Fibromyalgia :: Burning And Tingling Nonstop For Three Months


Jul 25, 2013

For about three months now, I've had a number of concerning symptoms that have had me in and out of my doctors' offices. After a number of tests, I'm told I fit the criteria for fibromyalgia and will be officially diagnosed at my next appointment if my spine MRI is clear. I don't know a lot about fibromyalgia, but I'm not convinced it's the correct diagnosis. I'm hoping if I describe how I'm feeling, I can get some input that would help me either accept this diagnosis or try to find out what's really wrong with me.

I'll start with a little background info. I'm a 25 year old woman, and I have narcolepsy. I'm generally healthy otherwise.

These are the tests/labs I've had in the past month or two:
-Extensive blood work
-EMG
-MRI of the brain
-MRI of the spine

Symptoms:
-Constant leg tingling and pain best described as burning
-Tingling feet
-Tingling in the rest of the body that comes in waves
-Muscle twitching (painless)
-Muscle spasms (painful)
-Chest pain
-Aches/pains (neck, shoulders, back, arms, legs)
-Headaches
-Dizziness
-Sensitivity to light and temperature

I've seen some of these symptoms listed in articles I've read about fibromyalgia, but I haven't seen anything about the constant leg pain I'm experiencing. I've had this burning and tingling nonstop for three months. Does anyone else experience this? I feel like I'm losing my mind. I don't think I can handle living the rest of my life with this pain.

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About 4 days ago, I was laying on my side and I reached back to turn my heating pad on. I guess I wasn't thinking and twisted too much. I felt a sharp pain in my back that shot down my leg. Every since then, I have had the worst pain in my back. (I still had the same amount of pain in my back/butt/leg/foot as I did before this surgery 6/10. This new pain has been added to a new place in my back, and when I move it goes up to about a 8/10) I was giving it a few days before I called my surgeon because I don't want to be one of those people who constantly call the dr with small issues that go away after only a few days. This definitely is showing no signs of letting up) The worst part is, they just moved my meds down from hydrocodone 10-325 every 4 hours to Hydrocodone 7.5-325 every 6-8 hours. (Previously to surgery I had been on percocet 10-325/6 hours since June of last year. My surgeon prescribed that for one week after surgery then refilled me with hydrocodone 10-325/4 hours the last 2 weeks. These really didn't do the job, but at least I was somewhat comfortable so I dealt with it.) Now that they changed me down again, I'm getting no relief. Especially with this new pain. Over the weekend I was taking more than I was suppose to and now I'm worried I won't be able to get a refill when I need it. I've been taking pain meds for a little over 2 years now. I look forward to the day I no longer have to rely on them just to be able to get up out of bed in the morning. That day just doesn't seem to be anytime soon. I feel that at the age of 36, I am too young to be in this kind of physical condition.

When I walk, I am bent over to my right side like a little old lady. I can't stand up straight. And each time I take a step with my left leg, it feels like someone is stabbing me in the lower back on my left side. Hopefully I can get some answers tomorrow when I call. I knew this surgery was going to be a long recovery, and I was prepared for that. This new pain really has me worried and I really hope I haven't done something to mess it up. I just don't feel like this pain is something I should be having

Has anyone else injured themselves while recovering from a fusion like this? If so, what was your results? Did it heal on it's own or what? I know everyone is different, it's just good to not feel quite so all alone thru this. No one understands unless they have been thru it. Especially doctors they seem to think that everything goes exactly like the "book" says it should. That's just not always the case.

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Lived with the pain which has gradually got worse and probably is something like a 5/10 on the pain scale now.

Recent stressful domestic issues seemed to aggravate the pains so finally decided to see a Spine Doctor (I am a Brit but live in the Philippines where medical care is excellent, especially when they see a foreign face with bulging pockets !)

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So, my quandry now is should I believe him or should I try a different approach.

The first paste below is the original MRI findings and the second paste is a second opinion that I got from an independent on line service.

IMPRESSION: -BILATERAL NEURAL FORAMINAL STENOSIS AT C5-C6 SECONDARY TO RIGHT FORAMINAL DISC EXTRUSION ON THE RIGHT, BILATERAL UNCOVERTEBRAL JOINT HYPERTROPHY WITH PROMINENT SPUR ON THE LEFT. -CORD EDEMA, C5 AND C6.

Second Opinion

OPINION:

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Could I Have Fibromyalgia?

I don't know where to start really but I'll give it a go. This may end up all over the place so I’ll apologise now.

6 years ago I was diagnosed with Celiac Disease. 3 years ago I had a fall trying to take my jeans off and had pains in my left wrist. I never had a diagnosis for the pains. I was given a few steroid injections and splint treatment and eventually the pains stopped.

Whilst I was pregnant with my daughter last year, I developed SPD (where the pelvis loosens too much during pregnancy) and ended up being on crutches for the last month of my pregnancy. I had a traumatic delivery with my little monster and ended up with an emergency c section. I was still on crutches for about 2 weeks after her birth and then seemed to end up using her pram as a support whilst we were out and about. If I take her out and about on my own I have to take her buggy as I can't lift her pram in and out of the boot (it's only double the weight of the buggy!) The longest I can stand holding her is 10 minutes before I'm in agony with my back, pelvis, ankles and feet.

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I should probably also mention that I have been diagnosed with Post Natal Depression (PND) and have been put on a low dose of Fluoxetine. I recently went to see one of our GPs as my hubby was quite worried about the fatigue I have been struggling with. I can't get through the day without feeling tired. Come an hour or so after lunch I have to summon up all the energy I've got to continue with my day, I just don't seem to have the energy to do much at all anymore. The GP just said it's probably a side effect of the anti-depressants and wasn't worried about it. I haven't mentioned anything else as I just feel like I'm over reacting. Just typing this out I've got aches and pains going through my fingers and wrists.

I had been receiving physio on my back from a fantastic therapist, but at the end of my maternity leave we were moved to a new unit. I went to see the physio at my new unit and had an awful session. She basically turned round and told me the only way my back was going to get fixed is loose weight, get back in the gym and get on with things. Not really what someone with PND needs to hear on top of everything else that they're dealing with. I didn't go into any further details about all the other problems I've been having as I just wanted to get out of there as quick as possible. This was 3 months ago and I haven't been back since.

My other concern is that I’m in the RAF. I still have just under 7 years left to serve until I reach my 22 year exit point. I just can't help think that if I do have this condition then I could end up being medically discharged. I wouldn't know what to do if I was. The RAF is all I've ever known, I joined when I was 16.

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