I had a blood test today as I'm being tested for Crohn's disease and a load of allergies however my blood was really thick and gloopy and would flow even the nurse said that it was unusual. She couldn't get much blood out either as it would flow so ended up having to use bottles that they use for babies because there nearly any blood. I'm just wondering what this could mean or if anyone else has had this before?
View 2 RepliesI am a 24 year old who works a 12 hour rotating shift pattern (including night shifts). For the past 6 months or maybe more o have had upper left abdominal pain (cramping/aching) and more recently lower pain (sometimes across lower, sometimes left and sometimes a specific place on the lower right). I put it down to IBS due to shift work. My partner convinced me to see the GP as I have a family history of IBD. Oh and my bowel movements vary from constipated (less than once a week) to lose (not diarrhoea and multiple times per day)
Had stool tests and blood tests. I expected them not to find anything to be honest and just did it to please my boyfriend and put his mind at rest.
Doctor phoned and said that "the stool test shows signs of inflammation indicative of inflammatory bowel disease". I couldn't really ask more questions because of where I was. Phoned in for blood results and told by reception that they were fine.
I have been referred to the gastroenterologist and have an appointment in 2 weeks.
I am tired all the time and find it really difficult to get out of bed, frequently have naps at work but put that down to shift working.
I don't want to take any laxatives because I never know when it will change between constipation and loose stools and when I'm working, I often can't get to the toilet.
I often have joint pain but I also have a knee injury and some hyper mobile joints.
I am so confused as to what is going on and hate not being in control of my body. I know I only have mild symptoms, I feel so alone (shift work doesn't lend itself to meeting people regularly).
My husband was diagnosed with crohn’s disease some time ago. It seems that he is not allowed to drink beer. I don’t know how he will be able to do this, since he is a great fan of beer. Why isn’t he allowed to take it? Can someone tell me?
View 2 RepliesMy wife has been diagnosed with crohn’s disease. We have no children yet, but we were planning to. However, this disease is something that surprised us. She manages to coup the disease with medications. However, we don’t know if this affects her fertility. What do you think about this?
View 1 RepliesI know something about crohn’s disease. However, there is something else that intrigues me. I was wondering if this disease can be manifested with haemorrhoids. As far as I know, those are two different entities, so I would like to know if they can be linked in any way.
View 2 RepliesI've had hearing loss now for a few years but don't know whether it's down to Work, crohn's or chemotherapy, anyone else?
View 1 RepliesI had my surgery in 98. I've been symptom free for over 10 years. I recently hurt my back at work and was prescribed Naproxen (Aleve) because of the new pain med laws. Well after taking it for a week, I just started vomiting large amounts of blood. I went to the ER and they were shocked to hear that this was prescribed this for my pain since they were aware I had Crohn's. Has anyone else had symptoms like this from Naproxen? Would it be a honest mistake or malpractice?
View 1 RepliesI've had Crohns for 20 years I have a structure but is under control with drugs but the tiredness and fatigue is terrible specialist isn't much help or understanding on this point how do others cope with it ? My bloods are checked regularly and are always fine. I sometimes wonder how I'm going to get through the day at work sometimes and don't have the strength to do anything when I get it at night and I cannot wait to get to bed even if it's to watch tv I wouldn't mind but I'm no party animal has anyone got any sensible suggestions please ?
View 37 RepliesI had a high transsphincteric fistula (multiple abscesses). CRS placed a cutting seton with fistulotomy in July. CRS told me that the seton would be in prob 4-6 weeks. It is now 8 weeks later, new CRS (first one moved), told me that he doesn't use these much as they are not tolerated well and that he thinks he will have to go back in and tighten it as it is not advancing. He says this is/can be a long process. Now I am to go back in several weeks to finalize new plan. Problem is, after surgery, I had Augmentin. The fistula track was not draining like it was supposed to and I got another abscess... after the fistulotomy and seton placement. CRS gave me Augmentin which I'm not sure really helped. So, I got a total body rash from the augmentin. I lasted 5 weeks before I was so miserable that I finally took oral steroids from Dermatologist with CRS approval. After I did two weeks of steroids, which helped tremendously, the rash came right back. Derm subsequently gave me a new prescription for prednisone (for one month taper!) and told me that it is a rebound rash after I stopped steroids. CRS says he won't do next surgery until I am off of prednisone for several weeks. Do I take the prednisone? or try to power thru the rash and not tear off my skin? How long will this next seton take to cut thru? wonder if it will get "stuck" midway too? More tightening procedures? Oh.. what to do?
View 1 RepliesI'm 28 and have crohn's disease. I have been on humira for 2 years which had worked well. The past few months, however, I have been suffering from a debilitating flair up. My Dr upped my dosage but it hasn't made a difference and am now back on steroids. I was wondering if anyone else had experienced this with humira? And if anyone had had success with any alternative medications?
View 7 RepliesHi I have just joined the forum and would like to know if anyone feels the same as myself or am I going mad. Was diagnosed with crohns in 2010 after doing the over 50 bowel screening ( I am 55) have been on several medications and had a very nasty abcess where you dont want one and had to stay in hospital 11 days. Last november I had been in infliximab for 2 years having infusion every 8 weeks and also taking mercaptopurine and tramadol for the pain, I now have infliximab every 10 weeks still taking mercaptopurine which I have been on for 4 years, the doctor asked me to try and stop tramadol but I only take 2 per day 4 on a very bad day, I have tried several times not to take these but when I stop the next day I feel bloated, very sick and its a struggle to get out of bed and as a full time carer for my disabled husband thats no good, it happened today so I took 2 tramadol and crawled back to bed and within an hour I felt a lot better, have explained this to 2 doctors and 1 wants me off tramadol and says symptoms are due to them and the other gives me a prescription and says if I need to take them to do that I am so confused. I take them because the option not to makes me feel so crap (pardon the pun ) has anybody got any advice please I hate this crohns
View 4 RepliesI have been taking Azathioprine for crohn's for some time and have been lucky not to have had any side effects. For a while I have had a sore throat but not needed any medication. When I read the possible side effects on websites they mention sore throats. Any one else experience this, if so have you spoken to GP or consultant.
View 3 RepliesI started getting the following symptoms 6 weeks ago, explosive diarrhea, blood loss, mucus in poo, constipation, 7-10 bm's a day, bloating, cramps, loss of appetite, severe fatigue.... I left it 4 weeks as thought it was a bug & have a very hectic lifestyle so didn't have chance to give it a great deal of thought but went to the docs & she said she's pretty sure it's ulcerative colitis. She was quite concerned & requested I had an urgent colonoscopy within 1 week but I have to wait 6 weeks for this to happen. My doc wasn't happy but said there is nothing she can do to expedite this. I was at my wits end yesterday so my hubby took me to a & e but again they were reluctant to run any tests as I'm already booked in to have a colonoscopy. They did the standard tests which were all normal. I'm now waiting to call a private hospital to get an appointment so that I can get this procedure done ASAP as my family are so concerned. I can't believe that I've got to pay £2k to get this issue checked out? I thought that losing blood for 6 weeks would be classed as urgent but I guess not?
Sorry if tmi but I noticed veg in my stools this morning & that was from a meal I had last Tuesday?
Does this his sound like ulcerative colitis to anyone or could it possibly be crohn's?
i am 26 years old had my son in 2012 since then i was using nur-isterate until the 12th of may 2014 as me and my partner wanted a baby.
i recently took two pregnancy test and they came back negative. i haven't gotten my periods since then,but i got blood like discharge after that i got thick white discharge, cramps from time to time and moody all the time.
A few months ago my blood pressure plummeted-and recently I've been EXHAUSTED. I have to nap daily and have no energy. My blood pressure today at a GI appt was 75/62 the week prior it was 75/53. I've had several drs comment but I never really get noticeably dizzy as I've had dizzy spells on and off all my life. But with this utter exhaustion my GI said I should follow up asap w my primary dr.
Also, for years I've had upper left sharp stabbing pains-we've suspected my pancreas but scans are always clear.
Does this sound like it could be addisons? I'm not sure what else could cause this low bp (which is not normal for me)-I had my heart checked recently, was fine.
I have high blood pressure and I have renal panel test done every 4-5 months. This is my 4 time and my results came back with increased creatinine 1.68 ( maximum range 1.4) and my gfr was 48. Bun was within range.
Last time when I performed the test 4 months backs the creatinine value was 0.96.
My doctor switched me from tribenzor to axor as my bp reading were normal around 110/70. I test my bp at home weekly and they never cross 120/80.
Can I get my creatinine and egfr values improved or am I professing fast on ckd.
From 4 yrs i have been suffering from severe pelvic pain with lots of inflammation in both hips. all blood works come normal but mri does show inflammation. Doctors cannot find what it is, can it be my ovaries or fallopian tubes inflammation or infection which is causing this, plz somebody help. I want to get pregnant but my pain in pelvis which is that worse that I limp many time is not allowing me.
View 1 RepliesBasically I am 25 years old and as i've grown up I've noticed more and more that I was getting stomach cramps and bloating more and more often. It is very sporadic and I couldn't really say exactly what was causing it but I just thought it was normal. This was until the last 12 months when I started to think a bit more about it. I do a lot of exercise and play a lot of football. I was finding that I would get some form of cramp during a football game. Usually quite mild but sometimes worse. I also like to run and when training for a half marathon found that after a certain distance I would get pains. Almost every time after about 30-40 minutes running. It would normally be worse when running in the evenings. I started thinking about it and tried taking several things out of my diet. I am 95% certain I have a lactose intolerance as since cutting that out around 6 months ago I have seen an improvement. But I would still get pains.
This all resulted in me going Gluten Free and I finally experienced what it feels like to have a normal stomach. I was relaxed and could do whatever I wanted without any fear. So I decided for my own health I should get tested for celiacs disease and after 7 weeks of eating gluten again had the blood tests. Today I had the results and they have come back negative. I feel so deflated and just angry. What do I do now? I just feel like going back to Gluten Free and living like that self diagnosed. The weird thing I find with my disorder is it seems to be worse when i'm up and about. If me and my fiancee have gone out around town and have lunch it is often worse when walking around afterwards. I don't always get blinding pains either. It is often just severe constipation or stomach cramps just making me feel uncomfortable.
Really disheartening now and just want to know but can't carry on for much longer and really don't want to keep eating Gluten when I know I feel good when I don't. Any advise?
I have a heart rate most of the time from 42 to 50 BPM , my blood pressure is usually 145 to 160 over 75 to 80. My cardiologist has me taking 75 mg, of Lopressor, 360 mg, of verapamil, .4 mg nitroglycerin patch. And now he wants to add 10 mg of Ramipril ( Altace ) a day, my recent cardiograms have have shown sinus bradycardia. That's before starting the Ramipril , I'm just very leary about starting the Ramipril in first of all the highest dose there is, and second of all it could further lower my heart rate and send my heart into an AV Block that could lead to many things not good !
View 2 RepliesI have been provisionally diagnosed with Crohns and have been on Prednisolone for 3 weeks, starting off with 40 mg a day and reducing weekly by 5 mg.
I am having terrible headaches and no releif from the abdominal pain.No other symptoms yet.Can I expect some improvement as time goes on in your experiences ?
I'm wondering if anyone has any advice regarding diagnosing graves and thyroid eye disease in pregnancy. Having never had any problems until being pregnant I'm very confused as to why I've suddenly got it? At around 12 weeks into my pregnancy I noticed a change in my eyes (one was protruding), after seeing an eye dr, he advised I'd be tested for hyperthyroidism and following his advice the bloods came back as a positive for hyperthyroidism. I was put on PTU by an endocrinologist for the rest of my pregnancy and at week 39 I noticed a yellowing in the White of my eyes and admitted myself to the maternity unit for blood tests following speaking with a midwife. It turned out I had developed severe jaundice (Which I now have learnt through research to be a severe side effect to PTU) and that my liver was failing; I had to have an emergency c section that night. I am pleased to say I have a had a healthy baby boy but I'm so anxious as to whether these conditions will worsen post pregnancy.
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