Polycythaemia Rubra Vera :: Has Anyone Had Their Spleen Removed?
Jul 9, 2014
I was diagnosed 3 years ago at the age of 20. I was in total shock.At that point I was blacking out 3-5 times a day, constantly dizzy and struggling with the pain in my spleen.Along with the pv my haemotologist told me I am iron deficiant and cannot take iron tablets as it will make my haemoglobin shoot through the roof and risk me having a stroke or heart attack.so now I'm constantly tired and weak. I am just on 2 aspirin a day as doctor was worried about putting me on other medication as I'm quite young and is scared about the side effects on me (as if I'm not terrified enough).now my spleen has tripled in size and is a constant struggle to do daily things with my toddler, I'm starting to feel like I should just get it removed.has anyone had this done? And how did it effect you after the operation and then in daily life?
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i was diagnosed may 2015 with PV and thrombocytosis. I had 10 straight weeks of venesection and now 2 monthly. My iron levels have become very low and I am struggling to have enough energy to do what I need to do. I know I cannot have iron supplements otherwise I will need more blood letting. Does anyone know a solution to this problem?
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Sore finger joints and a feeling of numbness in one middle finger on right hand. It is really uncomfortable and this finger is lower in temperature than the other fingers. It's keeping me awake at night and doctor doesn't know what to make of it. Anyone run across this?
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I have a very large splenic cyst but it isn't really causing me any problems. I am 58 years old. The doctors want to remove the spleen... but I'd rather keep it. The cyst has shrunk in the past 3 years from 9+ cm to 7.8 cm.
As long as I am asymptomatic can I put off surgery? I live in a foreign country and the hospitals aren't exactly state-of-the-art.
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I had my spleen removed during bariatric surgery because the surgeon accidentally ruptured my spleen. The surgery was in 2010 and I still have pain in that area quite often. My surgeon says if I see another doctor about the pain he will drop me as a patient. Why would my spleen area still hurt and what tests can I have to find out what is causing the pain?
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i had my annual physical exam month ago. CBC was normal, but on ultrasound my spleen appeared enlarged, approx. 15cm. Month later my spleen was still enlarged, 14cm. I did a CBC + LDH blood test again. Again everything appeared normal on CBC and LDH was 200 (it said that under 330 it was OK). Doc told me not to worry but to have a new ultrasound and CBC (+LDH) in 6 months. I really do not feel like waiting that long. Sometimes during the day I feel extremely tired and sleepy. Any suggestions what to do next other than waiting for 6 months.
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Why is there NO RESEARCH being done on Spleen Hemangiomas? Are doctors making more money by just removing them and then dealing with the poor health thereafter? I want to know how to reduce the size of my spleen that is full of large hemangiomas. Anyone know anything about this. I also have them in my liver.
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Is anybody aware of any drawbacks to using Aloe Vera. Gel on their shingles rash? I am in the midst of a bad attack of shingles and the itch and burning has been driving me mad! A friend brought me some Aloe Vera Gel to try instead of the calamine cream prescribed and already it feels slightly less
painful. Would like to continue to use it if no drawbacks to it.
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I have recently started working in a salon and we sell the Aloe Vera range including a gel which is supposedly good for colitis? Has anyone tried it and seen improvement? I am on mesalamine oral tablets and mesalazine enemas - only been diagnosed a few weeks.
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Hi, I have read that really dry skin actually helps acne get worse. I used this cream to exfoliate and the next day my face was real dry, so i applied aloe vera gel to my face to stop my skin from being so dry. Does aloe vera gel help the skin on your face from being so dry and does that in result help acne from breaking out?
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My friend show me a website with lots of aloe products,and ask me to buy with her but i wonder if aloe vera is really healthy?
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Has anyone heard of Aloe Vera helping diverticular problems?
I saw a very convincing article on the computer about its benefits for all gastric and diverticular etc
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anyone using aloe vera for gums ? I have a strange swollen feeling in my gums after a tooth extraction ( 4 weeks since the extraction ), dental x ray is ok, sinus ct scan is ok, everybody is telling me I'm a slow healer. I'm tired of listening to that !
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So I have read a lot of research saying aloe vera is good for reflux. I bought some at GNC last night. Does anyone have any luck taking that and how do you take it, morning or at night? Also, what exactly does it do to help the reflux? Any suggestions or doses would be helpful. Like how many ounces do you take.
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Which is better for my reflux the liquid aloe vera or the pill. Does anyone take this to help their acid reflux. I also take omeprazole (10mg) once a day but also saw in the book Dropping Acid that aloe vera was good. I just don't know what form to use.
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I am wondering whether anyone has tried these for GERD, I have been recommended them for diverticular but upon reading up about them, they may help my GERD as well.
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Some months ago I started taking an Aloe vera gel with glucosamine for my joints, after a week I began to feel different, not in my joints that came later but in my whole well being, I feel more awake and alert throughout the day and general feeling. As i've read more on Aloe I have learned so much about this amazing plant and also how important it is as in many things to get the best, Have you found Aloe to help you ? and did you buy the best?
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I am 23 and was diagnosed with proctitis a month ago through a colonoscopy. I was prescribed 60 days worth of pentasa suppositories, and am halfway through my one a day dose. I don't seem to be making any improvement. Although my bleeding is somewhat better, I am definitely having more trouble with stomach cramps and needing to go more frequently. The pain arrives and is excruciating in seconds. If I can manage to let it pass, sometimes I need to go urgently again in a few minutes or I can be ok for a few hours.
Anyway the reason for my post is because I would like to know if anyone else has been prescribed the pentasa suppositories and how you found them? Should I persevere with them?
I also visited my local Holland & Barrett health store today and they advised me to buy an Aloe Vera gel/juice and to take 1 tbl spoon of this 3 times a day.. Does anyone have any advice or experience to share on this type of aloe Vera product?
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after discussing the values of Magnesium Supplement with my friend at Golf club I was told Pine Nut Oil is very helpful also Amp aloe Vera from USA.
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About 8 or 9 days ago I was experiencing pain on my left side which then moved about the whole abdominal area. Finally got blood work done the other day and everything came back good. Doctor had me get a ct scan which was good other than an enlarged spleen (14cm)
I'm supposed to get a chest X-ray and more bloodwork done next week. Today is Friday so I can't get these things done until after the weekend and if course I'm worried out of my mind.
I turn 40 this year. About 5ft 8 and 173 pounds. Last year I had a bout with LPR (silent reflux) but I got over that in mid October. Not sure if this could in any way be related though.
With all the possibilities of what can cause an enlarged spleen, Im worried. Guess I'm looking for others who had similar issues but had good news when all was said and done?
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Anyone ever been told they have a hemangioma in their spleen? If so, were you told why? I have researched the net and really can not find anything in reference to spleen hemangioma.
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