Fibromyalgia Syndrome :: Gabapentin To Start A Sleeping Patten
May 19, 2015
Just got home from rheumatology appointment. Met a lovely doctor who finally diagnosed me with having chronic fatigue, fibro and raynaud's. He has prescribed Gabapentin to help kick start a sleeping pattern, anyone taking it? He is also testing for Lupus as my father has it but isn't convinced I have that. As nice as is was he basically told me to go home and research these conditions and to go back in 4 month when he will decide if I go down CBT route or psychology to release the underlying causes. Feel better for having a name for how I feel but also very much left to my own devise.
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I am exhausted I wake up every morning tired. That's if I can sleep at all. I constantly misplace things. I am on gabapentin but it doesn't seem to help..... Any advice?
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I'v just been given gabapentin from my doctor. Does anyone else take this and how do you get on with it?
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I've been taking pregabalin/Lyrica for roughly 5yrs at 300mg a day. Today I find out that my rheumatologist wants me to start on gabapentin as well as the pregabalin, starting on 300mg eventually getting up to 900 mg a day. Has anyone else taken both these meds and have they worked? What are your experiences?
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I have been taking gabapentin for around 8wks in that time my mood was becoming so low I was close to crying constantly .
I do suffer mild depression but this made it much worse I was like a ticking bomb waiting to explode I was only takin 300×3 times daily well I have cut them down and now am gabapentin free and never again will I try any other meds
acupuncture and exercise is the way i'm going to go now
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I had a very restless night last night and ended up taking a sleeping tablet in desperation at around 3am... the trouble is I still have the side effects going on the next day 12 /14 hours later, I only take a sleeping pill when all else fails and I have gone well past/beyond the nodding off stage.
On other days, I just sleep a lot of the time and have a trouble staying awake. Goodness only knows what people think one minute I’m too tired the next I’m saying I can’t sleep
Does anybody have any wisdom on this issue of sleeping and not sleeping cycles with CFS/ME.
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I have been taking Fluoxetine (Prozac) for nearly 7 years and will shortly be taking Gabapentin capsules (opened cos i cannot swallow capsules) for 2 weeks at 300 mg (once a day), then 2 weeks at 600mg (twice a day) and then 900 mg (3 times a day). My nervous system is shot meaning that my body produces too many chemicals making the slightest nerve pain excruciating. Also have a trapped nerve in my foot which means exercise is limited. Is it best to start taking these in the morning? By week 5 i will be taking them 3 times a day. Is it advisable to take them at roughly the same time of day?
I don't work fortunately so if i get any bad reactions i can deal with them at home.
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I've been having seizures for about 5 years so it's being used for that. I have them due to abuse. Any other adult on this amount? I've only been on this dose for 2 days
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Has anyone of you used this drug for symptoms of fibro? If so did it help? I read weight gain can be a side effect.
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I was prescribed Gabapentin for fibromyalgia like pain - neuropathic pain. About 90 mins after taking one 300mg capsule I was experiencing some strong side effects. My spatial sense was distorted - I seemed bigger or smaller than I usually experience myself. I kept hearing indistinct voices - whole sentences in voices I did not recognise. I felt intense nausea. At one point I caught sight of my face in a mirror and had the feeling that the image was somehow independent of me, and that the face there was malevolent, and I was unable to break away for several minutes despite quite strong fear. I went to bed and as I lay there I felt like I was not quite in my body - lying beside myself somehow. My mind was caught up for a while in a series of incredibly violent and distressing daydream-like images over which I seemed to have little control. My body twitched and convulsed irregularly - although I've experienced this with intense anxiety and at this point I was really quite afraid! I woke early after a fitful sleep with an intense headache - behind the forehead, temples and also pain in my neck. Also some nausea. The headache lasted all day and into the night. It felt on a par with a moderately bad migraine (maybe 7 out of 10). I was unable to do much of anything except lie down and wait for it to pass (pain killers had no discernible effect on the level of pain).
That was one pill of 300mg. And needless to say I won't be taking another, let alone the prescribed 3 a day!
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I've been taking Gabapentin for 10 months and found it relieved the pain associated with Fibromyalgia. Unfortunately I have gained about 12 pounds in weight since I started taking it and feel the is the most serious side effect for me.
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I'm wondering if anybody else out there is affected by RLS in the same way I am. It's very specific. Only when I'm falling asleep, my foot will jerk, sometimes rapidly, followed by the whole leg making a violent jerk. There is no sleeping thru that. Once it starts, I know I'm in for a long night because it does not stop. Even if it does, then the other leg will start doing it. (There is that creepy-crawly sensation a microsecond before the jerks, but I can't stop it from happening.) This started in the early '80's with mild episodes 2 or 3 times a week but has increased strongly over the years.
I have incredible empathy for anyone suffering from this affliction / curse and pray daily that the true cause will soon be identified.
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So yesterday I went to see the RA and it appeared as if he cared. He explained that I was severe with FIBRO and that there isn't too much that he could do. He upped my LYRICA to 200 mg (not sure why as it gives me more issues than taking pain away) . He also suggested that I go to a Fibro Clinic in UF , some where in the panhandle of Florida, I can not do it (Finances, Insurance, I don't drive because of LYRICA) . He also gave me a referral for SUBOXONE This is a medicine that they usually give for people who have had problems with pain pills.The RA explained how he just read an article in how this could help me. Has any one else experienced this? Did it work?
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Selenium deficiency is considered by some naturopathic doctors the key to Fibromyalgia and CFS.
Some even relate it with animal “Nutritional muscular dystrophy” AKA “White muscle disease”.
Should we go to the vet?
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Fibro is a like a box of dark chocolate, each centered chocolate has a different symptom filling. And leaves a nasty taste in your mouth.
FIBRO FOG MISTY CENTRE
PAIN HOT CHILLI CENTRE
MIGRAINE
LEG PAIN
BACK PAIN
SHOULDER PAIN
NECK PAIN
HIP PAIN
TINNITUS
EARACHE
JAW ACHE
NUMBNESS
PINS NEEDLES
CHEST PAIN
BURNING
SORE THROAT
AND MANY MORE NEW SYMPTOM CENTRES TO COME
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I am stuck in a rut at the moment and can't seem to get myself out of it.
I am full of good intentions to go out and about, but when the day comes it's as if I am too scared to go through the door
Any ideas on how to get motivated?
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I've had problems all of my life and at the moment my condition has worsened, but unfortunately it's something that we don't talk about. I've got fibromyalgia, arthritis and herniated discs in my spine consequently I'm in a lot of pain all of the time so it's a catch 22 situation my tablets cause the constipation but I need my tablets! What's the answer?
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While the quantity of sleep can be important, what's much more important is the quality. Our bodies go through two distinct stages of sleep starting with non-REM (Rapid Eye Movement) and then into REM and cycling between the two throughout the night.
When we first fall asleep we drop into the non-REM cycle and this can be further broken down into three stages which move closer towards a deeper sleep. It's during the last stage where our bodies repair and heal and rebuild themselves. Non-REM sleep typically lasts up to 60-90 minutes with the majority of that time devoted to a deep sleep.
After this our bodies cycle into REM sleep. The main characteristic of this cycle is the eye movements that take place and before there were EEGs and ways of measuring muscle activity it was thought that our brains simply shut-off during sleep, this was far from the truth. During REM sleep our brains are quite active and this is the time when dreams occur, if you wake up and vividly remember a dream you were probably in the middle of REM sleep. It is also thought that REM sleep enhances our memory and contributes to our mental and emotional health. It's possible that during these two cycles of sleep we go through periods of maintaining our bodies and our minds.
Adults typically need between 7.5 to 9 hours of sleep a night and during this time our bodies will move through one cycle to the next and back several times. There are also a lucky few of us who seem to be able to function on less sleep...
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I'm a thirteen year old girl with an unhelpful doctor who literally doesn't want anything to do with me because I'm 'hard work' to diagnose. My family believes it's chronic fatigue syndrome, fibromyalgia or both. So that's the home treatment path I'm taking. My symptoms have been going for 6 months now and they are diarrhea, nausea, joint aches, headaches, fatigue, confusion, dizziness brain fog, tenderness, weakness and muscle pain. I've been tested for crohn's, ulcerative colitis, hypothyroidism, hyperthyroidism, parasites, dysbiosis, virus, infections and celiac disease. I also have eczema, restless legs, irritable bowel, anxiety and gastroesophageal reflux disease. I'm not under any stress at the moment.
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i am really struggling with my fibro. The doc has told me to persevere with this tablet. He has also gave me an anti sickness tablet. I would like to know people's experiences with this please.
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I was diagnosed with fibromyalgia about 18 months ago and I'm having a really bad flare up at the moment and still trying to work full time! I'm a beauty therapist so I Found I don't go in I let people down! I'm struggling to walk and my back and wrist is really swollen, I'm taking nurofen and paracetamol but they're not touching it.
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