Lichen Planus - Aids, Cures And Treatment Options?
Dec 12, 2012
I want to start a thread that concentrates on anything that helps - or anything tried that doesn't help.
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I've been prescribed Dapsone, Allegra and Advantan - no improvement after 14 days
I've read that Ultraviolet B was completely successful for 70% of patients after 10.9 weeks and I can email that study to anyone interested. Ultra Violet B is provided by the sun but one person on this forum reported getting worse after spending time in the sun.
My 1st laser treatment was unsuccessful so i went to see an oral surgeon who specializes in laser ablation on soft oral tissues This time the procedure was much more invasive and treated like an actual surgery. The doctor removed the top 3 layers of epithelial tissue off the side of my tongue where the OLP was I he went much deeper than my 1st doc). I had the procedure friday and am still in considerable pain and discomfort. I am unable to speak and chew so i have been pretty much drinking my meals through a straw. Thankfully i have a supportive girlfriend who has been cooking and pureeing all the food for me I went to the doc today for a post-op exam and he said it was healing properly. I have been taking vitamin C, D, zinc, glutamine and lysine for immune support and to help heal the tissue. Right now my tongue looks like a mess but i am hoping it heals up and the OLP is a thing of the past. Unfortunately i had to cancel my weekend travel plans and missed my good friends wedding in the process, so i've been a bit stressed and sad.
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the first oral surgeon i went to recommended it and i am now thinking this may be a good idea. I believe its similar to a scraping where it stimulates new cell generation and heals the damaged tissue.
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I have been struggling to have sex with my husband for almost a year now. I have excruciating pain every time we try.
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He is a great person and understanding but there is no hiding the fact that it is a struggle for him (and me) that we are not able to have sex. The pain is incredible and as much as I try to grin and bare it, it is impossible to achieve penetration.
I was diagnosed with LS just a week ago after a biopsy and have been given dermovate to use once a night for 4 weeks. Had anyone used this and seen an improvement with vaginal pain? How long did the medication take to work?
Has anyone had severe sexual pain and overcome it after medication?
I'm desperate, I'm 26 and can't spend the rest of my life not having sex. What if I would like children later?
I Am only the merry go round of LP. Off prednisone 5 days and it comes back in my mouth hands and vulva. I was trying and still am trying a shot of wheatgrass every am, probiotic yogurts and super 8 probiotic capsules. Have been doing this for three weeks and symptoms got worse so doctor has put me on steroids again...20mg as opposed to 40 mg the last time..I have been a naughty girl and am not taking them as I am trying to lose the stone in weight I put on during my last course.
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I have read so many posts and now think if there id a connection between candida and Lp. I am thinking of going gluten free.....does this work?
I was diagnosed with this 18 months ago. I was referred to hospital for biopsy which was traumatic. The doctor held my tongue and stuck needle straight in. The pain was so severe I passed out. My gp commented that he thought my treatment was brutal and unacceptable.
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I was then referred to a different local hospital (we live between the 2) and was treated with kindness. I had further biopsy which was painful but bearable. Unfortunately this doctor now wants to refer me on as steroids are not sufficiently effective in controlling my OPL.
I have an appointment this week at Bristol Dental Hospital and am terrified of yet another biopsy. I am also frightened of being experimented on by students (not in general but in this instance).
has anyone any experience of this hospital?
I don't know anyone else with this disorder and feel quite isolated
has anyone had or have burning mouth syndrome before having the Oral lichen planus?
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i had the BMS about 6-7 years before getting OLP.
I have been going through a second flare up and dermovate is not working. Now been given protopic as not responding to steroid creams. I need advise on the itching which is literally driving me mad and the lack of sleep is interfering with my work now any advise on creams, diets etc!
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I have just been diagnosed with LP vulvar, it has also affected my breasts and small patches on my torso. I've had it for a long time and just didn't know what it was, with flare ups that come and go- everywhere but the vulva, which has been rather constant and suddenly got worse about a month ago. Been in agony with the vulvar part for the past week because taking antibiotics for an ear infection meant severe thrush also got thrown into the mix.
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The doctor said it was unusual for someone of my age to suffer from lichen planus (I'm 26), so I have to go to a dermatologist for their review. I'm also an IBS sufferer, I noticed on a lot of other posts that many people that mentioned LP/LS also have IBS.
I've been given Trimovate but, so far, the only thing that stops the itching long enough for me to get to sleep is Vagisil, which I'm worried will cause problems long-term even though it brings temporary relief.
I'm dreading going back to work tomorrow and don't know when/whether I'll get my sex life back with my amazing boyfriend. Feeling really rubbish
i have had sjogrens since I was 41 years old, I'm now 74 . I've been told there's nothing can be done for it, it's just as I've got older I ache more and get extremely tired,I do go out walking with my dog to get some exercise, have a sit down , then do a few jobs , then sit down and so forth , sjogrens is not life threatening, but it changes your life completely .but it's nice to keep in touch with people who has this horrible condition.
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I developed excruciating burning in my bladder within the last two weeks. After ruling out a bladder infection, and after doing much Internet research, my symptoms (burning 24/7) seem to match interstitial cystitis. Has anyone received this diagnosis? It appears that the condition is chronic and very very difficult to treat, and that there are no proven treatment. There are treatments but they are pretty extreme (you can Google them under treating Interstitial Cystitis.)
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So what a low blow. Can anyone out there help me? I see a urologist for the first time tomorrow. Can anyone tell me what I am in for to cure this horrible burning?
I think I have Oral Lichen Planus but I can't get a doctor to confirm it. I have had mouth sores in my cheek area since 2009 and now my gums are very red and inflamed and have been told that I have white lines on my inside cheek area. When I go to a dentist to have my teeth cleaned, I am always turned away because they don't like the looks of my mouth sores. In 2013 I had doctor swab my mouth and send for testing and also did blood work but was told nothing showed up. I think she was looking for bacterial infection. In the mean time, I continue with a very sore mouth.
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I have a hard time eating anything because the sores are next to my bottom back teeth so eating irritates the sores a lot at night I sometimes bite the area with sores due to swelling so they pretty much never heal.
I recently went to a new dentist and she too wouldn't work on my teeth but she gave me details as to her concerns and told me to get checked for an Auto Immune disorder. I have since been to a doctor and had blood taken to check for that and then they sent me to ENT. He mentioned Oral Lichen Planus which was the first time I have heard of it. He wants to do a biopsy and then he mentioned a steroid rinse.
I also researched OLP and I have all the symptoms listed so I just don't understand how going to doctors since 2010 about the mouth sores, no one can figure it out? Am I finally heading in the right directions for diagnosis? I scares me that it has been left un treated for 5 years when I read that sometimes those with OPL can lead to mouth cancer.
I have got lichen planus on arms very bad, legs, vulva, oral and now starting on my chest. I have used cetraben, dermovate, dermal, doublebase cream, hydrocortisone, calamine lotion, aqueous cream..my GP been excellent.
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Also Tramalgin, betnovate for below and am now tearing my hair out with sleepless nights with itching.
I go to work like a zombie and it's so embarrassing having to scratch, they say the monkeys here as a joke.
This has gone on for 6months nearly...am waiting to see the dermatologist. I had a vulvar flare 4 years ago and was ok up until early this year.
My son was diagnosed with OLP when he was 8..... But his mouth ulcers started when he was 3! He's 10 now. He has good weeks and he has Horrible weeks. No one has been able to help us relieve his pain. We do have some meds prescribed but none are miracle drugs (I know that doesn't exist. . I just wish it did). The medicine prescribed to him is Methotrexate 2.5 mg tablet - 6 at a time once a week. Also he's to take folic acid with this med. He's not started this yet because he must have blood work done routinely since there is a chance this med will effect his liver .... And he's terrified of needles. He uses Chloraseptic mouth spray very often for the pain. He misses school very often. He sometimes has "mystery fevers" and feels just awful inside. He gets bad headaches. I read on one thread that someone mentioned an OTC med for thrush and an enzyme for candida. I think I might try that for him. Does anyone have any other suggestions for me? My sweet boy is in pain and has been for so long and I'm worried that his childhood is being negatively impacted by all these mouth ulcers.
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I was having some bleeding for about 3 weeks and it is being investigated now. I had ultrasound, biopsy (awaiting results) but I am just looking for my options. If they find something bad in the biopsy of course it looks like a hysterectomy. But if nothing shows I,m still stuck with the thick lining and bleeding. I have heard horror stories about the ablation, and I have heard its not a good idea with a previous C-section. My doctor thought I may be lacking progesterone or in fact estrogen dominant. I am currently taking progesterone to help with the bleeding for 10 days. It is working well and I feel great, and other symptoms I was having have stopped. Anyone have a D @ C with or without hormone therapy and did it help. I am 47.5 years old and if I can just coast for a few years until menopause I may be able to avoid a hysterectomy.
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Varicose veins are in some cases unavoidable. Many times, there are ways to naturally prevent and soothe them.
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Get plenty of exercise to get your blood circulating, Elevate your legs on pillows daily for 10 minutes or more, Avoid excess weight gain, Dry-brush your legs daily to improve circulation. (This can prevent varicose veins from forming.) Use a natural-bristle brush with a long handle that allows you to reach all parts of your body. Gently brush your legs from the ankles up in a circular motion. Do this before you shower, so you can wash off any dead skin you brush off. Follow with moisturizer or body oil. Don't brush areas with existing varicose veins because you may irritate them.
Take sociable garlic and vitamin E capsules to improve circulation and vitamin C and B-complex vitamins to strengthen your blood vessels, Massage your legs with upward strokes, flushing your blood up to your heart. Use a massage oil made with 3 drops of lavender oil and 1 drop of peppermint oil in a coconut oil base (use unscented coconut oil), or put only the essential oils into a small spray bottle filled with water and spray directly on your legs.
St. John's wort oil helps with inflammation of veins. Avoid sitting for too long, especially with your legs crossed,
Wear loose clothing.
Try acupuncture or reflexology treatments to get your circulation moving and to move any stagnant energy.
After a bath, apply castor oil directly onto the veins. Massage using upward strokes from your feet straight up your legs. Avoid standing for prolonged periods of time.
Apply a cool compress soaked in witch hazel on your legs. Add a few drops of rosemary oil to stimulate circulation.
Flex your feet up and down and circle your ankles to the left and to the right twice a day.
To help varicose veins, make sure you're getting enough of the following:
Calcium-rich foods, since varicose veins are aggravated by a calcium deficiency
Pineapple, to reduce swelling and inflammation.
Berries such as raspberries, blackberries, blueberries, and cherries, as they contain a pigment that strengthens the walls of the veins
Foods high in fiber Plenty of water, to keep your bowels moving.
How do you treat spider veins and varicose veins without vein clinics?
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Father suffers from parkinson's, My father has been suffering from parkinsons since 1992, he is 59 years old today and on tablet levodopa and pramipexole. Could anyone suggests other treatments to make him feel better?
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My body has been working on this big toe issue for years. I finally decided to see what it was and what I could do about it.
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I have two choices: fusing or a lesser procedure called cheilectomy.
I am looking for feedback from anyone who has had either of these procedures done.
For 11 years I have suffered with this condition. The 1st diagnosis was claudication, 2nd arthritis, 3rd peripheral artery disease, 4th nerve interference from protruding spinal disc , 5 6 7 8 9 10 etc. I have taken every known treatment . Where would you suggest I try next ?
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70 year old male in good shape been exercising 6 days a week cardio and weights for the past 5 years or so.Last couple of weeks or started to feel discomfort in my neck and jaw while exercising, it would go away when I stopped. Went to to non interventional cardiologist who ordered up an angiogram which I had 4 days ago. Results were Right artery 99% blocked, LAD 70 % and two other arteries on the left also 70% blocked. Interventional Cardiologist recommended CABG surgery because of multiple artery involvement and that the left arteries were not good candidates for stenting due to the position of the blockage.
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My non interventional cardio after conferring with the interventional cardio said that I had options other than CABG. Both doctors agreed that my angina was most likely coming from the 99% right block.
Option is stenting the 99% blocked right and the OMT for the rest. A surgeon was also called in for consultation and neither he or the two other Cardios would predict outcomes or give an opinion as to which course of treatment I should follow. Regardless something had to be done sooner rather than later for the right artery. I sent the pics to another interventional Cardio who validated the position of my non interventional cardio that I do have choices other than CABG and that the which ever decision I would make I would probably have a good outcome. So next week I'm going to have the right artery stented and then medically treat the rest of my disease and see where it goes from there.
I also plan to make major changes in my diet to hopefully control the progression of the disease or even possible improve my condition