Interstitial Cystitis - Treatment Options?
Jan 29, 2016
I developed excruciating burning in my bladder within the last two weeks. After ruling out a bladder infection, and after doing much Internet research, my symptoms (burning 24/7) seem to match interstitial cystitis. Has anyone received this diagnosis? It appears that the condition is chronic and very very difficult to treat, and that there are no proven treatment. There are treatments but they are pretty extreme (you can Google them under treating Interstitial Cystitis.)
So what a low blow. Can anyone out there help me? I see a urologist for the first time tomorrow. Can anyone tell me what I am in for to cure this horrible burning?
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When I take a sip of red wine , I get a sensation of irritated bladder ! But after I drink more it seems to subside a bit . Am I allergic to the wine ?This discussion is related to interstitial cystitis and irritable bladder.
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I had the mirena coil fitted four weeks ago to help my periods, the first two weels were fine, then I started to notice I needed to go to the toilet more frequently.It got worse and had bad discomfort in my bladder and my urethra , my doctor treated my for a urine infection, but it didn't clear it up. I started looking online and found out that the progesterone in the coil can irritate the bladder and cause interstitial cystitis, the doctor didn't have a clue so ....
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I am a 53 year old and had this surger y 8 days ago. I had a cystocele before and recovery was only a couple of days but unfortunately i had to have it redone. I and am very surprised at how sore my bottom is and my legs just feel tired. I am normally very active and find it hard to not be able to do much. I havent drove yet just don't feel I could even walk from parked car into a store. Just wanted to know how long before it started to feel better and back to somewhat normal.
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Can IC inflammation cause blood on toilet paper after urination? Couple years ago my doctor thinks I may have IC. Couple times a year I do get bladder infections. Right now I'm on Cipro for a bladder infection and I'm on my 10th day of antibiotics when I saw blood on the toilet paper. My bladder symptoms however seems better now that I'm on antibiotics.
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I suffer from autoimmune thyroiditis, interstitial cystitis, heart palpitations (mostly PVCs and PACs) and Small Intestinal Bacterial overgrowth (SIBO), random inflammations that come and go and lots of debilitating symptoms. The above conditions started around the same time, so they seem to be related somehow. I've seen multiple doctors and specialists, but none of them have been able to identify the root cause of all of these conditions.
I'm thinking of doing a parasite cleanse to see if it helps. I'm kind of hesitant to try it because I've heard that it can cause really bad side effects. Has anyone tried a parasite cleanse for one or more of the above conditions? Did it help?
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i have had sjogrens since I was 41 years old, I'm now 74 . I've been told there's nothing can be done for it, it's just as I've got older I ache more and get extremely tired,I do go out walking with my dog to get some exercise, have a sit down , then do a few jobs , then sit down and so forth , sjogrens is not life threatening, but it changes your life completely .but it's nice to keep in touch with people who has this horrible condition.
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I was having some bleeding for about 3 weeks and it is being investigated now. I had ultrasound, biopsy (awaiting results) but I am just looking for my options. If they find something bad in the biopsy of course it looks like a hysterectomy. But if nothing shows I,m still stuck with the thick lining and bleeding. I have heard horror stories about the ablation, and I have heard its not a good idea with a previous C-section. My doctor thought I may be lacking progesterone or in fact estrogen dominant. I am currently taking progesterone to help with the bleeding for 10 days. It is working well and I feel great, and other symptoms I was having have stopped. Anyone have a D @ C with or without hormone therapy and did it help. I am 47.5 years old and if I can just coast for a few years until menopause I may be able to avoid a hysterectomy.
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Varicose veins are in some cases unavoidable. Many times, there are ways to naturally prevent and soothe them.
Get plenty of exercise to get your blood circulating, Elevate your legs on pillows daily for 10 minutes or more, Avoid excess weight gain, Dry-brush your legs daily to improve circulation. (This can prevent varicose veins from forming.) Use a natural-bristle brush with a long handle that allows you to reach all parts of your body. Gently brush your legs from the ankles up in a circular motion. Do this before you shower, so you can wash off any dead skin you brush off. Follow with moisturizer or body oil. Don't brush areas with existing varicose veins because you may irritate them.
Take sociable garlic and vitamin E capsules to improve circulation and vitamin C and B-complex vitamins to strengthen your blood vessels, Massage your legs with upward strokes, flushing your blood up to your heart. Use a massage oil made with 3 drops of lavender oil and 1 drop of peppermint oil in a coconut oil base (use unscented coconut oil), or put only the essential oils into a small spray bottle filled with water and spray directly on your legs.
St. John's wort oil helps with inflammation of veins. Avoid sitting for too long, especially with your legs crossed,
Wear loose clothing.
Try acupuncture or reflexology treatments to get your circulation moving and to move any stagnant energy.
After a bath, apply castor oil directly onto the veins. Massage using upward strokes from your feet straight up your legs. Avoid standing for prolonged periods of time.
Apply a cool compress soaked in witch hazel on your legs. Add a few drops of rosemary oil to stimulate circulation.
Flex your feet up and down and circle your ankles to the left and to the right twice a day.
To help varicose veins, make sure you're getting enough of the following:
Calcium-rich foods, since varicose veins are aggravated by a calcium deficiency
Pineapple, to reduce swelling and inflammation.
Berries such as raspberries, blackberries, blueberries, and cherries, as they contain a pigment that strengthens the walls of the veins
Foods high in fiber Plenty of water, to keep your bowels moving.
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How do you treat spider veins and varicose veins without vein clinics?
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Father suffers from parkinson's, My father has been suffering from parkinsons since 1992, he is 59 years old today and on tablet levodopa and pramipexole. Could anyone suggests other treatments to make him feel better?
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My body has been working on this big toe issue for years. I finally decided to see what it was and what I could do about it.
I have two choices: fusing or a lesser procedure called cheilectomy.
I am looking for feedback from anyone who has had either of these procedures done.
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For 11 years I have suffered with this condition. The 1st diagnosis was claudication, 2nd arthritis, 3rd peripheral artery disease, 4th nerve interference from protruding spinal disc , 5 6 7 8 9 10 etc. I have taken every known treatment . Where would you suggest I try next ?
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I want to start a thread that concentrates on anything that helps - or anything tried that doesn't help.
I've been prescribed Dapsone, Allegra and Advantan - no improvement after 14 days
I've read that Ultraviolet B was completely successful for 70% of patients after 10.9 weeks and I can email that study to anyone interested. Ultra Violet B is provided by the sun but one person on this forum reported getting worse after spending time in the sun.
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70 year old male in good shape been exercising 6 days a week cardio and weights for the past 5 years or so.Last couple of weeks or started to feel discomfort in my neck and jaw while exercising, it would go away when I stopped. Went to to non interventional cardiologist who ordered up an angiogram which I had 4 days ago. Results were Right artery 99% blocked, LAD 70 % and two other arteries on the left also 70% blocked. Interventional Cardiologist recommended CABG surgery because of multiple artery involvement and that the left arteries were not good candidates for stenting due to the position of the blockage.
My non interventional cardio after conferring with the interventional cardio said that I had options other than CABG. Both doctors agreed that my angina was most likely coming from the 99% right block.
Option is stenting the 99% blocked right and the OMT for the rest. A surgeon was also called in for consultation and neither he or the two other Cardios would predict outcomes or give an opinion as to which course of treatment I should follow. Regardless something had to be done sooner rather than later for the right artery. I sent the pics to another interventional Cardio who validated the position of my non interventional cardio that I do have choices other than CABG and that the which ever decision I would make I would probably have a good outcome. So next week I'm going to have the right artery stented and then medically treat the rest of my disease and see where it goes from there.
I also plan to make major changes in my diet to hopefully control the progression of the disease or even possible improve my condition
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Anyway, I was at uni and going through a bad time in my life, whenever I get stressed my guts go into turmoil. As a result I was off uni for a week with severe rectal pain and feeling lower than a snake's belly. I booked an appointment with my GP as I had experienced similar symptoms before.
My GP recognised the symptoms immediately, I thought I had piles, she said I was too young so had a look. The digital examination wasn't fun, in fact she said she had never seen anyway change colour so quickly but it was worth it because I was referred to a colorectal surgeon.
I took my sick note back into my tutor and as I was doing a clinical degree, he said straight away that fissures were worsened and sometimes caused by stress. The penny dropped.
As I said I was going through a very very bad time in my life which necessitated me going on antidepressants (Cipralex) for my emotional state. When this was added to wall climbing agony due to fissures I was near breaking point. I remember after one bowel movement almost fainting with the pain, I was lying at the top of the stairs at my mum's house and clawing at the wallpaper with my fingernails - I have had a broken leg and in terms of pain that fissure was far worse, trust me.
I went to see the colo-rectal surgeon a few weeks later, I was terrified, but he was a lovely man, very very considerate. He told me that I had a large fissure that could be helped with an ointment. I told him my background so he talked a bit more openly and said that fissures are an incredibly debilitating condition. He once had a 16 stone rugby player openly weeping on his consulting couch with the pain - I can understand why.
I was prescribed GTN ointment and started using it as directed. I had a slight headache which I could live with, but this was far better than the agony of the fissure and this headache was pretty much gone after the first week. After a week of use the pain from the fissure had also subsided to nothing. After six weeks I went back to the surgeon and I was healed.
I wish that was the end of the story but it isn't, I have probably had four or five bad flare ups since and dozens of other twinges, spasms, bleeds and itches since but I am nowhere near as bad as the first time - I can live with this now. I have seen the surgeon twice since and he has offered surgery but my frame of mind precluded me from that, I was simply terrified.
My GP is very understanding and I can get GTN on prescription whenever I need it. I was prescribed Anoheal by the surgeon as well but this didn't work as well as GTN for me, but I have seen cases in work where this has been incredibly effective.
As I said earlier, I was doing a clinical degree, which I have now passed, so I feel that I am pretty well qualified to offer a bit of advice, so here it is.
1. Go and see your GP. Don't be embarrassed, your doctor has seen dozens of these - they are very very common. If you get fobbed off or feel that you haven't got anywhere, go back and tell him/her that you are not happy and you will go elsewhere i.e. change your GP. Changing your GP hits their bank balance, and as GPs are notoriously greedy, they will do something. Nobody should have to suffer with this.
2. Take something for the pain but NOT codeine. Ibuprofen worked best for me.
3. Drink plenty of fluids and lay off the alcohol while you are healing.
4. Eat lots of fibre and fresh fruit and veg, switch to brown bread and have something like Weetabix for breakfast. This softens stools and makes them easier to pass - less pain and less damage to existing fissures.
5. Use a stool softener, one Movicol sachet daily really really helped me. You can buy these over the counter from your local Pharmacist but tell them what it is for. Alternatively get them on prescription from your GP.
6. Lay off the red meat, there is some science to this as meat increases the residence time in the gut and predisposes to harder stools. This really helped me and I have seen a few accounts here where sufferers also say that.
7. Try to relax, easier said than done, but try simple things like having a hot bath instead of a shower. If anything helps you, no matter how crazy or off the wall it may sound, carry on doing it. Going out for a drive helped me. Staying active also helps constipation and makes you feel better. Don't stay in and stew - stay positive.
8. Stick to the doctor's directions of any drugs you are given. If you are told to apply a cream for 6 weeks into the anus, then make sure it goes into the anus for 6 weeks. And into the anus means into the hole - not nice, but a lot nicer than the agony from an untreated fissure.
Remember you are not alone, these things can be cured. You will feel terrible and you will feel like nobody else understands what you are going through but believe me, these things are very very common.
And if all the above doesn't help there is a simple operation that can be done on a day case basis that has a 95% chance of curing it for good.
If you are reading this you are no doubt feeling horrible but believe me, there is light at the end of the tunnel.
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I'm looking for advice. My 60 year old father (who has had HCV for more than 10 years; previously treated with Interferon but bad side effects) finished his 12 week Sofosbuvir+Daclatasvir (considered same as Harvoni) treatment a month ago. Already first tests after 2 weeks showed virus was Undetected, but yesterday he received his most recent results and he has a relapse of the virus. He is genotype 1, fibroscan result 4 (close to final stage). He is based in Poland and I'm not sure if our doctors are fully informed of the new generation medications and HCV itself.
Is anyone able to give us any advice? We are pretty desperate and my dad is just so depressed as he thought he finally got rid of the virus (he got infected while on an operation in a public hospital) and now it is back...
Are there any specialists that you are aware of I could possibly get in contact with?
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A few weeks ago my bf noticed some bumps in his pubic area. He went to the dermatologist and was diagnosed with molluscum contagiosum, which is thankfully not that big of a deal! He got his treated with cryotherapy. Around this time I noticed a few bumps and because of the area they were in, went to an OBGYN for treatment so my bf and I don't keep spreading it to each other. The OB GYN agreed that they were also MC bumps and lightly scraped each one, then applied an acid treatment. That was a few days ago and while the bumps are mostly gone, the skin surrounding each one is dark and almost looks like a scab in color. Is this normal post acid treatment?
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Does anyone here relapse after harvoni treatment?
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I suffered from uti's a lot when I was younger but since then I've been fine.
Now suddenly these last few months as soon as I drink alcohol, I'm crippled with cystitis the day after.
I only drink on occasion when I'm out which isn't much but I am only 25, so the thought of not drinking because I'll be in agony the day after is haunting me.
I've tried the sachets and cranberry juice and they are not effective.
Anything else I can try to ease the pain? And is this a common problem? As it just started out of the blue for me.
I take the pill and pantoprazole for my hiatus hernia, but I have been on these for years with no problems.
I also don't have any problems after sex usually, it's literally just started after I've drank alcohol.
Any advice would be great as I'm going a family party tonight for my boyfriend's birthday and dreading the thought of drinking.
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After initially reading the leaflet that came with my trimethoprim i decided to check it out for myself, as some of the (not very rare!!) cases include stuff like bleeding from your eyes! and after reading the forum now deciding not to continue. i've been prescribed with a 7 day course for cystitis i cant get rid of. all i can say for now is i've taken one tablet so far and have a bad stomach and my cystitis seems to have got far worse!? although this could be coincidence. is there anyone in the same position that could offer me advice on any other drug i could take instead? this is getting me down.
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