Fibromyalgia Syndrome :: How To Improve/manage The Condition?
Feb 11, 2016
I was diagnosed with Fibromyalgia around 3 years ago and i think i had it for around 8-10 years prior to this.
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To be honest i know very little about the condition, my doctors aren't that helpful so I wondered if anyone could give me any tips on things that help improve/manage the condition or things to avoid?
I'm having a hard time at the minute because I'm having one of my flare ups that happen about 4 times a month.
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I have been diagnosed with IBS-d and diverticular disease. I'm confident with the diagnosis as I've had all the tests. But IBS-d is managed by FODMAP diet, yet this cuts out so many sources of fibre that the flare ups are most likely the diverticulitis...massive bloating, cramping and diarrhoea.
Any thoughts or successful tips on how I might be able to better manage both?
So yesterday I went to see the RA and it appeared as if he cared. He explained that I was severe with FIBRO and that there isn't too much that he could do. He upped my LYRICA to 200 mg (not sure why as it gives me more issues than taking pain away) . He also suggested that I go to a Fibro Clinic in UF , some where in the panhandle of Florida, I can not do it (Finances, Insurance, I don't drive because of LYRICA) . He also gave me a referral for SUBOXONE This is a medicine that they usually give for people who have had problems with pain pills.The RA explained how he just read an article in how this could help me. Has any one else experienced this? Did it work?
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Selenium deficiency is considered by some naturopathic doctors the key to Fibromyalgia and CFS.
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Some even relate it with animal “Nutritional muscular dystrophy” AKA “White muscle disease”.
Should we go to the vet?
Fibro is a like a box of dark chocolate, each centered chocolate has a different symptom filling. And leaves a nasty taste in your mouth.
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FIBRO FOG MISTY CENTRE
PAIN HOT CHILLI CENTRE
AND MANY MORE NEW SYMPTOM CENTRES TO COME
I am stuck in a rut at the moment and can't seem to get myself out of it.
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I am full of good intentions to go out and about, but when the day comes it's as if I am too scared to go through the door
Any ideas on how to get motivated?
I've had problems all of my life and at the moment my condition has worsened, but unfortunately it's something that we don't talk about. I've got fibromyalgia, arthritis and herniated discs in my spine consequently I'm in a lot of pain all of the time so it's a catch 22 situation my tablets cause the constipation but I need my tablets! What's the answer?
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While the quantity of sleep can be important, what's much more important is the quality. Our bodies go through two distinct stages of sleep starting with non-REM (Rapid Eye Movement) and then into REM and cycling between the two throughout the night.
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When we first fall asleep we drop into the non-REM cycle and this can be further broken down into three stages which move closer towards a deeper sleep. It's during the last stage where our bodies repair and heal and rebuild themselves. Non-REM sleep typically lasts up to 60-90 minutes with the majority of that time devoted to a deep sleep.
After this our bodies cycle into REM sleep. The main characteristic of this cycle is the eye movements that take place and before there were EEGs and ways of measuring muscle activity it was thought that our brains simply shut-off during sleep, this was far from the truth. During REM sleep our brains are quite active and this is the time when dreams occur, if you wake up and vividly remember a dream you were probably in the middle of REM sleep. It is also thought that REM sleep enhances our memory and contributes to our mental and emotional health. It's possible that during these two cycles of sleep we go through periods of maintaining our bodies and our minds.
Adults typically need between 7.5 to 9 hours of sleep a night and during this time our bodies will move through one cycle to the next and back several times. There are also a lucky few of us who seem to be able to function on less sleep...
I'm a thirteen year old girl with an unhelpful doctor who literally doesn't want anything to do with me because I'm 'hard work' to diagnose. My family believes it's chronic fatigue syndrome, fibromyalgia or both. So that's the home treatment path I'm taking. My symptoms have been going for 6 months now and they are diarrhea, nausea, joint aches, headaches, fatigue, confusion, dizziness brain fog, tenderness, weakness and muscle pain. I've been tested for crohn's, ulcerative colitis, hypothyroidism, hyperthyroidism, parasites, dysbiosis, virus, infections and celiac disease. I also have eczema, restless legs, irritable bowel, anxiety and gastroesophageal reflux disease. I'm not under any stress at the moment.
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i am really struggling with my fibro. The doc has told me to persevere with this tablet. He has also gave me an anti sickness tablet. I would like to know people's experiences with this please.
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I'v just been given gabapentin from my doctor. Does anyone else take this and how do you get on with it?
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I was diagnosed with fibromyalgia about 18 months ago and I'm having a really bad flare up at the moment and still trying to work full time! I'm a beauty therapist so I Found I don't go in I let people down! I'm struggling to walk and my back and wrist is really swollen, I'm taking nurofen and paracetamol but they're not touching it.
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I went out for a meal with work on Saturday night and have been feeling under the weather ever since. I initially said I wouldn't go but it was a special evening and I really felt that I should make an effort and go. I only had one small beer and lemonade but the food wasn't what I would normally eat and I did feel stressed as I had to sit at the top table which made it difficult to hear and join in conversations. I went to bed about 11.30 and slept for 12 hours. I spent Sunday afternoon in my pjs and slept another 12 hours last night. My muscles have been really twitchy and jerky and my appetite has been down. Do any of you suffer in either a similar way or differently after going out?
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Many people have told me there is a cure but professionals like doctors and my rheumatologist have said there is not the trouble is they say they don't actually know what the cause is as everyone is different so how can you cure what you don't know i have been researching into other professionals theories and run them but my rhuematologist and psychologist and they have said that they don't believe there is a cure yet and i have spoken to a specialist who has been researching fibro for over 40 years now and he said there is not a cure yet i have heard so many comments on this and was wondering what others thought on this subject and how many people think it's true or false
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There are over 100 symptoms of fibromyalgia what symptoms have you experienced so far with fibro.
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I got to see my RA again this Friday , he decided that I am in pain because tramadol is not enough during the day. So he wants me to take Lyrica during the day. I have been and it might be helping 10 percent but makes me want sleep and makes it hard to think. I have even stuttered a few times. My husband is sick of it , I am suppose to be ready to intern this Wednesday ,everyday til December 12th . I barely can walk for a few minutes, before I do the 90 year old walk. My husband is taking me to a pain management clinic, to help me out of pain. I would love to be out of pain and normal, but lets face it I am not too excited on treating the pain and not the problem. I don't take medicine, until now and everything I try I have the low percent chance of the side effects. I DON'T want a pain clinic, but I want to be done with this misery.
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Update from yesterday , I woke up and my rear felt as if I had fallen . It felt bruised , it's not. Then I noticed my underarms are sore too. My hubby says that I didn't fall. However, I have been found to up in the middle of the night cleaning, my husband putting me back to sleep. I don't recall any of it in the morning. What can I DO ?
Do anybody suffering with itchy skin, i have had it for weeks but just on my stomach and back, i take lots of medication but the same for a while, taking gabapentin, tramadol and co-codamol for the pain, but stopped the tramadol has read this can cause itching, but not got any better, is it linked with fibro do anybody know.
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I am wondering if anyone has tried taking gluten out of their diet. Has this made any improvement to them?
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my GP tested me for Vit D level which was found to be low, and has prescribed supplements for me. I notice a lot of people on this forum are taking them. Is this because your levels have been tested and found to be low? Or is there a link to fibromyalgia anyway?
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to understand fibro pain more
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look up complex regional pain syndrome on the NHS choices page its a fairly new article only placed there today .your find it very interesting and might be a step forward to you understanding your pain better.
I have been seriously ill the last 2 months to the point i've been too ill to go to hospital apts and when attending an eye clinic was so ill the doctor sent me through to A&E. my blood sugar level shot up to 12 then fell to 2.4 i was given a sugary drink and it settled down but was so scary (new symptom) i was shaking from head to foot,heart rate was high and i nearly passed out. its happened 4 times since. i've had a headache for 5 weeks so bad it's affecting my sight. also nerve pain and weakness both arms but painful at the same time. what seems to be vertigo but not spinning just a feeling my head is moving.neck pains and cracking. feeling run down and very ill my weight has continued to drop now underweight and malnourished. I've been to my GP countless times and A&E no one can offer any help and there's no concern or urgency to find out what's happening to me. just given me endless pills that have not helped at all. what can i do to get the help i need NOW?
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