Autoimmune Disorders :: Tired Of Being Sick And Tired
Jul 20, 2014
I have been having joint pain, general body pain, fatigue, depression and anxiety for years. I was dx with fibro about 3 years ago. It was first suspected almost 20 years ago. My mouth and eyes are painfully dry. My lips constantly crack. I recently had a PAP done and the GYN remarked how dry my vagina was (I'm not sexually active so I never noticed).
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I recently saw a rheumatologist here in the State (I had previously seen one in Korea). She did a bunch of blood work. My Vit D was 28 (reference range was 30-70). RF, ANA were negative. CRP not done, but has been elevated in the past (multiple draws over a two year period, but none in the last year). ESR was 58 and has been elevated for 20 years (I went through a lot of blood work in high school and nothing was ever found, but it was with ID, not Rheum).
Rheum was next to useless. She said the sed rate wasn't relevant and that there was no need to worry about the Vit D (which was lower in the past) even though I was taking 2000 IU a day.
After talking to my GP, he had me increase the D supplement to 4000 IU/day. He also wrote me a new referral to a different rheum. This one specializes in seronegative arthritis.
I try to be an informed consumer. Current rheum just wants to throw more pills at the issue without getting to the root of it. It seems like if I go in with a fibro dx, everything must be fibro. How do I approach this new appointment (in September!!) to finally figure things out? This new doctor will be in the UH system as are all my other docs. I think she'll have access to previous lab results, if not I can pull them up in my EMR.
I could use words of wisdom, advice, a kick in the butt (if necessary), etc.
I have to believe that all of my worries and illnesses right now are somewhat peri related and I'm at my wit's end. I have a nasty sinus infection that I can't kick..I think I'm allergic to my cat and I'll have to give him up. I'm waiting on my period..it should be here..my head feels like it's going to pop off my body and I'm so anxious and all I can do is focus on the negative. I feel sick now all the time and I really am tired of it. So tired. I think my peri just makes everything else worse. This would be something I could handle years ago...now it's like every little thing is the end of the world. I want this to go away...I'm done with this change stuff.
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17 and 1/2 years ago I had unprotected sex in the Philippines.Last year I got sick with numb hands and feet.Now my whole body.March 2013 I tested negative for HIV with a Labcorp HIV 1/0/2 ICMA,but I feel it was a mistake.This morning I notice white patches on my tongue and lips.The people in my life think I'm OCD.I also noticed my chest has strange sensations with a wheeze.I feel lousy and don't want to get sicker before I can get help
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I feel so disappointed, simply because nobody told me how much you'd be limited in your activities. They are quick to rush you into the OR, and they tell you how much better you'll feel once it's done. There needs to be a delegated "person/nurse/social worker" person to call and ask about concerns on a certain timeline. Once a month, at first a few times a week. Someone that knows the answers to your questions or can find out w/o actually going in to see the surgeon, a person who can screen when you do and don't need to consult surgeon. That has been trained to know how to deal with post op patients, their worries, frustrations, and pretty much questions. I think follow up is a super important thing...but after your surgery is done, they're on to the next person, and you are a vague memory. At first, you feel so special, especially during the pre op visits, Doctor is all cheerful "So,HOW are YOU today??" After surgery, Doctor is all "why didn't you start PT on this week instead of that week? shaking his head. The friendly guy is gone, and I feel now just a nuisance and I ask specific questions and he actually says "Hmmm, I don't know" - as my hair was all falling out. My GP knew exactly what it was. It just all felt wrong. Do you think your follow up care was as good as the pre op screening, interviews, and care? Did the photos of the scars/incision you saw look a bit like yours? Were you taught how to properly massage the scar to prevent adhesions and help make it less obvious and look better? My scar... sure didn't look like this, which is what I expected.
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Been on Sertraline 100mg for nearly 10 weeks and I had two good weeks before entering week 10, now I feel sick, tired and have difficulty eating and focusing on TV etc is this a blip like I had before, Dr doesn't want to change meds or up dose.
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I'm sick all the time, flu like symptoms, achy joints, headaches, tired all the time, fatigue.
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Ana titer 1:640 speckled
anti-dna titer 1:20
everything else is neg and normal. What can be wrong with me?
I can't wait to be able to sleep any position I want especially on my tummy. 10 days till due date.. I know I'll be able to sleep better whe. Babe is here eve with having the nightly feeding.
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i am new to these discussions but I do know how many of you feel. I have mentioned that I was diagnosed with mixed connective disease, lupus, fibromyalgia and who the hell knows what else. I can't work becuause if I sit to long, my legs start falling asleep. If I stand to long, my legs start aching. I feel exhausted all the time like when I wake up in the morning, I could just as easily go back to bed and sleep my entire life away. I wish there was something in a bottle that gave you energy. I miss my old life when I used to work out all the time and had enough energy for 10 people and then one morning I woke up and couldn't bend my leg back, it just wouldn't work so my family doctor sent me to a rheumatoidologist and he is the one that took all my blood from my body, that's what it feels like sometimes, and gave me the great news of having all these diseases but no medication seemed to work. I went to another rheumatoidologist and he put me on Lyrica which helps my upper joints but my legs were in such pain I felt like it was to much to even walk down the hall. Now along with my family doctor, my rheumatologist and my pain doctor, I take Lyrica for joint pain and oxycodone and fentenal patches for pain, especially when my mixed connective disease starts up, it just brings my systemic lupus to life and I get the butterfly rashes mostly on my upper arms which adds to my stress which makes my fibro flare up and gives me pain in my legs and then it just starts over. It seems to be a cycle especially when it's hot. I also start sweating like I was in a sauna all day just on my head and face. People look at me like did you know your sweating like a pig. It's embarrassing but I don't know what to do about that so I put ice on my head at night to keep my head cool so I won't start swearing. I've never had that problem before but only since these diseases came and decided to stop on my little doorstep. I am a true believer that stress can cause all sorts of bad things including diseases. I am just going to try to start yoga but I have to absolutely force myself to do this. I start next week. The worse thing I could have done 12 years ago when I was diagnosed with all this crap was to stop exercising.
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I'm only 17 years old. I have felt the way i feel now for months. I am not pregnant before anyone suggests that!
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I suffered from a disease/illness where my glands swelled up til they were huge and you could clearly see them. I had a fever all day, i would go cold and the hot, i had no energy at all and was generally sick! The doctor gave me some antibiotics and it cleared up.
Ever since then i have not been myself. I feel sick at some point during the day, i constantly have a weird feeling in my head, its not pain as such, but like a numbing feeling and irritation. I feel like im going to faint all the time, im weak and very tired, i also get chest pains from time to time & my breathing is rubbish, its hard to breath at times, i generally feel like im dying
I have had countless blood tests and all of them showed nothing!
This totally upset me because im frustrated, i just want it to be over!!
The doctor told me just to have lots of water and exercise.
My family were convinced that i suffer from anxiety and panic attacks!
As i had a panic attack due to the fact i felt so ill i thought i was dying!
It wasn't just happening to me for no reason the attack.
so they took me to the doctor where he told me my symptoms were that of anxiety and panic attacks so he gave me some tablets to take.
But i still feel the same!!
I do not believe that i have anxiety
I am sick if people believing that is what it is!!
Here's a brief background and symptoms I've been having. I've been a migraine sufferer since my preteens. Mainly migraines with aura but also morning headaches etc. about 7 yrs ago I gained 40 lbs very quickly over a 1-2 yr period and was exhausted all the time. I went to pcp office and saw a dr other than my own. She commented on my weight gain like she was appalled and asked if I was depressed. I did not feel depressed just frustrated mostly. She did a tsh test and said it was normal. I was also having what I was told was possibly ibs (mostly d but also c) and have dealt with this for the past 7 yrs as well. Skip ahead a couple years I noticed a correlation between the ibs and eating gluten products. I visited with my dr and he had me get a celiac panel. The results came up negative. I should also mention I was eating gf before the test so wonder how that may have effected the results. Fall/winter 2011 I was extremely fatigued, sore joints, muscle aches, hard time falling and staying asleep, noticed cold bothering me more ( I live in New England) so in January I found a new dr near where I lived. He basically said that it may be seasonal affective disorder even tho I told him I really didn't feel depressed just exhausted. After basic bloodwork as well as tsh and the wrong vitamin d test he said all was normal, get some rest. All I could think was gee thanks. So I saw another dr shortly after who was great but he tested me for Lyme and lupus which were both neg and also the correct vit d test which showed I was at a 6 and severely deficient. After a few months 50000 iu and then continued 1000 iu daily with some results of less fatigue. A couple months ago I started to feel the extreme leg cramps again, joint pain especially in knees and wrist, extreme fatigue as well as new symptoms of ringing in ears, dry scaly skin that I can literally rub off. I have always lost a lot of hair with showering and brushing but it seems like more lately. I called my pcp and asked for another vit d test thinking it may be related. come to find out it was a 17 so not as low as before but still low. I've done a little research and I feel like it could be hypothyroidism but I am unsure exactly what I should request for tests from my dr. I don't want to waste money on something if it doesn't seem needed. Any advice would be greatly welcome. I am just tired of being tired and frustrated.
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i am almost done overcoming the damn flu and the next thing is that my heart beats fast i have to sit down for five minutes each time this crap is overrated and im damn tired of it. im 25 and my mom is sick also
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Did any mommies have nausea towards the end of their pregnancy? I didn't with my first but with this one. Its like my first trimester all over again.
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Even though I was aware of potential side effects statin medications might cause, mainly them causing muscle and joint pain, I had little choice but to start taking Zocor after I had heart attack. At that point, my bad cholesterol levels were through the roof and it’s still uncertain if I’ll have to have coronary artery stents placed or not.
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Ever since I started Zocor I feel more tired than I ever was in my life. I have a feeling I could sleep all day, with barely any motivation to do anything. Could this tiredness be another side effect of statins?
I'm a 24, soon to be 25 year old. I know I'm really young, and that's the biggest ''encouragement'' people give me generally. You haven't lived much, there's still so much ahead, etc. But the thing is, I've been depressed for almost 10 years now. I've been on and off with meds, had some ''brighter'' episodes in between the years, but basically I've accomplished nothing. I have no education degrees, no work experience. I can barely function on my own. My family lives far away, and doesn't understand my depression at all. In fact, my sister tells me I'm depressed simply because I'm just that lazy. Maybe that's true? I don't know. I live alone, and have no friends. I have just recently cut off my last tie to a person by managing to tick off my ex so badly he almost suffocated me by strangling to get his point of wanting me out of his life through. He's the father of my son, who's another point of depression. Just can't seem to be able to love the kid like I should. What good is someone like me anyway? I have no right to call myself a mother.
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I've gone through abortion, abusive boyfriend, neglect and abuse from my dad, losing all my friends, being homeless, attempting a suicide through slicing my wrists open... Something bad, you name it and it's probably happened. So far, anything I've tried turns to ash soon. Relationships, jobs, even normal day to day life... I can't get a grip of any of it and I just end up failing.
I'm honestly hanging on to life by the tiniest possible thread simply for the sake of being so stubborn I can't give up. But every day is torture, and I just keep waiting on something to change, yet it doesn't. I can't find the will to live but I'm too stubborn and too much of a coward to go through with ending it. Also don't want to go through the experience of laying in a hospital bed listening to the nurses go on how ''it's another of those attention seekers''. That was devastating for me. But I'm at my wits end. How long will it go on? When does one get a happy end? How do you find a will to live through all the sh*t?
I want to die, but I can't. I want to live, but I don't know how or why. I want to move on, do something, but I don't have the strength. What should I do, really?
I take Bisoprolol as part of a cocktail to reduce my blood pressure. I also take 40 mg Adalat and 10 mg Ramipril each day. I have been taking this medication for around two years now and whilst my blood pressure has been reduced I feel so so tired. I have always been healthy and energetic, I've never experienced this feeling of tiredness. I have gained weight, my hands and ankles swell up. I'm going back to my doctor to have my medication re-evaluated...
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I have been on this drug (5 mg/day) since having an M.I. on Jan 2nd 2007.
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I have developed a tickly cough that stops me getting to sleep at nights, my metabolism is in my boots and I have put on over 56lbs in weight.
I feel slow and lethargic all the time.
I spoke to my GP at my yearly review this week and told him I don't want to take this drug anymore. He said he can't recommend i stop taking it as it is "protecting" my heart.
I never had a BP problem before my Angina attack and the M.I. always being 128/78 all my life.
So, I have decided to stop taking both the bisoprolol and the ramipril and monitor my BP 3 times a day.
I think doctors are too scared about getting it wrong to try any alternatives.
Benzodiazepines and sleeping tablets does not work for me. I have trouble falling asleep. Going on Risperidone starting monday. Don't know what to expect. I have bipolar disorder 1. Anyone use Risperidone before? Please please help. Already tried invega and it didn't work it made things worse.
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I'm taking half beta prograne 80 mg for 3 weeks on a routine of 7.30am with a pill I take, BUT through the day I'm extremely tired,feeling very low ( I have 3 children ) and I have completely nooooo energy (sometimes by tea time) to do anything so by 7pm I'm ready for bed. I'm just so tired. Is this normal? Please help I don't want to go back to my gp only to b told just keep plodding on ?. Will it upset my body if I Change the times off when I take the drug say for instance take at night instead?
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I've been wondering for a long time whether I have some mild iron deficiency. I feel very weak and tired a lot, I used to just dismiss it as not getting enough sleep but I'm not sure anymore. Other possible symptoms of anemia I have are really pale skin, restless legs and sometimes dizzy spells. Can anemia be related to menstrual cycles? I've noticed that I feel/look the worst during my period, not sure if that means anything? I am seriously considering bringing this to my doctor's attention, especially since I heard about checking your eyelids and this is how mine appeared. My inner eyelids are both a really pale pink. Am I possibly mildly anemic?
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I am 55 and up until last month I was still having pretty regular periods even though they were extremely heavy and somewhat erratic. It was 3 months in between periods, last month. (I hope that makes sense!) This was the first time there had been that much time in between periods.
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Lately I have been having headaches often. Something that I'm not used to. I can deal with that mostly, but lately I've had flu like symptoms that will come for a day or so and go away for 4-5 days. I feel normal then but it only comes back. I have no fever, but feel as if I do. I'm so tired, achy, and dizzy, sometimes nauseated, just as if I have the flu. This has been going on for the past month. I also feel as if the glands are swollen in my throat, but they are not. I also feel much tension in the back of my neck. This is a repeated thing, over and over.
When I feel great, I feel great! When I feel awful! I feel awful!
HELP! Am I losing it!!??
All of my friends have either gone through this years and years ago and don't remember many of the symptoms or have had hysterectomies and can't relate.
I'm hoping someone here can relate to these symptoms so I don't lapse into yet another state of hypochondria!
I have started this last night knocked me out 8pm then couldn't get up was late for work .
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It's now noon still feel sleepy drowsy and very tired.