Cholesteatoma :: BOTH Ears?


Nov 4, 2015

Has anyone experienced a recurrent cholesteatoma in one ear and now a cholesteatoma in the other?

I experience chronic pain and chronic migraines as a result of the 3 surgeries I've had in my right ear. I have severe tinnitus. So severe, that there are times when I literally cannot hear anything around me. Another thing is that sound gets extremely distorted should a voice or sound be too high or too low - you can imagine how difficult this is being a PreSales IT Architect who speaks with a number of people every day.

Also, my right eyelid and right side of my face fall a little lower than my left. In addition to this, I feel pain outside the ear as well and in the muscle that has been relocated three times for each surgery. This causes me pain when I simply move my head in any direction...even when I make facial expressions. Dizziness and vertigo are almost a daily occurrence with some days worse than others...It feels like the room is in a blender. Driving is also becoming increasingly difficult as I often feel like the car is still moving when I come to a stop and vice versa....It's a laundry list of things, I know.

I now have a cholesteatoma in my LEFT ear with my 1st surgery on that is on 11/13/15.

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I have had a cholesteatoma three times now and was wondering if it was hereditary? as my little girl has had some hearing problems (only minor) but hoping that it is not?

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My husband had  radical mastoidectomy this summer. This was his second surgery (cholesteotoma returned after first surgery) and this time, his ENT closed off the Eustachian tube in the affected ear.

We are thinking about taking a trip next year (Winter of 2017) and my husband is concerned that he will not be able to fly because of the pressure changes. 

For those that have had this same surgery, are you able to fly comfortably?

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Cholesteatoma :: Experience With KTP Laser Surgery?

I just got diagnosed this year with a Cholesteatoma, after a heavy mid ear inflammation in June, following a severe cold. Before that I had no problems with my ear.

My hearing was virtually lost during the inflammation but recovered pretty well, I guess only a 30 % has gone in my right ear. I live in Spain, in the mountains, and have no problems while I am here.

But I just visited the Peruvian Jungle, and it happened two times that after 3-4 days in the Jungle, my ear starts draining liquids and my eardrum perforates. After being treated two times with antibiotics in Peru, and moving to an area where the air is much dryer, the inflammation goes away within a week.

Now, last Friday I talked with my ENT specialist, and he has put me on a waiting list to have it surgically removed. According to him, it is a 'removal' operation, with a high chance of losing my right side hearing completely, as he 'thinks' the ossicles are infected.

When I asked him if a KTP laser is being used, the answer I got was that they don't use KTP laser in these kind of interventions in Spain.  

Since I do not want to lose my hearing capacity in the right ear completely, I understood from reading about Cholesteatomas and treatments that a KTP laser assisted intervention has a high chance of preserving the ossicles, and thus hearing capacity.

There is an ENT specialist who has published about this, Dr. Fairley.

Does anybody has experience with him ?

Has anybody had this type of surgery with a KTP Laser ? How were the results ? I am very interesting in your story, As I am considering paying for the intervention myself in another country.

Prices are fluctuating a lot for this procedure, so if anyone knows a good ENT specialist (Cholesteatoma & KTP Laser) I would appreciate your opinion and experiences.

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Cholesteatoma :: Permanent Hearing Loss

I am a 25 year old male and have recently been diagnosed with Cholesteatoma in my left ear. My case is a bit different it seems as until July 2015 I had a perfectly good left ear. I picked up a cold and ear infection while on holiday in Spain in July 2015 to which a week or so later I was hearing bells going off in my ear constantly. I was put on three different doses of antibiotics and ear drops between July and October. I began to get white discharge from my ear about a month after I had the infection and this discharge turned yellow a month or so later. It was not until January 2016 that I was able to see a ENT specialist who diagnosed me and this was confirmed with a recent CT scan. I have not had any hearing (besides the bells going off in my ear) since I first got the infection back in July. After I had the CT scan and hearing tests I have been told that my ossicles have been eroded and I am very unlikely to get hearing in my left ear again. The infection has dried a little bit from some ear drops which the ENT specialist gave me and I have an MRI scan this week as they want to determine if surgery is absolutely necessary before going ahead. I have seen two ENT specialists at this NHS hospital. This morning I woke to find my ear slightly wet again and with a tiny bit of blood which prompted me to go and see the hospital to which they assured me that this was normal and can happen.

It it seems as though a lot of people have problems with their ears in childhood which leads to cholesteatoma. Has anyone been in a similar situation to myself? The more information the better. 

Note: I had sinus surgery in February 2014 and the CT scan I had in preparation to that operation has shown no signs of cholesteatoma.

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Ears are clogged up. How can I unclog?

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I am 49 years old. The specialist couldn't do AN MRI scan on my ears as I couldn't lie flat, don't know whether they can do a CT scan either, I thought he would have offered something when I couldn't have the MRI, I am a bit cross, I am worse since having the hearing aid, my hearing was going but at least I could use the phone which I can't now, that is really getting me down as I'm not always with my partner so we contact each other by telephone, that is the only way I communicate a lot of the time as I can't always go out with my breathing problems.

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I finally see specialist tomorrow and hope to get on meds... i have tremors all over body, anxiety, fatigue, high heart rate (120 at times)

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Went to the GP once and was given ear drops as the Doctor suggested it was built wax in my ear. The drops didn't seem to do much so went back and got an ear spray, antibiotic. I have been taking it for a week now and to be honest, might have done something, or so i thought but the last two days I have been feeling queasy again and the ringing in the ears isn't going away.

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My inner-ears have felt like there is cotton balls stuck in there. When I talk it sounds as if I'm in a tunnel another's sounds like they're whispering when talking at normal tone. I feel like I'm telling when I talk but I am actually talking really low. And same situation with listening to radio, television, etc... I have the volume on blast but it sounds normal level but muffled, and others complain its too loud. Been going on about 2 weeks now. It happened once before but went away shortly and all on its own. I've tried cleaning my ears with qtips, using peroxide, and popping my ears and all have failed me.

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What Causes The Clicking Sound In Your Ears When You Swallow?

Although my problem has been diagnosed as muscular, I have been doing PT for almost two months and the clicking sound when I swallow just doesn't go away (neither does the tinnitus).

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It started off in my right ear but is now in both and is so loud I have become so anxious and depressed and don't want to talk to anybody.

The clicks are audible externally, and if I cry and become congested I get slight relief and also if I tilt my head forward or lay my head in certain positions.

I went to the doctors yesterday who instantly diagnosed me with TMJ. I'm not sure whether to believe this, as the clicks aren't there when I open and close my jaw and why does it temporarily ease off when I am congested?

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Can Migraine Permanently Damage Inner Ears?

So for the past 11 months I have been having a number of inner ear related problems (or so I think), but some other neuro problems as well.

It all started from 3 separate exposures to very high decibel noise which left me with a little permanent hearing loss in both ears and major depression.

Though I have not been around intense noise since May, my symptoms have progressed and now I have 'episodes' consisting of mild-moderate vertigo attacks (counterclockwise rotation or a rocking boat sensation), periods of non-disabling imbalance (yet I can have trouble walking), very high or low frequency tinnitus (high pitched squealing or a low pitched rushing sound like the tide), ear pressure, and small bouts of very high or low frequency hearing loss that are usually permanent. These episodes are usually set off by loudish but absolutely safe noises, as well as strenuous exercise and possibly foods.

Though I would think these symptoms describe cochlear hydrops, these are not my only symptoms I experience during said episodes:

1. Headaches that can best be described as an increased pressure sensation, like my head is being blown up. Usually, the headaches begin at the temples accompanying a small hearing loss, then progress into my sinuses where they become painful.
2. Tingling that returns in specific areas of my hands and feet
3. Pressure and 'dullness' behind the eyes, and sides of head (I see perfectly but it's as if my brain dissociates from my visual field)
4. Crackling sounds in my head
5. An infrequent 'fuzzy' and lightheaded feeling in my head and around my neck. Lots of lightheadedness.
6. Almost passing out on a few occasions
7. Occasional visual aura (once it was a blurry spot in vision, another time it was little white specks flashing in both eyes)
8. Brain fog and cognitive problems
9.Feelings of dissociating from the world around me, typically when some hearing goes out.
9. Jaw pain
10. Tight neck and facial muscles
11. Frequent perception that I have a low grade fever
12. Mild nausea
13. Constant fatigue (I'm 21 but I have the energy levels of a 60 year old it seems.)
14. Frequent panic attacks

Anyway, does this long list of symptoms seem to be suggestive of basilar or vestibular migraines?

Relatedly, can migraines cause small degrees of progressive hearing loss, especially in the high frequencies? That's by far my most distressing symptom personally but I cannot find too much literature linking migraine to permanent hearing loss and cochlear symptoms in general.

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