Hypothyroidism :: Hashimoto - Keep Checking Your TSH


Jun 19, 2014

I had right part of my thyroid removed last year due to the tumor. I didn't get any treatment, doctors were saying that everything is ok, just need to do TSH tests every few months.

During this year I had loads of strange symptoms like hair lose, weight gain, sleeplessness, late periods, itchy and dry skin, cold hands and feet etc. Doctors were saying it's stress, so when I was in Poland for holiday I paid to see specialists: endocrinologist and gynecologist,

I've done TSH test and it came out 5,3.

Endocrinologist said even if it didn't reach the maximum (5.5) my thyroid is on the border of efficiency and I need to start the treatment. He said that healthy person has TSH level between 1 and 1.5. He diagnosed Hashimoto and underactive thyroid.

I am on Euthyrox 50, checked TSH after 2 weeks and it was 2,74, but GP (in England) said that IT'S NORMAL. They were saying it when I was telling them about the symptomes I had and how did I feel.

I also got special diet to help me lose weight (I gained about 2 stones in one year without the reason).

I just want you to keep asking your GP's to send you to specialists, don't let them tell you it's all good when you apparently don't feel good. It's shame that you have to pay to get proper treatment because NHS is saving money and GP's don't want to refer people to hospital.

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Hypothyroidism :: Hashimoto's - Feet And Hands Are Always Cold?

So today I had an appointment with an endo for the second time. He said my thyroid levels are not normal and has diagnosed me with hashimoto's. He explained it has something to do with my antibodies or something. Could this explain why my feet and hands are always Cold?

Anyway, they are treating me straight away for it.

I'm still worried about adrenal Cancer and cushing's. But he said that Cancer isn't an option. And my blood pressure was fine so he doesn't suspect any adrenal problem

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Health Anxiety :: Obsessed With Checking Every Part Of My Body

I have health anxiety and it is literally ruining my life! I am obsessed with checking every part of me to find changes and when I do find something it's intense fear and panic like impending doom. I can't remember the last time I woke up and felt like I wasn't unwell. I am on a counsellor waiting list just don't know what to do in the meantime. Anyone else suffer this bad? Please only genuine sufferers reply as this is embarrassing enough as it is. I have never told anyone about my real problems with fear of being ridiculed.

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Pregnancy: Age 35+ :: Anyone With Hashimoto's?

I'm 37 and was convinced i couldn't get pregnant because of my Hashimoto's. So it was a quite a surprise when I saw that positive test. Has anyone had any experience with a later in life baby coupled with a thyroid disorder?

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Thyroid :: Do I Have Hashimoto Disease?

I was recently referred to an endocrinologist due to 'abnormal' blood test results. The results were not shared with me. The endo gave me a full exam & at the time concluded my thyroid was fine & I was just stressed from work & maybe a psychologist would help. He took a blood test anyways.

A week later I got a call to say a prescription was in the post for 125 mg of Eltroxin!

I've managed to get a copy of the blood test result that the endo took & I'm trying to figure out if it means I have Hashimoto's disease. My endo never mentioned this to me but it seems from what I can find online that might be the case. Any help at all with this is greatly appreciated :

TSH: 13.79
Free T3: 5.2
Free T4: 14.7

ESR: 2

Anti TG: 358.8
Anti TPO: 8.1

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Thyroid :: Pregnancy And Hashimoto's

I'm 23 years old, 5 months ago I got diagnosed with Hashimoto's. I was scared of having to go on meds for the rest of my life at such a young age so I opted for natural route. The homeopathic Dr. I went to see gave me i Throid iodine pills, and had me go on a 2 week liquid diet (I only lasted 4 days) and he wanted me to do a 60-90 smoothie diet. Needless to say I gave up after the 4 days and when I stopped the diet I stopped taking the i Thyroid pills. 2 weeks ago I went to see my endocrinologist who wasn't very happy that I hadn't been taking the Synthroid as she had prescribed and told me the results from my ultra sound to my thyroid looked rough. She went on to stress how important it is that I take it and how my levels are worse off then when I first came to see her. She also told me if I was trying to get pregnant how important it is for the baby to have thyroid. So yesterday I find out I'm pregnant and now I'm freaking out. My natural part of me is screaming don't take it, start the iThroid religiously and stick to it, but I feel like it's too late. At this point it's too late for me to experiment what may/may not work for me in terms of trying out the natural route. I had months to figure that out and I didn't and now I'm pregnant. If my baby needs my thyroid to develop properly then I need to start taking the prescribed synthroid. My endo prescribed me .05 mg I don't know if that's a lot or a little. She also told me if I find out I'm pregnant I need to let her know immediately so she can increase it by 30%. I guess I'm wondering if others who have hashimoto's and those that have gone through pregnancy while taking synthroid can tell me anything. I'm scared my body's going to react weird to it. I'm scared my hairs going to fall out and I'm going to gain weight (currently 5"5 114lbs.) I read those are some of the side effects from Synthroid. I'm scared to have heart palpitations and anxiety) which I already have but I'm scared it'll make my anxiety worse to the point I'm a complete wreck. While having all these fears I'm also scared about what may happen to the baby if I don't take it. So before writing this post I popped my first synthroid pill. Maybe I'll go on it until the baby is born and then come off it and try natural again? Anyone think that's a good idea? I just don't want to be dependent on something big pharma produced in a lab. Maybe it's just a matter of changing my diet and exercising and eating gluten free foods. I'm wondering if anyone with Hashimoto's can tell me about their experience with it and help ease my mind.

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Thyroid :: Hashimoto's Disease - Possible Hyperparathyroidism?

I have Hashimoto's disease. Over the last year or so I have really started to experience some of the symptoms of hyperparathyroidism such as super bad fatigue, LOTS of pain in my bones, etc. Are the two connected?

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Can Hashimoto's Disease Cause Headaches And Depression?

I'm a 16-year-old female who has been diagnosed with Hashimoto's disease. I was diagnosed in November of 2013, and in December of that year I had the left side of my thyroid removed because of a mass. I am currently taking 88 mcg of Levo. I have struggled with headaches nearly every day for the past year and a half. I've tried everything, I've had blood tests, an MRI, I've tried every OTC pain pill, and I was prescribed Vicodin and Hydrocodone. I have gone to an ophthalmologist as well. I haven't had my levels checked in about 3 months, and my appointment isn't until next month. But I wanted to know if anyone knew if this disease can cause constant headaches, as well as depression.

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Adrenal Insufficiency :: Low Cortisol Of 1.1 - Hashimoto's?

I just had a AM cortisol lab of 1.1. Over the last 6 months I have been told I have Hashimotos.

What does this mean?

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Vitamins / Supplements :: Hashimoto's And Selenium

I've been struggling with my Hashimoto's diagnosis. I am actually "alright" at this present moment, but it was a long and rocky road. My Endo is not very informative at all and does not answer my questions. Last time I asked her about taking supplements. She stated she is biased because she practices Western medicine and won't comment on whether or not she thinks it's a good idea to take supplements.

I decided a little over a year ago, to take 200 mg Selenium as an added supplement, because I've been reading on here, that it will help with getting the antibodies down and I must say, I can tell a difference in how I feel today from before.

Now here is where I'm confused: my best friend since Kindergarten got diagnosed with Hashi's last year. She's really been having a hard time with it. Last time she saw her Endo, she asked the Selenium question. Her Endo said don't take it, because your risk of developing diabetes increases! That's something I've never heard about. So all day today I've been reading and researching this and I'm reading either it's so good to take when you have Hashi's and then some study they did that confirms my friends' Drs' point about the increased diabetes risk. Any thoughts?

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Hashimoto's? From Extreme Hyperthyroid To Hypothyroid

Wondering if anyone has Hashimoto's disease? I saw a specialist a couple of weeks ago who told me I most likely have this. I went from extreme hyperthyroid to hypothyroid. Skinny and energetic to sluggish and heavy. I'm pretty miserable with it. I've just been sent a letter with my levels:

8 May - TSH .03, free T4 29.3, WBC count 5.1

15 June - TSH 15.95, free T4 9.9

6 July - TSH 12.38, free T4 8.3

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Thyroid Disorders :: Hashimoto's -TSH Below Zero! Safe?

I have an important question.

My last blood work from one mouth ago revealed a TSH of - 0.16. (ranges 0.3-4.5)
Though my levels of free T3 & T4 were midrange and maybe even slightly lower than they should be.
FT3: 3.30 (ranges 2.1-4.2)
FT4: 1.02 (ranges 0.7-1.8)

I'm on 112,5 levothyroxine and 12,5 cytomel daily dose.
Is it safe to have a TSH that low?
Can I even upgrade my meds to 125 levo a day? I still feel hypo and under medicated.
I did hear about the 'optimal' values between the ranges were a lot of people are on their best in their 'sweet spots'.
If the rule of thumb is that FT4 has to be 50% of the range and FT3 upper half to upper third, i's logical that I'm still hypo. This all being said, will my TSH drop even more when I go to 125?

I don't understand the link between TSH and the FT3 & FT4 results. How can I have such a low TSH and still not reach the recommended levels?

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No Probiotics For Autoimmune Disease / Hashimoto's

Has anyone read or been told by their doc they should "not" take probiotics if they have Hashimoto's or other autoimmune illness?

I read somewhere that one with autoimmune problems should not take probiotics that it could cause systemic yeast infection. Now I can't find that article. Everything else I read states probiotics good for autoimmune disease.

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Thyroid :: Gluten Free Diet And An End To Hashimoto's

I have seen some videos that support a gluten free diet and an end to Hashimoto's.

Has anyone tried going completely gluten free and had an improvement in their symptoms or even and reduction or end to their meds?

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Thyroid Disorders :: Graves' Disease Or Hashimoto's ?

I Am wondering if someone can help me out with what my blood results mean . ok so i went to a walk in clinic because i was having a laundry list of stuff going on with my health . asked doc to do some blood work and see if he could find what might be wrong .

blood work came back showing some thyroid issues . my TSH was .16 my T4 free was 18 free T3 was 6.1 and my TPO was 102

the doc said i have Hashimoto's thyroiditis and referred me to endocrinologist which im waiting for appointment .

so my question is after doing some googling im wondering if the doc might have meant to say graves disease rather than hashimoto's . it was very busy in the office and maybe he just mixed the two up ? the reason im thinking this is because when i look at what my blood work results are they point to hyperthyroid rather than hypo . can anybody tell from my numbers i really would like to know and its a bit of a wait till my appointment with the specialist.

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Thyroid :: Graves Disease Or Hashimoto's Thyroiditis?

I am very new to this site and extremely grateful that I found it. I was diagnosed with inappropriate sinus tachycardia almost three years ago. I am taking 350 milligrams of metoprolol. My primary doctor ordered new labs since my cardiologist has not requested any in the last 2.5 years. My results are as follows:

TSH - 0.01
Vitamin D - 26
Carbon Dioxide - 18
Free T4 - 1.3
Thyroglobulin Antibodies <1
Thyroid Peroxidase Ab 421

Primary doc originally thought I graves or Hashimoto's, but now wants me to follow up with an endocrinologist. Of course that appointment is 2 months away.

I do not have many symptoms. I do have the feeling of warmth in my shins, but that comes and goes. I have a little muscle weakness. I have been having trouble sleeping through the night, but 2 glasses of wine have been helping.

If I do have either Graves or Hashimoto's is waiting 2 months for a doctor appointment ok? I would think that I need some type of medicine.

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Glands :: Hashimoto's Disease - Any Type Of Injection Available?

I am currently on my fourth different medication for "hashimoto's" disease and have either had allergic reactions or severe stomach problems as well as insomnia with all of them. Is any type of injection available for someone like me?

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Hashimoto's :: Sudden Worsening Of Hypothyroid Symptoms

I was diagnosed with Hashimoto's postpartum about a year ago. I was complaining of excessive fatigue/inability to return to running, and pretty bad carpal tunnel. At the time my TSH was 6.893 and Free T3 282.1 pg/dL [230-420] and of course high antibodies. My primary care put me on NatureThroid 32.5mg (25 mcg T4/T3). I felt better within the week and my carpal tunnel completely resolved in about 2 weeks. I felt great on this for a year. I had my TSH tested once during this time and it came to 2.785. I trained for a 50 mile race, including hard training with back to back long runs on the weekend. I then started training for a marathon in January with a goal time of 3:15-3:20. I was training hard but felt great. I did a half marathon March 20th at a 7:04min/mile pace. I felt on top of the world and was on track to run what I had termed my "comeback marathon". The next week I still felt good, but then the following week I came down with a minor respiratory tract infection. I was completely better in 3 days and just thought it was a small blip. I went out for a long run that weekend and felt good for the first 6 miles, and then got progressively worse and felt like I had no energy, completely flat, defeated. It was not normal but I just chalked it up to a bad run. The following week, I had a strange inexplicable flair of wrist pain/carpal tunnel for about 3 days, but then that resolved, so again I kind of dismissed it. I was able to do my weekly workouts and hit my paces although they did feel a little bit harder than normal. But every time I tried to do a long run, I crashed after just a few miles and finished feeling like complete crap. I started to get worried about my race but again just figured I needed a good taper and I would feel better. Well, my race came it was one of the worst experiences of my life. I ran the first half at my goal pace but after 8-10 miles I started feeling sort of ill, dizzy, and had no energy. Again, I have run several marathons and have had bad marathons, and this was above and beyond anything I'd ever felt. I am not prone to cramping, and by the end I could barely walk and my muscles were just spasming uncontrollably. 

Ok, fast forward to the following week. The next day I called my doctor and moved my 6 month follow-up to the next week, and got blood work done (unfortunately he only tested my TSH). That week, I developed progressively worse carpal tunnel. I decided to double up on my thyroid dose, and after a few days of that, I then tripled it (so now I was taking 97.5mg (75 mcg T4/T3). I felt fine energy-wise (although was not running), but still had carpal tunnel. Then I went in to see my doctor. My TSH came to 2.94. He saw that and said my symptoms were probably not thyroid-related but that we could increase my dose by 16.25mg to see if that would help (I knew it wouldn't because I was already taking more than that but I didn't want to say that, and I started second-guessing myself that I was hypo). So I dropped my dose down to 65 mg, then back to 32.5mg. Well a few days later my carpal tunnel got so bad I was waking up in excruciating pain even wearing my braces. I was having shoulder impingement pain as well. I couldn't use my right arm in the morning for 30 mins after waking. I called my doctor asking for further testing and for him to test my free Ts. I did that bloodwork and it came out to TSH 2.58, free T4 0.71 ng/dL [0.6-1.6], free T3 3.59 pg/mL [2.39-6.79]. Seeing that my T4 was on the low end and T3 not super high, I figured that confirmed I was having hypo symptoms, even though they were technically within normal. So I started taking the 97.5mg dose of thyroid again. That weekend I upped my dose, I still felt terrible. I had a horrible run, couldn't move after, my whole body ached, and by Saturday evening I couldn't lift my right arm due to the shoulder impingement. I felt the same Sunday. But Monday (day of three of higher dose), I was SO much better. 

Well my doctor looked at my results on Wednesday and said, "Your T3 is excellent." When I protested, he said rather condescendingly, "I've been doing this 30 years." Mind you, he's not an endo, he's a naturopath MD. I argued with him until he agreed to up my dose to 81.25mg. I knew this would not eliminate my musculoskeletal issues, but figured it was at least a move in the right direction. (note: he also tested for RA antibodies and sed rate and that was normal, and I don't have any joint tenderness)

I've still been taking 97.5mg dose this week, but won't be able to continue this once I run out of the extra Rxs from dosage changes. Still have carpal tunnel and morning stiffness, but my arm got better throughout the week, and then Thursday, I had a great run. However, today (Friday), I suddenly developed this shoulder impingement really bad again where I can't lift my arm. I'm thinking somehow running is triggering it, but I've never had a shoulder problem before. 

Ok, so now for my question. I cannot think of any possible thing this could be other than hypothyroidism. I've scoured the internet and scientific papers for anything at all. But I'm just confused by how suddenly my symptoms worsened, and how my levels are not super low, but even tripling my dose hasn't completely alleviated my symptoms when I was great on a low dose for a year. I'm seeing a new primary care soon and am going to make an appt with an endo instead of continuing to see my current doctor who I'm really p*ssed with. But this will all take time (the endo I'm planning on takes months to get into), and I'm just curious if anyone has any insight into this or has experienced something similar. I'm nervous that I'm going to have to drop down to 81.25mg again and that I'm just going to be miserable, and that when we test my levels again they will be higher, but that I will still be having symptoms, and so my doctor will not listen to me. I know people say that it takes time to have symptom relief with dosage changes, but in my experience it seems like it happens very quickly. Like when I first started on the NatureThroid, I was almost completely better in a week. Is it normal to feel changes so quickly? And does anyone have experience with exercise worsening symptoms - like maybe free Ts are lowish and then exercise is an added stress that sort of depletes the body if it's not able to compensate with normal thyroid function? I'm not completely sure of the biochemistry (I don't know that anyone is actually), so I'm just kind of postulating.

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Thyroid :: Extreme Weight Gain With Hashimoto

I don't really know how to begin this message, I'm so exhausted and mad against that weight gain and stuff.

I am 20 years old and was diagnosed with Hashimoto one year ago. Since then, I put up 20 kilos ( most of them in 6 months ). My t4f and t3f are okay, and THIS is at 0.40, which is the minimum.

There are two years and a half ago, I was 110 kilos. I decided to lose weight and did 2 to 3 hours of sport per day + a diet. I lost 54 kilos and reached 56 kilos for 180. I felt soo good and happy for the first time of my life, no kidding.

And then, I haven't even had the time to have fun with my new body, that I began putting up weight.

I do 10 to 14 hours of sport per week ( I run a lot, quick walks in the mountain and so on ) and still follow my diet ( 1200-1300 cal )
I'm sick, I'm trying not to be too depressed, but it's hard. I'm so tired, my muscles don't want to keep on, and neither want I. Thinking that I've lost one year of my life trying to lose weight for nothing makes me mad.

I'm followed by a diet doctor, who can't even find why I keep on putting weight,m but tries to change some of the aspects of what I eat. I also see a psy, he can't really help me, as my problem is real, and not just in my head.

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Thyroid :: Hashimoto's - Side Effects For Methimazole

I was diagnosed w/Graves disease 5 yrs ago after presenting with atrial fibrillation, bp 214/125,tremors;sweating & other symptoms- (I thought previous to this I was in menopause so I hadn't gone to the dr.)-Dr did bloodwork for thyroid and sd my tests were the highest he'd seen in his 50 years of practice- wanted me to go ER but I couldn't as I was the caregiver for my mom w/Parkinson's- To make a long story short, he gave me 20 mg methimazole, atenolol,paxil (I was a nervous wreck) 25 mg hctz and 1 aspirin.

After 1 yr methimazole was dropped to 15mg and now 10mg because I was doing so well my tests were indicating Hypothyroid rather than Hyper. So, up & down and up & down for 5 long years. Lately, I have been HOT & Cold on the same day, hair & skin very dry, cold feet and hands, joint pains in lower back and knees and some days can't walk well due to knees- has this happened to anyone? Computer suggested Hashimoto's symptoms and I cannot go to the Dr for 3 months due to finances- I am currently taking 0-10 mgs methimazole,10 mg paxil, 25 mg hctz and 1 aspirin- I tried cutting the methimazole for a month and everything SEEMED ok, but then got scared and went back on it- additionally, my weight has gone from 119 lbs to 165 in 5 yrs- Cannot lose weight no matter what I do; another indication of HYPO- Dr says weight gain is my body responding to disease and I was underweight when I was 119 lbs at 5'6"- HUH? I read that some of the side effects for methimazole are MY LIFE- Anyone have any suggestions?

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Thyroid Disorders :: Hashimoto's - Raising T3 And T4 Doses

I have Hashimoto's. I was diagnosed with this 2 years ago. I take 75mcg T4 and 10mcg T3 but I want to raise this on alternate days with 100mcg T4 and 15 mcg T3. My endo does not yet know I want to do this because I'm worried she will think I'm doing something silly.

I have had my thyroid function test done last week and the results have come back but I'm not being told what they are until I get it in writing. The endo wants my TSH to come back up to 2.5.

Symptoms I have:

Goitre (ultrasound says thyroid is swollen but no nodules)
Difficulty swallowing
Ongoing cough
Headaches
Joint pains
Dry eyes
Dry ears
Dry mouth
Constipation
Itchy feeling in throat (front of neck where thyroid is)
Hair loss
Heavy periods
Painful periods
Pale skin
Dizziness when standing
Fatigue
Peeling skin
Peeling nails

November 2015
! Serum TSH level: <0.02mpmol/L IU/L (0.27 - 4.20)
Serum Free T4 level: 19.8pmol/L (12.0 - 22.0)
Serum Free T3 level: 5.2pmol/L (3.90 - 6.70)

October 2015
! Serum TSH level: <0.02mIU/L (0.27 - 4.20)
Serum Free T4 level: 20.5pmol/L (12.0 - 22.0)
Serum Free T3 level: 5.0pmol/L (3.90 - 6.70)

August 2015
Serum TSH level: 1.30mIU/L (0.27 - 4.20)
Serum Free T4 level: 17.1pmol/L (12.0 - 22.0)
Serum Free T3 level: 4.1pmol/L (3.90 - 6.70)

May 2015
! Serum TSH level: 5.61mIU/L (0.27 - 4.20)
Serum Free T4 level: 18.1pmol/L (12.0 - 22.0)
Serum Free T3 level: 4pmol/L (3.90 - 6.70)
! TPO antibodies: 275IU/L (<34)

March 2015
Serum TSH level: 0.41mIU/L (0.27 - 4.20)
Serum Free T4 level: 13.2pmol/L (12.0 - 22.0)
Serum Free T3 level: 4.2pmol/L (3.90 - 6.70)

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