mg/day again, but she is not wanting to do that. I don't know if its just this state I'm living in or what, but every medical professional I see tells me that taking prednisone long term is not good ... yet I know of people elsewhere who have been taking it for many years.
Three weeks ago my rheumatologist asked me to try hydroxychloroquine while I tapered off the prednisone. Not long after I started taking this medication, I noticed I was having ringing in my ears. I really didn't pay much attention to it ... figured it was just some fluke thing. I never had ringing in my ears prior to starting the hydroxychloroquine. As time went on the ringing got worse. I checked the side effect sheet that came with the medication & ringing in the ears was listed as an "unlikely but serious side effect" & it was noted that if this occurred I should "notify my doctor immediately."
I called my dermatologist's office & unfortunately her nurse took the call. This nurse seems to feel that she is a doctor. She has given me incorrect instructions in the past regarding medication. When I told her what was happening, she told me to stop taking the hydroxychloroquine for one week, then to start taking it again ... "just to see that there's nothing else that could be causing the ringing."
If the ringing hadn't been happening prior to me taking the medication, & it stopped immediately after I stopped taking it, then why do I need to start taking the medication again? Again, this ringing is described as an "unlikely but serious side effect." I am concerned that starting to take it again may result in irreparable harm to my hearing.
Am I just being silly/overcautious? Has anyone had this experience or a similar one?
i have had ringing in the ears (tinnitus) now for like 6 month and i also just noticed a few months ago everytime i swallow my ears click very very loud does anyone know what this could be?
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I have been experiencing a ringing in my ears, mainly by the left one for about a month and a half now. Sometimes is better some others worse, I have also been experiencing a sense of queasiness. At times feel slight fullness around my ears, and around my nose and face when i bend over.
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Went to the GP once and was given ear drops as the Doctor suggested it was built wax in my ear. The drops didn't seem to do much so went back and got an ear spray, antibiotic. I have been taking it for a week now and to be honest, might have done something, or so i thought but the last two days I have been feeling queasy again and the ringing in the ears isn't going away.
Did anyone experience ringing in their ears as a symptom of their gallbladder problems?
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I've been suffering with anxiety for two year panic attacks nearly every day was on mirtazapine for 3 months then my doc put me on sertraline but like an hour after i took my first one i got white noise ringing in my ears then next day went to hospital it was that bad been took of sertraline back on mitrazipine but my tinnitus has got worse ....
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Almost 3 weeks ago I stopped Mirtazapine cold turkey. I was on a small dose of 7.5mg but I'm also a small person (8 stone) and that dose seemed to work for me. Just before I stopped I tried to taper but then changed my mind and double the dose which almost immediately gave me some nausea, palpitations and very bad muscles and joints pain. I stayed on that dose for a week but none of the symptoms cleared completely so on Friday 30.05 I stopped it completely.
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Next few days were dreadful, with nausea, palpitations, ringing in the ears (and ear pain), burning skin on legs and arms, painful joints and muscles, especially left leg, muscle twitching, back pain, insomnia. They don't all come in at once and I do have a better moment or day but pretty much i'm still in pain most of the time and exhausted. I'm sure that the fact i've been on an antibiotic (doxycycline) for a bacterial infection drains the body as well and perhaps contributes to feeling ill but my GP says it shouldn't matter.
Please can anyone having a similar experience reply to this post. My GP just took my hope away today telling me that I don't have any withdrawal as he's never had a problem with this drug, but the only other choice is probably a serious autoimmune disease, which I'm terrified to think of. I never had any muscle or joint pain until about 4 weeks ago and now having a very sad time thinking what happened to my life as I'm not able to look after my family. I just want to have my hope back that there is a light at the end of the tunnel, even if it's a few more weeks or months...
I've been to two gynos with my issues and I'm getting a little frustrated but I think I've figured this out on my own anyway. I'm 39, work out intensely 6 times a week, have 11 year old twins, no history of gynecological disease, and for the past year I've been experiencing signs of perimenopause. I haven't missed a period yet but sometimes I get two (yay me) and sometimes I get one that's either very light and short or very heavy and long. I have hot flashes, night sweats, mood swings, headaches, ringing in my ears on a regular basis for about 4 months(that hasn't happened in a few months now), extreme breast tenderness, fatigue, itchy skin, aversion to odors that normally don't bother me, digestive issues, etc. I can go down a list of symptoms of perimenopause and I have at least 12 of them. The problem is that when I tell a dr these things, they don't offer much help and they basically dismiss the idea that I could be perimenopausal at 39. I want them to understand that I'm miserable and I feel like **** 50% of the time because of these symptoms. They offer me the pill or an IUD to which I politely decline, leave, and go to my local homeopathic pharmacy to have some compounds made to help me cope with these insane symptoms.
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I am 71 and have had Rheumatoid since 1988. Had various treatments over the years. I have been on hydroxychloroquine for about 8 years. One tablet a day up until just over a year ago when it flared up and I have been on two since then. Recent blood tests showed my neutrophil levels were just under half of normal. At my check up specialist reduce the dose back to one and asked for another blood test. This one was down to 15% of normal.
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Has anyone else had this problem. It is pretty scary and I am under instruction about seeking urgent help in case of infection.
how are you finding it? I am a little concerned about some of the possible side effects, in particular the one with abdominal problems and having to take antacids, as I take lansoprazole twice a day.
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Hearing heartbeat in ears. Sometimes it gets stronger First symptom is face gets very warm no fever, ears get hot and red and sensitive (right one) and whoosh or tzzing hearing in ears like pulse. It subsides after 8 hrs or less. Impossible to sleep. If I sleep flat on back am awakened 2 hrs later by
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very strong heart beat like its forcing a lot of blood thru. Subsides with exercise. Condition goes away for 48 hrs so heart system not fighting infection. If I sleep with upper torso at 45 degree angle still wake after 2 hrs but pulses not as strong. Then after I can sleep for hrs no problem. Dr checked ears ok, did all blood work ok, I'm male 67 yrs and in gen good health. Did ultrasound on abdominal kidneys bladder ok. Seems like some chemical command triggering heart to pump harder and faster not too fast. I tested things to try to determine what triggers the face heat, ears hot and harder beats, chocolate, caffeine, pepsi's, salt, coughing, cigarette smoking, stressful video games have no effect. BP normal am taking Ramipril 10 mg Altace nothing else. Dont think its heart but something telling heart to work hard, feel it thumping in chest. Just repeated T3's blood test..and 24 hr urine special test..awaiting results. Reg urine test showed nothing, and abdominal ultrasound clear. No dizziness, nausea etc. Bowel and urine movement perfect, no pains or lightheadedness.
After MRI my diagnosis was "Lots of mileage left, another 10 years, at least!" (I am 75)! Good to hear but still have to be careful going DOWN stairs! Not too bad going up! Some pain now and again. BUT I sometimes get a strange feeling on upper left thigh, (the worst knee), as if it is wet but when I touch the skin it is totally dry! Happens after I have been standing for a couple of hours.Also, sometimes the skin feels sore, but there is no evidence to show. Has anyone had similar feelings?.
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Is anyone else getting this? If I come of the amitriptyline will it stop?
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I am 17 now and I have had tinnitus for only about 6 months and I already think I is really annoying!! I'v got about 3 different ringing noises, one (the first) in my right ear, the second is a higher pitched one in the middle area, (I cant tell where that is coming from) and sometimes I get an extremely high pitched loud ringing in my left ear which comes and goes (It's so loud that when it comes I actually turn my head to see where the noise is coming from.)
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My problem is that I have no idea how what caused it. I ruled out loud noises because I can't think of a situation where I have been exposed to very loud music.
One day I just woke up with tinnitus. My hearing was reduced for the first few days and then fully returned.
Recently I think it has got worse.
I have seen my GP twice and now I will be seen by an ENT DR. Tinnitus doesn't stop me sleeping, but it is the only thing I can hear at night and that is extremely annoying.
The worst problem I have is that I find it very hard to concentrate when doing schoolwork as this is when I would normally need silence. I find it very difficult to concentrate with noise so tinnitus upsets me quite a lot.
I have been suffering from tinnitus for more than 25 years and now I am a lot older (74), it has increased its volume considerably and it driving me mad as I cannot sleep at night...and cannot concentrate on things in comfort. It is ringing like hell...the pitch is so high that it really makes me crazy!! I have a masking (white sound) that I stick it into my ear to mask that awful shrieking sound!! Has anybody suffer from this like me. I would like to hear from you, how you deal with this.! It causes depression in the end!!
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I am 16 and have had mild tinnitus for years, with an unknown cause and I could only hear it whilst trying to fall asleep. But after going to a concert last night, I woke up this morning with an extremely loud ringing in my right ear. It is loud enough that I am hearing it throughout the day, no matter what I am doing.
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I am also experiencing mild pain in my right ear, but not experiencing any hearing loss.
I would just like to know what I should do, how I can cope with this, and if it may go away, or subside mildly.
I recently had a cold, with some sinus issues, first time ever and I'm 36, not allergic to anything. The sinus has now cleared, 95%, still have some yellow mucus coming out when I blow my nose, but only on right side and not as much as yesterday or day before, but left with an ear that is half deaf and crackles when it hears a lot of noises at once (crackles or sounds like a waterfall, difficult to explain). Can hear fine with my left ear.There's also some ringing in the ear. Slight. Is this something that will clear up with time or do I need to see a doctor? I did finish my antibiotics this morning.I can also say that I'm a bit off balance, I won't say dizzy or vertigo, just half off balance when I walk. Not enough to fall over.Thanks in advance
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I just picked up my first Lyme prescription and was surprised to see two antibiotics, Doxycycline & Hydroxychloroquine. I'm not sure if I am supposed to take this together or the doxy first and THEN the hydroxy when I finish that.
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Obviously, I can wait until the morn and call my doc, but I'd love to get started tonight. Anyone know if these are usually prescribed together for Lyme?
Doe anyone know anything about this med or have taken it?? Have gone from 15 mgs of pred to 10 to 7.5 mgs since December when I was diagnosed with pmr. 7.5 was not cutting it and dropped it back to 10mgs and also started me on hydroxychloroquine. The hope is to get off of the pred all together. I'm taking both meds for now until my next appt. in July. Has anyone had experience on this med?
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What can I do while I wait to see what medication is going to help me. Predisone and hydroxychloroquine 200 mg
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I have a serious health issue, but the doctors haven't been able to pinpoint what it is. Basically, I've had six weeks of dizziness and unsteadiness. It sounds like Vestibular Neuritis, but please let me know what you think.
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On June 9th I got some kind of stomach flu or food poisoning. I had severe vomiting and diarrhea. Other than a canker sore under my tongue, I was starting to feel better. I was exercising again and working again.
While walking across a bridge in the park on June 14th, I suddenly got a fear of heights. I felt the same sensation the next day while sitting at a traffic light, that happens to be on top of an overpass. I felt panicky
As the week went on, I was getting panicky in the car every time I had to stop at a light. I had to look down at the steering wheel because the cars criss-crossing in front of me was making me disoriented.
Then I began to get dizzy spells throughout the day, plus I felt a permanent unsteadiness 24 hours a day. A lot of times I had to concentrate hard to walk. My eyes were not going where I wanted them to go. Work really brought on the systems. I started missing days. I also had to have people drive me around to places. One time I had heart palpitations when there were a lot of people around me. Eventually I asked for a leave of absence.
On the 26th, a dizzy spell got so bad I had to go to the hospital. It was mainly disorientation, not like the room was spinning. I was still able to walk around the hospital, but very slowly, and had to concentrate hard to do it. MRI showed no tumors or stroke. They said it was a middle ear issue, prescribe some medicine and sent me on my way.
So far I've seen one ENT, but other appts are coming for neurologist and another ENT. My hearing test was perfect. The ENG/caloric test came out normal, which surprised me. He suggested I might have Mal de Debarquement Syndrome.
I became became imprisoned in my home, and I started to feel physically weak as the days went on. After learning about vestibular exercises on the Internet, I decided to start doing them on my own. They seem to have helped with my balance and with my eye-darting issues. I now go for very long walks. I am starting to drive again too. However, everything feels totally different than it did before this all began.
There were a couple of nights where my brain was doing odd things. I got hot flashes (even though I'm a guy) and heart palpitations in the middle of the night one time.
My persistent systems right now are:
-susceptible to dizziness when on the computer, watching TV, doing quick head turns, being inside stores
-high-pitch ringing in my left ear
-fullness in my right ears that comes and goes, almost like there is fluid in them
-harder to concentrate
-unsteadiness as I move. Sometimes it's a "bobble"; other times it's like I'm leaning in one direction or another. Sometimes it's almost normal.
-sensitivity to sound, like the bath water running
-misidentification of sounds. I sometimes think the garbage truck is outside, only to figure out it's our air conditioner.
Let me know what you think. I would like to begin living a normal life again: return to work, use a computer and watch TV normally, be able to drive long distances without worry. I'm thinking it's VN, but I did not have an "acute" spinning phase, plus the caloric test was normal. The canker sore may be relevant because I've read that the herpes virus can attack the nerve.
I was prescribed the above about two months ago. About two weeks after starting it my cheeks looked red and swollen and I had an itchy rash under my chin. Stopped taking it and it all cleared up in the following two weeks.
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the Rheumy nurse has told me to try it again to make sure it was the cause. Thing is, I've had Sjogrens for about 20 years with the usual dryness, but I cope with eye drops and vaginal lubrication and HRT cream. Apart from the odd tummy troubles, I'm thankfully not in pain and lead a pretty normal life.
i'm not at all sure if taking hydroxychloroquine is worth it for me, as I dread it damaging my eyesight. My Specialist seems to think it may help with my poor sense of taste and smell, which would be great as it's depressing.