Migraine After Idiopathic Intracranial Hypertension Cured
Oct 2, 2014
For over a year I have been suffering with idiopathic intracranial hypertension which ended up with me needing a stent inserted earlier this year. I have been left with horrendous headaches which has now been diagnosed as chronic daily migraines. My consultant has now suggested the following plan; reduce caffeine to zero (only drink 3 cups of tea a day anyway), no cheese chocolate or red wine (don't eat or drink these anyway). Propranolol beta blocker as preventative. Sumatriptan, Aspirin and Domperidone as acute attacks rescue plan. He also put me on waiting list for nerve block injections.
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have had intracranial hypertension for 7 years i am coping well at the moment with the diamox tablets 25omg 3 times a day and i go into hospital every 6 months for lumbar punctures.i did go away 3 years ago but returned a year later worse but controllable.there is light at the end of the tunnel and i do get a lot of other symtoms but i just try and deal with it even though sometimes its hard i am 43 now.
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My 12 year old daughter had had headaches for some time and her endocrinologist advised her to have an eye test. I say 'endocrinologist' as she was born without a thyroid gland (extremely rare) and she's been taking thyroxine since she was 10 days old. She's also monitored for her hypothyroidism. Anyway, between her doctor's appt and her eye test, she got her first period. So we blamed her headaches on her development. The ophthalmologist said that my daughter needed to increase her lenses. So again, we put her headaches down to this. By time, her headaches moved down to her neck and 4 months later, at another routine eye test, I mentioned this and the ophthalmologist decided to look behind her eyes. He was horrified to see extreme swelling of both optic nerves and a swollen brain. She was admitted into hospital and had a CT Scan done. Luckily there were no tumours but a lumbar puncture showed that her CSF pressure was 50 (it should be 15-18). She was immediately started on diamox 250mg (acetazolamide). After a few days this dose doubled. Today she has just had her 6th lumbar puncture and as the pills don't seem to be working - her CSF pressure is on the rise again, her medication has been increased again. She's taking 2g per day (750mg-500mg-750mg) daily, which i think is too much for a child. On the 23rd July she's having her 7th lumbar puncture and also seeing a neurosurgeon, because inserting a shunt seems to be the only solution. Lets hope and pray all will be ok.
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About 3 months ago I had a sinus infection and never recovered after I had terrible like pressure building up in the left side of my head which would happen more at night or basically when I would lie down i also when my ears touch the pillow I hear my pulse and on the right ear only when I press against the pillow a clicking noise I would later develop sensitivity to bright lights sounds and smells.
I made 3 trips to a and e with the pressure building in my head on the last occasion it affected the left side of my body they just sent me away
I payed private for a neurologist did MRI on brain came back fine he diagnosed me with severe migraines and put me on propanol these have calmed the symptoms but I am worried as I am still left with a dull pulsating on the left side and have a bit of blurred vision suffer a lot with fatigue and when I try to exercise it kind makes my head
worse and I have noticed pain in my neck and shoulder on the left side had my eyes tested but said they were fine .
The thing is I am left with is like a dull pulsating on the left side with still sensitivity to light no energy I am not sure if this is chronic migraines just wondered of anyone had any ideas to what it could be I have been better since taking the medication but it worrying that it's kind of still there I also have irritable bladder and ibs and have been referred to a chronic fatigue clinic but I don't think that is the cause of my fatigue
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I was diagnosed 3 years ago and recently spent a week in hospital due to a headache not moving my eyesight went with it this time for the first time ever and I was driving with my 7 year old in the car it really scared me yet I had a lumbar puncture pressure was only 24 but my speech has been effected my eyes keep blurring this headache has been here for 10 days now and still no budge when I was in hospital they said both my optic nerves were swollen and I seen my neurologist today and he says it's just a migraine. The first 4 attempts at lumbar puncture they did in the wrong place so was unsuccessful and have left me in agony can anyone suggest what I can do I am not overly obese but all's my specialist says is lose weight they will stop
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I was diagnosed in October 2006, after been admitted to Hospital with suspected Meningitis. They did a Lumbar Puncture, and the CSF pressure was very high, I was shipped out to a Hospital in Sheffield - Away from Uni, and even further away from family.
It was confirmed I had BIH.
Ever since, I've had to have Lumbar Punctures every 6-8 weeks, with the CSF always way too high. I was put on Diamox too, which didn't do anything at all. I'm now on Topiramate (Topamax), which also doesn't work for me.
I thought it was just people around me deliberately not understanding how painful and disabling it is, but after reading your experiences, it seems not many people understand.
Woke up this morning in pain (like most days), with dodgy vision and loss of coordination, so time for another LP!
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I am a fit, healthy 28 year old guy who has spontaneously developed severe high blood pressure, temporal pressure headaches, dizzy spells and blocked ears. The symptoms vary, with acute periods lasting a couple hours and occurring on a weekly basis. Generally an acute period is characterized by severe headaches, needing to lie down, blocked ears and extreme lethargy.
I have had CT’s and MRI’s of the brain and cervical spine, PET scans, ECHO’s, a multitude of blood tests and various other tests with no abnormalities.
I gym 4 times a week, eat healthy and work as a hairdresser, so my lifestyle is pretty healthy overall.
This condition is starting to limit my lifestyle and with two years of no answers I am putting it out there for someone to recognize or provide advice about what could potentially be going on!
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My only sister has just being diagnosed with BIH which tells me surely its genetic.
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I never suffered from migraine attacks until I was in my mid-40's.
They seemed to be linked to the beginning of hormonal changes related to the start of menopause. I would get a pain over my left eye (usually, though right occasionally), with a feeling of nausea and sometimes slight numb feeling on the side of my face. I would turn quite a pale white colour, and also feel very tired, yawning a lot. I would take medication, migraleve tablets and lay down in a darkened room. Usually, I would recover within 24 hours, though I would feel 'worn out' for a few days after the attack.
Since I have discovered by self analysis, that citrus fruits, especially orange juice (which I no longer drink), chocolate and strong coffee all seem to be triggers, which I try to avoid.
For the last five years, I have been clear of migraines, but have now started to get them again. I have passed the menopause but have had a lot of stress in my life recently, so I wonder if this is the cause of the recurrence? My last attack was quite different from the others I have experienced, in that I was feeling fine (though had been really tired the day before for no apparent reason) when I suddenly developed black zigzag lines across my left eye (very frightening at first). These went on for about 10 minutes and then slowly I developed a severe migraine, though this was not over one particular eye, but both. I had feelings of nausea and also felt cold at times. I took Migraleve pink and yellow but the headache is still persisting the next day. I wonder why I developed these other symptoms of visual disturbance. Can stress really do this to your body?!
PS I know there is a family history of migraine.
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I had classic migraines through my teenage years which stopped for a couple of years before continuing at on average one every couple of months with the odd instance of a back to back cluster of 3-10 at once. They were always the same 20 minute aura then axe in the head pain and repeated vomiting for 6 hours followed by a 24hr hangover. Over the years I have tried all preventers with only Epilim and Topiramate working for 18 months. I built up tolerance to Epilim and Topiramate gave me side effects that ended in a blood disorder so cannot take either any more. Beta blockers and antidepressants never worked and Lisinopril was also a short lived waste of time. The only triptan that ever worked was Maxalt rizatriptan but again it lost its effect after 6 months. Something weird has now happened and I wonder if others have had this? I am now 36 and in the last 6 months my migraines have totally changed. I still get the aura but if I take Express Nurofen and an anti sickness tablet straight away or use a heat pack on the back of the neck no pain or sickness comes just 6 hours of extreme tiredness. I always used to throw up any tablets so this is a miracle however the frequency has stepped up to between 5 and 20 a month so it is really impacting on my life. I have had an MRI and all is normal. I have also tried supplements and alternative therapies with no success. Botox and nerve blockers are the next suggestion but will they treat this scenario if there is no pain? Will it stop the aura too and prevent the whole episode? Help!
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So to make this as short as possible. About two and a half years ago I had a really bad low blood sugar episode. I'm not a diabetic, I wouldn't say diabetes runs in my family considering only a few have it. I had a really bad diet years ago, few energy drinks a day, cigarettes, and junk food out the ying yang. Now the day it started I hadn't eaten much so it could of happened to anyone. Felt all the symptoms, and thankfully I work at a hospital so when they checked them it was a 47. Ate some food and felt better. That day after all those years of bad food I cold turkey quit all the bad foods and energy drinks. Didn't stop smoking though. I was very active, I mean skateboarding for about 10-12 hours a day. Very thin, about 125 pounds from the age of 15-21. Well since that night it happened I became a very panicked person. I started binge eating because I always felt the symptoms of it, although sometimes I couldn't tell the difference between anxiety and low blood sugar. So I would check my sugars, sometimes they would be fine, other times they would be below 70. When I panic they get worse. Well now I eat the same thing everyday, eggs, spinach, tomatoes, cheese, chicken, protein packs, low calorie gatorades. No sweets what so ever, and I've basically become agoraphobic because of my sugars all the time. I always feel dizzy, weak, shaky, faint. But like I said sometimes I can't tell the difference. These winter months seem to get worse, now lately I can't even tell when they're getting low. Earlier today they were 67 and I couldn't even feel it. I used to though. My anxiety has gotten a lot better but not fixed. I'm afraid it'll drop in my sleep and I won't wake up it's horrifying. No meds ever, no surgeries, nothing prior to this. Always healthy as could be.
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I've got idiopathic dilated cardiomyopathy. I have Afib with this and keep getting extreme tachycardia which means I have to go to hospital to get it controlled. I have asthma too. I'm in Europe and have good doctors - I was in hospital Saturday night into Sunday - I called my doctor as my heart was beating so fast and irregularly, and it was having long intervals of no beats - I have a stethoscope and could hear nothing at the apex and I've been taught how to auscultate, and I was very very breathless. She was very worried and sent me to hospital. After being stabilised, I saw a a cardiologist who did loads of tests and said my heart was very much more dilated than before. On discharge I've been given 02 to breathe if I feel breathless.
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When I went in for a routine pelvic exam, I tested positive for Chlamydia. I immediately received treatment, and informed my partner that he needed to be tested and treated as soon as I was able to, which was 5 days after. Of course he wanted to have sex (even after I told him the news) and I finally agreed, but only with a condom on. He then got treatment the following day. We were informed by our health clinic to abstain from having sex at least 7 days after receiving treatment, but of course like the absolute idiots we are, we didn't. Because I am the big idiot that I am, I had to receive a second round of antibiotics which meant him and I both took them the same day following intercourse with protection. Not sure what our issue with being celibate for 7 days is exactly, but we had sex this past Tuesday with protection, but only a day after taking the antibiotics. I felt a little bit of discomfort when urinating afterwards, but assumed it was due to having sex. Just this morning, he prompted me to have sex again, and we did with protection, but afterwards he continued to try to have sex this time without a condom. I don't need anyone to tell me how idiotic it was to allow him to have sex with me without a condom, but I can't change what happened now. After having sex a second time, unprotected, this morning I had the most excruciating pain while urinating. I wanted to cry it hurt that bad. My partner has also experienced some discomfort while urinating after having sex this morning. I guess what I would like is some guidance, answers, suggestions, possible diagnosis? I am currently assuming the worst that him and I have indeed re-infected ourselves, but just wanted to throw my predicament out there for some outside opinions.
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I cured my BV by drinking LOADS of water. Maybe 4/5 litres a day.
I tried everything I could afford to try as a broke student. So from garlics to yoghurt to antibiotics to overpriced creams. I visited 4 doctors and none of them helped me much. I burnt the inside of my vagina with all the nonsense I did. My vagina got so bad that I couldn't want for longer than 5 minutes because I would be in so much pain and desperately need to scratch. I used to spend all day in my room with my legs wide open because my genitals wore swollen and they hurt so much. I even remember crying and not being able to sleep. LOL! It was horrible!!
Anyway I started noticing the only time my vagina felt half decent was when I was weeing. So I started drinking more water so I could wee more and the more I weed the less I itched. I drunk 4/5 litres of water for 3 days and really tried to flush out my system and then it just stopped. No more itch. No more discharge, no more stink.
The sad news is I have it again. It's quite mild at the moment but I'm going to start drinking water like crazy again. Hopefully it works again.
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I have suffered for years with bv and tried just about everything! Here's what worked for me, it kinda happened by accident but I've been bv free for almost two months, I have been sexually active and even after my period it has not returned. There is no douching of any kind in my cure. Hopefully this helps all or some of you as I take into account that every body can react differently. Best wishes and relief to you all!
Upon waking (before eating) have large glass of water with a good squeeze of fresh lemon. Take a femdophilus pill with water.
After breakfast take an Alive Once Daily women's ultra potency multivitamin.
Drink water with fresh lemon throughout the day at least 3 large glasses.
That's it! Also, Try not to eat tons of sweets or too much red meat.
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About a year ago I asked my doctor to diagnose the episodes I had been having most of my life.
These episodes that made me feel detached, listless, dizzy and sometimes short of breath, would last for 10 or 20 minutes or sometimes two hours. The doctors, I had previously presented to, could find nothing wrong with the lungs or heart. I was once sent to specialist who thought it might be a type of migraine.
Anyhow my doctor thought it might be atria palpitations of the heart so I asked him if the next time I was in town, and had an episode, could I come in to see him. He arranged for an alert to be put on the receptionists' computers so I would get a ECG reading/printout immediately.
And so it happened, the resultant reading showed the heart beating 140 bpm ( should be 70 bpm for me)
“Ahh SVT!” the doctor cried, - Supra Ventricular Tachycardia, the electronic pulse finds a quicker way to go but in doing so causes the heart to beat faster.(Not as serious as Atria Tachycardia.)
“Don't drink any alcohol, coffee or tea.” said the doctor.
There are techniques on how to reset the heart back to normal.
I found the best way was to just lie down on the carpet for 10 minutes or so. It was a relief to actually know what the condition was at long last. I could live with it, or so I thought.
There were times when I couldn't reset it and it would last longer and made me feel completely debilitated.
Not wanting to go through the ablation surgery or have a pacemaker fitted, (not having any faith in these procedures), being a Christian I decided I should pray about it and leave it at that.
With a busy life and everything happening, now that the family had arrived from England and living with us, I had forgotten about that prayer time. Then one day, about three or so weeks later I said to my wife “ you know I haven't had an SVT episode in over three weeks?”
So in my next prayer session I thanked God in faith for the healing.
That was six months ago, and, praise God, I haven't had another episode. I drink the occasional glass of wine with my meal and drink coffee and tea every day.
I sometimes get the flutter in my 'solar plexus' area, that previously would indicate to me that an SVT episode was about to start, but now it just stops.
The only cures I have seen offered are ablation, dietry, drinking lots of water and taking a supplement of potassium. I didn't try any of these.
I haven't read of any 'spontaneous healing's for SVT, such as mine, have you?
So I do believe that God can heal you. It just takes honest fervent prayer.
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does anyone get cured
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I was getting severe leg cramps several times a week. Since being prescribed one quinine tablet before going to bed, they have completely disappeared. The cramps were sometimes in my calf muscles but mainly in my ankles, feet and the muscle at the side of my leg.
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I don't post a lot on here but wanted to share with everyone the miracles that exist now for treating Hep C. I saw my doctor on Friday and she let me know that my 12 week post treatment labs after 24 weeks of Harvoni came back with a negative viral load and that I am now cured (12 Week SVR). This was my 3rd treatment and thanks to God, it worked. There is hope for all of us. I have had Hep C for 30+ years and am a Genotype 1A, with a Fibrosis level of 3+. As a 3+, I still have an increased risk for HCC, so I will continue to get lab work done every 6 months, ultrasounds every 6 months and a CT scan every 18 months. I encourage everyone to keep on treatment - we are at a place where so many of us now have a chance for a cure!
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My new girlfriend, who I like very much, was very open with me about the fact that she had a blood transfusion as a baby for several surgeries she had to have, which left her HCV positive. She and I were about to move into the sexual part of our relationship, so we both got tested for STDs to show each other we had a clean bill of health. Well as it turns out, her bloodwork showed she was HCV positive again...this is after achieving SVR (not sure for how long she had achieved this yet). She told me and was very upset, so I obviously just gave her a hug and held her. No other way to respond she was so upset. I'm curious, does anyone on here have any experience with this? Possibility for false positives or possibility for her to need to seek additional treatment? I hope you can forgive any questions that may seem ignorant. I am mostly focused on her health, but naturally I'm also concerned about the implications for our future relationship (I understand it is very low risk to pass it to me through sex, but still, I'm human, and I'm just carefully looking at this situation). If anyone can shed some light on her situation, I'd love to hear it. She's a great woman and I'd like to get any info for her that could help.
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I've had BV for 20 years, but have found that it's got worse over the last 5 years. Balance activ controls it until I next have sex, or have my period, then it inevitably returns with a vengeance. I've tried folic acid, fem dophilus (which worked but is too expensive for me long term)salt water douching etc.
However, on this occasion, I douched with salt water for 2 nights before bed to kill the bad bacteria and followed with a balance activ pessary to nurture the good, the next 5 nights I only used the pessary. I only wash with plain water, have taken folic acid and vitamins c and d and I'm eating a fage Greek yogurt with honey (from asda) every day as it contains L.Acidophilus probiotics. I've also reduced my sugar intake.
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