Liver Transplant Due To Hemochromatosis


Nov 13, 2014

Has anyone out there known someone to have a liver transplant due to hemochromatosis? If so, what was the experience like" Did the patient continue to store iron afterward?

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Hemochromatosis And Liver Cirrhosis Stage 4

I am a 34 year old male who was diagnosed with hemochromatosis  only after a liver biopsy because i only have one of the genetic markers. When diagnosed my ferritin was over 5000. Shortly after i was diagnosed with stage 4 cirrhosis of the liver. Is anyone out there in the same boat as me.

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Nodular Contour /Heterogeneous Liver Suggest With Normal Liver Labs?

My mother is a 65 year old female, 136 lbs, and on peritoneal dialysis for 3 years due to End Stage Renal Disease. Last week, she began experiencing severe abdominal pain that was a burning/gnawing pain. She went to the hospital and a CT Abdomen was taken without contrast. All was normal.

Over the next four (4) days, the pain persisted, particularly during dialysis exchanges at home. She returned to the hospital who admitted her. Another CT Abdomen was taken at this time which showed "nodular contour on the liver", free air in transverse colon which appeared to be dilated. She was also constipated for several days during this period. The CT impression suggested clinical evaluation for chronic liver disease.

A standard liver panel was taken and all results were normal. Nothing even close to elevated. She has never had a history of any liver issues and never had anything show on a CT for liver. After a day in the hospital, all stomach pain disappeared, she was able to use the restroom, and all stool samples/GI tests were normal without blood. She is naturally anemic due to ESRD with low iron/protein. Her last ANA/autoimmune panel was in December, all clear. No history of any hepatitis.

An Ultrasound Right Upper Quadrant was performed and the impression was no biliary obstruction, moderate ascites (tends to be normal due to peritoneal dialysis fluid), and "heterogeneous liver." The impression suggested referral for cirrhosis evaluation.

She began taking Hydralazine (25mg/3 times daily) in the last 3-4 months. She also takes a host of other blood pressure medicines.

QUESTION: She is currently awaiting a kidney transplant and very worried about this. A blood test will be taken in a couple weeks by a specialist that is supposed to diagnose Cirrhosis. Given this presentation alone, what other causes could explain this imaging results? Should we fear the worst?

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Liver Tests :: Echogenic Appearing (non Alcoholic) Fatty Liver

I had an abdominal ultrasound done for some abdominal pain and it was noted in the report as an impression that I had an echogenic appearing liver (such as non alcoholic fatty liver). My doctor at that time didn't tell me and just said my report was normal. When I went in for my Colonoscopy that was unrelated, it was mentioned again and when I did some research I realized what fatty liver actually was. I switched doctors.

My new doctor is considering giving me a CT scan but is checking with the GI department to see if they think its needed, etc. etc. But that there is no treatment for it besides diet modification.

Here's the thing. I don't have any of the risk factors. I am not overweight. I'm actually underweight slightly (BMI is 18, I weigh 110 lbs). I don't drink any alcohol, never did. And I don't have diabetes or hepatitis. The only thing I could do and what I have been doing is change my diet. I stopped eating processed foods, watched my sugar/carbs, and eat more vegetables than I ever have. 

I'm a very anxious person and I'm not sure I want to know what the scan says. If it's worse than what I thought, I'm going to be so upset and stressed out. And I can't treat it anyway. It's not like they can give me a medication and make it go away. I think knowing the extent of it will just cause me mental anguish and I'm already stressed out about it as is.

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Atorvastatin Causing Liver Damage, But Helps Fatty Liver?

My Cholesterol was 7.8 and I was put on Statins 3 years ago.  Because they gave me pains in my legs and other areas I stopped them.

A year ago my Cholesterol was still high and I had changed doctors and was prescribed Atorvastatin 10 mg after 2 months my doctor sent me for blood tests and in a phone call when I was at work he told me that Atorvastatin had caused Liver damage.  He said I should stop taking the tablets immediately, pity this advice was not put on my notes so that when I phoned for my blood results a week earlier the receptionist could inform me to stop Atorvastatin.  She just said Doctor will be in touch via phone call next week

He referred me to a Liver Specialist.

I went to see Liver Specialist after having Liver Ultrasound.  Fatty liver was diagnosed and Liver Specialist promptly put me back on Atorvastatin claiming this would help my fatty liver.  I couldn't believe it but what could I do?

Local GP had advised me to have bloods done again after being on tablets for 2 months.  When my results came back the Locum doctor I saw said "whoa your Liver is not happy" STOP the tablets and have a blood test in 2 weeks.

2 weeks later Liver levels are coming down so thats a good direction.  Dilemma is I have to see my Liver Consultant 16 June 2015.  Wish me luck!

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Liver :: Weight Loss Surgery To Reduc Fatty Liver

this isn't about me but is about my girlfriend who is about to have gastric sleeve surgery.

She is a 40 year old women that has had a full hysterectomy and has type 2 diabetes. she has had a history of thyroid and weight issues. she is 5,7 weighs 225 LBS. she has an enlarged fatty liver of 27cm and the Doctor said that she needs "emergent" gastric sleeve surgery to bring down her enlarged liver. this was claimed on this past thursday. I have been looking high and low for documentation and statistics on using the surgery for reducing fatty livers but can't find any information. Does this sound right? has there been a history of using this procedure for such cases, I'm worried and scared for her.

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Liver Tests :: Possible Fatty Liver With Elevated Enzymes

Been feeling lightheaded and brain foggy and a bit sick recently with some stomach grumbling and pain. Went to the doctors who did repeat blood tests over the course of 8 weeks and have said my enzymes are slightly up which could be the result of mild fatty liver. My question is does this sound related? He's also just tested me for celiac, but told me in the beginning that I could be fighting a virus. I'm worried that the 3 diagnoses he's given are so different I don't know what to believe, also does this mean I should be less worried about the tests because they are low enough to be anything?

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Liver :: Reactive Hypoglycemia Raises The Liver Enzymes?

I've recently had 2 LFT that both showed raised enzymes, I've had a scan and it shows I have gallstones, however I am currently undergoing investigation into whether I have Reactive Hypoglycaemia, my question is that if I do have RH, would this cause my liver enzymes to elevate?

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Liver Tests :: How Much Damage Caused By Fatty Liver?

IiIt was picked up by chance thaI have fatty liver, could have had this for years without knowing about it, how do I find out how much damage has been done already if any? My GP does not seem too concerned about it, all my LFT have come back normal so what can I do about it apart from lifestyle change which I'm doing already?

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Can Hair Transplant Be Done At 17

I am 17 yrs boy.My hair has receded a lot.Right side of my head has lost a lot of thickness and my scalp is visible.Receding is also ahead in right side.Only one of my uncle in father's side is bald. He is in his 50'sThe other uncle is not bald but has only less thick hair in all parts of head .My father has only receded in his 40's but not balded and i don't think he will as he has not receded a bit for the decade.All my uncles in mothers side has more thick and lower hair line than me.I had large forehead from childhood itself but its only seven months ago i noticed increased shedding and receding.I said my problem to my parents.My parents never took it seriously then and now.When i compelled them they only make fun of me. It irritates me .I had used lemon juice and onion juice in hair to promote hair growth 9 months earlier for once on the right side.Is my hair loss due to that ?.I had a lot more hair and had best thickness on both sides 9 months earlier.What is the lowest age to do hair transplant surgery. What is the cost of surgery in India.I don't think my parents would even buy a vitamin tablet.Will my hair last until I earn money of my own.Will it stops receding at least for 12 more years.Will the transplanted hair last forever.Or will that hair also shed.If so how many years will the transplanted hair last.Give a wild guess.I compelled a lot to my parents to take me to a doctor.After months of my compelling when i realized they will do nothing I stopped going to school as classmates often comment on my forehead .Then they said they will do something after final year examination. (might be because they realized the situation)I did scored good marks examination and had got 2nd position in school last year. This year my rank got down to 50's.Presently I can't concentrate in my studies. If I look at mirror i get depressed and the whole day i cannot study.Three fourth year is gone and not even one fourth of my studies is completed.I don't think i can get a good job if the receding continues as i cannot concentrate on studies.I don't want to become bald not even in old ages.Did anyone had similar experience. If so how many years did it took you to lose your hair.

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Kidney :: VUR In Adults? Need A Transplant?

I had my right kidney removed 3 year ago. It was atrophic and only functioning at 19%. They could never explain what happened to it. Right after my daughter was diagnosed with VUR and had to have it repaired. Recently after a stay in the hospital for an infection in my only kidney, they said they found VUR in my kidney. I have not had anymore test yet due to waiting on my insurance. My questions are. Can they fix it? If not will I need a transplant? Am I a good candidate for a transplant Because I also have AIH?

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Corneal Transplant And The Cataract At The Same Time?

I'm have had a corneal transplant & cataracts in my left eye at different times. Now my eye specialists wants to do both the corneal transplant & the cataract at the same time. I want to have it done but my husband is against it. If my husband makes me not have it done will I lose my eyesight completely in my right eye.

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No Corneal Transplant Due To Herpes Simplex In Eye?

A doctor from my local eye hospital told me that i could not have a corneal transplant due to the herpes simplex being in my eye. He said there was too much risk of the new cornea becoming infected. Is this the norm? Should I see a different doctor?

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Kidney Transplant - Donor Had Hematuria

I'm posting here on behalf of my sister in law. She's 29 years and since 2 years she's in dialysis. We're looking at the option to perform a transplant.

Her mother is a potential donor and we did all the tests. Everything was fine except for Hematuria (that is Erythrocytes in urine). After the doctors reviewed the result they told us she can't donate. I feel that while she may not be the best donor, they didn't want to take any risk.

I wanted to ask if anyone did a transplant while the donor had Hematuria?

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Pregnancy After Stem Cell Transplant

I'm 19 and 6 months ago I had a SCT. In August 2013 I was diagnosed with ALL(acute lymphoblastic leukemia). During chemo and after SCT I had cycle but it was a bit different. For a few days I have been feeling bad, I am vomiting. Today I found that I am pregnant. What should I do?

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Scleroderma :: Stem Cell Transplant?

I’ve been suffering from scleroderma for more than three years now and as the disease progressed my current treatment (Cyclophosphamide transfusion) seems completely unable to stop scleroderma to progress further to my lungs. So, ever since I got my diagnosis I’ve been searching online for possible treatments and one that came up is stem cell transplant that they seem to do in Singapore. The name that pops up most often when researching this topic is dr Loh Su Ming Yvonne – she is the one doing the stem cell transplants. I’m sure the whole thing could be too expensive, especially if she doesn’t operate in US, but still, if anyone went through stem cell transplant, could you please tell me did it help or not?

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Stem Cell Transplant For Parkinson's In Europe

I have an appointment next week at Placidway to discuss whether I will continue with the stem cell transplant for Parkinson's Disease in Europe early next yr. I have many things on my mind and I plan on asking a lot of questions. I'll try my best to understand and be relaxed. Lol! Anyone can help me on what to expect?

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Lichen Sclerosus :: Stem Cell Transplant Or Therapy

I wanted to say that my regular gynecologist shared with me when she diagnosed LS, that she has a patient, who went to Italy, for some type of stem cell therapy. I do not know what happened, in terms of results, but plan to ask, the next time I see her. I am in the US. Has anyone heard anything about this treatment? It may seem radical, but I understand why one would do it. It probably is expensive, and not covered by insurance.

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Constant Vibrating Eyes Since UK Stem Cell Transplant

I've had Non Hodgkin's Lymphoma since 2011, and had a Stem Cell Transplant in late 2013. Since the transplant I have constant vibrating eyes which last about 15 secs and then I'm OK for 2 mins. This goes on 24/7 and also is the same with my eyes shut, hence I need to take Zopiclone Sleeping Tablets every night.

I have been on 300mg pregabalin for a number of years, for my neuropathic pain in my lower legs. 

I also have a suspicion that I got Lyme Disease in 2006 but that has never been backed up by blood tests.

My condition has been described as Oscillopsia or Nystagmus,

Can anyone offer any advice.

I try and do the VRT exercises daily which I have done for 3 months now, but they do seem to be taking a long time to work.

I'm retired and 64years old.

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Liver Tests :: Reduce Alcohol To Reduce Further Liver Damage

Just before christmas I received a letter from my hospital saying “ recent blood tests show a slightly abnormal liver function and the scan revealed cirrhosis. It is absolutely crucial that you consider urgently reducing your alcohol intake to avoid further liver damage. I would be grateful if you could see your gp to discuss this further.”

Immediately I phoned my gp and couldn’t get an appointment for 2 weeks, when finally seeing my gp she referred me to a councillor, which took another 2 weeks before I saw them, only to be told they don’t have a clue at what stage my cirrhosis is?

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Eye - Multiple Myeloma :: Must Clear Up Styes Before Chemo / Stem Cell Transplant

My wife has recurring Styes (Chalazia) that must be addressed before Chemo / Stem Cell Transplant for Multiple Myeloma. We believe that the previous chemo drugs (Dexamethasone, Thalidomide/Pomalyst) contributed to the eye styes. They have been recurring for over a year now. She has tried antibiotics, antibiotic eyedrops, hot wash clothes, hot tea bags, and had one stye surgically removed. She was free from them for about a month following a break in chemo treatment and hitting them hard with antibiotics, but they came back. She has to clear them up again before she begins a Stem Cell Transplant because her immune system will be very weak.

Please help! Our Oncologist and Eye Specialist both seem to be at a loss and just trying the same antibiotics over and over.

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