Lichen Planus :: 2nd OLP Laser Treatment
Jul 28, 2015
My 1st laser treatment was unsuccessful so i went to see an oral surgeon who specializes in laser ablation on soft oral tissues This time the procedure was much more invasive and treated like an actual surgery. The doctor removed the top 3 layers of epithelial tissue off the side of my tongue where the OLP was I he went much deeper than my 1st doc). I had the procedure friday and am still in considerable pain and discomfort. I am unable to speak and chew so i have been pretty much drinking my meals through a straw. Thankfully i have a supportive girlfriend who has been cooking and pureeing all the food for me I went to the doc today for a post-op exam and he said it was healing properly. I have been taking vitamin C, D, zinc, glutamine and lysine for immune support and to help heal the tissue. Right now my tongue looks like a mess but i am hoping it heals up and the OLP is a thing of the past. Unfortunately i had to cancel my weekend travel plans and missed my good friends wedding in the process, so i've been a bit stressed and sad.
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the first oral surgeon i went to recommended it and i am now thinking this may be a good idea. I believe its similar to a scraping where it stimulates new cell generation and heals the damaged tissue.
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I want to start a thread that concentrates on anything that helps - or anything tried that doesn't help.
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I've been prescribed Dapsone, Allegra and Advantan - no improvement after 14 days
I've read that Ultraviolet B was completely successful for 70% of patients after 10.9 weeks and I can email that study to anyone interested. Ultra Violet B is provided by the sun but one person on this forum reported getting worse after spending time in the sun.
I have been struggling to have sex with my husband for almost a year now. I have excruciating pain every time we try.
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He is a great person and understanding but there is no hiding the fact that it is a struggle for him (and me) that we are not able to have sex. The pain is incredible and as much as I try to grin and bare it, it is impossible to achieve penetration.
I was diagnosed with LS just a week ago after a biopsy and have been given dermovate to use once a night for 4 weeks. Had anyone used this and seen an improvement with vaginal pain? How long did the medication take to work?
Has anyone had severe sexual pain and overcome it after medication?
I'm desperate, I'm 26 and can't spend the rest of my life not having sex. What if I would like children later?
I Am only the merry go round of LP. Off prednisone 5 days and it comes back in my mouth hands and vulva. I was trying and still am trying a shot of wheatgrass every am, probiotic yogurts and super 8 probiotic capsules. Have been doing this for three weeks and symptoms got worse so doctor has put me on steroids again...20mg as opposed to 40 mg the last time..I have been a naughty girl and am not taking them as I am trying to lose the stone in weight I put on during my last course.
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I have read so many posts and now think if there id a connection between candida and Lp. I am thinking of going gluten free.....does this work?
I was diagnosed with this 18 months ago. I was referred to hospital for biopsy which was traumatic. The doctor held my tongue and stuck needle straight in. The pain was so severe I passed out. My gp commented that he thought my treatment was brutal and unacceptable.
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I was then referred to a different local hospital (we live between the 2) and was treated with kindness. I had further biopsy which was painful but bearable. Unfortunately this doctor now wants to refer me on as steroids are not sufficiently effective in controlling my OPL.
I have an appointment this week at Bristol Dental Hospital and am terrified of yet another biopsy. I am also frightened of being experimented on by students (not in general but in this instance).
has anyone any experience of this hospital?
I don't know anyone else with this disorder and feel quite isolated
has anyone had or have burning mouth syndrome before having the Oral lichen planus?
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i had the BMS about 6-7 years before getting OLP.
I have been going through a second flare up and dermovate is not working. Now been given protopic as not responding to steroid creams. I need advise on the itching which is literally driving me mad and the lack of sleep is interfering with my work now any advise on creams, diets etc!
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I have just been diagnosed with LP vulvar, it has also affected my breasts and small patches on my torso. I've had it for a long time and just didn't know what it was, with flare ups that come and go- everywhere but the vulva, which has been rather constant and suddenly got worse about a month ago. Been in agony with the vulvar part for the past week because taking antibiotics for an ear infection meant severe thrush also got thrown into the mix.
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The doctor said it was unusual for someone of my age to suffer from lichen planus (I'm 26), so I have to go to a dermatologist for their review. I'm also an IBS sufferer, I noticed on a lot of other posts that many people that mentioned LP/LS also have IBS.
I've been given Trimovate but, so far, the only thing that stops the itching long enough for me to get to sleep is Vagisil, which I'm worried will cause problems long-term even though it brings temporary relief.
I'm dreading going back to work tomorrow and don't know when/whether I'll get my sex life back with my amazing boyfriend. Feeling really rubbish
I think I have Oral Lichen Planus but I can't get a doctor to confirm it. I have had mouth sores in my cheek area since 2009 and now my gums are very red and inflamed and have been told that I have white lines on my inside cheek area. When I go to a dentist to have my teeth cleaned, I am always turned away because they don't like the looks of my mouth sores. In 2013 I had doctor swab my mouth and send for testing and also did blood work but was told nothing showed up. I think she was looking for bacterial infection. In the mean time, I continue with a very sore mouth.
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I have a hard time eating anything because the sores are next to my bottom back teeth so eating irritates the sores a lot at night I sometimes bite the area with sores due to swelling so they pretty much never heal.
I recently went to a new dentist and she too wouldn't work on my teeth but she gave me details as to her concerns and told me to get checked for an Auto Immune disorder. I have since been to a doctor and had blood taken to check for that and then they sent me to ENT. He mentioned Oral Lichen Planus which was the first time I have heard of it. He wants to do a biopsy and then he mentioned a steroid rinse.
I also researched OLP and I have all the symptoms listed so I just don't understand how going to doctors since 2010 about the mouth sores, no one can figure it out? Am I finally heading in the right directions for diagnosis? I scares me that it has been left un treated for 5 years when I read that sometimes those with OPL can lead to mouth cancer.
I have got lichen planus on arms very bad, legs, vulva, oral and now starting on my chest. I have used cetraben, dermovate, dermal, doublebase cream, hydrocortisone, calamine lotion, aqueous cream..my GP been excellent.
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Also Tramalgin, betnovate for below and am now tearing my hair out with sleepless nights with itching.
I go to work like a zombie and it's so embarrassing having to scratch, they say the monkeys here as a joke.
This has gone on for 6months nearly...am waiting to see the dermatologist. I had a vulvar flare 4 years ago and was ok up until early this year.
My son was diagnosed with OLP when he was 8..... But his mouth ulcers started when he was 3! He's 10 now. He has good weeks and he has Horrible weeks. No one has been able to help us relieve his pain. We do have some meds prescribed but none are miracle drugs (I know that doesn't exist. . I just wish it did). The medicine prescribed to him is Methotrexate 2.5 mg tablet - 6 at a time once a week. Also he's to take folic acid with this med. He's not started this yet because he must have blood work done routinely since there is a chance this med will effect his liver .... And he's terrified of needles. He uses Chloraseptic mouth spray very often for the pain. He misses school very often. He sometimes has "mystery fevers" and feels just awful inside. He gets bad headaches. I read on one thread that someone mentioned an OTC med for thrush and an enzyme for candida. I think I might try that for him. Does anyone have any other suggestions for me? My sweet boy is in pain and has been for so long and I'm worried that his childhood is being negatively impacted by all these mouth ulcers.
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have any ladies had the CO2 fractional laser for LS? The reason I ask is that my dermatologist has finally given me the name of the laser they have suggested for my treatment as I'm struggling with the steroids/HPV warts cycle. They have suggested having the CO2 fractional laser followed a couple of hours later by PRP treatment. The dermatologist said they see the best results with ladies who have this combination on the same day.
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over this last week my left labia minor has disappeared 😟 Completely and I have struggled to keep the itch at bay. Although the white patches have diminished. in the last week I had to use the Betnovate but after a day the itch/pain was so bad and not subsiding, that I used the dermovate, this I think was the only thing that helped with the itch eventually. But as I struggle to use these creams I have to be very careful as they induce warts.
Hence the doctor has suggested I undertake the CO2 laser and PRP combination next week.
I was diagnosed with vin3 in Jan 2014. I had surgery in the Feb and had 3 weeks off work recovering. My consultant told me that I would need about a week. I then had laser surgery in sept 2015 and then after cells appeared immediately had more surgery 5 weeks later. Is it just me or is the recovery time under estimated. I keep being told that it is only a week to recover but the pain is excruciating. I find standing up difficult and have to roll over to get up. I don't think anyone realises how painful this condition is post op and I feel like I am trying to avoid work when asking for a sick note! I'm really fed up!
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Just wondering if anyone has had any success with laser hair removal as a way of preventing this disease escalating from stage 1? I was just struck by a passing mention in a post by a doctor about antibiotics, and remembered that a few years ago, before my diagnosis, I used to have terrible problems with my upper thigh areas: I put it down to being sensitive to using razors and so invested in laser on that area. Now I don't get bumps there at all, but I do still in my groin and armpits. I would have thought that logically, if there are no hairs, that the area can't get so infected and sore. Laser hair removal is now widely available and relatively inexpensive.
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For the last couple of days I have been extremely itchy. The itching is mainly towards the bum and at the vaginal opening. I do
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have a white patch at the vaginal opening but towards bum it is mostly red and feels bumpy. The itching is keeping me awake at night. I take baking soda baths, apply coconut oil and have a cream made up of 3% steroid and canes tan . I am not on clob. Or Dermovate. So questions
What else can help the itching?
When LS is under control do symptoms stay away for a day, a week, or a month?
I was diagnosed in Oct 2015 and have issues almost everyday since when I have a day when I feel 'normal'. I could sing, fly jump with joy for the relief
Does clob help the itch?
Does LS spread more if it's not treated?
if it is treated will it stay more in one area.
I'm looking for advice. My 60 year old father (who has had HCV for more than 10 years; previously treated with Interferon but bad side effects) finished his 12 week Sofosbuvir+Daclatasvir (considered same as Harvoni) treatment a month ago. Already first tests after 2 weeks showed virus was Undetected, but yesterday he received his most recent results and he has a relapse of the virus. He is genotype 1, fibroscan result 4 (close to final stage). He is based in Poland and I'm not sure if our doctors are fully informed of the new generation medications and HCV itself.
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Is anyone able to give us any advice? We are pretty desperate and my dad is just so depressed as he thought he finally got rid of the virus (he got infected while on an operation in a public hospital) and now it is back...
Are there any specialists that you are aware of I could possibly get in contact with?
A few weeks ago my bf noticed some bumps in his pubic area. He went to the dermatologist and was diagnosed with molluscum contagiosum, which is thankfully not that big of a deal! He got his treated with cryotherapy. Around this time I noticed a few bumps and because of the area they were in, went to an OBGYN for treatment so my bf and I don't keep spreading it to each other. The OB GYN agreed that they were also MC bumps and lightly scraped each one, then applied an acid treatment. That was a few days ago and while the bumps are mostly gone, the skin surrounding each one is dark and almost looks like a scab in color. Is this normal post acid treatment?
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Does anyone here relapse after harvoni treatment?
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QUOTE FROM ARTICLE:
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Although the idea of a clinic-based YAG laser operation is alluring for its perceived simplicity, we have the following concerns.
1. The energy delivered into the eye is not acceptable. The energy delivered to the eye in YAG vitreolysis compared with standard YAG capsulotomy is much greater. Van der Windt and colleagues state the typical required power is 2.5 mJ to 4.5 mJ, and they do not recommend exceeding 500 pulses per treatment session. They recognize multiple treatment sessions may be necessary. It is our opinion this level of energy being delivered into the eye is too great, putting the patient at unnecessarily high risk for postoperative inflammation, glaucoma and retinal tear/detachment.
2. The efficacy of YAG vitreolysis is also in question. Delaney and colleagues found that 38% of patients treated with YAG vitreolysis had a moderate reduction in symptoms while 62% had no improvement.
The alternative treatment for YAG vitreolysis, and what we recommend at Mercy in carefully selected cases, is small-gauge pars plana vitrectomy. This procedure yields much higher efficacy. In the same Delaney study, they reported 93.3% of eyes undergoing vitrectomy for floaters resulted in full resolution. By utilizing modern surgical equipment, now readily available in as small as 27 gauge and cut rates as high as 7,500 cuts/minute, very little energy is directed into the vitreous, and very little traction on the vitreous is exerted. Vitrectomy has the advantage that if a retinal tear develops intraoperatively, it should be easily identified and treated at the end of the case.
I would like to share my experience with the laser tonsil reduction procedure.
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I am 32 years old with small tonsils with crypts. I have been suffering from constant sore throat, BB, tonsil stones, fever since the past three years.
I discarded the traditional tonsillectomy option as I have heard that its very painful in adults with increased risk of postoperative bleeding and the recovery takes 2 weeks to sometimes a month. Instead I opted for laser aided tonsil reduction.
My ENT gave me a prompt appointment and I had the procedure done yesterday. After the anaesthetic spray to the back of my throat that somewhat stinged, the ENT fired around 3 rounds of laser to each of my tonsils.Even though the anaesthetic had numbed my throat, there was a burning pain when the laser went deeper.
The whole procedure was completed in 15 minutes and the ENT informed me that he has reduced both my tonsils as much as possible. The tonsillar area looked black and charred. I had slight difficulty swallowing but it was not that bad as expected.
I returned home in the evening and gargled with difflam mouthwash and took one painkiller around 7 pm when the pain built up. Still a 2 out of a scale of 10.
Day 1 (today): Woke up this morning, feeling much better. My throat has started sloughing and I can see white coating where it was lasered. Pain 2 out of 10. Gargled again but didn't need to take a painkiller.
I have a funny taste in the back of the mouth and the gargle is not helping.
Off to have some lentil soup and veggies for lunch. I have 6 days of sick leave from work to recover, so drinking lots of liquids and mashed food & soup to get well soon.
Note: I have read that partial tonsil reduction may not solve the problems completely. But I am keeping my fingers crossed and hoping that I am not one of the rare cases who has to go for a complete tonsillectomy after all this. I have a follow up appointment with the ENT a month later. wish me good luck.