Kidney Disease :: Lots Of Protein In Urine, EGFR Over 90


Aug 11, 2013

I'm a 37 year old female, 2 years ago at the Birth of daughter I developed severe preeclampsia, and went onto develop pregnancy related heart failure - post Partum cardiomyopathy. I nearly didn't live, but I'm lucky to have recovered full heart function and my heart is now considered normal.

I've known since having the preeclampsia of protein in Urine causing a foamy appearance, I still have this now, and had been testing my own urine with dipsticks over the last 2 years ranging from plus 1 to plus 4 throughout the day. Virtually all morning samples negative.

Last year I was tested at my GP office and an ACR which came back at 98mg. At the Time my GP said re test in 3 months and suggested it still might be my body settling down from the heart failure etc, I continued to test myself and never want back to the doctors because basically I wanted to forgot about illness and live life without worry bringing my daughter up. Now another year later my urine was getting even more foamy, I decided to go back to my GP, I've had the following tests and have been referred to a nephrologist which isn't until the end of September:

eGFR: over 90
ACR: 198 mg
Protein in blood: Normal
ANA: normal ( i have had previously positive ANA two years ago)
FBC: all normal
ESR: Normal
Liver function test: Normal (I also had trace Bilirubin in my urine)
Glucose: Normal
Kidney & bladder ultrasound: Normal
24 hr urine: 0.3grams (300mg)

I know I have been spilling the protein since the preeclampsia, sometimes I have tested my urine all day and it has been Plus 4 for each one, so I'm guessing tallying this up must be well over 2000 mg a day, when I did my 24 hr there was only one urination that showed a plus 3 on dipstick that day which correlates to the 300mg reported over 24hrs

I have low blood pressure naturally 100/60, I'm off all heart medications, I healed quickly and came off them after 6 months of heart failure. I'm not diabetic, it doesn't appear I have any autoimmune disease such as lupus, all my bloods are normal, so is my kidney function, yet I'm still passing quite high amounts of protein.

I know only a nephrologist can help determine what's going on, but my appointment is not until the end of September, I do a lot of googling (too much information i know can make things worse!) and know that protein can continue to make the kidneys worse, I'm concerned there is an underlying condition, and even if its primary how quickly can this progress with high levels of protein? Could I get acute kidney failure? My mother has stage 3 CKD for years and passing no protein, however she is on ACE inhibitors. My GP said I will probably go on these, I was on these for my cardiomyopathy and preeclampsia and once my blood pressure returned to normal I had to come off them as I was very dizzy and light headed. So although they may help kidneys, I'm concerned I won't be able to tolerate them.

Also what could be causing this? primary glomerulonephritis? Could the preeclampsia heart failure have caused permanent damage and hopefully now my heart failure is better no more damage will develop?

I have no other Symptoms at all, all this came about because I noticed my urine was still foamy.

My biggest concern is that although my kidney function is still normal, is it possible it could decline rapidly because of the protein?

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