Multiple Sclerosis :: Stiffness And Pain In Neck / Back Of My Head


Jul 3, 2016

Just joined and recently diagnosed with RRMS.

I am going out of my mind with worry over some unpleasant symptoms I have been having the last six days.

It started with stiffness in the right side of my neck and at the back of my head, similar to a tension headache but more severe. I have intermittent pain in my right ear, occasional muffled hearing, my neck feels sore to touch, especially at the gland. When I lie down or lean forward/bend over, I have a whooshing sensation in my ears like I can hear the blood pumping.

I have felt dizzy and unsteady at times with waves of nausea.

As I have had no follow up since being diagnosed by the Consultant and have not had an appointment to see an MS nurse yet, I consulted some online MS sites to try and make sense of the symptoms. I thought I may have a muscle spasm and mentioned it to my GP when I saw her on Friday. I was 'told off' for Googling symptoms and told to "stop trying to hang everything on MS".

She ruled out an ear infection or virus and said it was more muscular, however, poo-poo'd a spasm and said it was more likely it was muscular tension following the diagnosis, worrying and getting myself worked up.

It is a different pain to the tension I am used to and tension has never caused me to feel off balance and nauseous. I was given a five day course of diazepam to relax the muscles, however, have only taken one at bedtime on 3 occasions as I need to be able to drive and function at work. They haven't helped particularly.

I was given a 5 day course of Methylprednisolone, 500 mg by the consultant, for neuropathic pain, I finished these last weekend (26th June). A friend who has RRMS suggested it could be side effects of the steroids as her neck and face always swell after she has taken a course and she feels unwell for weeks afterwards.

I am finding it really difficult to function, I just want to lie down all the time and can't get anything done. It's causing me massive anxiety not knowing what is causing this.

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