My 6 year old has HSP, she seem's well considering, but the rash and swelling is unreal and looks terrible, I wanna help somehow but other than pain killer's for swelling I have no idea what else I can do
View 3 RepliesMy 15 year old daughter about 4 weeks ago came out in an alarming blood rash under her skin on her legs and arms. She had a little blood in her urine but otherwise blood tests were fine. Doc thinks it HSP following a sore throat although this was only mild. On reading the symptoms of HSP most don't apply to her. She's had no sore/swollen joints. The rash seems to clear a little then come back worse again. My question is does anyone know about or experienced a rash like this whilst wearing tooth braces. She's had them for almost a year now. I am allergic to nickel and I've read that nickel is used in Orthodontics often coated so this can wear off over time, which could explain while the condition has only surfaced now. She is close to having them removed so am hoping it may resolve itself as she is very distressed with it.
View 1 RepliesI had two bouts of HSP when I was a child. The first lasted a couple of weeks when I was about five. The next bout lasted for 4 years - from the age of 6-10 years old.
I've never felt truly 'well' and have now been diagnosed with Chronic Fatigue Syndrome/ME and hypersomnia (it means I want to sleep at the time) I was wondering if this could be an aftermath of the HSP?
The rash has gone and so has the swollen and tender joints. Urine samples come back as normal now (not +4 protein and blood in it like when I had HSP.) unless I have a UTI.
But I still have the same abdominal pain and tender joints (without the swelling) and muscles. I feel constantly fatigued and can't seem to put weight on. My immune system is weak and I seem to catch every bug going around.
My Daughter who is 9 has just been told she has hsp, although at the moment she seems ok apart from very bad rashes all over her body and just started a cold.
Is this likely to get worse ? or is there a very mild type of hsp she may have ?
After reading other peoples experience's we are very concerned for the future.
Five days ago we rushed our four year old son to A&E where we were told he had HSP. the hospital were wonderful made our son comfortable on the ward and we got settled for the night at his bedside. we now have a nurse coming once a week to check on him and i have to check his wee in a morning ( which has been clear so far).
I was under the impression he was getting better so i let him go to school and since he came home his ankles have swollen up like balloons though he says there not painful.
i don't know now if i should allow him to return to school or maybe if he could go half day. he loves school and i know he wouldn't get any rest at home as he has a two year old sister. I am really unsure of how to treat this disease as you never seem to know what the next hour is going to bring let alone the next day.
we are praying that this does not spread to his kidneys and stomach as it hasn't done yet.
My fourteen year old son was diagnosed with HSP about eight month ago about the same time he started wearing braces for his teeth, recommended by our dentist. Initially he had stomach pain, swollen ankles, etc. In and out hospital emergency rooms five or six times. Eight month later, rashes are still here. Doctors could not help, no cure. As parents we suspect it is something to do with his braces. We will visit our orthodontist tomorrow to seek his point of view. Does anyone have same experience with braces?
View 2 RepliesI'm a 37 year old man who was diagnosed with HSP in 2007. My symptom was the rash which appeared all over my legs and buttocks. The rash went away but left me with stage 3/4 kidney disease. I feel very scared this will lead to total kidney failure. My recent results doesn't look good with my creatine being 216. This has ruled my life and I'm so upset this could happen to me. The doctors don't know anything. All they have done is put me on 10mg of Ramipril and basically hope for the best. I'm getting married in July to my beautiful fiancé who I love so much but I seem to focus more on this disease and what might happen to me in the near future than her. I'm going to try an alternative way to help my condition. Systematic ideology (excuse the spelling) This focuses on strict diet control, with taking 100 percentage herbal ingredients. The therapy focuses on targeting muscle groups and emotional part of the body. Has anyone else tried this? Would love to hear from anyone in the same boat as me and is there anyone out there that has been in the same situation and continued in stage 3 for a very long time.
View 3 RepliesHas anyone ever used medical cannabis to help treat HSP in children? My 13 year old nephew was diagnosed with a severe case of HSP and was recently released from a week stay at two different Hospitals in Arizona. They have him on two different blood pressure medications (the Hsp caused him to have very high blood pressure) and told him he could take tylenol for the pain along with weekly urine tests and monitoring his blood pressure daily. However, since he's been home from the hospital (3 days now) he can't eat, the pain in his joints, muscles, and stomach has yet to diminish, and his rash has flared up again (ankles, thighs, back). He has zero appetite and a lot of pain and discomfort. I'm curious to seek out treatment that involves using medical marijuana with less THC and more CBD, which i've been told is safe to give children (less of a high but helps relieve pain and nausea) and help get his appetite back. I know medical marijuana is super controversial, especially with children, but it seems steroids and pain medication from doctors has a long list of side effects and other problems.
If anyone has ever tried medical marijuana to treat HSP, please let me know. No doctor will ever talk about or advise us when it comes to outside remedies.......but i'm thinking outside the box, we need to get his appetite back and help lessen his pain.
I had successful hip replacement last September.
Around mid November I began to have chills and tingling in random places all around torso above waist and below neck and only in upper arms
Several doctors, a physiotherapist, a chiropractor later I paid to see a neurosurgeon who said it was nothing serious - he is arranging an MRI scan.
Three days ago I started with a rash with swelling about 4 cm by 2 cm on upper left side of my head accompanied by uncomfortable sometimes feeling around my left eye and a strong headache between the two area.
I am controlling it with Gabapentin cocodamol and ibuprofen.
We have been in Tenerife for three weeks and go back to UK on 22nd March- I've booked to see GP on 24 tha want to ask for check for herpes zoster virus.
Can anyone out there say what is going on?
We're due to celebrate our daughter in laws birthday next Friday..... Should I stay away to avoid co tag ion?
Just out of hospital after having experienced a dreadful reaction to Sulfasalazine. Had been taking it in total for just 6 weeks, experienced the nausea, bloating & generally feeling rough. Then wow, did I have a rash head to foot, fever and swelling. My whole body swelled up & I had to be admitted to hospital in a bit of a hurry as my tongue/airway was swelling to. ? over damage to liver. Have had blood taken every day, liver scan & am now on steroids to combat all the nasty effects.
View 1 RepliesAbout 2 years ago I noticed a knot pop up under my right jaw bone. I thought it was a swollen lymph node, and it only really hurt when I swallowed and would start swelling back up every couple months on and off. Recently the knot had been swollen up more, I can always feel it, but it will swell up bigger when I am eating at times. Along with that for the past couple months you can see a sort of swelling or lumps and redness in the back of my throat ( I don't have tonsils) but that is also on the right side. This hasn't gone away at all, even when my throat isn't hurting. I also have swollen glands under my tongue that sometimes swell more and hurt when I eat. My family doctor has put me on two antibiotics, and I did test and was treated for type C strep, but no swelling went away after that.
View 1 RepliesI'm looking for advice. My 60 year old father (who has had HCV for more than 10 years; previously treated with Interferon but bad side effects) finished his 12 week Sofosbuvir+Daclatasvir (considered same as Harvoni) treatment a month ago. Already first tests after 2 weeks showed virus was Undetected, but yesterday he received his most recent results and he has a relapse of the virus. He is genotype 1, fibroscan result 4 (close to final stage). He is based in Poland and I'm not sure if our doctors are fully informed of the new generation medications and HCV itself.
Is anyone able to give us any advice? We are pretty desperate and my dad is just so depressed as he thought he finally got rid of the virus (he got infected while on an operation in a public hospital) and now it is back...
Are there any specialists that you are aware of I could possibly get in contact with?
A few weeks ago my bf noticed some bumps in his pubic area. He went to the dermatologist and was diagnosed with molluscum contagiosum, which is thankfully not that big of a deal! He got his treated with cryotherapy. Around this time I noticed a few bumps and because of the area they were in, went to an OBGYN for treatment so my bf and I don't keep spreading it to each other. The OB GYN agreed that they were also MC bumps and lightly scraped each one, then applied an acid treatment. That was a few days ago and while the bumps are mostly gone, the skin surrounding each one is dark and almost looks like a scab in color. Is this normal post acid treatment?
View 1 RepliesDoes anyone here relapse after harvoni treatment?
View 3 RepliesI was put on Amlodipine for severe hypertension and the first night i was in terrible pain with my chest and that brought on a anxiety attack, stayed on it for a week and still had spikes in my high blood pressure and chest pain, went back to the doctor and told her and she looked at me like i was lying, changed my medication to Ramipril and the chest pain and anxiety went but i have got a terrible dry cough with the Ramipril so need to come of them too, my blood pressure was very high and i was told it may lead to a heart attack or stroke so now i am in trouble as i don't trust any medications because of the side effects.
View 2 Repliesi'm 18 years old. Im very depressed because of terrible acne situation on my nose .What might help me ?
View 1 RepliesDoes liver damage cause terrible leg cramps, swollen feet and ankles? I also can't sleep at night but I'm always tired and sleepy in the day time.
View 5 RepliesI noticed tremors on my body since I was 12. But it was mild tremors that I didn't care about. But since November 2014 my tremors got worse and now I have tremors all over my body. For example, when I try to do abs my trunk starts to tremble, when I lift my legs against the gravity, they start to tremble a lot, when I try to smile my face trembles, when I'm with my friends and try to drink some tea from a tea cup my hand and my head starts to tremble, and I feel that my neck and my head will start to tremble if I move in a "No" movement, and sometimes when I am in a place with lots of people my legs starts to shake and I get very embarrassed about that and they start to shake even more. So I went to a neurologist and I showed to him the positions that I tremble and my situation, and he said that some people has more physiologic tremor than others (even though I think that I have essential tremor), and he had to give me something for the anxiety, but I tremble a lot, and when I'm cold my body trembles a lot (a lot more than normal people). He gave me Inderal 10 mg to take 3 times a day . But it's not working on controlling my anxiety. I also tried to take 20mg and it didn't work as well and I'm not having side effects too. But the problem is I get anxious because of my tremors and not the opposite . If I had no tremors, I wouldn't have a reason to be anxious. I already went to the only 2 neurologists that I have on my city and only the second one gave me some medication. I really want this tremors to stop. I know he gave me that dosage because the anxiety makes the tremors worse but not even for the anxiety it's working. And I'm going to work out of my country with people that I don't talk and I will get very embarrassed with this tremors... So what should I do?
View 1 Repliesi'm 18 years old and on the first day of my period i have a terrible cramping, if i don't take nimesulide 100 mg when i feel the first signs (usual painkillers like paracetamol or ibuprofen don't do anything, even in high dosage) then then i get diarrhea and even vomit, and the pain seems almost unbearable. I'm a virgin, if it has any importance. Is there a way to stop this, or will i have to take nimesulide every month? (By the way is that safe to use it that frequently?) Even if i take it, it takes 1-2 hours to have an effect, if i don't take it early enough, then even more.
View 2 RepliesI have been prescribed this med called Metformin and I hate it! It's worse than the diabetes! I have diarrhea so bad that I can be sleeping and then wake up to a mess in my bed!!!! I was horrified when I found I messed my sheets and my husband was sleeping in bed as well!! I ended up rolling the sheets up and while he was sleeping, move him over them to get the nasty thing from the bed. I am glad he didn't question why our sheet was missing!! I also feel sick on this medication and it is something I just don't want to be on anymore. Has anyone else been on Metformin and had this happen to them? Have you had any terrible side effects like losing control of your bowels? What other side effects can occur on this dreaded stuff?
View 1 RepliesI've got terrible toothache under a crown on an upper back molar ... wonderful kind dentist has drilled through crown and "cleaned it out" and put me on 1,500 mg amoxicillin per day for 7 days - going back next week, hopefully for root canal. My problem is, I expected to feel BETTER after yesterday;s "clean out" of roots and starting antibiotics but awake half the night last night in terrible pain and felt far too ill to go to work. Pain is making me cry! Taking Nurofen "migraine strength" ibuprofen & lysine and oddly, swilling with boiling hot salt water provides relief even though I can feel throbbing. Has anyone been here? Can anyone tell me what to expect? I don't want to bother dentist if I dont have to as he's already been absolutely fantastic and I feel such a wimp ... but must try to get back to work.
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