Do you think me and my husband should have some cystic fibrosis tests for I know I have this defective gene in my family history or precisely my mum has died from cystic fibrosis and I probably am a cystic fibrosis carrier. Anyway I am planning on getting pregnant and would like to hear would some cystic fibrosis tests help me with this decision for I won't like my kid have the same diagnose when it is born?
View 1 RepliesOur 10 days old grandson was finally diagnosed with cystic fibrosis. I said finally, because it took doctors 6 days to determine the cause of baby's problems. They said that there is a possibility that one or both parents are illness carrier. Is that even possible? Can you be cystic fibrosis carrier and not know it through your entire life?
View 4 RepliesI need to know something about cystic fibrosis causes. I am 34 years old, my wife is 29, and she gave birth to our baby girl 3 days ago. Out happiness and joy subdued very fast, when doctors mentioned that she might be suffering from cystic fibrosis. I want to know how did this happen? Is it our fault? We did all we could; pregnancy was not an easy one, but it all ended ok. What is this now?
View 3 RepliesI'm married and my husband has (cf) and i know that women can have (cf) and still get pregnant but can a man with (cf) have children? we want to have a babe but are afraid that it isn't possible.
View 1 RepliesAre there any cystic fibrosis patients here? I would like to speak with someone who has this illness, so that I would know what would await my baby if I decide to keep it. I know that this might sound cruel, but I do not want my child to suffer and have life far from normal and healthy. Please, doctors said that it can be kept under control, but that answer is not good enough for me. I need more.
View 6 RepliesMy sister has atypical cystic fibrosis. When I have heard about her illness for the first time I did not know what it is. Then I have started to look for the atypical cystic fibrosis in the literature. Now I know what cystic fibrosis is, but I don't know anything about atypical kind of it. Can you help me with this?
View 2 RepliesI heard from my friend about cystic fibrosis as severe genetic disease and my other friend has child who is suffering from it. As I intend to become mother next year I would like to know is there any way to prevent this disease. In deed main reason why I am asking this is my husband who told me that his younger brother had died as baby from cystic fibrosis but he is not totally sure about it.
View 1 RepliesI was diagnosed with cystic fibrosis when I was just a little girl. I have been on medication and a special dietary regime all my life. Now the doctors say that I have developed cystic fibrosis related diabetes and that I will have to take additional medicine. You can imagine how delighted I was when I heard this. I am a twenty five year old, but I feel like I am fifty. I would like to avoid any new injections and drugs because the therapy I am under is already too demanding. Is there some other way for me to treat this cystic fibrosis related diabetes?
View 1 RepliesI need some info about cystic fibrosis and inheritance-do you think my child one day could inherit cystic fibrosis for I am a carrier but I never had any complications cystic fibrosis related? So do you think I should be worry over this for I would like to stay pregnant pretty soon and now am pretty much concerned over this cystic fibrosis and inheritance issue?
View 1 RepliesWhile I was in hospital waiting for my baby to be born, I heard a lot of stories about various things that could go wrong with both babies and their mothers. One of those was about cystic fibrosis and lungs. I mean how lungs are affected by this illness and things like that. I was very shook up. I mean this cystic fibrosis is just one of so many potential diseases. Thank God I had a safe delivery, and there is nothing wrong with my baby.
View 1 RepliesI would like to ask a question concerning cystic fibrosis diet. I work as a nurse in a hospital, and I heard for a lot of cystic fibrosis cases in last 6 months. Of course, the affected are all newborn, and I am just curious about their fates. I do not want to ask doctors, they all seem jumpy and nervous when you ask them anything about their little patients. So, will there be any help from you?
View 1 RepliesIs there a cystic fibrosis gene? Is it possible that I am guilty for my baby's disease? I gave birth to my son less than 2 days ago and already they found that something is wrong with him. They talked of inherited cystic fibrosis which, I know at least that, means that either one or both parents are responsible.
View 1 RepliesCan you tell me something about cystic fibrosis carriers for I am planning on getting pregnant but I am afraid that my baby could be born with cystic fibrosis for my mum has the illness and I know it is inherited and I know I am cystic fibrosis carrier. So do you think I should get pregnant with this cystic fibrosis carriers history and how could this possibly affect my baby health condition?
View 2 RepliesCan someone explain to me how can one disease like cystic fibrosis affect so many different organs in the body? My friend suffers from it and she has problems with both lungs that causes breathing problems, coughing and mucus and pancreas. How are these two organs connected, so that both can be affected in one disease?
View 1 RepliesI am 16 years old girl. I attend medical school and I really need one answer fast. Can you tell me which chromosome is affected by cystic fibrosis? I have a test tomorrow and I can't seem to remember this fact. Please help me out; it will be a lifesaver. Thank you in advance.
View 1 RepliesI`m pregnant and the problem occurred when I found out that I got cystic fibrosis. I know it`s a genetic disease. I fear for my baby. Is there anybody with experience who could tell me something about that? How is CF inherited?
View 1 RepliesI am a twenty five years old pregnant woman. I found out that I am pregnant only few days ago. But now there is a problem. I have cystic fibrosis. This concerns me very much. I heard that women with this kind of illness have small chances for a long life after giving birth. Is this true? Also I am very worried about my baby. Will there be any problems with it?
View 1 RepliesI was told I had cyst in my ovaries before, but I received a shot that made the bleeding and blood clots stop and I was getting regular periods.
Now I haven't gotten a period for almost 2 months now and I'm starting to bleed again like before. Should I be worried that the cysts may have came back? What is my best option?
I am carrier of this virus (HbsAg) i just want to ask about the dosage if i am going to take this alinia.. how many tablets per day and how long should i take it... is it everyday? is it for 6 months before i go for another blood screening?
View 2 RepliesI Know that she is highly contagious for that matter .. but can this be cured?
View 3 RepliesI believe I have haemochromatosis, but my genetic test reflected that I was only C282Y heterozygote and my doctor has advised that I can only be a carrier. Is this true? Does anyone know of anyone else who is C282Y heterozygote and suffering with the disease?
I have been suffering with severe joint pains (particularly in my fingers) and general fatigue.
My initial blood tests ruled out rheumatoid arthritis and showed the following levels:
Ferritin: 2672 ng/ml
Transferrin: 139 mg/dL
Transferrin saturation: 96%
I was prescribed 4 weekly phlebotomy sessions after which my results improved to:
Ferritin: 2177 ng/ml
Transferrin: 161 mg/dL
Transferrin saturation: 82%
However I also then showed signs of anemia with my hemoglobin levels reducing from 14.8 to 12.9 g/dL.
The doctor has now decided it can't be Haemochromatosis because my levels haven't reduced sufficiently after 4 sessions and because of the anemia reading.
I am Irish and know this is prevalent in the celtic race.
I am now to be tested for Still's disease, even though the only symptom I have is joint pain. I could be proven completely wrong, but I feel this is complete waste of time and is delaying my correct treatment.
My doctor has admitted he has little experience with haemochromatosis so if there is anyone else out there with similar readings and the same genetic result I would love to hear more about your diagnosis.