Burning Mouth Syndrome/Oral Lichen Planus
Jan 3, 2016
has anyone had or have burning mouth syndrome before having the Oral lichen planus?
View 5 Replies
i had the BMS about 6-7 years before getting OLP.
My son was diagnosed with OLP when he was 8..... But his mouth ulcers started when he was 3! He's 10 now. He has good weeks and he has Horrible weeks. No one has been able to help us relieve his pain. We do have some meds prescribed but none are miracle drugs (I know that doesn't exist. . I just wish it did). The medicine prescribed to him is Methotrexate 2.5 mg tablet - 6 at a time once a week. Also he's to take folic acid with this med. He's not started this yet because he must have blood work done routinely since there is a chance this med will effect his liver .... And he's terrified of needles. He uses Chloraseptic mouth spray very often for the pain. He misses school very often. He sometimes has "mystery fevers" and feels just awful inside. He gets bad headaches. I read on one thread that someone mentioned an OTC med for thrush and an enzyme for candida. I think I might try that for him. Does anyone have any other suggestions for me? My sweet boy is in pain and has been for so long and I'm worried that his childhood is being negatively impacted by all these mouth ulcers.
View 33 Replies
I was diagnosed with this 18 months ago. I was referred to hospital for biopsy which was traumatic. The doctor held my tongue and stuck needle straight in. The pain was so severe I passed out. My gp commented that he thought my treatment was brutal and unacceptable.
View 39 Replies
I was then referred to a different local hospital (we live between the 2) and was treated with kindness. I had further biopsy which was painful but bearable. Unfortunately this doctor now wants to refer me on as steroids are not sufficiently effective in controlling my OPL.
I have an appointment this week at Bristol Dental Hospital and am terrified of yet another biopsy. I am also frightened of being experimented on by students (not in general but in this instance).
has anyone any experience of this hospital?
I don't know anyone else with this disorder and feel quite isolated
I think I have Oral Lichen Planus but I can't get a doctor to confirm it. I have had mouth sores in my cheek area since 2009 and now my gums are very red and inflamed and have been told that I have white lines on my inside cheek area. When I go to a dentist to have my teeth cleaned, I am always turned away because they don't like the looks of my mouth sores. In 2013 I had doctor swab my mouth and send for testing and also did blood work but was told nothing showed up. I think she was looking for bacterial infection. In the mean time, I continue with a very sore mouth.
View 42 Replies
I have a hard time eating anything because the sores are next to my bottom back teeth so eating irritates the sores a lot at night I sometimes bite the area with sores due to swelling so they pretty much never heal.
I recently went to a new dentist and she too wouldn't work on my teeth but she gave me details as to her concerns and told me to get checked for an Auto Immune disorder. I have since been to a doctor and had blood taken to check for that and then they sent me to ENT. He mentioned Oral Lichen Planus which was the first time I have heard of it. He wants to do a biopsy and then he mentioned a steroid rinse.
I also researched OLP and I have all the symptoms listed so I just don't understand how going to doctors since 2010 about the mouth sores, no one can figure it out? Am I finally heading in the right directions for diagnosis? I scares me that it has been left un treated for 5 years when I read that sometimes those with OPL can lead to mouth cancer.
Does anyone have this should it be affecting my teeth and jaw they are agony on top of the burning.
View 2 Replies
One day last November I awoke with a 'bitter' taste in my mouth.
View 3 Replies
Several visits to my GP later and I'm still not much further forward.
I'm a 43 year old female. In October 2013 I was diagnosed hypothyroid and began treatment of 50mg levothyroxine per day. Because the bitter taste started relatively soon after beginning the medication, I put 2 and 2 together and thought it was causing the taste. But, no, I took myself off the medication for 3/4 weeks over Christmas and still had the bitter taste.
I've drastically altered my diet as I thought certain foods made it worse but can't pinpoint one particular allergy or sensitivity.......
I've changed toothpaste, tried mouthwash, cut out tea, milk, all dairy, and mainly eat very healthily - fruit, veggies and chicken.
My GP suggested LPR (silent acid reflux) but it doesn't taste like 'acid' - it's just bitter/sour.
I've been on Gaviscon after every meal for over a month and Ranitidine for almost 2 weeks. The symptoms persist still
My mouth can get quite dry, and the bitter taste seems to be on my tongue and/or the roof of my mouth or around a wisdom tooth on one side.
I can't cope with this for much longer. It only eases up when either sleeping or eating.
So frustrated search for posts containing burning mouth click on them and it doesn't take you to them. Does anyone know of any links between BMS and venlafaxine.
View 3 Replies
Does anyone else out there have this. I'm going through daily hell need some relief ideas please
View 4 Replies
I have a taste which at first was metallic it's now sometimes salty.
View 12 Replies
The roof of my mouth and tongue feels like i had scalded it like with a hot drink though I haven't.
My mouth gets dry and it's worse then.
I take venlafaxine antidepressant, and I'm thinking is it this.
Do you suffer for this? And if so what's it symptoms or have you got rid off it.
I have been taking Effexor for many years and have recently been diagnosed with Burning Mouth Syndrome. Anyone have this condition and taking Effexor?
View 9 Replies
I have had what feels like my mouth has been scalded, aching roots of my teeth, blisters in my mouth, swollen gums, swollen tongue, taste buds swollen. Gums split. Some days teeth shift from the swelling on my gums. Have swollen salivary glands under chin each side of throat. Talking worsens it considerably. I have had no diagnosis yet! I have had this for 9 months. It is so painful it consumes me. Sleeping causes this to go away. Upon waking I feel normal. I put off talking, eating or drinking until as late as 2:00 pm. Then the cycle begins all over again. I've tried, so many home remedies. Seen an Oral Surgeon who believes this is Systemic. Just waiting for blood results to come back on being tested for Lupus and Rheumatoid Arthritis as my elbow and knee joints have almost crippled me. My knees are swollen.
View 14 Replies
I have had BMS for several years. It has worsened to the point of being almost unbearable. I have taken an anti viral drug, tried vitamins and Alpha Lipoic Acid. I am now taking a medication for nerve pain. If anyone has BMS and have had successful treatment, please post this info.
View 1 Replies
Has anyone else been diagnosed with this syndrome and takes venlafaxine? It's driving me insane
View 16 Replies
Amongst other things I have a terrible burning mouth,nose and tongue. It tastes metallic and sometimes it is hard to swallow. I also have a buzzing face and headaches with it.
View 13 Replies
Is anybody familiar with this uncomfortable mess in the mouth?
View 3 Replies
I have been struggling to have sex with my husband for almost a year now. I have excruciating pain every time we try.
View 44 Replies
He is a great person and understanding but there is no hiding the fact that it is a struggle for him (and me) that we are not able to have sex. The pain is incredible and as much as I try to grin and bare it, it is impossible to achieve penetration.
I was diagnosed with LS just a week ago after a biopsy and have been given dermovate to use once a night for 4 weeks. Had anyone used this and seen an improvement with vaginal pain? How long did the medication take to work?
Has anyone had severe sexual pain and overcome it after medication?
I'm desperate, I'm 26 and can't spend the rest of my life not having sex. What if I would like children later?
My 1st laser treatment was unsuccessful so i went to see an oral surgeon who specializes in laser ablation on soft oral tissues This time the procedure was much more invasive and treated like an actual surgery. The doctor removed the top 3 layers of epithelial tissue off the side of my tongue where the OLP was I he went much deeper than my 1st doc). I had the procedure friday and am still in considerable pain and discomfort. I am unable to speak and chew so i have been pretty much drinking my meals through a straw. Thankfully i have a supportive girlfriend who has been cooking and pureeing all the food for me I went to the doc today for a post-op exam and he said it was healing properly. I have been taking vitamin C, D, zinc, glutamine and lysine for immune support and to help heal the tissue. Right now my tongue looks like a mess but i am hoping it heals up and the OLP is a thing of the past. Unfortunately i had to cancel my weekend travel plans and missed my good friends wedding in the process, so i've been a bit stressed and sad.
View 3 Replies
the first oral surgeon i went to recommended it and i am now thinking this may be a good idea. I believe its similar to a scraping where it stimulates new cell generation and heals the damaged tissue.
View 7 Replies
I Am only the merry go round of LP. Off prednisone 5 days and it comes back in my mouth hands and vulva. I was trying and still am trying a shot of wheatgrass every am, probiotic yogurts and super 8 probiotic capsules. Have been doing this for three weeks and symptoms got worse so doctor has put me on steroids again...20mg as opposed to 40 mg the last time..I have been a naughty girl and am not taking them as I am trying to lose the stone in weight I put on during my last course.
View 3 Replies
I have read so many posts and now think if there id a connection between candida and Lp. I am thinking of going gluten free.....does this work?
I want to start a thread that concentrates on anything that helps - or anything tried that doesn't help.
View 65 Replies
I've been prescribed Dapsone, Allegra and Advantan - no improvement after 14 days
I've read that Ultraviolet B was completely successful for 70% of patients after 10.9 weeks and I can email that study to anyone interested. Ultra Violet B is provided by the sun but one person on this forum reported getting worse after spending time in the sun.
I have been going through a second flare up and dermovate is not working. Now been given protopic as not responding to steroid creams. I need advise on the itching which is literally driving me mad and the lack of sleep is interfering with my work now any advise on creams, diets etc!
View 19 Replies