Oral Lichen Planus Can Lead To Cancer? Cheek Sores With White Lines
May 22, 2015
I think I have Oral Lichen Planus but I can't get a doctor to confirm it. I have had mouth sores in my cheek area since 2009 and now my gums are very red and inflamed and have been told that I have white lines on my inside cheek area. When I go to a dentist to have my teeth cleaned, I am always turned away because they don't like the looks of my mouth sores. In 2013 I had doctor swab my mouth and send for testing and also did blood work but was told nothing showed up. I think she was looking for bacterial infection. In the mean time, I continue with a very sore mouth.
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I have a hard time eating anything because the sores are next to my bottom back teeth so eating irritates the sores a lot at night I sometimes bite the area with sores due to swelling so they pretty much never heal.
I recently went to a new dentist and she too wouldn't work on my teeth but she gave me details as to her concerns and told me to get checked for an Auto Immune disorder. I have since been to a doctor and had blood taken to check for that and then they sent me to ENT. He mentioned Oral Lichen Planus which was the first time I have heard of it. He wants to do a biopsy and then he mentioned a steroid rinse.
I also researched OLP and I have all the symptoms listed so I just don't understand how going to doctors since 2010 about the mouth sores, no one can figure it out? Am I finally heading in the right directions for diagnosis? I scares me that it has been left un treated for 5 years when I read that sometimes those with OPL can lead to mouth cancer.
I was diagnosed with this 18 months ago. I was referred to hospital for biopsy which was traumatic. The doctor held my tongue and stuck needle straight in. The pain was so severe I passed out. My gp commented that he thought my treatment was brutal and unacceptable.
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I was then referred to a different local hospital (we live between the 2) and was treated with kindness. I had further biopsy which was painful but bearable. Unfortunately this doctor now wants to refer me on as steroids are not sufficiently effective in controlling my OPL.
I have an appointment this week at Bristol Dental Hospital and am terrified of yet another biopsy. I am also frightened of being experimented on by students (not in general but in this instance).
has anyone any experience of this hospital?
I don't know anyone else with this disorder and feel quite isolated
has anyone had or have burning mouth syndrome before having the Oral lichen planus?
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i had the BMS about 6-7 years before getting OLP.
My son was diagnosed with OLP when he was 8..... But his mouth ulcers started when he was 3! He's 10 now. He has good weeks and he has Horrible weeks. No one has been able to help us relieve his pain. We do have some meds prescribed but none are miracle drugs (I know that doesn't exist. . I just wish it did). The medicine prescribed to him is Methotrexate 2.5 mg tablet - 6 at a time once a week. Also he's to take folic acid with this med. He's not started this yet because he must have blood work done routinely since there is a chance this med will effect his liver .... And he's terrified of needles. He uses Chloraseptic mouth spray very often for the pain. He misses school very often. He sometimes has "mystery fevers" and feels just awful inside. He gets bad headaches. I read on one thread that someone mentioned an OTC med for thrush and an enzyme for candida. I think I might try that for him. Does anyone have any other suggestions for me? My sweet boy is in pain and has been for so long and I'm worried that his childhood is being negatively impacted by all these mouth ulcers.
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I'm a 24 year old guy. Not a virgin (not sure if relevant) and I have a white lump / or white clot along the lines of my penile raphe. I've had it since I was a teen and I've noticed that it's getting bigger over the years. I'm worried and fear that it might endanger my health in the future.
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I get cold sores 3 times a year and 2 canker sores a year. Why do they hurt so much. I think it's because they are infected. Why do they last so long too ? Should you pick at the cold sores on your lips just to get the scab to heal ?
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Does canker sores and cheek bites have red dots in center of them? I have a small sore inside of cheek with a red dot in center.
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I have been struggling to have sex with my husband for almost a year now. I have excruciating pain every time we try.
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He is a great person and understanding but there is no hiding the fact that it is a struggle for him (and me) that we are not able to have sex. The pain is incredible and as much as I try to grin and bare it, it is impossible to achieve penetration.
I was diagnosed with LS just a week ago after a biopsy and have been given dermovate to use once a night for 4 weeks. Had anyone used this and seen an improvement with vaginal pain? How long did the medication take to work?
Has anyone had severe sexual pain and overcome it after medication?
I'm desperate, I'm 26 and can't spend the rest of my life not having sex. What if I would like children later?
My 1st laser treatment was unsuccessful so i went to see an oral surgeon who specializes in laser ablation on soft oral tissues This time the procedure was much more invasive and treated like an actual surgery. The doctor removed the top 3 layers of epithelial tissue off the side of my tongue where the OLP was I he went much deeper than my 1st doc). I had the procedure friday and am still in considerable pain and discomfort. I am unable to speak and chew so i have been pretty much drinking my meals through a straw. Thankfully i have a supportive girlfriend who has been cooking and pureeing all the food for me I went to the doc today for a post-op exam and he said it was healing properly. I have been taking vitamin C, D, zinc, glutamine and lysine for immune support and to help heal the tissue. Right now my tongue looks like a mess but i am hoping it heals up and the OLP is a thing of the past. Unfortunately i had to cancel my weekend travel plans and missed my good friends wedding in the process, so i've been a bit stressed and sad.
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the first oral surgeon i went to recommended it and i am now thinking this may be a good idea. I believe its similar to a scraping where it stimulates new cell generation and heals the damaged tissue.
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I Am only the merry go round of LP. Off prednisone 5 days and it comes back in my mouth hands and vulva. I was trying and still am trying a shot of wheatgrass every am, probiotic yogurts and super 8 probiotic capsules. Have been doing this for three weeks and symptoms got worse so doctor has put me on steroids again...20mg as opposed to 40 mg the last time..I have been a naughty girl and am not taking them as I am trying to lose the stone in weight I put on during my last course.
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I have read so many posts and now think if there id a connection between candida and Lp. I am thinking of going gluten free.....does this work?
I want to start a thread that concentrates on anything that helps - or anything tried that doesn't help.
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I've been prescribed Dapsone, Allegra and Advantan - no improvement after 14 days
I've read that Ultraviolet B was completely successful for 70% of patients after 10.9 weeks and I can email that study to anyone interested. Ultra Violet B is provided by the sun but one person on this forum reported getting worse after spending time in the sun.
I have been going through a second flare up and dermovate is not working. Now been given protopic as not responding to steroid creams. I need advise on the itching which is literally driving me mad and the lack of sleep is interfering with my work now any advise on creams, diets etc!
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I have just been diagnosed with LP vulvar, it has also affected my breasts and small patches on my torso. I've had it for a long time and just didn't know what it was, with flare ups that come and go- everywhere but the vulva, which has been rather constant and suddenly got worse about a month ago. Been in agony with the vulvar part for the past week because taking antibiotics for an ear infection meant severe thrush also got thrown into the mix.
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The doctor said it was unusual for someone of my age to suffer from lichen planus (I'm 26), so I have to go to a dermatologist for their review. I'm also an IBS sufferer, I noticed on a lot of other posts that many people that mentioned LP/LS also have IBS.
I've been given Trimovate but, so far, the only thing that stops the itching long enough for me to get to sleep is Vagisil, which I'm worried will cause problems long-term even though it brings temporary relief.
I'm dreading going back to work tomorrow and don't know when/whether I'll get my sex life back with my amazing boyfriend. Feeling really rubbish
I've had an ovarian cyst for 2 months now, nothing was done about it, the pain went off after a few days until last monday where i had an ambulance to hospital, i stayed there for 5 days, the doctors did an ultrasound and my cyst has ruptured yet pain is so bad i cant walk! they sent me home with 3 day open access, i went back the next day in awful pain and after 6 hours of waiting the gynaecologists refused to see me and sent me home!!
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Now 22 , at the age of 13 , i started to have urination difficulties , standing in front of the toilet for about an hour , feeling the urge to urinate even though i know at the same time that my bladder is almost empty and finally a drop or two come , it continued for about a year then it was gone , for the last three years i have been having the habit of excessive masturbation ( sometimes 4 times per day ) , most of the time i go directly into sleep after masturbation , and as result the usual need to urinate after masturbation is suppressed and the urine is retained till i woke whereas i feel its reflux in the ureter , during this period whenever i go to sleep with full bladder ( regardless after masturbation or not ) , the urge to empty my bladder never woke me up , but what came up recently that i started to drink half liter of beer before i go into sleep directly every night for the last 3 days , yesterday i felt my prostate hard as rock , this sensation is mild so far , it is expressed more when i sit on something hard or try to urinate , now today this morning when masturbated after 2 days of cutting masturbation off , this mild sensation became to increase , then afterward masturbation when i try empty my bladder i felt more pain and couldn't pass urine , when i tried about 2 hours later , i managed to do it hardly after i tried to strain my bladder , whereas during these 2 hours i felt urine retention but with much less of the natural urge which drive you to the bathroom but i still feel the pain of reflux at up the ureters , the one thing which is so clear , that my pain is expressed from the prostate as hardening or feeling it like a rock , with mild sensation of burning . Also i think it is important to mention that at the age of 15 i got " pilonidal sinus " and underwent surgery to remove it but , i stopped checking it for the last 5 years and i have been feeling it pain coming back for about a year or more , but i ignored it , whereas i am referring that i may have a case of prostatitis with infection originated from the fistula , i also doubt it may be prostate cancer , even i know the chances of having it at such age is almost nil , this is why i am thinking to take the test of " PSA "
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I have got lichen planus on arms very bad, legs, vulva, oral and now starting on my chest. I have used cetraben, dermovate, dermal, doublebase cream, hydrocortisone, calamine lotion, aqueous cream..my GP been excellent.
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Also Tramalgin, betnovate for below and am now tearing my hair out with sleepless nights with itching.
I go to work like a zombie and it's so embarrassing having to scratch, they say the monkeys here as a joke.
This has gone on for 6months nearly...am waiting to see the dermatologist. I had a vulvar flare 4 years ago and was ok up until early this year.
My best friend is going through this ordeal of BC, you all are very brave and I admire you very much.
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Would any of you have any suggestions about how you manage mouth sores?
Well atleast three day ago some sores at the side but in the inside of my mouth appeared. they are near my bottom teeth towards the back. i'm not sure if it's a toothache but my teeth sometimes has a slight ache. the bumps are red and one of them looks like a canker sore to me. what is this problem?
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Has anyone ever gotten mouth sores from using Zicam oral mist? I used it for three days plus one morning, and that night I hate some really hot food, I thought I burned my mouth. But when I looked the next day they looked more like sores. I think maybe the hot food was just the final straw and that perhaps the zicam really caused the problem. I also changed my invisalign aligners that day, so a lot going on. So I'm just wondering if anyone else has had this side effect from Zicam. It's on my back, upper gums, right where I was spraying the oral mist.
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I was talking to a lady today who has advised she is a distributor and she said it works on inflammation and helps improve skin diseases.
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