I've been on azathioprine for Approx 6 weeks and the last 2 weeks have been hell. My knees feel like they've been shot i'm not sleeping in the nights always have a headache cold sores chesty cough sinus trouble.
View 8 RepliesI have left sided colitis and have been on azathioprine 75mg x 2 daily and two 5mg prednisolone tablets. Have been on the full dosage of azathioprine for four weeks and now suffer from constant constipation to the point where I have to take laxatives and eat prunes. Has anybody else had this problem? Have purchased a tub of benefiber but unsure as to whether I should use it.
View 10 RepliesI'm a 48 yr old lady who has UC now for 25 years. I was diagnosed when i was 6 months pregnant and the flare lasted until my daughter was 2 years old. I have had several episodes over the last 20 or so years, but all have been controlled with rectal Mesalazine. Sept 2012 I had a major flare up while on vacation in USA and hadn't brought any meds with me. I have been bad ever since. I have had the 10 weeks of steroids which cleared it up, but as soon as i stopped them it started all over again. I was put on 200 mg of Azathioprine, 400 mg Ferrous Sulphate, 4 g of Mesalazine oral as well as the supositories. Grim.......so tired, so low. Jan I was put on Adacolumn for 8 weeks of dialysis. This gave me a months break, but the symptoms returned along with leg ulcers (pyoderma gangrenosum) and an amazing pox, warty virus all along my abdomen, and thighs. The skin Dr said it was all due to the Azathioprine. Weighing up the pros and cons, My consultant and I have decided to stop the Azathioprine and start me on Arsenic suppositories.....sounds gruesome. Has anyone else been down a similar path?
View 1 RepliesI have been on azathioprine for 9 months now for my UC and is well under control now.
I have recently been having episodes of extreme abdo pain (not bowel) that comes on all of a sudden and lasts for a few hours..also these episodes include vomiting and passing blood in my urine (last one looked like there was sand in it).
So I'm thinking this is my body trying to pass kidney stones??
Has anyone had this experience after taking azathioprine?? Maybe I'm not drinking enough to flush the toxins through from the meds?
I get mouth sores quite frequently, and observed that whenever I get them it ends with some specific stomach conditions, ultimately when that condition clears by passing stool with large amount of mucus, sores start shrinking, and keep on drinking water and urinating, sores literally vanish in ours.
View 7 RepliesRecently got over a cold now I seem have this nasty may cough that is producing phlegm but it getting sick in my chest n thrust literally cutting of my airway.
View 3 Repliescan any 1 help me, im a 23yr old female and have had flu like symptoms for last 4 days, high temp congested nose and dry cough, but now this cough has turned into a chesty cough and everytime i cough i am getting a stabbing pain in my chest, have not been drs yet as it's weekend and don't want to waste any 1s time, not sure if this is a bad luck or related to symptoms above but i'm also experiencing terrible pain in my lower right abdomen groin into my back, kidney pain, can this be related to the flu like symptoms or something totally different.
View 1 RepliesI get cold sores 3 times a year and 2 canker sores a year. Why do they hurt so much. I think it's because they are infected. Why do they last so long too ? Should you pick at the cold sores on your lips just to get the scab to heal ?
View 1 RepliesRecently told I may have Ménière's disease of right ear. Any medications or surgery has helped for you? Symptoms are constant dizziness(at times have sensation of falling or floating when really bad), lightheadedness, very unbalanced, foggy headed, at times ear pressure and constant headaches. All started after bad sinus cold in mid last September and hit me really hard a few days after cold and has never left. The only time I had relief and felt 100% percent was when they gave me antibiotics and prednisone.
View 10 RepliesI have UC and have had this for the last three years. At the moment it is quite settled however my anxiety and my social fear is taking over my life. I have a fear of not making it to the loo on time when I am out and am constantly thinking of where the nearest toilet is, and although I don’t require it I work myself up so much that I do. This mostly happens when I am stuck in traffic or if the train just randomly stops for a while- as I then get scared that I need the toilet. This brings me very down as my life has changed as I am always fearful and feel low and depressed at time.
Any help or advice will truly be appreciated please as I am longing to have a normal life with my family and friends without having a fear of needing the toilet.
Many thanks in advance.
I am a Diabetic and have been for over 10 years. Since then I have also been diagnosed with Ulcerative colitis, cervical Osteoarthritis, and recently Diverticulosis. I had a fusion and discectomy on C5/C6 August 2014. Since the operation I have had such a bad flare up and I have trouble controlling it. I am now on steroids and hopefully this will take some control. And now I have been told I have high Potassium levels, not sure why this is, could this be because of infection?
View 3 Replies21 year old female diagnosed with left sided UC after 2 colonoscopies over a 6 month period.
I went from 3 to 4 capsules of Apriso daily, which isn't working, to now having just done my 4th Remicade treatment. I still have diarrhea all the time, and occasionally with blood in the stool. I spoke to the Gastro who has said our next steps might be to increase the Apriso (I have one friend who takes 8 capsules daily!), or to try stopping the Apriso all together and seeing how I do. I have tried to get my stress under control-I am a full time student that travels between two campuses and work about 30 hours a week, and even dumped a boyfriend because he added too much stress to my life, lol. I have found stress makes me flare up quite bad.
Is anyone else on Apriso? How much were you prescribed?
Thanks for anyone's experience and wisdom you can share. My Mom and I are about at our wits end trying to find a balance for my life that lets me heal and still lead a somewhat normal life.
I was just wondering if anyone has found any particular types of exercise that help flare ups? Or help to ease the pain... I read swimming is good but is there anything I could do at home?
View 1 RepliesEvening all I was told I had colitis back in April
Was given mes 1g 4 to be taken daily.
They said I had not mild colitis but couldn't confirm
If it was colitis or crohn's. Anyway I do get blood mucus tummy pain when I go toilet. But no pain
Which I am thankful of. I am have a flare now which I meds are not helping they can't seem to kick it. So I am awaiting steroids.
The thing is my tummy makes some loud rimming noises. Is this normal with colitis. Little bit peed off
That they can't say it's colitis or crohn's.
I have been taking prednisolone since August following a severe UC flare up (my first!!) which landed me in hospital for a week. I was on a slowish taper (starting on 40 mg per day and reducing by 5mg every fortnight). I am due to take my last 5mg tablet tomorrow (I am also on 8×pentasa a day at the moment) and am worried about withdrawal/side effects. Anyone experienced any from gradually stopping the steroids?
View 2 RepliesI have recently started working in a salon and we sell the Aloe Vera range including a gel which is supposedly good for colitis? Has anyone tried it and seen improvement? I am on mesalamine oral tablets and mesalazine enemas - only been diagnosed a few weeks.
View 1 RepliesI've been diagnosed with ulcerative colitis yesterday and was given 30 x 500 mg suppositories but the consultant said I would have my next appointment in 3 months time.I have to use one per night.Do I use them just for 30 days or should I ask my doctor for some more after 30 days ? It's all very new to me.
View 5 RepliesI was first diagnosed with UC in my early 20's, no real problems until I gave up smoking when I found out I was pregnant at 33 years. Major problems throughout pregnancy, but symptoms stopped almost immediately when I started smoking again after the birth. 7 years later I decided I wanted to give up smoking and did so successfully - until the UC returned with a vengeance - my consultant was at his wits end what to do until I came right out and asked him - would my symptoms stop if I start smoking again. He knew I had done some research into the link between smoking and UC and indeed confirmed that although he could not advise me to start smoking again, there was documented evidence to support that smoking in patients with UC can be beneficial.
I AM IN NO WAY ADVOCATING THAT ANYONE START SMOKING
I want to know if anyone has any experience of this as I feel someone should be doing more research into what it is exactly in cigarettes that is helping with UC, as I have previously tried patches, herbal cigs, etc etc and nothing worked. I hate being a smoker but I would rather suffer the consequences of smoking at a later date than suffer the horror that I endured when I was not in remission.
Anyone on here been diagnosed with ibs as well as ulcerative colitis? I have been getting daily abdo pains and doc thinks I have Ibs alongside
uc which hopefully is in remission! Sometimes food relieves pain and sometimes a bm stops the pain but I cannot pin down any reason for the pains. I have been prescribed Mebeverine 135 but so far hasn't stopped pains. Would be pleased to hear from anyone else with IBS and UC and what their symptoms/ treatment are?
I am 25 yrs old and I was diagnosed with UC when I was 16. I am currently on 2000 mg Pentasa twice daily and 75 mg Imuran ( azathioprine) once daily. I haven't had a flare up in over a year. So all is good only now my partner and I would like to try for a baby.
I have discussed this with my consultant and she advised not to come off any medication as a flare up would be worse for the baby than the meds.
The only thing is, I have been looking into the effects of Imuran and it gives awful side effects including miscarriage and fetal deformities.
I am just looking to see if anyone has any info on what I should do. And if any women out there have taken this medication through pregnancy.
Just wondering how long it took people to get any kind of improvement in their colitis symptoms with renicade. I had my first loading dose today and the dr said it would take some time to see any kind of result.
Also did you experience any itching or headaches after? About two hours after i started expiencing itchy eyes and started to get a headache, now 8 hrs after the infusion finished my hands, arms and face are itchy. My eyes are still itchy and my headache is still there.
I had an allergic reaction to 6mp but it was far more intense itching than this.