Lichen Sclerosus :: Coconut / Olive Oil And Sylk Vaginal Moisturizer Didn't Work
Jul 3, 2015
I'm not sure if anyone else experiences this? I tend to find something will work for me down there, then it does not. For example: coconut oil has been quite soothing in the past, lately it just irritates me no end.
I tried Olive Oil but it wasn't that great. The Doctor prescribed Sylk vaginal moisturizer and that can either be Okay or not.
Has anyone else got other 'comforters' for LS? Mine gets sore and stingy as opposed to itchy.
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I have now seen a proper specialist for first time. She advises two week break from clob while we zap a yeast/fungal infection with an oral treatment called itraconazole. [And then 6 weeks of daily clob.] I didn't ask her whether it was ok to still use coconut oil or similar and have this slight worry that it might somehow feed the infection!?!? But don't want to forego the comfort unnecessarily.
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I have been diagnosed with LS in February this year, although looking back now with more information at hand, I have been suffering from this for nearly five years, but had always been misdiagnosed. I cannot begin to mention all the vaginal creams and tablets that I have been prescribed.. all to no avail until the biopsies were done. I am now using Dermovate and was using it only when needed, until I watched Dr Goldstein's webinar a few days ago. I picked the link up from this forum. Since then I use it everyday, after soaking for 15 minutes in warm water and then rubbing in the ointment for 90 seconds. In May of this year I was also diagnosed with Lichen Planus. I follow the same procedure with the LP but I do not seem to have as much success here. Patches still coming out all over especially in groin, thighs right down to knees, underarms, under the girl, arms etc. Is there anyone who is using something other that Dermovate for LP and with what success rate? I see on this forum that numerous mention is made of coconut oil, witch hazel and aloe vera gel. I have managed to get hold of coconut oil and 97% aloe vera gel. Is the 97% good enough? In what form does the witch hazel come... is it an essential oil? I have looked around but have not found manuka honey yet. Does anyone in RSA know where I can find this? Then lastly, how do I use the above.. do I mix them all together and put on (how many times a day?) and what is it for? Does it help the itch, scarring, LS itself??? Quite new to this so not sure how to use these.
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I have suffered for 33 years with this disease. I am 76 yrs old. LS is an autoimmune disease and a health person told me for a true autoimmune
problem is that you had to have 3. I have arthritis, Ls and thyroid. Jus over a year ago I had to have the thyroid removed (cancer) . That is okay now. But listen to this, The unbearable constant burning itch has all but disappeared. There is still some very mild discomfort around the anus. The fusing was so complete that I lost the clitorus first and than the labia minora and the labia majora was starting to disappear. But with the regular use of coconut oil and spraying after bathroom use with water and baking soda I now have rather normal looking labia and normal colour. i was white, gray, purple and bumps. Only the clitorus has not been uncovered but sensation is still there. I am just very slightly white at the entrance to the vagina both front and back. I wish i had Known about these treatments years ago.
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I have got lichen planus on arms very bad, legs, vulva, oral and now starting on my chest. I have used cetraben, dermovate, dermal, doublebase cream, hydrocortisone, calamine lotion, aqueous cream..my GP been excellent.
Also Tramalgin, betnovate for below and am now tearing my hair out with sleepless nights with itching.
I go to work like a zombie and it's so embarrassing having to scratch, they say the monkeys here as a joke.
This has gone on for 6months nearly...am waiting to see the dermatologist. I had a vulvar flare 4 years ago and was ok up until early this year.
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I've just been given diagnosis of lichen sclerosus and been told to use dermovate. I feel a change in clitoral area, does the use of steroid improve skin around this area? I still have great discomfort with burning and stinging!
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Since being diagnosed with Lichen Sclerosus last February, through trial and error, I have discovered, sometimes painfully, what works for me with regard to using Clobetasol cream.
When I initially had the typical white LS plaques, which were on the inside of my Labia Minora, I used Clobetasol and it worked quickly, and effectively, and I think it took around a week for them to clear up, using it twice a day, and fortunately they have never returned. Also when I have had pain, and soreness on my clitoris, I will use it twice a day for around four days, and I have found it to work really well for clearing this problem up quickly.
However, Clobetasol did not work for me when I had a sore area (a lesion) about half an inch away from my Vjay. I applied the cream carefully, and the next day I had a seriously nasty red rash running everywhere, and up the crack of my butt!! and so I stopped using Clob in that particular area after that, and the next time I got a tiny sore in a similar area I bathed in salt water and used baby cream, Desitin I think it was initially, and I think I used vaseline before bed, but only for the first couple of days, after that I switched to bathing and then using hardly any talcum powder on a powder puff to make sure that there was no moisture down there whatsoever, and this worked really well. I have found sore areas need cream initially, but then they need to be kept dry, and after a few days my sore area cleared up! So for me, using Clob on my Vjay works, but for on the surrounding skin not so much.
With regard to maintenance, I don't use the cream. My Vjay looks normal, no white patches, cuts etc and so I don't see the point of applying cream to areas that show no visible sign or symptoms of Lichen Sclerosus. I do believe in the routine of spraying after using the bathroom, drying and lubricating, this I think stops fusing from occurring and so it is an important routine to have, of which I always stick to rigidly!..so this is what works for me.
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I've had vaginal itching for around two years now, as with most posts I've read I've been told it's just thrush but then I've been tested for that twice now and both tests came back negative. The GUM clinic said it could just be an allergy or thrush of the vulva (if that is even possible?). I have no discharge, other than the normal. It's red near the labia but not exactly bright red. I have small spots but I've googled those before (I can't remember what they're called but they're normal- so google tells me anyway) and whenever I've had an examination then I've been told it looks normal and healthy.
The GUM clinic gave me some thrush cream that also had steriod cream in it and I used that for about six weeks and since then the itching has been much improved. I think it seems to get worse with stress. I don't have any lumps or any white marks or anything which people seem to say are symptoms of Lichen Sclerosus. The fact that it went away with the steroid cream would suggest it's some sort of allergy but I just don't know what to? I have noticed that if I wear no knickers (under a long skirt) then there is hardly any itching at all.
I am currently going through a panic of health anxiety so I can't stop googling these symptoms and it all seems to leads to some sort of cancer so I'm petrified it could be that.
I'm in the UK and I've booked a doctors appointment for Monday where I will ask to be referred because I've had enough of this now. I just wondered if anyone had any ideas or had been through similar?
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I have been diagnosed with lichen sclerosus in addition to vulvodynia. My main symptoms are clitoral fusion and narrowing of the vaginal opening. For some reason I haven't been able to find a steroid cream that I could use that doesn't cause me a horrible vulvodynia flare (feels like my entire pelvis goes into spasm) and was wondering if anyone had alternatives they use that have helped with this symptom.
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Basically in april 2015 i went to consultant for pile treatment, he advised me to have them treated by injection, i went ahead with this procedure, for a week i was fine then i noticed the itching and pile/pain had returned went back to my consultant he told me he thinks it was a fissure and to take creams and come back to him in 3 weeks time for further consultation.
alas 2 weeks later i was in severe pain and discomfort and phoned the consultants office that i was in bad pain and was told the consultant was on holidays and would not be back for a further week!
at this stage i was told by my doctor to attend hospital a+e for emergency
treatment ,this i did and was told to present myself at the hospital fasting from night before to see a new consultant---Phew it gets worse!
arrived at the hospital new consultant in fairness said he would put me under a full GA and see what is going on there
the following morning he told me yes indeed the piles were back there was one internal and one external and that i was better off going for the laser treatment called THD, which i booked in for the following week this was at this stage mid may had the procedure and for 2 weeks felt great
however on the third week i was in severe pain in the anal area and knew something was wrong (bearing in mind i was told the THD procedure has a 90%success rate..presented myself back to the consultant in hospital had to go under a full ga again he told me afterwards that the procedure had not worked for me for fu..s sake i was one of the 10% that it did not work for so i was booked in for the following week to have the piles which i was now told one of them was thrombosed removed by surgery so have had this done in mid june and have been in terrible pain since, especially after bm to the point where all i could do is sit/lie in the house all day taking pain killers stool softeners and baths every day. every time i phoned the consultant i was told it takes time to heal so after 7 weeks of severe pain id had enough, i went to my doctor got a letter of him to see the consultant urgently as i was in severe pain meet with the consultant am now booked in again for early next week this is what he said the wound is healing however it is a time thing, he will have a further look at me to see if there is something else causing this awful pain he said there is no fissure but wants to give me a botox injection in the anal area to help with the healing, can anyone please advise with this as i do not want to get any worse pain than i am in presently sorry for the long rant but this is actually what happened to me it has changed my life whereby in the last 6 months being in terrible pain and discomfort and am now wary about this botox injection
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I've had worms since last September which is almost 7 months. The worms are white and small. I've take ovex about 10-15 times in the past 6 months. I've taken pripsen about 4 times. Neither have worked.
My nose has been itching and really bad itching anus which is depressing me. Could this be anything other than threadworms(which I've sent a stool sample and sticky tape test off and all come back negative).
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I am healthy non smoking 65 year old, very active physically and overall healthy. I had the urolift procedure done May 23 2015 at which time the surgeon installed 5 clips. Prior to surgery I was on 8 mg of flomax which made it possible for me to urinate.I did wear a catheter bag for awhile then. After surgery I was on 4mg of flomax for approx. 1 month. I was able to urinate adequately for about 8 weeks. Never but once what you would consider a flow. At about the 9th week I started slowing down again until it got to the point (about 11 weeks) where it took me 8 minutes to start peeing and then it took two more times in the next half hour to finally eliminate somewhat completely. Now in the 14th week of post op I'm on 8mg of flomax right back where I was before surgery.I am now considering what options are available to me now.
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I'm 17 years old I've played volleyball basketball and track my whole high school career and I've always had problems with my knees and ankles but I've been going to the doctor for my knees for like 2 years now and I've had like 3 MRIs they never tell me anything I've tried braces but they don't work. My left knee is way worse than my right but they both hurt. It started out feeling like I just had to crack my knee like if you straighten your elbow and it cracks but then it progressed and know it hurts extremely bad when I start running and I can't stand up after sitting like straightening them hurts horribly bad. Sometimes while I'm sitting they ache and I feel like it's on the inner side of my knee and on my left knee it's on the left side inside and if I go on my tip toe it hurts really bad like a shooting pain kind of it's like a line kinda. And it's also worse when they're cold like I have to drive with the heat on them even when it's 80 degrees outside.
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Degenerative discs and spondylolisthesis,had injections worked well for 5 days now all back ...
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After meeting someone on a dating site (getting along very well) a month later I started to itch and little lumps with a white centre started to appear. I thought I had been bitten by mosquitoes and treated them as such. Another few weeks past and they were getting worse not better. That's when I realised what they were. I told the person who I had met and they would do nothing about it so I discontinued the relationship. However I was left with this mess. So far i have used 20 tubes of lyclear and a bottle of tea tree oil. All to no avail. I am at my wits end now especially after reading a lot of the stories. This is horrific. I desperately need help in getting rid of this curse.
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Is there any natural medicine to cure fibroids?
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I opened a heavy window at work in April this year 2014 (twice in a matter of a few days) I've had 11 sessions of physio to which this didn't respond to. I've had horrendous pain over the months and now had a scan to show a prolapse disk. On Thurs 27 November I had an epidural injection which doesn't seem to have made any difference and I am currently off work this is my 5th week off. Prior to this had four weeks off intermittently. I am due to see the Neurosurgeon again on 17 Dec to discuss surgery that he said he can offer me. I keep as active as possible but to walk sometimes if really painful and I can't work with this. This has gone on for so long, any advice on how to treat this? Should this have gone off for this long? The L5 S1 disk is prolapsed.
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I was diagnosed with SVT from an early age, and spent most of my childhood going to and from appointments at the children's hospital. Eventually, after many many episodes (and of increasing length!) I was suitable for an ablation. I had the ablation at aged 17, however, unfortunately it did not work and I had an episode 6 weeks later - frustrating! However, it has somewhat modified it and my episodes are less frequent and the length of episodes has decreased substantially from 3 hours to just 5 minutes! So I would definitely recommend the ablation surgery, although it didn't quite have the desired effect for me it has improved the condition and the effect on my life. I now control my episodes through the various maneuvers suggested (and with success thankfully.
My question is, how do people with SVT get on with exercise? I have always been keen to compete in sports, especially during school - however the severity and frequency of my episodes before the operation meant that this tailed off a little. I am now 22 and I am keen to get back into running, moreover, running distances for charity etc.! I am just a bit apprehensive about overexertion and effects on my heart! I would thoroughly appreciate any help/advice about how much exercise people tend to do! especially those who have been diagnosed with SVT from birth or a young age.
I am due to run the race for life in a few weeks, and have been running a little in preparation for that. But I am keen to get back into running longer distances with a view to doing half-marathons/marathons. Has anyone run these kind of distances with SVT?
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I have diagnosed with IBS for nearly 2 years now and have tried a number of medicines (including Fybogel Mebeverine, Colpermin, Wind Eze, Buscopan hyoscine butylbromide, and VSL#3). This has been complimented by cutting out gluten and following the Fodmap diet. Nothing has changed and I’m an in constant discomfort i.e. every day, with peaks of pain (stomach pains, wind, need for toilet etc.) and troughs of just simple discomfort in the stomach. I have lost count of the amount of times I have gone to the doctors and I’m now being broadly told: “you have IBS, deal with it”. Does anyone have any similar experience of this and has anyone got any suggestions as to what I can try next? I feel that I am stuck.
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When I received my diagnosis a month or so ago, I spent a lot of time reading this forum and learned an overwhelming amount of information. One post that stood out was someone who had managed to somewhat reverse their fusion with a baking soda spray treatment. I can't find that post, or remember what thread it was posted on, and I'm hoping someone can point me in the right direction. If there is anyone else who has managed to reverse their fusion.
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just been reading some of your comments and diet was mentioned, I try to have a healthy diet , don't eat a lot of spicy foods, I always buy fresh veg and only eat fruit like bananas that don't have much acid in. I must admit to having a sweet tooth and do like sweets and I have noticed more flare ups if I have lots of sugary foods. Try to keep my sweetie intake to a minimum which is hard because I think if you suffer from LS you need the occasional treat to cheer you up.. Maybe my fairly bland diet is helping to keep the LS stable
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