Gabapentin For Syringomyelia Causing Claustrophobia
Dec 13, 2006
I am 41 years old and was diagnosed with Syringomyelia and Intramedullary ependymoma tumors about 2 years ago. I have suffered extreme nerve pain since the biopsy of my main tumor at C7, to the point that I couldn't stand having a shower or my child touching me:yikes:because of the pain! Also increased neurological pain in the whole of my body.
I say thank God for Gabapentin... I take 1800 mg a day which enables me to function better than I would if I didn't take the drug. I get tired so I rest (I can not put this solely down to Gabapentin because my illness also has this effect). The only side effect I have noticed is 'claustrophobia' particularly in the MRI machine I never had it before I started taking Gabapentin ....
I always say 'If I could only choose one drug' Gabapentin would be it every time even before my pain killers.
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Any experience with gabapentin causing chronic pain problems when taking or withdrawing? During my taper I developed major issues with sciatica and my hip. I'm also taking forever to heal from a frozen shoulder injury (14 months). I had preexisting issues. My guess is it's from all the couch time necessary to heal. But it feels like it shouldn't be this bad. I'm only 29
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Hi all, I was born with Kyphosis, never had surgery or treatment, apart from physio. Live in constant pain. Am on high doses of painkillers. 3 Years ago I was diagnosed with Syringomyelia. I was wondering if there was anybody else that has either Scoliosis/Kyphosis AND Syringomyelia, and would like some tips on how to manage.
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I've recently been diagnosed with Chiari Malformation type 1 and after reading up on the condition I found that lots of people with the condition either already have or develop syringomyelia. Does anyone know how likely it is that this will develop? Also, does anyone know if the symptoms will continue to worsen over time or will they improve now I'm on medication?
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I have a horrendous rash on my feet, upper arms, back and hands. I have been taking Omeprazole for about 6 weeks, and am due to see a consultant in a few days. As no one had mentioned a rash to me, I assumed it was a heat rash, as I have a habit of warming my feet by the fire, but the rash has got much worse, and now I have ENORMOUS blisters on my big toes and small ones elsewhere on my feet and hands. I have phoned the GP surgery as I see this is listed as a possible side effect, and was told to stop taking the omeprazole which I did yesterday. So far there is no improvement, but it is only 24 hours, so I am hoping there will be some improvement very soon. I have also lost my sense of taste and smell which may be due to a bad cold, but I have a very dry mouth and a horrid taste in it when I wake up in the morning. This is also a listed side effect. The doctor I spoke to seemed to think the rash IS due to the omeprazole. Incidentally, I took lapromazole for 2 weeks previously, but it gave me dreadful diarrhoea, so the consultant changed me to omeprazole. I will post another message on here when I have seen the consultant.
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I have been on 1200 mil a day for 3 mos. my pain has gotten better and I an thinking about getting off of gabapentin . I am not going to stop a once. I will gradually get off. Is it any side effects I can expect from stopping the drug?
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I am now on my third rheumatologist who now tells me that the painkillers I take - oxycontin, co-codamol and oxynorm all of which are opiate painkillers are obviously not working -give the man a star - he has said that gabapentin may work has anyone used this for arthritis before.
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Dr. Just started me on Gabapentin. I'm taking it for anxiety. I'm very sensitive to meds so he started me on 100 mg 3x day. Depending on how I feel, he will up dosage in 2 wks. Will I feel anything on this low dose?
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Was on Gabapentin for a year and worked up to 3200 mgs a day. Was taking it for Osteo Arthritis in feet and knees. Didn't do much for pain so decided to get off of it. My Dr said to take 1600 mgs for 5 days the drop to 800 mgs for 5 days! This was 3 weeks ago still fighting withdrawal. It's eased up some but still have some anxiety and like pressure in my chest. Almost makes me feel short winded at times. Has anyone else had this and how long will the withdrawal last? Have heard the longer you was on it the longer it takes. Tired of it just want to feel normal again.
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I did a dumbest thing in my life - I am from canada. I went to a massage parlor. I did cunnilingus for a max of 2 mins on masseuse vagina. And received a protected blow job. I also deep french kissed her. No sex of any kind.
Symptoms: After 4 weeks since that incident
I have lymph nodes (total 7) around my neck, 1 occipital node on left side (app 1 cm) and 2 on each sides of neck, 3 in front of neck and 1 on right back near spinal cord. All less than 1 cm.
Had mild sore throat few days ago not now. I don't think I have fever.
Had 2 canker sore. Headache couple of time.
Rashes on my neck and chest (on chest itchy)
Yesterday night sweats.
I am not sure if had any cuts or sore on my lips or mouth.
Can anyone please answer these questions.
1) what is the risk of hiv based on my exposure with tongue usage and sores in my mouth?
2) How big does lymph nodes swell in ars? Is it normal to have them around 29 days?
3) which part of neck does hiv lymph nodes swell? Along with front of my neck in regions 1a, 1b, 5 and 6 I have posterior cervical lymph node.�
4) some say cunnilingus has caused hiv in few cases
Some say it has never definitely associated with hiv infection
Which of these 2 is true? I am confused. Even ID specialist have 2 opinions
5) protected blow job and deep french kissing I assume of no risk?
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all my teeth hurt on one side, I went to the dentist and they find no infections so they made me a night guard. my teeth are so sensitive and painful I don't know how to get any relief. I was diagnosed with tmj years ago and pain has never been like this. Can this pain in my teeth be from tmj?
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Has anyone else had this experience? I started out on a low dose and had great results. Now I am up to 1,800mg/day and it doesn't seem to be having much effect. I am actually ok if I am not doing anything, but as soon as I use my foot, it gets so hot I could probably fry an egg on it!
My story: was in a car/bike accident and ended up with the car parked on my foot. Broke all my metatarsals in multiple places, but things were not that bad until...SURGERY. After finally starting weight bearing I found I couldn't really feel my foot, but it worked. Then I had oral surgery and my world exploded. Insane nerve pain in my face and jaw which then transferred to my foot. Anyone else here with CRPS?
Oh yes, and shooting pains up and down my thigh and calf whenever I stand or walk.
Thanks to anyone who responds. Especially interested in those who found the gabapentin working at first and then not and those who are suffering from CRPS.
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I'm 17 years old and have had tmj for the last 3 years. i first was given numerous night splints to see if that would work,they didn't. Next i was referred to a specialist who gave me a night splint which still didn't work. From here i had xrays and then had an mri.
Right side:
There is an anteriorly displaced but intact meniscus, which mostly overlies the articular tubercle. There is thickening of the retrodiscal lamina tissue. The intercondylar head lies within the condylar fossa with a slight deformity to the articular surface. No fluid or inflammation is present in the residual joint space but there is absolutely no anterior translation when the mouth is open. the adjacent soft tissue of the lateral pterygoid, externally auditory canal, parotid and deeper face are normal.
left side:
The left condylar head is normal in morphology. The meniscus is probably normally located although it is quite anteriorly displaced extending on to the articular tubercle with only a small portion overlying the condylar head from 10 o'clock to 12 o'clock. No fluid or inflammation is present within the joint space of note with a small amount of fluid on either side of the intact meniscus more anteriorly. No oedema or erosions are present within the condylar head. The soft tissues adjacent to the joint are unremarkable.
Conclusion:
There is complete anterior displacement of the meniscus on the right which is intact. it now sits on top of the superior boarder of the lateral pterygoid muscle and overlies the articular tubercle. No current inflammation is seen within the temporomandibular joint, erosion's or bone oedema. however on both sides there is no translation during attempted mouth opening.
From here i had an arthrocentesis where he put a cortisone injection in. This also didn't work. From here he put me on amitriptyline for 2 months but that didn't help so we stopped it. 3 months ago I had surgery on my right tmj. My specialist removed the disc, reshaped the bone, and put a fat graft where the disk should be. This also hasn't helped, I am still in constant pain, m jaw locks up, migraines nerve problems and other symptoms. Because of the pain i have only attended 36% of school this year. It's my last year but i am keeping up. Because of tmj i have to stay home next year and study through distance learning for university. My specialist has applied for permission to put me on gabapentin to see if it will keep the pain at bay.
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I've read some of you responses concerning RA & Gabapentin usage. I have been taking Gabapentin since 2000 for various pains throughout my entire body. I have recently been diagnosed with RA, but doctors will not put me on the required meds because I have COPD & Polycythemia which I am continuing to aggravate because of my smoking addiction. For the past month, I have had excruciating pain in my hip that radiates to my lower back and throughout my right buttocks. The pain is so bad, I have had to begin using a cane. I have no insurance. I have increased my dosage of gabapentin (which has been OK'd throughout the years by my DR's) to try and reach a comfort level of reduced pain. I counter the drowsiness by drinking more coffee to get through my workday. I obtain "pain-free" periods with the increased Gabapentin usage, but I also seem overly energetic or "excitable" during those pain free periods. (reminds me how I used to "feel" before the pain began so long ago . .about 15 yrs already). I'm a 55yo man, have many other health issues as well, including deep depression & PTSD. Because of insurance, I'm only purchasing the Gabapentin and have also started using Turmeric to TRY to help with all the other issues. The Turmeric seems to help, so far. Is there any problem you can see with the increased usage of Gabapentin to become "pain-free" and the mood change during those pain free periods? I cannot afford numerous DR visits w/o Insurance and have to earn a paycheck.
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I have been taking 100mg x 3 per day for nerve pain and it seems to be working but noticed i have lost appetite been on this medication for around 2 months
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I am just coming off of Amitriptyline 50mg which I have been taking for 5 years nightly for hormonal migraine. I have a prescription for 300mg of Gabapentin and wondered what experience others have had with Gabapentin. Did it help? Have you put on weight with it? Does it make you fatigued or drowsy? would love to hear your experiences.
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I have been recently told that the law has changed regarding Gabapentin and that I should not drive whilst taking it as insurance companies are nullifying policies for those involved in an accident whilst being prescribed Gabapentin.
I'm told Gabapentin has recently been reclassified along with others similar drugs that may cause drowsiness or affect eyesight, Tramadol, and Amitriptyline to name but two.
Can anyone confirm these changes as driving my motorhome around the UK and Europe is the only pleasure I have left.
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For two years I have been suffering with a burning pain on the top of my head that has been pretty much relentless. I have had an MR I and a CT scan which haven't showed anything. I have also had an MRI of my neck which showed that I have a disc bulge at C5 to C6 but again this is apparently isn't causing the pain.
I eventually got referred to the headache clinic who told me this sounded like allodynia and recommended I start gabapentin. This was two months ago and I have worked my way up from 300 mg a day to 1800 mg a day. It has done absolutely nothing but since last week I have had a proper headache not just the burning that I cannot get rid of. I have had four days off work now because I just feel like I wouldn't be able to function. My consultant is away and the secretary recommended that I just go down to a lower dose of the gabapentin so I am now on 1200 mg but the headache is persisting. It varies between a burning pain and I squeezing pain and moves from the back, to the top and forehead.
I went to see my GP who didn't really seem interested and gave me naproxen which hasn't done anything.
First of all I would like to know if anyone has suffered with allodynia on their head and how they treated it secondly has anyone tried gabapentin and feels like I do and thirdly can anyone give me some advice because I am going crazy!
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Is anyone taking gabapentin and citalopram together cpn is stopping my diazepam 2 mg to put me on gabapentin as she thinks I should still stick to my 30mg of citalopram even tho I'm getting terrible anxiety.
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Was on 600mg Gabapentin 3 times a day for peripheral neuropathy to little effect. Was prescribed Amitriptyline, took 25mg for 3 days then 50mg for 5 days - replacing the 2 Gabapentin at night. Reduced Amitriptyline to 25mg after awful side effects. Took for 2 days with 300mg at night (in addition to the 600mg in morning and new GP said stop Amitriptyline and increase morning dose to 900 mg. Was OK for a while, but then feet and lower legs started severe pins and needles, difficult to walk. Disturbed sleep last night and feet and legs still bad. Is this withdrawal from Amitriptyline? How long will it last? GP rang and said gradually increase Gabapentin to 900 mg 3 times a day and if necessary go to 1200 mg 3 times a day. Any suggestions? Will this gradually get better?
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I've recently changed meds from amitriptyline to gabapentin for a constant headache i've had. I want to have the contraceptive injection but worried that the gabapentin might not work. does anyone have anything similar?
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