Polymyalgia Rheumatica :: How To Do Repetitive Movements - Sitting And Walking
May 18, 2016
I'm really in need of working my body. Now with osteoporosis diagnosis and so much muscle loss and Trochanteric Hip pain back, and other PMR pains still there when my Pred wears off...
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I need to exercise, but I'm confused...
I know, low reps. I should repeat several times a day, but forget.
I'm about to start PT again for hip and will make sure this guy doesn't make me work out to failure like my last experience, ugh.
I have a video for Qi Gong, but I don't like it as he seems to stay with same motion for so long. But as I type this I realize I could just stop and focus on breathing exercises...ha, answered that question.
My butt muscles are so gone now I struggle to keep pants up.
I do squat exercises but am I doing enough? I feel fairly strong, but I weigh so little now perhaps it doesn't take much.
I lift weights for my biceps, they actually look pretty good for a woman, Hee, Hee.
I know we are all different, when I feel good I try to do a little and I mean little extra, but sometimes I'll have new pain. Yoga I can do pretty well, but do tend to push myself...is it too much? I don't know. It is a gentle yoga class, very slow, I like it,,good teacher.
Not sure what I'm asking y'all but maybe just need to hear what others are going through. Those who still feel pains, what kind of exercises are you doing? Yes, I'm back up to a whoppin' mile walking, but sure would like to do more.
Do you walk several times a day? I walk a lot around house but does that count? Yes, better than sitting I know.
How is it that most of you say walking helps you get rid of the pain? If I walk for 20-30 mins I have pain which takes ages to clear up - sometimes into the next day, or even the day after (and it has since the PMR started). Exercise is good for you! OK, I know that, but what do you do if you get more and more pain by doing it?
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I don't know exactly where to start or how to describe my issue, but I know something isn't right. 2 days ago I woke up as I normally do from a good night's sleep and immediately knew something wasn't right. I was feeling faint and dizzy, but it wasn't a constant feeling that wouldn't go away. I would have these episodes about every 5 or 6 seconds apart from one another. 2 days later (today) it hasn't gone away and it's actually getting worse. It feels like I'm getting hit with a hammer and that's when everything starts to go faint and an instant dose of dizziness smacks me in the head. I honestly feel like I'm going to just kill over and pass out, but I don't. after a few seconds it stops, but then after I take a few more steps it does it all over again. This happens whether I'm standing up, walking, sitting down or even laying down. It just won't stop. Prior to this, there was a week where I got about 5 or 6 major migraines in one week. Not sure if this is related or not? I have no ins.
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I'm 27, I got ejected out of a car at 17. I broke my hip and shattered my pelvis. My first surgery was to reconstruct my pelvis than a year later I had a total hip replacement. I hurt every single day, the worst pain is from sitting to standing and walking that initial step on my bad hip is excruciating. I don't take pain meds anymore if anyone has any tip for pain relief.
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When I sit I feel pressure on my head and when I stand or walk my legs are like trembling ..
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Back few months I had dizziness problem which has been cured but after that I'm feeling that pressure on my had while sitting or standing .Ive consult my near doctor he said to Me wait for 6 days and stop eating oily food.
My age is 23 and weight is 85Kg height 5'11
mri 5 weeks ago
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L4/L5 broad based posterior disc protrusion contacting transiting nerve roots
L5/S1 disc dehydration mild disc bulge probable annular tear.
Just seen neurosurgeon who says back and leg pain not caused by this where is pain coming from then.
pain burning lower and middle back and buttocks weakness In legs.
Chronic pain on walking,sitting,lying down or twisting please help
Scheduled another mri as soon as possible
partial knee replacement was done in October. I did all exercises and everything was fine in November - January. Toward the end of February I began experiencing pain upon walking after sitting for 15-20 minutes. I'm limping and it is painful for about 30 steps. It is getting worse. What could this be? My doc is out of town until April.
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I love fruit and eat plenty,also i have Manuka honey, my question is as we have to be aware of diabetes should we be aware how much we eat, does our body process natural sugar in a different way to processed sugars.Just a thought, been awake and up since 5.30( and was hungry so thought have some fruit before breakfast then thought am i having too much)
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I've been experiencing some aches and pains over the past few days, it started off with aching in my wrists up to my elbows, now my joints in my legs and ankles are aching, also a bit of a stiff/ sore neck and top of spine is sore. In general my whole body is aching, feels sore to touch, throbbing and from time to time can get sharp pains. I don't have any rash as yet.
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I have been in contact with chickenpox lately so didn't know if Id caught anything from that at.
I was thinking about PMR and although I am very nearly stable on 10 mg Prednisolone it is a knife edge dose. I still have many side effects from 4 years use of the steroid. In some kind of order they are:-
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Muscle wastage, fatigue, lassitude, thinning of skin, easy bruising, cuts which take an unusually long time to heal, glaucoma, dry eye, exacerbated and premature cataracts which necessitated operations on both eyes to replace the lenses, virtual permanent stiffness and loss of motion in neck, constant shoulder and back pain, balance problems and now a recent discovery which I believe to be bronchiectasis. The last manifested itself with a slight productive cough I have had for about a year, with a shortness of breath which is steadily getting worse. Initial exam by GP showed no ‘crackle’, X-ray was ‘normal’ blood ‘normal’, whatever that is. Have seen this GP who gave me a course of amoxicillin (5 days) which did nothing. Then just left me to get on with things, no follow up, nothing. Not sure what to do next. I can see any one of the other doctors at this particular practice and am thinking to see one of them soon; well at least I can try for an appointment, currently 2 weeks!
Now the latest manifestation…..Shingles. Or to give it its proper title
Herpes Varicella-Zoster. A particularly painful affliction caused by the chicken pox I must have had as a child. It has affected the left side of my scalp, my left forehead, eye and face; I am not a pretty sight! By the time I knew what it was it was too late for any anti viral medication so will just have to let it take its course. Existing on Paracetamol, Codeine, Neurontin and the occasional Tramadol. All of these analgesics are for a short time only, don’t want to get hooked. Managed to see a doctor reasonably quickly about my eye who sent me to the eye unit at my local hospital, ophthalmologist examined the eye and gave me the all clear, phew!
On top of all this I have the daddy of all flares I put the cause of this down to the trauma of my new affliction. My immune system is compromised due to the daily use of 10mg. Prednisolone which I have increased to 15 mg. for a short time. It appears that any kind of trauma either emotional or physical will set off a flare.
I wondered what causes a flare in other sufferers from PMR/GCA and do they do as I do and increase the dosage of steroid and try to rest? Or is there a magical cure I should know about?
Long ramble I know but strangely feel better for writing it, apologies if you think I’m wasting your time, or a hypochondriac. (I’m not).
To my knowledge I have never had chicken pox. I have been taking Pred for three years and am now down to 3mgs from 15. My granddaughter is with me with chickenpox. Should I be worried please?
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I was told years ago i haf fibromyalgia but now my blood work shows a high sed rate
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Background: I am 66 years old and have suffered first attack in mid November 2015... I have been fairly active person and have done some triathlon in the past, so not being able to get out of the bed on my own was pretty shocking to me... It took about one month to diagnose PMR and I started medication (prednisone) at 15 mg/day mid December.
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If there is an interest, I would like to post about the progress in recovery, with special attention to exercise. I am seeing specialist every 2 weeks and complete blood work is done to monitor inflammation caused by PMR.
I would like to post what I have done thus far and future progress in (hopefully) successful recovery.
Has anyone tried Q10 supplements, and are they alright to take with pred.
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I have recently had blood tests again and have a low esr. I have symptoms of pmr and discussed these with my gp. I begged her for prednisolone and she reluctantly agreed but only one week. I felt great! I was walking normally, getting out of bed for the whole day where I was bed bound a lot before, just felt so wonderful having so little pain in my hips and shoulders. My blood tests came back normal and she said she cant give me any more and is referring me to rheumatology again. The pain has come back, my hips are crippling me my shoulders are so so painful again and nothing else has worked, just the prednisolone. My orthopaedic specialist may give me one more injection in ten days, vpbut that will be the third and he said 3 is the max so I should have relief for 3 weeks, if previous injections are to go by but after that.
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For the last week or so, I have been getting short of breath, and very dizzy, feel like I am losing my balance, and my heart is racing. I have never had panic attacks, and this seem to start strangely enough when I have been reading....and then the weird feeling lasts the rest of the day.
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Is it possible it`s the 11 mg pred I`m on? (have been for 4 years) Just can`t pin down what`s causing it! My blood pressure is ok....not diabetic...
I am wondering if gum inflammation is related at all to the PMR, GCA. I will see the dentist in a couple of days. Thanks.
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Does anyone know whether cannabinoids have been clinically studied for PMR? There has certainly been a study that shows they may be effective against the inflammation in other diseases. Google: cannabinoids and inflammation.
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Just wondered if anyone on here has trouble with their Achilles Tendon? First thing after resting a while and if I've walked far too much they get very very stiff and painful! There doesn't seem much flexibility in either ankles. I didn't have problems with them when I was first diagnosed with PMR, only now 10 months into the condition and in 7 mg of pred!
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I have been a regular migraine sufferer for 34 years, averaging about one per week. I've been on prednisolone 15mg for a few weeks now for PMR, and not the slightest hint of a migraine. Could it be down to the steroids? I'm not happy about taking them, but maybe every cloud does have a silver lining!
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I have severe bruising on my arm. Whole right arm. Super ugly. I've been diagnosed with pmr for three years. Could be down to 5 mg. However, had major insect sting and hives and reaction. So, went back up to 40/20/10 mg prednisone for 12 days per Doctor. . Doctor gave me steroid shot, too. Please tell me that this new super dose of prednisone may have caused all this major bruising? If so, maybe can tolerate for a month or more?
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