Lichen Sclerosus :: Laser Surgery - Recovery Taking Long
Nov 9, 2015
I was diagnosed with vin3 in Jan 2014. I had surgery in the Feb and had 3 weeks off work recovering. My consultant told me that I would need about a week. I then had laser surgery in sept 2015 and then after cells appeared immediately had more surgery 5 weeks later. Is it just me or is the recovery time under estimated. I keep being told that it is only a week to recover but the pain is excruciating. I find standing up difficult and have to roll over to get up. I don't think anyone realises how painful this condition is post op and I feel like I am trying to avoid work when asking for a sick note! I'm really fed up!
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have any ladies had the CO2 fractional laser for LS? The reason I ask is that my dermatologist has finally given me the name of the laser they have suggested for my treatment as I'm struggling with the steroids/HPV warts cycle. They have suggested having the CO2 fractional laser followed a couple of hours later by PRP treatment. The dermatologist said they see the best results with ladies who have this combination on the same day.
over this last week my left labia minor has disappeared 😟 Completely and I have struggled to keep the itch at bay. Although the white patches have diminished. in the last week I had to use the Betnovate but after a day the itch/pain was so bad and not subsiding, that I used the dermovate, this I think was the only thing that helped with the itch eventually. But as I struggle to use these creams I have to be very careful as they induce warts.
Hence the doctor has suggested I undertake the CO2 laser and PRP combination next week.
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So i went to see my doctor after using the eumovate cream for 2 weeks like he suggested, he says he doesn't think my LS is active and thinks its just scarring from what i had when i was younger like what i have on my side it doesn't bother me at all but he says ill be more prone to thrush and if it flares up use a oral treatment some canesten and some eumovate cream and if it doesn't clear up come back and see him. I have seen loads of improvement since i started using the steriod cream but i'm a bit confused because aren't you meant to see you doctor like once every 6 months just to check its progress?
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For the first time in many years I have no white patches. My GP has suggested that I take a month off the dermovate to give my body a break. Has anyone done this?
At the same time I feel that even though the white has gone, more bits of me are shrinking and I'm feeling a bit panicked by it.
Hanny when you say that your fusing is almost gone, is that the fusing closed that dilation is helping with, or are your labia unfusing and coming back? I'm also dieting. I was doing it twice a week but that isn't quite enough for maintenance so I'm going to go back to every other day. An aromatherapist also recommended Jojoba and chamomile essential oil which I haven't tried yet. Coconut oil works well for me as maintenance, but I'm always hoping to find the magic ingredient that helps me move forward rather than stand still. Aren't we all? I will feed back when i try it.
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I am 4 weeks post op and still having frequency issues and pain when urinating. How much longer can this go on?
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My 1st laser treatment was unsuccessful so i went to see an oral surgeon who specializes in laser ablation on soft oral tissues This time the procedure was much more invasive and treated like an actual surgery. The doctor removed the top 3 layers of epithelial tissue off the side of my tongue where the OLP was I he went much deeper than my 1st doc). I had the procedure friday and am still in considerable pain and discomfort. I am unable to speak and chew so i have been pretty much drinking my meals through a straw. Thankfully i have a supportive girlfriend who has been cooking and pureeing all the food for me I went to the doc today for a post-op exam and he said it was healing properly. I have been taking vitamin C, D, zinc, glutamine and lysine for immune support and to help heal the tissue. Right now my tongue looks like a mess but i am hoping it heals up and the OLP is a thing of the past. Unfortunately i had to cancel my weekend travel plans and missed my good friends wedding in the process, so i've been a bit stressed and sad.
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the first oral surgeon i went to recommended it and i am now thinking this may be a good idea. I believe its similar to a scraping where it stimulates new cell generation and heals the damaged tissue.
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When I received my diagnosis a month or so ago, I spent a lot of time reading this forum and learned an overwhelming amount of information. One post that stood out was someone who had managed to somewhat reverse their fusion with a baking soda spray treatment. I can't find that post, or remember what thread it was posted on, and I'm hoping someone can point me in the right direction. If there is anyone else who has managed to reverse their fusion.
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just been reading some of your comments and diet was mentioned, I try to have a healthy diet , don't eat a lot of spicy foods, I always buy fresh veg and only eat fruit like bananas that don't have much acid in. I must admit to having a sweet tooth and do like sweets and I have noticed more flare ups if I have lots of sugary foods. Try to keep my sweetie intake to a minimum which is hard because I think if you suffer from LS you need the occasional treat to cheer you up.. Maybe my fairly bland diet is helping to keep the LS stable
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My Mother suffers from Lichen Planus, which I know is not exactly the same as Lichen Sclerosus. She has recently found urinating really painful. She has today found a convenient way to make things a bit easier. She fills a sports drinks bottle with warm water, and squirts this against herself when she urinates. It is soothing and also cleanses the area each time. hope this may help some people?
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I was diagnosed last year. I also had an early menopause as a teenager so we are looking into IVF to have a baby. I am struggling to find info on how LS affects pregnancy and birth if we are successful? Also thinking that the steroid cream can't be good for pregnancy?
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I have questions about the clitoris being buried. My first LS breakout was about 7 months ago. Have had a couple less severe ones since. I've gotten tremendous relief and healing with the hydrogen peroxide/saline spray, and Caprylic MCT oil (derived from coconut oil) Didn't even know what the heck it was until I found this forum. Have not been to doctor but will make an appt. Noticing as I examine myself that area that my clitoris may be "disappearing" behind folds. I've been reading on this forum and wonder: does the steroid cream reverse the fusion a bit? Enough to free it again?
I had a friend who had a procedure to "free" her clitoris -- not an LS sufferer, but her architecture was such that it was covered up & couldn't climax with her husband all their married years. She finally did some research and found a doctor who specializes in this, and he said "you're 100% covered up". With a minor procedure, she is now normal down there and able to be satisfied with her partner.
I was just wondering if the steroid cream or perhaps this procedure could restore my clitoral area as well. It's been such a short time and my sex life was very satisfying just months ago! I'm 53, btw.
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I'm going to have a biopsy done in few weeks time. I was advised by the dermatologist to get some metope (sp?) gel and apply it 1/2 hour before the procedure. However, I look at the instructions and you have to put an air tight covering over the area once you've applied the gel - something like cling film I think. But how will that work on my fanjo?
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Does that mean that we women are more susceptible to viruses, respiratory infections, etc.? Do most follow a certain diet ?
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Was diagnosed a few weeks back and steroid cream helped loads but tonight I have what can only be described as a tightness to my clit ( sorry tmi) almost like it's being pulled back ...
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I have NO symptoms and I do know how lucky I am not to suffer the way most people do. My inner lips just turned white and despite diagnosis and being given Dermovate they completely disappeared in around 2 years. And now my clitoris is going too. No itching, no fusion or adhesion. It is horrific to have nothing I can do simply watch helplessly as it goes. Has anyone else experienced anything like me? I feel quite the freak and so alone.
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I feel such a failure. I'm a trained nurse I give other people advice all the time yet I cannot help myself...let alone others. This is so difficult. I thought I was healthy. I eat well and have a positive disposition...well I used to. Will I ever be the same again?
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When I was diagnosed last month I had fusing toward the back of my labia minora to my labia majora. When looking today the fusing is getting worse and I almost have no labia minora. I am very upset tonight. Will it ever unfuse or is it gone forever? Freaking out!!!!
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I wish that was so,but in the world i have been it,men want sex,you all have boyfriend commintments,i bet there isnt 1 person on this site that has had this terrible deisease was single and then found a loving man that was understanding.not likely!!!!.i have problems just like anyone else,but i cant think of what could be worse then this,oh wait yes i can,not ever being able to live in a place of my own,some man wrecked that for the rest of my life.i have about 3 problems in this life that will never ever go away,1 of them being this stupid disease.the other 2 can never be fixed either,but this one is the worst of the worst.why do we have this?i just dont get it.negetive or not,i know i am single for rest of my life.you all have men i'm sure of it.or there is just a few of us that are on here that is single,i wonder if the ones that are single feel they will be single forever.there just has to be some answer to this.they have a so called cure now for hep c took years.well i will be long gone when they can fix this one.i wish i could be postive some how but really how?
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So I saw my PCP yesterday. Hadn't been able to get in to her for two years. She was great at listening to me. Finally after 10 years with LS she is referring me to a gyn at the hospital.
I want to ask for an estrogen cream. So my question to you all is what do you use on your vulva and do you have it compounded in something. If so what is it compounded with.
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Hello, I am a 48 year old woman who was diagnosed with LS four months ago, having been suffering with increasing symptoms for over a year. I started menopause early, aged 43 and as a result of a routine blood test for this also discovered that I have an underactive thyroid so take levothyroxine daily. I've been managing the LS reasonably successfully in terms of daily comfort and sex life but as you can tell from the title of this post, I am an equestrian and this is where my real problem lies at the moment. I have two horses and until several months ago rode at least 6 times a week. As my symptoms were progressing and before diagnosis I tried everything to relieve the pain - vaseline, feminine pads, gel filled saddle savers etc. If I space my rides and only go for a light hack I'm fairly ok, but any serious riding and I'm wrecked afterwards. I have just purchased some cycling shorts with what was described as a 'perineal relief' pad in the gusset area - hoping I could put these on just before riding and take them off again if they help. I have also gone so far as talking to a saddler (male, so that was fairly embarrassing) about the possibility of using a gel pad with a hole in the middle on top of my saddle. He is having a think, but there are lots of ergonomic issues with balancing on top of a horse which also have to be considered. Does anyone else here manage to ride (or even cycle) successfully using remedial padding or accessories of any description or am I facing a life without horses?
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