Optic Neuritis - Eye Sight Getting Worse
May 27, 2015
I have worn glasses all my life and always been dependant on them. I was having trouble with my vision so decided to have my eyes checked out again, although i only had a sight test nine months ago. It resulted in me requiring stronger glasses and a large increase in both eyes, especially my left eye. I have a difference of 1.75 between my left and right eye.
I was referred onto the eye specialist again for further checks and i was told i have Optic Neuritis, and was told that my eyesight will probably get worse and been advised to return to the opticians in a few months to have them checked out again.
I was prescribed last year additional reading lenses i wear multifocal contact lenses most of the time but wear my glasses at night. I was advised by the opticians that my prescription is pretty strong especially needing additional reading help.
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As I'm getting older, my eyes are getting worse! I've had glasses since I was in the third grade! All I can see without them are blurs everywhere!
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I had sudden onset acute angle closure Glaucoma last October which I am told is very rare. I had emergency laser surgery within 12 hours and was sent home. I had follow-up appointment 1 month later and all was well. Was told to wait 3 months and then if all ok I would go on waiting list for replacement lens and cataract removal. However our Eye Clinic is overwhelmed and had a letter saying they couldn't see me at 3 months and I would have to wait until appts. became available as and when. Because my sight was blurry I went through PALS to help me get an appt. and was seen at 4 months. Then I was told the drainage channels were open and working well so I would be left for another 6 months to be seen again and that my "sight was good enough", I asked about going on the waiting list for further surgery and was told I had to wait.
My concern is that because my sight is deteriorating I will be left until I can barely see before they will act. I cannot afford to keep going for eye tests and new scripts in the meantime (on a State Pension) so this leaves me high and dry. I had my last eye test and new glasses last July and at that time no cataracts were seen and my eye health was good. I can no longer see through these glasses and night vision is so bad I can no longer watch TV or use my laptop. During daylight I can see better though.
Does anyone know why my sight is getting worse after laser surgery.
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I had my first bout of Optic Neuritis five years ago in my right eye and from memory I had no vision loss at the time only pain, my MRI was clear and the ON went away without any medication in about six weeks.
I had my second bout of Optic Neuritis that started in August 2012 (that's never gone away) it began very different with severe pain in both eyes then went to my right eye only for around a week then to my left eye (my right eye returned to normal) I completely lost the vision in my left eye and the opthamologist put me on oral steroids and referred me to a Neurologist due to a number of strange symptoms I was experiencing, she was no help as she said I was depressed and wanted to start me on antidepressants she really didn't want to listen so I didn't go back. I had a further two brain MRIs that were also clear and I regained cloudy vision that has only improved slightly now 12 months later I have days that are cloudier than others and have accepted that it will never get better,my opthamologist said I don't need to go back to him unless I feel I need to. My main question is I have recently been to three different optometrists (all from the same place) for new glasses and each time my new glasses came back I couldn't read through them, I don't know if they are getting my prescription wrong or if its my eyes, I contacted my ophthalmologist for advice and he said to try a different optom but Im embarrassed and scared that its just my eyes or Im going crazy, has anyone else had this problem?
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Over the past few days I have been experiencing pain behind the eye which had optic neuritis previously. Tonight as I was reading to my son in a dark room, with a lamp to my left, I noticed that vision from my right eye was normal, while from the left, it was significantly darkened. Maybe this is a question of physics, and how light falls and is perceived. I have also been dealing with headaches over the past week or so. I am at a loss now to know whether the eye pain is to do with the headaches, which may be brought on by the amantadine I started (how long for side effects to show? this would be the first headache side effect after about 3.5 weeks), or if this is optic neuritis again. Anyone here any good with physics and physics of light especially?
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Referred to ophthalmologist by my neuro to investigate left eye grey vision spots, and weakness. Optho diagnosed optic neuritis (pale optic nerve, extreme light sensitivity, abnormal pupil dilation etc. etc...) and neuro prescribed IVSM 3 days at home. I was found to be allergic to the IVSM, however my post is referring to the worsening of my neuritis.
Since the treatment my eye is now constantly in pain fluctuating from minor to pretty debilitating. I am in sunglasses all day long except with indoors with no windows.... Or lights... Due to light sensitivity. The strangest addition to the neuritis symptoms, however is that as the day progresses (and my eye is used) the whole left side of my head goes numb. Since the MS work up beginning in Feb, I have only have left side facial numbness once for 5 hours. Now, it's daily. It certainly worsens as my eye gets tired... And there are bouts of shooting pain through the whole left side of my head that are very light and sound sensitive.
Is this normal for neuritis? To cause facial and head numbness as well? Or, could this possibly be some weird side effect from the IVSM as it's trying to "calm" my inflammation.
Also, every single day at about noon, for a week, I get this severe anxiety chest compression that makes breathing labored and short. I am aware of the side effects from the IV causing anxiety, as well as MS in general, but this is a trigger less symptoms that's more significant than any anxiety I have felt before? I'm curious if this could be, instead, the MS hug? However, there is no pain with it, just a complete chest compression that lasts about 3 hours.
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I am a female Caucasian that is 23 years old, 5' 7" and about 155 pounds. I was diagnosed with optic neuritis in early March. I had eye pain upon movement, blurry vision, slight loss of color (Which still remains), and some odd headaches (almost felt like a severe hot flash inside my head). The doctor did not feel it was necessary for me to take the steroid treatment. My vision is recovering, but I don't really expect it to be 100%. I had an MRI of the head and neck and it came out clean with no lesions. My blood tests came back clean as well. I consider myself to be relatively healthy aside from some urinary tract infections and my neurologist said that he doesn't think I will develop MS, but what I have read makes me think differently and I want to be informed. I know that there is no way to pinpoint exactly what my risk of MS is, but I was curious if any other cases like mine have not developed MS?
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I finally saw the MS specialist today, after months of waiting. His opinion was that my symptoms point to MS, but I will be having a plethora of labs drawn and an MRI. The most frightening thing to me was that he is getting me in to an opthamologist asap because it appears that I have optic neuritis in both eyes. I'm not afraid of MS, but I am afraid of going blind. Someone tell me something to make me feel better, please.
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I was recently diagnosed with MS after my first attack of ON. Its been 4 weeks now since the attack and my affected eye looks visibly smaller in size than my unaffected eye. Is this something commonly seen in ON ? I am hoping this is not permanent!
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Was cross eyed as a child. One surgery on left and 2 on right 57 year old male. Surgery at 6 10 and 20. Had about 5 bouts of optic nerve neuritis about 15 years ago. Both eyes but more serious in rt eye. No MS. MRI every year for 5 every other since. Now my right eye wanders up and out all the time contacts and glasses do not help much. My vision came back fine other than age stuff. I Want to know why my eye wanders up and out and is there anything I can do for it ? Is it from old surgeries? Is it from optic nerve?
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My right eye has been feeling a little funny lately. Kind of like there is an eyelash stuck in it - but not quite that bad. I've switched to wearing my glasses instead of my contacts, which is helping, but not completely. Today I was seeing stars, it only lasted about 10 seconds and it was completely out of the blue. I am wondering if I should see an optometrist/ophthalmologist. If so, what would they do? It's not like it's a severe case or anything (if it even is optic neuritis). I have a number for a MS nurse, she said feel free to call if I had any questions and I will probably call her on Monday, but I don't want to seem crazy, reporting every single little thing to her.
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I am not diagnosed as of yet. I do know that I have a chiari malformation 1. About 7-8 days ago I started noticing some visual changes in my left eye. I do notice intermittent pain/ pressure to my left eye and forehead. The best way I can describe the visual changes are as an ocular migraine- everything looks really bright, some blurriness, flashing lights, and the black letters on the bright white screen of my phone look a little dull- however these symptoms come and go over the day, they are not constant. I do notice that the symptoms come on with activity, bright lights/colors, heat. I did have a sinus infection 2 weeks ago and continue with the sinus pressure. I saw my eye doctor who completed a dilated eye exam and said all was normal. Has anyone else had these symptoms with optic neuritis? These symptoms are very concerning to me- didn't feel the eye doctor took me very serious.
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I have Septo-optic dysplasia, and I'm lucky if I ever get to see someone who's even heard of it because it's apparently one of those rare and awkward conditions with varying symptoms. But basically, in my case, the nerves in my eyes didn't develope well or at all.
I have 6/60-6/48 vision in my right eye and 0 in my left eye; as in I don't even see black or anything at all. I don't think light could ever get in there.
My most recent check up at the Optician showed some discoloration on the optic nerve in my left eye (the blind eye). It appeared black, apparently, which my Optician said meant it had been there a long time, as opposed to grey? But no one seems to know if this is normal for an optic nerve that never formed properly.
Apparently the discoloration is not mentioned in any of my letters on record, though. Is that weird? That's the only thing making me worried. Some people say it should be obvious so not included, but others say that means it's new?
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I have been on Oxytetracycline for the past 3 months to treat acne on my back. It seems to be beginning to work now but I have a problem in that my sight has degraded quite rapidly in the past 4 months. My optician did say there is a chance this could be linked. I have done a bit of research and sight variation is a rare side effect of this medication. Does anyone know if this would be a temporary variation on a permanent deterioration?
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I am a sixty year old female and went for my annual eye exam. I was told by my optometrist my left eye optic nerves were elevated - OS>OD. Also has irregular Mac. OS. She had her nurse call and make an appointment for me to see an Ophthalmologist tomorrow. I had a Brian MRI in December and the report reads. "There is nonspecific mild focal areas of bilateral supratentorial which is commonly secondary to chronic microvascular ischemia. MS seems less likely, but cannot be excluded".
I have intermittent headaches only on the left side and at times feel nauseous. Should I be concerned?
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I took my 11 year old daughter for an eye exam yesterday and the optician told me that the angle the nerve entered the eye was slightly tilted. She gave me a letter to give to my GP who would further refer her to the eye clinic. It wasn't an urgent referral but I am worried about this. Her eyesight was perfect and she doesn't suffer and headaches eye.
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I went and do a check up on my eyes and the optic nerves in my eyes is swollen ...I did a CT scan and the results was clean...so I want to know what causes the swelling.
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The Drs thought I had Pseudotumor Cerebri, since my optic nerves have in swollen since Oct 2013. I had a MRI and Spinal tap. Found out my pressure was too low. But they found oligoclonal bands in my CSF. BUT concluded not enough evidence for MS. I have many symptoms of MS. My leg has been numb and burning in my thigh all day. Has anyone experienced their optic nerves swollen with MS? I'm not talking about inflammation in the nerves just swollen. Worried about going blind and trying to figure out what's wrong. I'm waiting for the Michigan head and pain neurology clinic to set me up with an appt.
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I went to a neuro-ophthalmologist due to some issues with my right eye. Blurry spot. Nothing too crazy, but annoying.
He did Optical coherence tomography (OCT) and vision field test. The vision field test came out fine, but the OCT showed thinning of the optic nerve. He told me he wanted me to be seen for an evaluation of possible MS.
After posting here a earlier this month about whether or not to go see a neuro, I had made an appointment with an MS Specialist. I see him on June 3rd.
Any idea what thinning of the optic nerves can mean?
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Just back from an eye appt and was told that my (L) optic nerve is thinning and my field vision test was normal.
I have not had any loss of vision or blurriness other than the blurriness that comes with my migraines. Is it possible to have optic neuritis w/o it affecting your vision?
I have to wait until 7/19 to see my neuro, so I am still waiting to be diagnosed, however, the news I was given this morning makes me lean more towards MS.
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My mother can't see anything clearly for 3 to 4 years. Doctor says that her eyes nerve are been blocked.
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