Severe Iron Deficiency Anemia - Two IV Injections A Day
May 21, 2015
I have a friend who has had iron deficiency anemia since she was like 18 years old from what i heard. She's now having severe iron deficiency anemia and is having two IV injections of iron a day and the doctors do not know the cause still. She's on gluten free diet and oral iron therapy doesn't work on her. Now her situation is getting bad by the day. Does anyone know anything that could suggest a reason for this ?
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After noticing a recent decrease in my athletic performance, I sent a message to my doctor early last week. My primary care physician ordered blood work and sent me to a hematologist in oncology. The hematologist said it was "very unlikely" cancer and ordered more blood work. Further blood work confirmed I have iron deficiency anemia.
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All my blood work was normal apart from the indices related to iron deficiency. Ferritin was low, indicating iron deficiency and not anemia of chronic disease. Bone marrow is producing a normal amount of red blood cells. I have not recently donated or lost substantial quantities of blood. I have not had any tarry stools or seen blood in my stool. A rectal exam was negative for the presence of blood. (This test involved a doctor inserting a gloved finger into my rectum and then testing the glove for blood.) I have no bruising and my blood clots normally. I have not seen any blood in my urine. I have no other ongoing health conditions.
For the last 5 years, I have run 52 miles a week. I eat very little red meat, no more than a few times a year. I do regularly eat poultry, fish, and eggs. I have had semi-frequent nose bleeds, averaging one a month, since childhood.
The hematologist put me on a high potency iron supplement -- 130mg of iron and 250mg of vitamin c per day.
All my doctors have discounted the possibility the anemia could have been caused by my running, despite there being ample evidence in medical journals that excessive exercise can lead to iron deficiency.
If it's not cancer and i'm not losing blood through my gastrointestinal tract, what is causing it? I do feel improved since starting the iron supplement on Monday, but my athletic performance is not where I'd like it to be. I don't have any further doctor visits scheduled at this time. I am to have blood work in 1-2 months to test my iron levels again.
My blood work is below:
TOTAL IRON BINDING CAPACITY 380
IRON/TOTAL IRON BINDING CAPACITY 6%
VIT B12 549
RETICULOCYTE COUNT, ABSOLUTE 2.5
PLATELETS, AUTOMATED COUNT 206
CHOLESTEROL, NON-HDL 84
GLUCOSE POST FAST 87
ALBUMIN/GLOBULIN RATIO, SERUM/PLASMA 2.7
ALKALINE PHOSPHATASE 51
BILIRUBIN, TOTAL 0.8
PHOSPHATE, BLD, QN 4.2
I initially found out I had mild iron deficiency about 6 months ago and the GP didn't tell me to take anything. I've been taking floradix on/off (finished a bottle) and redid my blood work with a new GP. The results seem to have gotten slightly worse, but this new GP also just recommended to take a multivitamin. Neither doctor seemed concerned. Anyway, here are the latest results (this new doctor didn't test ferritin; my old result 6 months ago was a 3)
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Hemoglobin - 11 (low)
MCV - 78 (low)
MCH - 25.2 (low)
RDW - 15.6% (high)
TIBC - 538 (high)
UIBC - 480 (high)
Iron Saturation - 11% (low)
Iron Serum - 58 (normal)
Vitamin B12 - 348 (normal)
Anyone know exactly how bad my case is? I am located in NYC; if anyone has a good doctor that takes iron deficiency more seriously, can they recommend the doctor?
These were done during a regular physical exam and my regular dr. said I was definitely anemic, but she never did do an iron panel. After thinking back on my symptoms, I had several..headaches, tinnitus, fatigue, rapid heart rate with exertion, and shortness of breath with exertion. Three weeks ago I was started on iron supplements. Here are my abnormals or near low normals from 3 weeks ago:
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RBC 5.45 (4.00-5.36)
Hgb 12.5 (12-16)
MCV 74 (81-98)
MCHC 30.9 (31.2-35.2)
RDW 24.2 (11.0-14.5)
She determined that my anemia was due to menorrhagia and I then made an appt. with a GYN.
The GYN looked at these labs and said this is NOT anemia. She then ordered an iron panel, which she said was normal:
She called today and again said this is not anemia, but some other blood issue must be going on. She mentioned thalassemia and suggested that my regular dr. refer me to a hematologist. I am so frustrated and confused. I can't see my regular dr. until Mon. but I'm thinking it's still anemia?
Here are my lab results:
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WBC 6.6 (4-10.8)
Ly 25.8 (20.5-51.1)
Mo 9.7 (1.7-9.3)
Gr 64.5 (42.2-75.2)
Rbc 3.74 (4.2-6.1)
Hgb 10 (12-18)
Hct 30.3 (37-52)
Mcv 80.9 (81-99.9)
Much 26.8 (27-31)
Mchc 33.1 (33-37)
Rdw 14.5 (12-15)
Plt 218 (130-400)
Mpv 8.2 (5-10)
My iron and ferritin were normal (don't have a copy of the results, just was told they are normal). Also, b12 and d are normal.
What kind of anemia does this look like? I DO have a history of iron deficient anemia, but my ferritin was like a 3.
Below are my symptoms. Saw the doc about a week ago, and symptoms are much worse than then. I am on an iron supplement.
Shortness of breath
Extreme lightheadedness/dizzy spells/near syncope
Basically I am hardly functional. I have gone home early and missed a couple days of work, because I literally couldn't do it. I have had to spend almost whole days in bed. Very small things wear me out. I was placing items in a box (that was on my lap) at work today and got weak and short of breath.
Does this not seem crazy for a hgb of 10?? I have been in the 8 range, and while I felt really, really bad, I was not this dysfunctional.
Also, I have been having the dizzy spells/lightheadedness/near syncope and some actual syncope for over a year. The drs are still trying to figure this out. They are a good deal worse right now.
Any thoughts or advice?
I have been iron deficient all my life, but it's at a critical point right now. I see a hematologist on September 14th. It takes everything out of me to get up each morning and go to work. I come home and just want to sleep. I am freezing cold all the time and eat ice constantly. I'm extremely moody and my husband doesn't understand my condition, so I am turning to the internet for support and help. I'll be getting an iron transfusion and blood transfusion as well. I don't absorb iron like everyone else as I had a gastric bypass in 2008. I am also not absorbing my Vit D 50,000 IU pills once a week either. I'm just at my wits end here.
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Does anyone know what the Drs. do if they can't get your hemoglobin back up to within normal limits? They say I have lost the ability to store iron. I have had 4 infusions and have very little results.
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I'm scheduled for 8 more. I am a little alarmed because the Dr is disappointed that I haven't recovered better. How much trouble am I in here?s.
I think I may have iron deficiency anemia my mom had it when she was younger and I have really bad nose bleeds in the middle of the night I have also fainted and I don't want to go to the doctor. Just wondering how dangerous could it be?
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My husband (41) has some routine bloodwork which showed iron deficiency anemia which is uncommon in men. His hgb was 12.5, hct was 40, iron was 41. He has been referred to a GI who want to work him up with colonoscopy and egd. He has not had any bowel changes and digital exam showed no blood. However in January he said he noted a very small streak of blood on the toilet paper after passing a very hard stool. This happened a few more times after. Until the sore area healed. We are terrified of colon cancer since iron deficiency anemia is so uncommon in males. If he hadn't had the bloodwork, we would not have even known there was a problem. Does anyone have any insight on the iron deficiency and potential cancer?
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husband has been diagnosed with iron deficiency anemia. Was referred by doc for colonoscopy and endoscopy but we have decided against this as he had a stent fitted in January and is on Ticagrelor to stop blood clots forming around stent. If they cause even the slightest damage when doing those procedures he could have a heavy bleed and as he doesn't have a common blood type we don't want to risk this as a blood transfusion may be delayed while they get suitable blood. His hemoglobin level is 81, ferritin is 5 and folate is 5.2. What I would like to know is what iron tablet people recommend that does not cause too many side effects as we have to discuss this with the doc on Friday.
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I am now 12 weeks post op. I am due my period on Friday but I started with light bleeding yesterday and today I am waiting to see if the bleeding gets heavier. At least it's nearly 4 weeks since the last period. I got some Mefenamic Acid to take if I get pain which I have done since the op on both sides of my bikini line when I have period . Pre op I used get bad pain in my stomach. My tummy was shrinking but now I'm at period it's blown up again. Doctor won't give me iron tablets now cos my blood test states that I don't need them. I don't understand this cos I was falling asleep in the afternoon without them so can't be bothered arguing with them so just buy them myself now ( I have been taking over the counter ones since I was refused them last week on prescription. How can my iron level be normal when I still have the heavy bleeding that causes the Anemia?
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l have iron deficiency anemia had 3 infusions. The first 2 l had in hospital and l felt normal after a week, it lasted 2 weeks now l have all the symptoms back so the doctor gave me another infusion a week ago which hasn't worked yet. l have a burning feeling in my toes and find it hard to walk as l feel week is that from not having enough iron. lm so sick of feeling this way
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Okay, so I was diagnosed with anemia about 2 years ago. I'm pretty sure that I've had this since I started high school, which was almost 8 years ago. 2 years ago my doc said my hemoglobin was 10.1 and told me to take iron supplements to improve it. I had to stop due to the side effects, but I recently started taking liquid iron supps. My anemia is more than likely caused by my periods, which have been extremely heavy for years, and I have to schedule an appt with the OBGYN soon. Lately, I've noticed that my periods have been getting heavier and shorter. Also, the month or 2 I've been feeling like my symptoms are getting worse. I have SOB, and I feel like I can't breathe in enough air(feels like a pressure in my chest). I also have had lightheadedness, weakness, extreme exhaustion (to the point where I sometimes have to miss school because I am too tired to get out of bed), PICA, trouble focusing, and I have been extremely pale for a few years. I thought I was just being stupid so I tried to get through this on my own for a while, but now my SOB and chest pressure won't go away and I am so exhausted that I don't know how much longer I can do this. I have a really busy schedule but I feel like my body is going to give out if I keep going on like this. I don't know what to do anymore. I didn't go back to the doc for so long because I figured my iron is probably not even going to be really low and I'm one of those people that doesn't like to go to the er unless I'm dying or in severe pain. Does anyone have any advice on what I can do to improve my sx? I'm definitely going to try to go see the doc about this. It's frustrating because I feel like no one understands what I'm going through, but it seems like people on here know a lot about anemia so I thought I'd come here to ask for help.
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anemia and iron overload at the same time.
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I was diagnosed with low b12 in September last year. My levels were at 70. My Dr had me tested to see whether my body had stopped absorbing b12, or I was just low in it from my diet. It turned out I can absorb it but I was just low in b12 at that time for whatever reason. I had loading injections every other day for 2 weeks. Then I was put on b12 tablets for 3 months. After the initial loading injections I felt better, but then on the tablets deteriorated again. I was tested after the 3 months and my levels were normal this time. However I still felt awful, so my Dr has advised I have an injection every 3 months. But still they are making no difference. I don't have the energy to even get myself dressed in the morning. I have a 1 and 2 year old and I find life so hard with no energy at all. I really can't cope anymore, every aspect of my life is suffering but I don't understand why since my levels are normal now.
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Since my symptoms started over two years ago (I was 22), I have lost 70% of my hair. My iron status at the onset of symptoms:
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Hemoglobin 13.5 (11.7-15.5)
Hematocrit 39.3% (25-40)
Iron, total 160 (4-175)
Ferritin 18 (10-154)
After supplementing with 150mg of elemental iron for 6 months (per a dermatologist that diagnosed me with telogen effluvium and advised that I increase my ferritin to 70-80 to stop hair loss):
Hemoglobin 13.1 (11.1-15.9)
Hematocrit 39.6 (34-46.6)
Iron, total 103 (35-155)
Ferritin 62 (13-150)
Reticulocyte count 0.6 (06-2.5)
After supplementing with 100mg of elemental iron for about a year after that:
Hemoglobin 13.9 (11.1-15.9)
Hematocrit 42.0 (34.0-46.6)
Iron, total 82 (35-155)
Ferritin 59 (15-150)
Iron saturation 28% (15-55)
TIBC 291 (250-450)
Reticulocyte count 0.4 (0.6-2.6)
I stopped taking iron supplements because I was not getting better, and because I had a few doctors tell me that I should not be on iron supplements because my hemoglobin, hematocrit, MCV, and RBCs were in the normal range. So I stopped for 3 weeks. Yesterday, I had a ferritin test done with a result of 87. This makes absolutely no sense considering I have not taken an iron supplement.
A physician I saw theorized that I could possibly have anemia of chronic disease, due to a low reticulocyte count, low TIBC and normal MCV. But that doesn't make sense to me either because although my ferritin did increase for some strange reason, it was on the low side before I started supplementing. And, my RBC, hemoglobin, and hematocrit have always been in range, and do not vary much despite supplementation.
I'm nervous that I shouldn't be supplementing with iron. In addition, my TSH (3.3), and midrange FT3 and FT4 have not changed despite supplementation--one physician theorized that maybe if I increase my ferritin levels, my thyroid levels will get better and I will stop losing my hair. Also, when I went on Naturethroid (went up to 2 grains over 6 months), my TSH decreased, but my FT3 and FT4 did as well--I felt awful.
Hb 3.7 iron deficiency anaemia
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Actually I am worrying about changes I am feeling in body. Could be side effects of multivitamin injections. I am taking multivitamin injections due to iron def and low b12. Have taken only 2 times so far and from yesterday noticing tiny shiny red spot. id noticed 4-5 such spots on my arms and two at my back. Is this a side effect of injection or what. Have u seen anyone getting such spot after taking multi vitamin injections.? And also after an hour of taking injection, coughing with chest pain and thick saliva kept coming out, thick sticky type. And then later same day tiny red spot.
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As per my physician, my problem was overweight 85 kg and low b12 and iron def.
Iron test result pending because bone cracking noises indicating that it would be low. Phyician knows better. And My thyroid test report all was all normal. And b12 was also not too low, it was 274. CBC was tested But RBC was hemoglobin marginally low with b12 at bottom line of 274. So instructed me to have multivitamin injections every 3rd day.
I visited clinic due to following symptons:
1. I was having neurological symptoms of tingling and pin and needle sensation numbness on part of limb. But no pain. First went to neurologist EMG test was cleared.
2. High pulse rate 100 to 115 with no cause, foe that physician given me tablets. taking inderal tablet for that 40mg 2 times a day.
After injections I am more restless.
I have been low iron since i was born. Only recently has my doctor been checking my levels and trying to raise my iron from anaemia. My doctor says that i should be getting between 800 - 1000 mg of iron a day. That means i have to take an iron pill four times a day. So when should i take the pills? Do i take them right after or before meals? I will go back in two months and they will draw blood to see if my iron has improved. I am just wondering what to do in the meantime to improve my iron results?
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I've been on ferrous fumarate for 3 months and doctor says my results are improving (hemoglobin has reached normal and ferritin has went from 1 to 12)
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My symptoms were continuing so I was tested for B12 deficiency and got result today. B12 came back as 276. The doctor left a message to say continue with iron for 3 months and that was it! I am really down as I don't know whether the iron will up my B12 or not? I don't know if this means my B12 is on the up or if the iron tablet has nothing to do with it?
I've just heard from my GPS surgery that my most recent blood test shows I have virtually no iron! As I have several autoimmune diseases including autoimmune hepatitis, rheumatoid arthritis, SLE (lupus), Raynauds, Sjogrens, acquired autoimmune hypothyroidism) , I'm rather afraid that this could be pernicious anaemia or hemolytic anaemia, as I've never had a low iron level until now. I was taken off methotrexate due to respiratory problems (side effect) and am on prednisone 25mg/day. Does anyone have any experience of sudden iron deficiency please?
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