Polymyalgia Rheumatica - Severe Wrist Pain (worse At Night/early Morning)
Sep 23, 2015
I have had classic PMR symptoms (shoulders/upper arms/hips) and was diagnosed on March 2015... I am now reduced to 6 MG pred daily.
Have for the past two weeks or so had SEVERE wrist pain... not sure if it is pred withdrawal or PMR.
Anyone else have PMR pain hit their wrists? Cannot stand to bend them... Cannot remove a lid from a jar, etc.Gets better as the day wears on. Worse in the night/early morning.
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I'm now one week into my first taper from 15 down to 14 preds, for the last 3 days I felt really well, in fact began to think my diagnosis was wrong.
Silly me, woke up a 3 am feeling sore, by 6 am I was at 7 out of 10 on my own pain scale, so depressed but now certain I do have a problem.
Just wondering if cold could spark a flare? before the diagnosis I suffered aches and pains when the weather changed, this week I've enjoyed pottering in the greenhouse with the lovely sunny weather making it a joy to be outside, yesterday back to really cold weather and I got very chilled. Is there a relationship with temperature and PMR?
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I have severe bruising on my arm. Whole right arm. Super ugly. I've been diagnosed with pmr for three years. Could be down to 5 mg. However, had major insect sting and hives and reaction. So, went back up to 40/20/10 mg prednisone for 12 days per Doctor. . Doctor gave me steroid shot, too. Please tell me that this new super dose of prednisone may have caused all this major bruising? If so, maybe can tolerate for a month or more?
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Anybody else had severe pain in wrist and new bruising 11 days post op. no issues with movement of hand or scar. Just this horrible pain when i put any pressure on my wrist.
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I was diagnosed with this condition a few years ago in my left hip. I was given a steroid injection in my thigh and to be truthful, I completely forgot about the pain. I still get niggly pain, but nothing I can't cope with. In January this year, I was diagnosed with it in my right hip and was given a steroid injection in March. It worked for a couple of days, but after that, the pain is worse than before. I am due a follow up in September. Painkillers don't seem to help at all. Any other sufferers out there?
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How is it that most of you say walking helps you get rid of the pain? If I walk for 20-30 mins I have pain which takes ages to clear up - sometimes into the next day, or even the day after (and it has since the PMR started). Exercise is good for you! OK, I know that, but what do you do if you get more and more pain by doing it?
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Have any of you had more problems with your teeth, pain, cavities etc since taking pred? Also why wouldn't my dentist like to open out a tooth to crown it while I'm taking 15mg of pred?
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Since we've gotten off into subject of the awful pain of sciatica and the fact that it can last so long....does anyone besides me have trouble telling the difference between sciatica or low back problems and PMR? I'm not sure which is which sometimes and hesitate to increase the pred for what might be different pain.
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The thing I don't get yet is how come people still get pain and fatigue etc if you are taking pred? If you are taking the appropriate dose then why are you still suffering? I thought the whole idea was that you take the minimum dose to control the symptoms. I understand that you might/will get flare ups but surely it's just a case of increasing the dose and not just putting up with it?
I am still adjusting my dose and had a flare up last week because I dropped it too quickly, but I get that. What I don't get is why people are suffering when it seems a simple fix to up the dose when you get a flare up.
Or have I just missed the point?
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I am a 54 yr old female ,had PMR for 2 years now ,started on 20 now I am on the reduction and on 5 mg of pred .like every one else I am still in lots of pain ,especially in the mornings and after tea time when I tend to sit down and relax .every day my pain is somewhere different , but most commonly in my hips,knees ,arms and shoulder and neck .some days it really hurts when I sneeze or take a big breath in ,like my ribs are going to crack ,.oh and my husband says I have this funny little waddle like walk in the morning till I get used to the pain .My rhumy is pleased with my reduction .......but just keeps saying to me well !you will still have a little pain as you cut down on your PRED ........
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I was diagnosed with PMR July 2012, with ESR 62, put on 15 mg Pred, 11 days passed before I was free of pain. 1 month later Doc reduced me to 10 mg. ESR than 10. Then later to 7.5mg and finally to 2mg by Oct 2013. Relapse started Dec 2013. Doc started to increase Pred. to 6mg.but pain persisted so Doc increased me in stages to 15 mg, (pain persisted) so Doc said go to 20mg or even 30 mg if pain still persists. Pain is persisting. Meanwhile, a full blood test was done and all came back normal, ESR now 12. Just to complicate matters, there was a moment 12 days ago when for 4 days I mixed up my tabs and was taking only 4 x 1mg, when I should have been taking 4 x 5mg. I am now on 3rd.day at 30mg. but pain still persists.Does anyone have any comments please?
The only other query on my mind is the fact that I was given a Pneumonia jab 3 weeks ago, could this play a part.?
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I am presently on 7mg, and worry if GCA is starting: the dull pain I get is not at the sides of my eyes but about an inch above and slightly back. I do not have other indicators, such as jaw pain or sore head to touch, and am unsure whether all symptoms are likely to be present or only one. My GP seems to think I am OK- any advice as to whether the temple pain in GCA is by the sides of one's glasses or an inch or two above this?
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On 25th Dec I reduced the pred from 7/8 mg alternative days to 7 every day, with a view to reducing to 6/7, but I had foot swelling and pain so I left it at 7 every day. I have been to the podiatrist who has said I have a bunion which has dislocated my toe next to the big toe, very painful ( ouch ).
Today I thought I would try to cut down to the 6/7 every other day, but would like your advice before doing so please, I am still in pain and my foot swells after being on them even though I am wearing the insoles the podiatrist gave me.
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I saw my Rheumy last week and he is concerned about my being up to 9mg of pred for the past 5 months (from 4mg). I've been on pred for 28 months. Starting decreased to 8mg using DSNS method but notice the difference. It has been a week and it's not getting worse so I think it is withdrawal pain, not flare. Will try week two and see what happens.
My Rhuemy said he'd like me to try Plaquenil along with pred to see if I could decrease easier/faster.
Does anyone have experience with this and if so what dose of pred and plaquenil did you take?
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Every morning I wake up having a very hard erection between 5 and 6 am.
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For the past 4 months, I am wide awake at 3:30am without any alarm. I've always been a good sleeper, sleeping until 8am. Now that the time went forward, I wake at 4:30, which is a bit better, but I miss waking at a normal hour. I fall asleep just fine, but wake ready to go way too early. Up until recently, I was waking several times a night. Anyone else have this?
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I was diagnosed with PMR almost two years ago , now down to 4 mg of prednisone a day. I generally am feeling very good except I have some chest pain when I breath deeply and cough. At times it feels like I have a lung problem caused by smoking except I never did smoke. I have been fully checked out by cardiac specialists and they tell me my heart is excellent. I am careful regarding diet and exercise regularly. Have anyone had similar pain ? Thanks
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I've been on fluoxetine for 4 weeks and actually feel worse, waking up 4am, weakness, shakiness, moodiness and can't even be bothered to get dressed. Feel very tired during the day but still waking up early.
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just started losartan today this is the 4th tablet I've been prescribed hoping side effects aren't to bad this time. Is there any benefit in taking meds at night instead of morning as they make me light headed and dizzy. Anyone got anything good to say about this particular tablet .Hope this one doesn't give me a cough again just got that settled after lisinopril.
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Hi I wonder if anybody has some advice based on personal experience please. I recently started on losartan [one week ago in place of bisoprolol] ....it is beginning to work in terms of lowering my blood pressure but i wake up every morning & i'm OK for the first 30 minutes or so & then the side effects kick in .... dizziness, fuzzy head, breathing laboured, heavy legged, headache & so on. I take my bisoprolol along with my warfarin & simvastatin last thing at night. Has anybody felt less side effects either by taking them at a different time of day OR maybe by splitting the pill ... I'm on 50mg daily?
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I injured my right wrist in April, and had surgery for it in the beginning of September, I have had two pins put in my wrist to allow the ligaments to heal as well as to align my bone which had dis aligned. I'm supposed to get the pins out in two weeks, and the pain has been absolutely unbearable. The pain is on the left side of the wrist where the pins are supposed to be taken out, located just under pinky. I am told that the pain is normal but I am looking for a second opinion as even slightly I'm bending my arm causes pain in my wrist.
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