Endometriosis :: Endometriosis After Myomectomy
Feb 7, 2014
I just left my post-op appointment for fibroid removal via abdominal myomectomy only to find out I have severe endometriosis. My OB/GYN says I have blocked fallopian tubes. I'm completely distraught. I'm 32, single, no children (would like all that sooner than later) and had the fibroids removed so that my uterus would have the "all clear" for babies someday. My doc says there was no way to know this prior to surgery and that the most severe cases are asymptomatic. As he spoke, I zoned out. I recall him saying he tried to remove the scarring and tried to see if the tubes would open bla bla bla. I don't know why I didn't ask for a pathology report or pictures, sizes weights.
Looking back, when he visited my hospital room the third day after surgery, I was told 4 fibroids were removed, but was initially told I had 7. I was in an anesthesia induced haze, so I didn't really hear much else. Today I asked about the 4 vs 7 fibroids and he said he removed all the fibroids that he could see. What the heck does that mean? Does that mean I still have 3 in there somewhere or did they shrink from the 5 months of hellish Lupron injections? I've noticed when I'm in shock, I forget to ask important follow up questions such as "Soooooo are there still some in there?"
At this point, I'm not sure what to do, with so many issues going on. In addition to dealing with this, I have other issues such as intense muscle spasms that can't be diagnosed, thinning hair and a balding crown. I'm not ready for children, but I'm extremely worried. I don't want to go through complicated pregnancies (if I can even get pregnant), miscarriages, IVF. It's just too much. According to the doc, I'll be reproductively old in 3 years (thanks for the added pressure)! I'd appreciate any advice anyone can give. I was only prepared to deal with the fibroids as endometriosis does not run in my family and I have no idea where it came from.
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I been having all the symptoms of endo. The lower back pain, pelvic, stomach pain, bloating. I also have leg pain which im not sure is linked to endo but my pain is constant as i've had it non stop for a month now but feel worse when im on my period.
I have been to the doctors as he said it could be a possible ovarian cyst but he didn't really know so he is referring me for a ultrasound which wont be for a couple of weeks!! He did no other tests apart from a urine test (still waiting on results)
My mum has told me both my cousins have endo and im just wondering if its genetic?
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Long story short, I've been suffering from excruciatingly debilitating cramps every single cycle,this started three ish years ago I spend hours in the ER I've been admitted few times as well and it's the same bloody routine every single time
I'm in immobilizing pain, cold and hot flashes, nausea, vomiting fainting poor appetite dehydration low blood sugar levels heart palpitations weakness fatigue exhaustion crankiness moody insomnia etc etc
All these symptoms I experience up to two weeks before my period then during the first 3-4 days of my period then total exhaustion few days after my period and I'm symptom free a week before my period give and take. I should also mention that I've had several x-rays, ultrasounds and all kinds of blood tests and everything comes out good healthy and no problems yet I have these symptoms that just don't seem to go away, last stop for me was a visit to an endocrinologist and he's taking care of my thyroid problem given a new doze a little over a month ago and things are looking fine on that end I had a referral from him to see a gynecologist in mid September but having been bed bound with all the symptoms and persistent pain on my right abdomen I spent the night in the hospital and everything came out good both the blood and the urine tests and the ultrasound and regardless of how many drugs were given to me via an IV I was still experiencing bad persistent tedious excruciatingly painful pain on the right side of my abdomen so the gynecologist today discussed laparoscopy with me and I felt so comfortable around her and being as fed up as I am with all this pain I said I'll go for it
It will be a Diagnostic Laparoscopy for Endometriosis she put it as urgent and she'll be the one performing the procedure I'm happy things will finally start to clear out and hopefully I'll be in my way to some kind of cure hopefully but I'm so nervous please help any words of comfort or advice will be greatly appreciated. I did half the paper work already and I'll have some more to do the day of I have a really good doctor guiding me thru this call me weak or crazy but I'm incredibly nervous.
It would be nice to hear from anyone who's done this kind of procedure please BTW I'm 23 years old, healthy no health complications non smoker or drinker
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I'm wondering what the symptoms are when endo attaches to the bowel?
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If I use Cataflam for severe endometriosis, should this drug prevent new outcome of my disease. I understood that Cataflam is NSAIDs and that it is usually is used to treat pain. However, Cataflam should have some anti-inflammatory potential, so I hope that it would help. How am I supposed to deal with this disease?
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I am 18 years girl with height of 5.2' and 115 lbs. my ultrasound report says my endometrial thickness is 10.2mm and the doctor said its bulky. Does my uterus is really bulky? if so what should i have to do? what are the possible risks and treatments?
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I have been diagnosed with Endometriosis in the lung. I was wondering if any one else out their had this condition? It's such a rare condition doctors don't know what to do...
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I am a 17 y/o girl. I am looking for some insight regarding possible endometriosis. I am sexually active, but last time anything happened was in September, and we used protection. I have since had 2 relatively normal menstrual periods. But, I have since had some weird symptoms, including irregular spotting in September between periods, (about a week after the last time we had sex), painful, noticeable veins (in chest, right side of abdomen, etc) some that radiate down from my pelvic area to my right leg (same side cyst is typically on), cramping, slight constipation/gas, and nipples slightly bigger than usual. About 5 years ago, I began having pretty localized right sided pelvic pain. Thinking this pain was possible appendicitis, I went to the ER. They did both a CT and ultrasound, and determined I had an ovarian cyst on my right ovary. Over the past few years, I've had relatively heavy, painful periods, sometimes irregular depending on the month. In Between periods I am generally in some type of pain, typically menstrual type cramps on my right side, radiating to the left. I had regularly experienced nausea alongside these cramps, pressure in pelvic area, and back pain. Every single time I have gone to the ER & gyn in the past 5 years, I have had a cyst on my right ovary. This last time I had an ultrasound done in August, a cyst was found again, but slightly bigger this time. My gyno also informed me that she was slightly confused by the cyst, since it was located slightly to the left of the cyst, and did not appear to be directly attached to it. I am curious if I possible have endometriosis, or a pregnancy is possible? I know I've had two periods on time since having sex, and we were protected. But, I am curious if endometriosis seems possible regarding the recurring cysts and symptoms, or if I am possibly pregnant, since I have never really experienced the radiating pain from the right side down my leg before.
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I saw my GYN today, and he thinks I may have endo.
Basically, at the same time of the month, every month (the week before my period), I experience severe nausea, and sometimes vomiting and stomach cramps. I've actually thought it was food poisoning, except that it literally occurs a week before my period starts. The first episode I remember was last April (the nausea was so bad, that my husband had to come pick me up from work), and again with really bad episodes in November and January (in January, the stomach cramps were so painful, I ended up in urgent care). With the last episode, the nausea persisted through the duration of my period.
But that being said, I don't feel like I have typical period endo symptoms. Cramps hurt, but are manageable. I tend to spot a few days before I start full flow, and I have heavy flow for 3-4 days, but then my period's gone after 7-8 days. Sex isn't painful. I feel random lower abdominal discomforts here and there (some twinges, or crampy feeling mid-cycle), but nothing that I feel is remarkable.
My GYN did an ultrasound today, and everything looked normal (no cysts or anything). He said, though, that given the timing and cyclical nature of my symptoms, endo is a possibility. My question is, has anyone else experienced purely GI symptoms? If so, what did you do to alleviate them? Did you have any other type of diagnostic test (lap, colonoscopy, endoscopy)?
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I was diagnosed with endometriosis behind uterus Dec 15 had diathermy and put on cerazette Feb 15 however the tablets seem to have been making. Me upset extremely emotional and depressed, the GP has taken me off them for a month. What other options. Are there apart from pill? I'm really worried all the pain will come back as cerazette has kept it all at bay!
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My daughter has very big problem. She is 23 years old and she has Endometriosis. This is very painful for her, but her gynecologist told her that is early stadium and that this problem is not yet in faze for surgery. He told her to take Aspirin and Ibuprofen if she has big pains. She has terrible pains since yesterday and I am wondering should she, maybe, take Cataflam.
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After years of pain, heavy periods, aches and really bad PMT I was finally diagnosed with endo about five years ago after scans and internal examinations. I was operated on and was ok for a couple of years. Then the symptoms returned and only after breaking down in the GPs room did they do the same again.
Just less than two years ago I started a new job but have had time off sick as my symptoms haven't improved. I'm tired, run down, back ache, stomach ache, pick up every could/bug going etc etc. Now I don't know what to do. My boss has called me in for a meeting about my sickness next week.
The Dr hasn't prescribed me anything but I feel all these symptoms are linked to endo and to the cyst I also had removed during my first op. I struggle almost daily. I'm sick of going to the doctor and begging, telling them I feel like rubbish.
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I have been presumptively diagnosed with endometriosis for the past 8 months, meaning I haven't had a laparoscopy to confirm. My pain is usually a gnawing/aching pelvic pain concentrated around my inner right hip bone. It can make it cumbersome to eat and move, and will eventually build up to create anxiety and fatigue.
Suddenly, I've been having very strong pain on my right side (again near my hip bone, but also higher and more general). This pain is sharp, sudden, and paralyzing. It will leave me shaking, gasping, and frightened to move again (as if moving might make it worse).
I am concerned about taking the endometriosis NSAIDs I have, in case this pain is from something else. (?)
LADIES WITH ENDOMETRIOSIS, have you ever had pain that feels like this? What does your pain feel like?
[The pain I'm having makes me imagine a small blade is sitting just inside my hip bone, and, when I move, it cuts into the tissue around it (miserable right?)]
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After my lap diagnosis, I've had a couple of shots of Depo Provera, which have only made my periods worse. My doctor suggested lupron with oral progesterone for 6 months followed by Depo Provera. Has anyone in a similar situation tried this? Lupron seems to have many side effects.
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So I'm only new on here but I want to know what your experiences with depo provera are?
I'm 19 I've been experiencing lower pelvic pain and lower back pain for coming up to 10 years, I started my period when I was 10. I was told I had appendicitis and that got removed, though I was still in agony from that (don't know when that was but roughly around 2007) the doctors kept telling me I should have no pain and it was all in my head, a few days later mum was told my appendix was white and there was nothing wrong with it, I had cysts on my ovaries and Fallopian tubes and water in my pelvic cavity. The doctors brushed it off and told me I had IBS and sent me to the bowel specialist (can't think of the name right now)who said its nothing to do with them and sent me to the Gyni, this went on for a few years of bouncing back and forth from one to the other, I finally got a referral from my GP to go to another Gyni who at first wasn't too interested but agreed to a lap and was then finally diagnosed with Endo in roughly early 2010. Since then I had been on almost all of the contraceptive pills and on the marina, I've had 6 months of Zoladex, I've also tried naturopath and diets, Nothing had worked with exception of Zoladex which I got relief for five months.
My Gyni is now wanting me to go to a pain clinic and wanted me to go to my Gp for a referral which we did and he doesn't agree, he said because I've got my period every day we need to get that to stop and then the pain will stop (He's the only one that understands) So he wrote a letter explaining that and also asking if I could go back on the Zoladex, in the meantime I'm on a antidepressant in ways to help mask the pain.
My Gyni who I saw the other day didn't agree and didn't care that I was loosing every day, she doesn't want to see me anymore and to shut myself and my mum up has put me on Depo Provera.
Now I'm wanting to know what your experiences are with it, she reckons it won't work since I've not got any relief from anything else and said for me to go on Zoladex again won't be good since I will have more chance of menopause (right now I don't care as I already get hot flashes)
I've got no life at all, I stopped school in grade 9 and tried studying in TAFE (College) but now I'm unable to since the pain is unbearable and I have no energy. Government is trying to push me into work and I've been seeing a job seeker that is also trying to get me into work and keeps saying to take pain relief to stop the pain.
Does Depo provera work for you? I've heard some bad things about Depo...
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I ended up in the ER last week after having lower left abdominal pain and severe lower back pain. I have had pain on and off for the past 4 months. The cycle of pain seems consistent - starting mid-cycle and relief the first day of my period (of course one pain is just substituted for another since I have bad cramping but I prefer the cramping to the mid-cycle pain).
This month as been by far the worst and now I'm having pain radiating up and down my left leg and thigh. The only thing that seems to help is sleep and pain meds only take the edge off.
After having an external/internal ultrasound, the ER doc thought it's most likely Endo- which is really frustrating since there doesn't seem to be an end in sight. I'm already on BC- the Nuvaring, so I don't think there will be any quick solutions with BC pills.
My questions: How common is sciatica with Endo? Are there better BC pills/shots/etc. that will help the Endo symptoms?
I've NEVER had any reproductive issues until last September when they found Adenocarcinoma in Situ on my cervix from a stubborn HPV infection. It's been one thing after another since my colposcopies and cone biopsy. I've read that Cone biopsies can actually make you significantly more prone to developing Endo since it can narrow and scar your cervix and not allow for period blood to escape the uterus.
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I have a burning question on the extended use of Norethisterone (5 mg). I have been diagnosed with endometriosis and my right ovary was surgically removed three years ago. Since the surgery, I have been put on this medication and I'm wondering whether I am the only one taking Norethisterone for 3 years and what kind of effects will it have one me?
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October of 2014 my primary doctor discovered that I had endo after 6 years of painful periods. I had a laparoscopy on may 13th to gain a better idea on how bad it was. they found fluid floating around from a cyst that was on my right ovary that had ruptured. my left ovary was huge, filled with fluid and its also completely attaches to my bowel. now my GYN said that they just cleaned up the fluids and did not want to remove my left ovary because i am so young (20yrs old). she put me on a BC, camrese to calm the endo and I started taking it on may 17th. for a few days now i have been having symptoms like when I am about to have my period. since yesterday I have been feeling nauseous and both of my ovaries started to hurt. By today the pain has gotten worse. it feels like my ovaries are about to explode. I notice that when I urinate or move my bowel, a little bit of pressure is relieved. the pain is getting unbearable and I don't even have an appetite. I still have 32 more active pills until its my break week. anyone have any idea what could it be? I am scared that its something serious.
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Is it possible to have endometriosis in the gall bladder even though the tests for gallbladder problems comes back negative or normal?
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Background:
i have always had heavy painful periods. Initially they would come every 2 weeks and last 8-10 days. I was put on the pill and stayed on it for about 10 years (2011) when we decided to start our family. It largely controlled my symptoms with the exception of a handful of times when the pain was uncontrollable.
in 2010, I was diagnosed with ulcerative colitis (UC) after 12 months of on again off again diarrhea. Nothing could be seen during the colonoscopy but is showed up on the biopsies. Between 2010 and Jan 2012 when i fell pregnant i still had "flares" every 3-4 months. 1 flare while pregnant. C sect in sept 2012. My UC seemed slightly worse after the c section. Periods were irregular again and was recommenced on the pill which mostly controlled it however had some spotting and pain mid cycle. August 2013 i became pregnant again, apart from one big flare while pregnant my UC was great. i had another c section in May 2014.
Since then i have had nothing but trouble. Diarrhea every day since August last year, a good day is 6x a bad day is 20+x and disabling pain, bloating, fatigue.
i have had basically non stop bleeding, i will have red blood but only light every 2-3 months and in between i will have old blood for 2 days, stop for 1 day, go for 3 days, stop 2 days etc.
in july i was put on a special liquid diet to try get some vitamins, i was losing 1kg a day while on this diet. My bleeding and diarrhea stopped (it was partly digested so there wasn't really anything to leave my body, it was all absorbed).
as soon as i was put on normal food again my diarrhea and pain returned and my period was so heavy, worse than after both my kids put together.
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I had a hysterectomy done in February of 2013, I had a partial, just my uterus and cervix removed so all that is left are my ovaries. Within the past month all of the same symptoms are back that I had before surgery. Severe pelvic pain, bloating, back pain, not sleeping, hurts to urinate and so on. I'm 27 years old and no kids and I felt it was my only option because I had so many laps done and there was nothing more to do other than the hysterectomy. So if there are some women out there that has had a full hysterectomy could you please tell me if its worth asking doctor to remove ovaries. Could really use some advice now or just to know there's more women out there around my age going through the same thing. Thanks for taking the time to read.
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