I have had a rectal fistula diagnosed via colonoscopy. I have zero problems with it and would not have known I had it. From the operative report:
"midline anal fistula which was superficial with minimal amount of muscle involved within the fistula".
The surgeon said it should be fixed.
Why can't I just leave it alone? Do these ever go away on their own?
I wondered if anyone has had issues with rectal bleeding a few years after major anorectal and abdominal surgery to repair a rectal prolapse.
View 8 RepliesI am 20 years old and am due to have a colonoscopy. I cancelled my first appointment as i was so scared and was having night tremors and panic attacks at the thought of it!
Have read so many horrible stories and want to know actually how painful they are?
Would also like to know whether the painkillers and sedation is recommended as i hate needles and don't like the idea of not being aware of whats going on, dont want to feel like i'm not in control.
I'm having a first colonoscopy soon, and am concerned at the pain aspect, Doctors tell me it is virtually pain free, and I have a history of poor reactions to anaesthetics with previous hospital procedures and Dentists, where they just don't work, anybody else have this problem and how do you overcome it.
I have always told the Doctors who tend to just ignore what I say, I have to assume that any pain relief I get will not work until much later in the day, is this manageable?
My husband was referred to a specialist to undergo ligation for internal hemorrhoids using the CRH O'Regan System. They told him they will need to rule out colon cancer before the ligation procedure. He is 39 and has dealt with hemorrhoids since his 20s, no familial history of colon cancer, no anemia or other red flags that he is at risk for cancer. I am more concerned about the colonoscopy than the ligation. Do all physicians require that testing?
View 1 RepliesJust came home from a colonoscopy this afternoon and with the experience fresh in my mind -
I thought I'd share my thoughts.
Never having had a colonoscopy before, I was really wound up and worried in the days before the procedure.
The question in my mind was, just how painful is this going to be? Would I be able to deal with it ?...
So on the day - after a delicate conversation with a nurse on the day, I decided to go for entonox with sedation as a backup if things proved too much.
To get to the nitty gritty - So how painful is a colonoscopy? Well there is a difference I believe between pain and discomfort.
During a colonosocopy - With all that endoscope piping inside you, your insides will get thoroughly pushed and pulled, and so your body will be stretched.
The best I can describe it, is that feeling when you're carrying very heavy shopping bags for some time and your arms really really ache. Not pain but potentially a lot of discomfort.
So If you are someone who struggles with any discomfort, then maybe sedation is the way to go.
However- if you're someone who is prepared to put up with some stretching pulling discomfort (again not really pain) then confidently go for entonox.
In the examination room for the procedure, I was handed the mouthpiece and not given any instructions at all. So here is my take...Just take what you need. When you feel a bit of pulling and pushing, just take one or two lungfuls of gas and then breathe normally for 30 seconds or so. Don't take any gas if you are not in any discomfort as it was simply make you feel lightheaded and woozy. Again just take what you need. It kicks in with 20-30 seconds. Gas & Air is really quite *powerful* pain/discomfort relief.
Best advice - The most important thing is to try to relax.
Two reasons :-
1 By consciously trying to relax, it makes it easier for the job to get done, there is less pushing and pulling needed to fight your tense muscles and so therefore is less discomfort.
2 if you really think anything is going to be unpleasant and focus intently on it, your mind will create a sensation despite what is actually happening... A self fulfilling prophecy.
Just listen to the radio and take your mind somewhere else...
In my case, with a few lungfuls of entonox here and there, the whole procedure was very manageable. Important - accept you will have some discomfort, but it really is no worse than overstretched shopping arms...The staff at good Hope Hospital Birmingham were brilliant, and looked after me very well.
So in summary, I found the experience nowhere near as bad as some of the horror stories you read the forums. I suspect it is only when things go wrong, or people just have a bad experience, that views get shared.
I too am terrified of having a colonoscopy scheduled for this Friday. I have read the different experiences and don't know what to think as the experiences are so varied. Last year I had a flexi sigmoidoscopy without sedation, or pain relief, which was okay - just a bit uncomfortable. A polyps was found and therefore the doctor wants to check for more higher up. But the colonoscopy seems to be more undignified and painful. I do not want to be sedated as (a) I need to keep my memory for work; (b) I do not like being out of control; and (c) I have read some awful experiences of people being sedated. Therefore I am just going to have the pain relief. During the flexi I was embarrassed at the sensation of wind needing to be released and regardless of being told it is part of everyday work for the medics - it is not for me. This adds to the undignified process. So, although intellectually I know that having a colonoscopy will save my life, I am still very worried about the prep, the procedure and of course the results.
View 4 RepliesWhat is this new thing they are doing now?
Last one I had, I had to drink all the bowel prep the night before.
Now, they are doing one on me the 26th of this month(January)
and I am to drink half of it the night before, and I am supposed to get up at 4:00 AM to start drinking the other half (Half Gallon I guess)
Last time I had one, they found a growth, as I had been putting off my colonoscopy, as I was afraid. Plus I do not/Did not have any one to stay after me. I sucks when you don't have anyone around that cares about you, and will stay after you. I told my doctor to stay after me, but she never did. It is really my fault though.
But it is nice if you have some one to stay after you.
Anyways, the growth WAS cancerous, and they had to remove part of my colon, and it had spread to the lymph nodes, so they had to do Chemo, and now I am worried about it coming back, and killing me. Don't put your colonoscopy off if it is due.
Also was anyone allowed to drink less bowel prep because they have part of there colon removed?
I asked the doctor today, but they have to call me back.
I told them I wanted it looked into, and not just told to drink it all.
I did have a hard time drinking it all last time, but that was when I did have the growth in me.
My story is as follows: about a month ago, I began having ear pain that would alternate between ears. After a few days of this, the pain settled in my right ear, where I developed both pain and fullness that persisted for about two weeks. My ear constantly had the sensation that it needed to "pop," such as what one experiences when on an airplane. I went to my GP after a week of these sensations, who told me that it was likely Eustachian Tube Dysfunction and that it would resolve soon. She prescribed decongestants, antihistamines, and a steroid nasal spray. I took Sudafed and Allegra (but not the spray, as I am scared of steroids) but they did not seem to help.
Well, in the meantime, my blocked ear was annoying the crap out of me, so I decided to go online and look for some home remedies to try. One thing that I found was something called the Valsalva maneuver, in which you close your mouth, pinch your nose and blow out against closed airways to unblock the ear. I tried this several times over the course of a few days in attempts to get my ear to unblock. Most times it was difficult to get the right ear to "pop," and even when it did, it did not alleviate my symptoms.
Shortly after trying this maneuver, however, I read that the Valsalva maneuver can actually DAMAGE your inner ear and cause a perilymph fistula if done too forcefully. (I don't think I did it too forcefully, but I can't be sure.) Learning this sent me into a panic, and ever since, I have been experiencing a vague, constant dizziness that lasts all day. I have had trouble focusing my eyes and it feels, at times, like my brain is being sucked up and out of my skull (sorry). In the meantime, the sensation of fullness and pain in my right ear has improved greatly, but I am still being plagued by this constant dizziness. This dizziness has been present for a full week now. I have no sensitivity to loud noises, no hearing loss, and no episodes of vertigo. I do have a bit of wooziness when I am a passenger in a car, and I have felt extremely, unnaturally ill and fatigued throughout this ordeal. For those of you who have had PLF, does this sound like it could be a possible PLF? Is it even likely that I acquired a PLF after performing the Valsalva Maneuver?
Thank you so much for your help. I am hoping and praying that this dizziness is a fluke and not related to a PLF or inner ear damage, but the possibility scares the ****** out of me, regardless. I have had an extremely stressful year between losing my job, acquiring a crippling hip injury, and dealing with a host of other health issues, and the possibility of chronic dizziness is not something I feel capable of dealing with at this point.
Anyone out there had this surgery? I'm in week 3 and wondering what to expect going forward.
View 3 RepliesTo cut a long story short - mid August 2014 I did a sinus rinse for chronically blocked sinuses. It went very wrong and I ended up with water trapped in my left middle ear. It didn't come out by itself and the pain and pressure was getting too much. I saw a GP and we agreed on using a nasal balloon to equalise the ears and try to get the water out. I also tried a few valsalva actions.
One day (first week of September), I was using the balloon when I felt a painful loud click in my right ear. This is where my real problems started.
I now deal with: constant tinnitus in right ear, dizziness, vertigo, some nausea, really bad head pressure, auras, vibrations and buzzy feelings throughout body, deep pain in ear - can almost feel blood or fluid in right ear.
Saw GP and it is a suspected Perilymph Fistula of the round window in the inner ear. I am seeing an ENT privately, hopefully in the next 2 weeks. Thing is, I am in England, UK and I am worried that they don't really deal with PLFs. Then I will be stuffed!
I am currently doing as much bed rest as I can as I read online this is best at this stage. I am however very very worried about what has happened. I am worried about leaking CSF fluid too. I certainly have enough head pressure.
Can this really heal with bed rest or do I need surgery? Also, I am scared about my tinnitus getting worse with surgery. Anyone who has had PLF repair surgery, what was the outcome? Did your tinnitus get worse or better in the end? Did the head pressure go? Has anyone recovered just with bed rest?
What can cause a fistula between the urethra and anus
View 1 Replies I thought I'd let you know about my experience of a gastroscopy and colonoscopy with sedation yesterday. I found this web site two days before my procedure and found it really useful.
I was told that I would have to have a gastroscopy and colonoscopy about three weeks ago and I've been so so worried about it ever since. I have a phobia about being sick so the thought of someone sticking a camera down my throat filled me with dread :shock: ....all that retching HELP!
Anyway I got to the hospital and after a short wait a really friendly nurse called me through to an assessment room. She asked me all the usual health questions. I explained to her that I was so anxious and was really worried about the retching and being sick. She explained that there might be some retching as this is the natural protection process to stop you choking.
The nurse said what might help is the anaesthetic throat spray. She also said that the camera had a little suction tube on it so if there was any fluid in your stomach they could suck it away. I asked if they could give me enough sedation to make me sleep, she said that they are only allowed to use so much, but I would be nice and relaxed and may fall asleep.
I was then asked to change into one of those groovy hospital gowns. The Doctor then came to speak to me and went through the consent form. I told him my fears, he was very sympathetic. He then asked me to walk to the endoscopy room. The doctor asked me if I wanted the throat spray, I said yes please! He told me that the spray may make me feel that there was a lump in my throat but I would still be able to breath and swallow normally. He then put a cannula in my arm and tried to put my mind at rest, he then asked me to lie on my left side. The nurse said she had to put a little sponge in my nose, this gave me oxygen. Also she had to put a tube in my mouth this was a type of mouth guard. The Doctor said that he would now be giving the sedation.
I felt myself relax, the next thing I knew the gastroscopy bit was over and they were nearly finished with the colonoscopy bit, with one of the nurses holding my hand. That was quite interesting as I could watch the screen (if I wanted), there was just one slight bit of discomfort, then I was taken back the to recovery area. The nurses said that I had tolerated both procedures really well. I was so relieved that I could not remember any of the gastroscopy...not even one retch :D ! The nurses then brought me tea and biscuits and shortly after was allowed to go home. I just wished I hadn't worried so much, so I hope you don't either!
I would like to thank the Endoscopy staff at DCH for looking after me so well.
I recently underwent a colonoscopy procedure, but it had to be aborted because of the pain I experienced during. According to my notes, I had 100ug of Fentanyl and 5mg of Midazolam. I have been scheduled another with 'supported anaesthetic' on the 3rd November.
I'm really anxious about it because, having been told that I won't be put to sleep, just under a very deep sedation, I fear that the sedation won't do anything other than make me a bit 'out of it' while also experiencing the same pain as last time - which was honestly the worst pain of my life, despite giving birth and going through some pretty painful dental problems.
The consultant said the pain was probably due to my small frame, therefore my intestines being somewhat compressed, so given that I haven't suddenly expanded in width i the past 6 weeks, I'm guessing it will be the same this time too (I didn't have any pain or inflammation beforehand that would be accountable)
I've been told that they will basically 'see how things go' this time, only with the support of an anaesthetist in the room who can 'up' the sedation to 20mg instead of the 5 that the nurses are authorised to administer.
I just feel like this is going to be a waste of time and will have to be aborted again, so if anyone has any advice or has been through similar, I'd really like to hear about it.
I had a colonoscopy 3 days ago as I have Crohns and was awake for the whole thing. I told two nurses beforehand I didn't want to be awake for the procedure. Although I was given pethidine for pain relief there was still a lot of unbearable pain and I was shouting and crying but they just carried on. Afterwards they wanted the bed so I was given a cup of cold water and told to get dressed after about half an hour. As he was passing, the doctor told me he had taken several biopsies and the Crohn's didn't look too bad - then he walked off. I am now having nightmares and palpitations. I went to work yesterday but was sent home after a couple of hours as I couldn't stop shaking. I suffered sexual abuse as a child and this has triggered flashbacks. I can't stop crying. I will never have this test again as I would rather die.
View 1 RepliesChances are you are having your first colonoscopy too like me. I have decided to stop reading everyones stories about their colonoscopy experiences and to write about mine, mainly to stop myself freaking out. So hear goes, today I went to the hospital to collect my bowel prep, 'moviprep' pretty sure someone with a great sense of humour decided to call it that, good old bowel prep or perhaps 'bog hugger' might be more apt. Somehow I don't think a movie with the popcorn will ever be the same for me now. Anyway, spoke to a lovely nurse, who explained how to take the stuff, what I couldn't eat etc and about the procedure, and she didn't sugar coat it. So as I have to be at the hospital for 7.30am on Wednesday, I am allowed breakfast tomorrow before 9am. I can drink clear fluids all day. I have decided to stock up on energy drinks to take throughout the day, nurse said it was ok. I then start the moviprep between 5pm and 7pm, I have to mix a and b sachet in a litre of fluid and drink it, and drink 500ml of clear fluid after. Then I wait or maybe hug the loo, will let you know, loo permitting. Then the leaflet says rest for 2 hours, not sure if their interpretation of rest is the same as mine lol. Anyhow between 9pm and 11pm I have to mix another two sachets in 1 litre of water along with 500ml clear fluid to wash it down. It then says at 11pm or when you stop going to the toilet you can go to bed. MMMh. Well the nurse said as she went through the leaflet with me, "you might find you actually don't stop going to the loo". She then asked me if I had any worries. I said I was worried that I might poop my pants on the way to the hospital, (sorry a bit graphic, but do we all not feel that way). She did say some people do do, and suggested I wear a sanitary pad or the like. I also said I was worried it would hurt, whilst she didn't say it would or wouldn't, she said it could be very uncomfortable and for a few days afterwards too, but it affects everyone differently and that things settle once you get back eating and using the toilet normally again.
I am going to drink plenty of water and have a light diet of toast and eggs for lunch and some plain white rice and chicken tonight as although I wasn't advised to it seems it is better to avoid foods with any fibre in them. Probably have egg and toast for breakfast in the morning, then I am going to keep really busy till 5pm 'D' (for diarrhoea) Day as I am calling it.
I sincerely hope that I am sounding upbeat and chilled about this whole experience, that's my aim. In reality I am scared senseless, (poo less!!! - hopefully I will be by 11pm tomorrow night ha ha).
Because like everyone else not only is there the worry of the procedure there is the worry of what might be found.
I am going through a possible plf and trying to talk to people who know about these. Please if you are still around I'd love to talk. There are very few people out there and. Very little information.
View 14 RepliesI was hoping for some advice on a problem that I've had for 3 years. My main problem has been on and off vertigo and imbalance, however I don't think I have rotational vertigo because most of the time I just feel like inside my head is spinning? It also feels as if the ground is sinking beneath me.
Dizziness started 3 years ago, about 2 months after a serious bout of the flu which took months to recover from. At the time my ears were extremely blocked and I would do the Valsalva maneuver to help unclog my ears. It wasn't until now that I discovered you aren't supposed to do that? Anyway my dizziness was consistent 24/7 for nearly 1 year, at which time my symptoms seemed to disappear. As of April this year my symptoms returned.
Over the years I have been to numerous GP's, ENT's, neurologist, and all of which were unsure of what was going on. Most of them have said they don't believe it's Meniere's disease. My main GP said I DIDN'T have fluid in my middle ears, however since then 2 GP's have both confirmed that I DO.
Current symptoms:
Brain fog
Dizziness/vertigo
My ears feel wet in the morning. Not enough to wet pillow
Tinnitus in both ears, slightly more prominent on the left side
Fatigue
Difficulty concentrating/problems with memory
Tingling/electric shock feeling on left side of scalp behind left ear
Anxiety
GERD and gastritis
A couple of things seem to exacerbate these symptoms, such as anxiety, hot and humid weather, having a hot shower (I now have to have cold showers, before I would have to sit down), menstrual cycle.
So I am pretty convinced that I either have a perilymph fistula or middle ear fluid. I have been using Nasonex for a couple of months which seemed to improve symptoms but now I am starting to feel worse again. My now current GP has suggested Ventilation tubes/grommets, however if I actually have a perilymph fistula will this improve symptoms or not have any benefit at all? I also have been prescribed SERC but I do not think it will help, as 2 years ago I took it and it made my symptoms WORSE.
I am wondering if I may have damaged my ears years ago when I had the flu by constantly trying to pop my ears. I have been allergy tested for Molds, grass, pet dander and dust mites, all negative. I have also been tested for MS which was negative, and all the routine blood tests etc. MRI showed I have a mid-septal deviation (my nose isn't straight) and previously enlarged adenoids, but apparently was of no clinical significance.
In the spring of 1990 after a chronic right middle ear infection, I began having bad vertigo, nausea, and disequilibrium problems. I saw the ENT recommended by my PCP and after testing that came back normal was scheduled for exploratory surgery. A perilymph fistula was visualized and patched. Recovery was normal with some slight dizziness continuing for a few months and then resolving. Postoperative testing revealed no loss of hearing from the surgery and I was released from care to resume normal life.
Fast forward to March 2014, severe disequilibrium, tinnitus, and noticeable hearing loss brought me back to the same ENT (A relief, as he remembers me as being his only visually confirmed PLF) Testing showed hearing in the right ear normal but not as good as the unaffected left ear, other testing showed a possible recurrence of a PLF in the the same ear (right). I am scheduled for surgery on April 30, 2014.
There was nothing during this time that would account for the fistula to recur, no heavy lifting, head trauma, air travel, upper respiratory illness, etc. He feels that I may have a predisposition to increased pressure in my inner ear that causes the fistula to recur. Has anyone heard of this? And, if so, why would it take 24 years to happen again?
Now 22 , at the age of 13 , i started to have urination difficulties , standing in front of the toilet for about an hour , feeling the urge to urinate even though i know at the same time that my bladder is almost empty and finally a drop or two come , it continued for about a year then it was gone , for the last three years i have been having the habit of excessive masturbation ( sometimes 4 times per day ) , most of the time i go directly into sleep after masturbation , and as result the usual need to urinate after masturbation is suppressed and the urine is retained till i woke whereas i feel its reflux in the ureter , during this period whenever i go to sleep with full bladder ( regardless after masturbation or not ) , the urge to empty my bladder never woke me up , but what came up recently that i started to drink half liter of beer before i go into sleep directly every night for the last 3 days , yesterday i felt my prostate hard as rock , this sensation is mild so far , it is expressed more when i sit on something hard or try to urinate , now today this morning when masturbated after 2 days of cutting masturbation off , this mild sensation became to increase , then afterward masturbation when i try empty my bladder i felt more pain and couldn't pass urine , when i tried about 2 hours later , i managed to do it hardly after i tried to strain my bladder , whereas during these 2 hours i felt urine retention but with much less of the natural urge which drive you to the bathroom but i still feel the pain of reflux at up the ureters , the one thing which is so clear , that my pain is expressed from the prostate as hardening or feeling it like a rock , with mild sensation of burning . Also i think it is important to mention that at the age of 15 i got " pilonidal sinus " and underwent surgery to remove it but , i stopped checking it for the last 5 years and i have been feeling it pain coming back for about a year or more , but i ignored it , whereas i am referring that i may have a case of prostatitis with infection originated from the fistula , i also doubt it may be prostate cancer , even i know the chances of having it at such age is almost nil , this is why i am thinking to take the test of " PSA "
View 5 RepliesI've been having pain in my right lower abdomen for some time now and did some tests and all seem clear. Today I went to a surgeon who tested me and said all feels very normal. Since my dad had colon cancer at 56 he suggested I do a colonoscopy just to make sure there is nothing. I need to wait till the 20th April and I'm already freaking out. Will they tell me immediately after the colonoscopy if something is wrong? I'm 39 with 2 kids and always assume the worst that I have cancer.
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