Wondering if anyone has Hashimoto's disease? I saw a specialist a couple of weeks ago who told me I most likely have this. I went from extreme hyperthyroid to hypothyroid. Skinny and energetic to sluggish and heavy. I'm pretty miserable with it. I've just been sent a letter with my levels:
8 May - TSH .03, free T4 29.3, WBC count 5.1
15 June - TSH 15.95, free T4 9.9
6 July - TSH 12.38, free T4 8.3
I've been hypothyroid for a long time. I've been taking Synthroid also a long time. I'm confused by my recent blood test. My TSH was 1.180 within normal range and my Thyroxine free 1.81 . The range should be 0.93-1.70. What does this mean. I'm I hypothyroid or hyperthyroid?
View 8 RepliesI was diagnosed with Hashimoto's postpartum about a year ago. I was complaining of excessive fatigue/inability to return to running, and pretty bad carpal tunnel. At the time my TSH was 6.893 and Free T3 282.1 pg/dL [230-420] and of course high antibodies. My primary care put me on NatureThroid 32.5mg (25 mcg T4/T3). I felt better within the week and my carpal tunnel completely resolved in about 2 weeks. I felt great on this for a year. I had my TSH tested once during this time and it came to 2.785. I trained for a 50 mile race, including hard training with back to back long runs on the weekend. I then started training for a marathon in January with a goal time of 3:15-3:20. I was training hard but felt great. I did a half marathon March 20th at a 7:04min/mile pace. I felt on top of the world and was on track to run what I had termed my "comeback marathon". The next week I still felt good, but then the following week I came down with a minor respiratory tract infection. I was completely better in 3 days and just thought it was a small blip. I went out for a long run that weekend and felt good for the first 6 miles, and then got progressively worse and felt like I had no energy, completely flat, defeated. It was not normal but I just chalked it up to a bad run. The following week, I had a strange inexplicable flair of wrist pain/carpal tunnel for about 3 days, but then that resolved, so again I kind of dismissed it. I was able to do my weekly workouts and hit my paces although they did feel a little bit harder than normal. But every time I tried to do a long run, I crashed after just a few miles and finished feeling like complete crap. I started to get worried about my race but again just figured I needed a good taper and I would feel better. Well, my race came it was one of the worst experiences of my life. I ran the first half at my goal pace but after 8-10 miles I started feeling sort of ill, dizzy, and had no energy. Again, I have run several marathons and have had bad marathons, and this was above and beyond anything I'd ever felt. I am not prone to cramping, and by the end I could barely walk and my muscles were just spasming uncontrollably.
Ok, fast forward to the following week. The next day I called my doctor and moved my 6 month follow-up to the next week, and got blood work done (unfortunately he only tested my TSH). That week, I developed progressively worse carpal tunnel. I decided to double up on my thyroid dose, and after a few days of that, I then tripled it (so now I was taking 97.5mg (75 mcg T4/T3). I felt fine energy-wise (although was not running), but still had carpal tunnel. Then I went in to see my doctor. My TSH came to 2.94. He saw that and said my symptoms were probably not thyroid-related but that we could increase my dose by 16.25mg to see if that would help (I knew it wouldn't because I was already taking more than that but I didn't want to say that, and I started second-guessing myself that I was hypo). So I dropped my dose down to 65 mg, then back to 32.5mg. Well a few days later my carpal tunnel got so bad I was waking up in excruciating pain even wearing my braces. I was having shoulder impingement pain as well. I couldn't use my right arm in the morning for 30 mins after waking. I called my doctor asking for further testing and for him to test my free Ts. I did that bloodwork and it came out to TSH 2.58, free T4 0.71 ng/dL [0.6-1.6], free T3 3.59 pg/mL [2.39-6.79]. Seeing that my T4 was on the low end and T3 not super high, I figured that confirmed I was having hypo symptoms, even though they were technically within normal. So I started taking the 97.5mg dose of thyroid again. That weekend I upped my dose, I still felt terrible. I had a horrible run, couldn't move after, my whole body ached, and by Saturday evening I couldn't lift my right arm due to the shoulder impingement. I felt the same Sunday. But Monday (day of three of higher dose), I was SO much better.
Well my doctor looked at my results on Wednesday and said, "Your T3 is excellent." When I protested, he said rather condescendingly, "I've been doing this 30 years." Mind you, he's not an endo, he's a naturopath MD. I argued with him until he agreed to up my dose to 81.25mg. I knew this would not eliminate my musculoskeletal issues, but figured it was at least a move in the right direction. (note: he also tested for RA antibodies and sed rate and that was normal, and I don't have any joint tenderness)
I've still been taking 97.5mg dose this week, but won't be able to continue this once I run out of the extra Rxs from dosage changes. Still have carpal tunnel and morning stiffness, but my arm got better throughout the week, and then Thursday, I had a great run. However, today (Friday), I suddenly developed this shoulder impingement really bad again where I can't lift my arm. I'm thinking somehow running is triggering it, but I've never had a shoulder problem before.
Ok, so now for my question. I cannot think of any possible thing this could be other than hypothyroidism. I've scoured the internet and scientific papers for anything at all. But I'm just confused by how suddenly my symptoms worsened, and how my levels are not super low, but even tripling my dose hasn't completely alleviated my symptoms when I was great on a low dose for a year. I'm seeing a new primary care soon and am going to make an appt with an endo instead of continuing to see my current doctor who I'm really p*ssed with. But this will all take time (the endo I'm planning on takes months to get into), and I'm just curious if anyone has any insight into this or has experienced something similar. I'm nervous that I'm going to have to drop down to 81.25mg again and that I'm just going to be miserable, and that when we test my levels again they will be higher, but that I will still be having symptoms, and so my doctor will not listen to me. I know people say that it takes time to have symptom relief with dosage changes, but in my experience it seems like it happens very quickly. Like when I first started on the NatureThroid, I was almost completely better in a week. Is it normal to feel changes so quickly? And does anyone have experience with exercise worsening symptoms - like maybe free Ts are lowish and then exercise is an added stress that sort of depletes the body if it's not able to compensate with normal thyroid function? I'm not completely sure of the biochemistry (I don't know that anyone is actually), so I'm just kind of postulating.
I don't really know how to begin this message, I'm so exhausted and mad against that weight gain and stuff.
I am 20 years old and was diagnosed with Hashimoto one year ago. Since then, I put up 20 kilos ( most of them in 6 months ). My t4f and t3f are okay, and THIS is at 0.40, which is the minimum.
There are two years and a half ago, I was 110 kilos. I decided to lose weight and did 2 to 3 hours of sport per day + a diet. I lost 54 kilos and reached 56 kilos for 180. I felt soo good and happy for the first time of my life, no kidding.
And then, I haven't even had the time to have fun with my new body, that I began putting up weight.
I do 10 to 14 hours of sport per week ( I run a lot, quick walks in the mountain and so on ) and still follow my diet ( 1200-1300 cal )
I'm sick, I'm trying not to be too depressed, but it's hard. I'm so tired, my muscles don't want to keep on, and neither want I. Thinking that I've lost one year of my life trying to lose weight for nothing makes me mad.
I'm followed by a diet doctor, who can't even find why I keep on putting weight,m but tries to change some of the aspects of what I eat. I also see a psy, he can't really help me, as my problem is real, and not just in my head.
I've been suffering with hyperthyroid and TED for over a year. My eyes are extremely dry. I can't sleep at night because they constantly run water and I find that I'm isolating myself from the world because of my weight gain and eyes that get as large as quarters at times. I was at a football game this past weekend when a stranger walked up to me and said every time the horn blows your eyes get as big as quarters it really comical to watch. I was mortified and felt that everyone was looking at me. I went home cried until I couldn't cry anymore. I guess I should have told her that I have a disease that causes this but at the time I was speechless. Has anyone else experienced this and what if anything have you done about it?
View 37 RepliesUsually people with hypo are cold but I'm always hot & sweaty even when the temp is chilly. I'm 37, have PCOS and hypothyroid. Since having kids I've gained a lot of weight and can't lose a pound no matter what I do. I'm on Synthroid but I feel like nothing helps.
View 1 RepliesHello All- I have so many symptoms of hypothyroidism and my mother and grandma are as well so I asked my Dr. to test me. She said everything came out perfect, but I still have so many true Hypo symtoms after doing some research on here. Can anybody tell me how normal these ranges are:
TSH- 2.16 (0.3-5.0)
FT3- 3.2 (2.3-4.2)
FT4- 1.02 (0.8-1.8)
Vitamin D- 18
I've been told I have post surgical hypothyroidism (left side, 2010) but TSH is consistently low (0.1) or low normal (.396), I don't understand the hypothyroid diagnosis with a low TSH. Can someone explain? I also had left temporal lobe brain tumors (cancerous) and gamma knife radiation. Could this be affecting the TSH level. I have many hypothyroid symptoms, basal body temp is on avg. 96.5, weight gain, tiredness/fatigue....blah, blah, blah. My endo doesn't do too much. Currently taking 50ug of levothyroxine 6 days/week and feel horrible. There are also 3 nodules in the right side now that continue to enlarge. Any answers? Thanks.
View 2 RepliesHas anyone heard of a special hypothyroid diet?
I would be grateful for any information please as to what foodstuffs to avoid and which ones would help.
Gas anyone heard of any medications that can cause or worsen hypothyroidism?
Many thanks
Jean x
I have hypothyroid and am taking 175 mcg of thyroxine everyday. I eat low fat diet and exercise regularly. But still my cholesterol levels are rising especially triglycerides.
Is there a connection between them? My blood reports show that my thyroid levels are normal with the current medication. Then why is my Cholesterol increasing?
What measures should I take to stop this?
hi, my gf is under treatment for PCOS and hypoThyroid and take Harmoni - F (Cyproterone Acetate, Ethinylestradiol & Folic Acid) and Femella tablets from a week. We had sex last night with protection (condom) i ejaculated outside but i found that the condom was punctured with 4-5 holes . will she get pregnant? Should she take any contraceptive pills to avoid pregnancy?
View 1 RepliesI have recently been experiencing symptoms of raynaud's so I'm wondering if there's any link.
Last check all my thyroid numbers were good and been feeling good with that.
My thyroid antibodies were in the normal range when diagnosed, so not sure if that means mine is not autoimmune or if Raynaud's is auto immune?
i had 2 cold nodules in my thyroid and had a total Thyroid lobectomy on 16 sep (8 days ago) and still waiting for the results if the they were benign or malignant so that i start take the hormone replacement in case if benign or start to go into 6 weeks hypo in preparation for the RAI treatment in case if malignant problem is, i fear the result will take more days to finish, and my body is completely without thyroxine now if benign than this wait & deprivation was pointless, and i fear i will need many weeks to fix the damage the hyop state will impose on me so my question is, when will the hypo symptoms start to show in my case (no thyroid at all) ? considering my TSH levels were normal at 2 before the surgery i'm feeling really anxious about this whole thing, and i need your knowledge, i can't even get in touch with my doctor before tomorrow.
View 1 RepliesI'm 37 and was convinced i couldn't get pregnant because of my Hashimoto's. So it was a quite a surprise when I saw that positive test. Has anyone had any experience with a later in life baby coupled with a thyroid disorder?
View 1 RepliesI was recently referred to an endocrinologist due to 'abnormal' blood test results. The results were not shared with me. The endo gave me a full exam & at the time concluded my thyroid was fine & I was just stressed from work & maybe a psychologist would help. He took a blood test anyways.
A week later I got a call to say a prescription was in the post for 125 mg of Eltroxin!
I've managed to get a copy of the blood test result that the endo took & I'm trying to figure out if it means I have Hashimoto's disease. My endo never mentioned this to me but it seems from what I can find online that might be the case. Any help at all with this is greatly appreciated :
TSH: 13.79
Free T3: 5.2
Free T4: 14.7
ESR: 2
Anti TG: 358.8
Anti TPO: 8.1
Does anyone else experience extreme bloating on trimethoprim?
I have also been prescribed it for a UTI, and only a 3 day 200mg dose. Does anyone else find the same?
I had right part of my thyroid removed last year due to the tumor. I didn't get any treatment, doctors were saying that everything is ok, just need to do TSH tests every few months.
During this year I had loads of strange symptoms like hair lose, weight gain, sleeplessness, late periods, itchy and dry skin, cold hands and feet etc. Doctors were saying it's stress, so when I was in Poland for holiday I paid to see specialists: endocrinologist and gynecologist,
I've done TSH test and it came out 5,3.
Endocrinologist said even if it didn't reach the maximum (5.5) my thyroid is on the border of efficiency and I need to start the treatment. He said that healthy person has TSH level between 1 and 1.5. He diagnosed Hashimoto and underactive thyroid.
I am on Euthyrox 50, checked TSH after 2 weeks and it was 2,74, but GP (in England) said that IT'S NORMAL. They were saying it when I was telling them about the symptomes I had and how did I feel.
I also got special diet to help me lose weight (I gained about 2 stones in one year without the reason).
I just want you to keep asking your GP's to send you to specialists, don't let them tell you it's all good when you apparently don't feel good. It's shame that you have to pay to get proper treatment because NHS is saving money and GP's don't want to refer people to hospital.
I'm 23 years old, 5 months ago I got diagnosed with Hashimoto's. I was scared of having to go on meds for the rest of my life at such a young age so I opted for natural route. The homeopathic Dr. I went to see gave me i Throid iodine pills, and had me go on a 2 week liquid diet (I only lasted 4 days) and he wanted me to do a 60-90 smoothie diet. Needless to say I gave up after the 4 days and when I stopped the diet I stopped taking the i Thyroid pills. 2 weeks ago I went to see my endocrinologist who wasn't very happy that I hadn't been taking the Synthroid as she had prescribed and told me the results from my ultra sound to my thyroid looked rough. She went on to stress how important it is that I take it and how my levels are worse off then when I first came to see her. She also told me if I was trying to get pregnant how important it is for the baby to have thyroid. So yesterday I find out I'm pregnant and now I'm freaking out. My natural part of me is screaming don't take it, start the iThroid religiously and stick to it, but I feel like it's too late. At this point it's too late for me to experiment what may/may not work for me in terms of trying out the natural route. I had months to figure that out and I didn't and now I'm pregnant. If my baby needs my thyroid to develop properly then I need to start taking the prescribed synthroid. My endo prescribed me .05 mg I don't know if that's a lot or a little. She also told me if I find out I'm pregnant I need to let her know immediately so she can increase it by 30%. I guess I'm wondering if others who have hashimoto's and those that have gone through pregnancy while taking synthroid can tell me anything. I'm scared my body's going to react weird to it. I'm scared my hairs going to fall out and I'm going to gain weight (currently 5"5 114lbs.) I read those are some of the side effects from Synthroid. I'm scared to have heart palpitations and anxiety) which I already have but I'm scared it'll make my anxiety worse to the point I'm a complete wreck. While having all these fears I'm also scared about what may happen to the baby if I don't take it. So before writing this post I popped my first synthroid pill. Maybe I'll go on it until the baby is born and then come off it and try natural again? Anyone think that's a good idea? I just don't want to be dependent on something big pharma produced in a lab. Maybe it's just a matter of changing my diet and exercising and eating gluten free foods. I'm wondering if anyone with Hashimoto's can tell me about their experience with it and help ease my mind.
View 2 RepliesI have Hashimoto's disease. Over the last year or so I have really started to experience some of the symptoms of hyperparathyroidism such as super bad fatigue, LOTS of pain in my bones, etc. Are the two connected?
View 2 RepliesI'm a 16-year-old female who has been diagnosed with Hashimoto's disease. I was diagnosed in November of 2013, and in December of that year I had the left side of my thyroid removed because of a mass. I am currently taking 88 mcg of Levo. I have struggled with headaches nearly every day for the past year and a half. I've tried everything, I've had blood tests, an MRI, I've tried every OTC pain pill, and I was prescribed Vicodin and Hydrocodone. I have gone to an ophthalmologist as well. I haven't had my levels checked in about 3 months, and my appointment isn't until next month. But I wanted to know if anyone knew if this disease can cause constant headaches, as well as depression.
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