My son is 8 years old and has today been diagnosed with first stage Perthes.
His foot turns in when he walks and he has pain in his knee.
Please can someone tell me how to make life in the house easier!
He has been told not to put any weight on his leg at all and has been given a pair of crutches, but is a wheelchair better?
My son who is nearly 8yrs old has recently been diagnosed with perthes.
After a few hospital visits for pain firstly in his knee and then in his hip, being in terrible pain and being unable to walk or put an weight on his leg. we being told he has perthes.
We were advised to return to the hospital in 1 month ( next week) for his hip to be re x-rayed (his previous x ray was normal) and to look up the disease on the internet. Hence how I found this site and others.
My son is not currently in any pain unless he does too much where he then says it aches. his leg is very stiff and has no movement and his foot is turned in.
My immediate fear is will pain (which was horrific to witness!) return or is it possible that the pain is over?
Also has anyone been able to obtain an information booklet on the disease that is appropriate for his age?
My 8 year old son was diagnosed with Perthes last July and we were advised by his doctor to minimise weight bearing so we did the usual things - crutches, Wheelchair and such!
The perthes was caught at the very first stage and the diagnosis at his last visit was good and that my son should only use one crutch now!
However he is in alot more pain during the day and at night he wakes up in pain.
I have been refereed to Stanmore now but my question is is the pain due to the weight bearing and should all his pain be in his knee as his knee is swollen still from first diagnosis.
Is the knee swelling normal!
And do perthes sufferers usually have problems with wetting?
Diagnosed LCPD when i am 11 yrs old now i am 36. now i am having pains, is there any treatment for this ....
View 43 RepliesI was diagnosed very early around 5, so I just had to wear a brace with yearly trips to the Shriners hospital for ortho checkups, the only issue is my right leg is slightly shorter and have had to wear a lift in my shoe. My question is, has anyone had lower back issues possibly due to the Lcpd? I've had lower back issues for several years, I'm 36 is it possibly just older age.
View 19 RepliesI was diagnosed at age 9 and had surgeries at ages 9,11, and 15. I quit running because i would get to about a mile and it would catch with pain. I love running though and am trying to lose weight so i am curious if running would worsen my condition?
View 2 RepliesNot had them long - about a month or so. Very mobile little things and very difficult to not focus on as I keep getting told. Does this get easier with time? Do they honestly ever become much less noticeable/not seen?
Particularly the ones that bounce around in your line of vision 24/7?
I have moderate growing pains in my left leg (front of the calve) and I'm 16. Ever since I can remember myself I've had growing pains just in my legs at the front of my calves but it's mostly in my left leg every now and then, and it usually happens when I stay up late at night. Sometimes it's so bad it wakes me up and I'm crying all night and can't sleep and sometimes i can just wait for an hour or so until it's gone. I checked online and I think I'm too old to be having growing pains and I wanted to check of everything is normal.
View 1 RepliesI have just been diagnosed with CKD stage 3 (GFR 48) and I can't understand why. I have low blood pressure and don't have diabetes. I am slim fit and healthy and age 52 so not that old. I also have a low white blood count. Can anyone shed some light? My GP does not seem worried, and so nor should I be, but I feel uncomfortable not knowing what has caused this.
View 3 RepliesHow can I improve my Stage 3 kidney disease, having a G.F.R. of 34?
View 6 RepliesI'm 10 weeks pregnant with our first child and I think I've hit the emotional eat everything stage. I can't stop eating I'm like the hungry caterpillar or something, but my husband's in Arizona for work and I'm in Virginia and I just wanted to talk to him so I hop on FB and I see he shared a video about 40 minutes ago so I send him a simple hello message and no response. It just makes me feel like hey pregnant wife should be the first thing you talk to when you get off work considering I'm your wife and pregnant with our baby. I went from so mad that I wanted to punch something to crying am I wrong for feeling this way ?
View 4 RepliesHi! I'm going to preface this post with some background information: I'm 19 and I've been suffering with constipation for my entire life (my parents have videos of me straining to have a BM when I was still in pampers). It wasn't until last year that I was diagnosed with constipation by delayed colonic transit and put on Miralax to help move my BM's.
Unfortunately, because this diagnosis came so late, I've been straining to have BM's for the past 19 years, changes in lifestyle (diet, exercise, fiber supplement, etc.) all for naught. This straining led to hemorrhoids, which brings me to this forum. I've been dealing with hemorrhoids since elementary school, and when I have a flare up, I'm practically debilitated from the pain– my last flare-up kept me awake for 3 days straight and gave me multiple migraines. The flare-ups happen once every few months, but can last up to a week.
I wanted to know if anyone on here has had a hemorrhoidectomy, and what their experience with the procedure was like. I'm figuring that my hemorrhoids are AT LEAST a stage 3, and the surgery looks like the most permanent option. Also, if anyone has constipation by delayed colonic transit and as a result have developed hemorrhoids: how have you dealt with it? What has worked for you?
I see a lot of the post-op for a hemorrhoidectomy has to do with the intake of fiber, but too much fiber can actually make me MORE constipated. :(
Any thoughts, opinions, or personal experiences would be a LIFESAVER. Thanks for listening to my rambles!
I am a 34 year old male who was diagnosed with hemochromatosis only after a liver biopsy because i only have one of the genetic markers. When diagnosed my ferritin was over 5000. Shortly after i was diagnosed with stage 4 cirrhosis of the liver. Is anyone out there in the same boat as me.
View 14 RepliesI have recently been diagnosed with Parkinson's disease and am worried and confused. Are there exercises I should do? I am not on medicine but I understand that there are some that should be considered. Which ones are best for the early stage of the disease.
View 4 RepliesI recovered from stg 3 Sarc (in lungs, lymph, joints, sinus) 13yrs ago, after 5yrs of illness and 2yrs of steroids.
I now have Erythema Nodosum (sp?) - red painful bumps on lower legs.
Research suggests that 'EN' is associated with a specific version of Sarc, Lofgren syndrome, which is usually resolves quickly and without treatment.
I'm scared to go to the Dr, as I don't want to face the tension & round of tests to exclude a Sarc relapse. It's not something I want to go through again...
I wonder if it's very likely for a relapse to come with a whole new presentation of the Sarc? Or is it unlikely to be sarc, as I never had EN the last time?
Does anyone have any experience or advice which may help me decide what to do?
Best wishes to all who are currently battling with their Sarc, I truly understand your pain and your exhaustion. I was not expected to recover last time - but I did.
I was told way back in August of 2013 I had copd. Smoked for 33 years. Started when I was 13. Did stop smoking in October. Now on 12 meds daily and get out of breath doing just about anything. I own a lawn mowing biz but getting harder and harder to do my job and getting ticked off clients because I cant keep up. Have been getting real depressed about everything. Someone told me to keep a daily blog about my life with copd. Started that about a month ago. Its somewhat therapeutic, it at least lets me get stuff off my chest so to speak. And maybe someone will read it and go hey i'm going through the same crap. In my case its hard to find folks going through it or those that do who even want to talk about it. So if your getting depressed i would recommend doing a blog. No one may ever read it, but you will be able to get out all the stuff you want to say. Thanks for listening and i hope you find what you're looking for.
View 3 RepliesI'm a 37 year old man who was diagnosed with HSP in 2007. My symptom was the rash which appeared all over my legs and buttocks. The rash went away but left me with stage 3/4 kidney disease. I feel very scared this will lead to total kidney failure. My recent results doesn't look good with my creatine being 216. This has ruled my life and I'm so upset this could happen to me. The doctors don't know anything. All they have done is put me on 10mg of Ramipril and basically hope for the best. I'm getting married in July to my beautiful fiancé who I love so much but I seem to focus more on this disease and what might happen to me in the near future than her. I'm going to try an alternative way to help my condition. Systematic ideology (excuse the spelling) This focuses on strict diet control, with taking 100 percentage herbal ingredients. The therapy focuses on targeting muscle groups and emotional part of the body. Has anyone else tried this? Would love to hear from anyone in the same boat as me and is there anyone out there that has been in the same situation and continued in stage 3 for a very long time.
View 3 RepliesHow long after a stage 0 lumpectomy , can you wait befor you receive Radiation treatments !! mine is held up due to my HMO Ins. I didnt need Chemotherapy!
View 1 RepliesI have had perthes disease since i was 6 i was on the bed rest i am now 24 years old and i still have it.
i also have arthritis too in my hip and i also need a hip replacement now all because of perthes it has made my live very hard.
I am 39 years old and was diagnosed with Perthes when I was 5. My treatment started with going into hospital and having casts put on my legs so that I could have a set of splints made which kept my legs apart with a bar in the middle, I wore these for 22 hours of the day for about 18 months, I think (it was a long time ago). Little bit awkward for walking but great if you pivot around on your good leg and get your older brother in the shins with the bar! The splints didn't work so they tried traction and that didn't work so I ended up having five ops from about the age of 7 through to the last one at 19. I must admit that I do get a lot of pain with it (by the indication given in the information on this site, I think my case was quite bad)and movement restriction, but I have worked my lifestyle around it and there are things you can do if you don't want to go for more treatment. I have decided that I'm not, so I do yoga which keeps my joints supple and helps me sleep, hot baths with lavender essential oil is very good also, keep your legs warm and don't let your feet get cold because I find that also causes more pain. I've had me fill of hospitals and ops, so I'm going to do my thing and let my hip(s) get on with theirs. My regards and best wishes to my fellow sufferers. Don't let other folk tell you what they think you should do (when they haven't got perthes) deal with it anyway you want to, after all it is your pain.
View 1 RepliesI have been diagnosed with Perthes when I was 15 and have had pain since then. I had limited mobility but was able to live my life till now. 2 weeks back there was a severe pain in my right hip and i have been given strong painkillers and steroid. It helps but the pain is still there. I have been told to look at total hip replacement as an option.
View 3 Replies