Morning everyone, for the last week still having usual neck & shoulder pain on. 7.5 pred, seeing Dr next week as he's on holiday at moment think will have to up the intake. My problem now is the earache has gone but keep getting tingling and pins and needles in my left arm, hand and fingers is this normal. It's the same side as the neck pain (left)
View 4 RepliesDiagnosed with PMR & GCA in December, 2015, I am down to 40 mg prednisone together with 20 mg methotrexate. Have only been on the methotrexate for 3 weeks and down to 40mg of prednisone for 2 days from 42.5mg so far so good. Apart from the normal side effects of prednisone, I am experiencing numbness in the tips of my fingers which spreads down into my hands. Mostly on the left side which is where my GCA is worse.
However, sometimes I have it on my right side as well. I have no strength in my hands and am dropping things. I have spoken to both my GP & Rheumy and they have not any answers. One would presume it is to do with blood/oxygen flow.
My left arm has been going numb from my elbow to all of my fingers and hand. I work at a desk. Sometimes I can't even type. I drink water and coffee. I was born with a double aortic arch. Had surgery at 4 days old, never had any heart problems since then. My arm has been doing this for a couple of months and will stay that way anywhere from 15 minutes to 3 or 4 hours. Should I see a doctor or what can I do?
View 1 RepliesIs it possible to get pregnant by masturbating (with fingers) after having touched bathtub/shower floor where there still might be some semen left from a man who took a shower there approximately 6 hours before?
View 1 RepliesDuring the summer of 2007 I had a couple of days where I had a tingling feeling in my lower arms and hands during urination. Later in 2008 I had another 2-3 day spell. Now in March 2009 I have experienced the same feeling. Just wondering what could be causing this and whether there should be any concern.
View 7 RepliesI have washed my hands just to see if it was dirt or something when I did yard work last night. The top of my finger is orange/bronze looking and I've researched it and it could be gangrene but I seriously doubt it, but never know. I came here to ask others what it could be.
I realized it about 2 1/2 hours ago at school during breakfast. I thought it was strange cause I have not ever seen it before. It doesn't hurt that I know of yet. Its just like below my nail not like underneath it but below it.
That's all I can really say about it right now. If anything comes up or affects any other places on me will let ya know
Had this condition for about 1 year blood tests do not show any problem so why is this happening?
View 6 RepliesFirst of all, i'm 22, and have never had any heart problems in my life. But recently, i have been having shortness of breath when going to bed at night. It does my head in, it takes me slightly longer to sleep because i can't stop tossing and turning. And just yesterday, i experienced a numbness in my left hand.
I had similar symptoms a few months back, and the doctor said there was nothing wrong with my heart, and that it was anxiety. I mean i work out 3 times a week, and never have any problems, so why can't i sleep?
I love fruit and eat plenty,also i have Manuka honey, my question is as we have to be aware of diabetes should we be aware how much we eat, does our body process natural sugar in a different way to processed sugars.Just a thought, been awake and up since 5.30( and was hungry so thought have some fruit before breakfast then thought am i having too much)
View 19 RepliesI've been experiencing some aches and pains over the past few days, it started off with aching in my wrists up to my elbows, now my joints in my legs and ankles are aching, also a bit of a stiff/ sore neck and top of spine is sore. In general my whole body is aching, feels sore to touch, throbbing and from time to time can get sharp pains. I don't have any rash as yet.
I have been in contact with chickenpox lately so didn't know if Id caught anything from that at.
I was thinking about PMR and although I am very nearly stable on 10 mg Prednisolone it is a knife edge dose. I still have many side effects from 4 years use of the steroid. In some kind of order they are:-
Muscle wastage, fatigue, lassitude, thinning of skin, easy bruising, cuts which take an unusually long time to heal, glaucoma, dry eye, exacerbated and premature cataracts which necessitated operations on both eyes to replace the lenses, virtual permanent stiffness and loss of motion in neck, constant shoulder and back pain, balance problems and now a recent discovery which I believe to be bronchiectasis. The last manifested itself with a slight productive cough I have had for about a year, with a shortness of breath which is steadily getting worse. Initial exam by GP showed no ‘crackle’, X-ray was ‘normal’ blood ‘normal’, whatever that is. Have seen this GP who gave me a course of amoxicillin (5 days) which did nothing. Then just left me to get on with things, no follow up, nothing. Not sure what to do next. I can see any one of the other doctors at this particular practice and am thinking to see one of them soon; well at least I can try for an appointment, currently 2 weeks!
Now the latest manifestation…..Shingles. Or to give it its proper title
Herpes Varicella-Zoster. A particularly painful affliction caused by the chicken pox I must have had as a child. It has affected the left side of my scalp, my left forehead, eye and face; I am not a pretty sight! By the time I knew what it was it was too late for any anti viral medication so will just have to let it take its course. Existing on Paracetamol, Codeine, Neurontin and the occasional Tramadol. All of these analgesics are for a short time only, don’t want to get hooked. Managed to see a doctor reasonably quickly about my eye who sent me to the eye unit at my local hospital, ophthalmologist examined the eye and gave me the all clear, phew!
On top of all this I have the daddy of all flares I put the cause of this down to the trauma of my new affliction. My immune system is compromised due to the daily use of 10mg. Prednisolone which I have increased to 15 mg. for a short time. It appears that any kind of trauma either emotional or physical will set off a flare.
I wondered what causes a flare in other sufferers from PMR/GCA and do they do as I do and increase the dosage of steroid and try to rest? Or is there a magical cure I should know about?
Long ramble I know but strangely feel better for writing it, apologies if you think I’m wasting your time, or a hypochondriac. (I’m not).
To my knowledge I have never had chicken pox. I have been taking Pred for three years and am now down to 3mgs from 15. My granddaughter is with me with chickenpox. Should I be worried please?
View 24 RepliesI was told years ago i haf fibromyalgia but now my blood work shows a high sed rate
View 31 RepliesBackground: I am 66 years old and have suffered first attack in mid November 2015... I have been fairly active person and have done some triathlon in the past, so not being able to get out of the bed on my own was pretty shocking to me... It took about one month to diagnose PMR and I started medication (prednisone) at 15 mg/day mid December.
If there is an interest, I would like to post about the progress in recovery, with special attention to exercise. I am seeing specialist every 2 weeks and complete blood work is done to monitor inflammation caused by PMR.
I would like to post what I have done thus far and future progress in (hopefully) successful recovery.
Has anyone tried Q10 supplements, and are they alright to take with pred.
View 33 RepliesI have recently had blood tests again and have a low esr. I have symptoms of pmr and discussed these with my gp. I begged her for prednisolone and she reluctantly agreed but only one week. I felt great! I was walking normally, getting out of bed for the whole day where I was bed bound a lot before, just felt so wonderful having so little pain in my hips and shoulders. My blood tests came back normal and she said she cant give me any more and is referring me to rheumatology again. The pain has come back, my hips are crippling me my shoulders are so so painful again and nothing else has worked, just the prednisolone. My orthopaedic specialist may give me one more injection in ten days, vpbut that will be the third and he said 3 is the max so I should have relief for 3 weeks, if previous injections are to go by but after that.
View 42 RepliesFor the last week or so, I have been getting short of breath, and very dizzy, feel like I am losing my balance, and my heart is racing. I have never had panic attacks, and this seem to start strangely enough when I have been reading....and then the weird feeling lasts the rest of the day.
Is it possible it`s the 11 mg pred I`m on? (have been for 4 years) Just can`t pin down what`s causing it! My blood pressure is ok....not diabetic...
I broke the ring finger from the left hand and have consulted with two trauma specialists in hands, yet one recommended surgery and the other not.
Can someone tell/confirm me if my case really requires surgery or not and if it´s not required, will the sensitivity and finger mobility affected?
help! i have anxiety problem but recently i feel normal again until today i felt my left hand feel numb and it makes me scared whether it is heart attack. however i have exactly the same experience with this last week and i have done ecg and it turned out okay. i also have done ecg many times and every times it shows okay. but im still scare and feels worried. is it normal for anxiety patient or not?
View 1 RepliesI am wondering if gum inflammation is related at all to the PMR, GCA. I will see the dentist in a couple of days. Thanks.
View 6 RepliesDoes anyone know whether cannabinoids have been clinically studied for PMR? There has certainly been a study that shows they may be effective against the inflammation in other diseases. Google: cannabinoids and inflammation.
View 2 Replies