Polymyalgia Rheumatica :: Edema In Lower Leg, Ankle And Feet

Sep 2, 2015

Have had PMR for 18 months, down to 5 mg. pred/day, just bumped up to 6 mg. in an effort to mitigate pesky  edema in lower legs, ankles and feet. Me: 65 yo. male in Florida.

Edema is gone in AM, before rising, then gradually increases over the day to a 1+ to 2+  grade (moderate, when pressed with finger a 2-4 mm depression remains for 7 to 15 seconds).

Had Hands and feet  involvement pre-prednisone, no apparent joint degradation from RA, not diagnosed with RA. Rheumies have given me blessing to make minor adjustments in dosage and taper to mitigate symptoms (you know what I mean).

Any out there have experience with this particular manifestation? How did you deal with it?

Thanks to all in this group. I may have not said it before, but you who contribute often, selflessly, with considered information. are a stalwart foundation to those of us in the silent majority.

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Is there any correlation between PMA and Macula Edema, my hands become very swollen and

I have a mild episode of PMA after having an eye injection of Lucentis for macular edema.

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I had a mini flare 10 days ago and went up from 8 to 9 and half.  The last two days I have had extremely uncomfortable numbness and pins and needles in my feet and lower legs.  The numbness is so bad that I scratched my leg on my zip and drew blood, but hardly felt a thing.  I have a bright red weal there now.

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Polymyalgia Rheumatica :: Trying To Lower The Dose Of Prednisone

I diagnosed my PMR after many flares. My GP did not know how to treat me when my Sed rate came back at 58. CRP in normal range. Called prescription of Prednisone: 60 mg one week, 40 next week, 20 following week. I knew that was not the way to treat it. 60 did not relieve symptoms , so I increased to 80. I know that was not the way to go but felt my GP didn't have a clue.

I have now been to a rheumatologist who changed my prescription to Methylprednisolone 16 mg tablets. I was instructed to take 48 mg. daily. I had reduced my 80 mg to 75mg before seeing him. I felt that was too fast. I started at 54 mg. daily. Was down to 40 but went back 48 mg.

My question: what is the difference in regular Prednisone and Methylprednisolone? Has anybody taken both and noticed any difference except Methylprednisolone is very much more expensive?

By the way my "rheumy" thinks PMR last for 2 years only and since I have had this since sometime 2014. I should be phasing out of this. What say you all? From what I read I don't think he's got a clue either. I feel sometime I'm surrounded be idiots. Might be time to find a new rheumatologist.

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I went to the primary doctor and he gave me a diuretic and said it's the fibromyalgia. I ended up in ER for chest pains in February so I didn't know if it was some relation to the situation. I now got into the Rheumatologist on Friday and she says it has nothing to do with the Fibro. Any input anyone?

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About a month ago I notice straps from shoes leaving indentations on my feet. Also, now, my patterned socks leave marks on my feet. My feet do not appear swollen when I look at them. I am concerned as I read it could be congestive heart failure? I had a physical two months ago with an EKG. I am so worried. What else could cause this to happen?

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Pregnancy :: Preeclampsia - Edema In Right Ankle

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Kidney is usually ok. She was diagnosed with peripheral artery disease but that hasn't been an issue for quite a while. Can I please get comments on what kind of treatment long term is she looking at. She's only 5 ft tall and not overweight. Should she get the stockings if she also has perph artery disease?
After you start Lasix, will it take a few days to do down?

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Does anyone have urinary frequency and/or urgency since taking pred? Like getting up every 2 hours during the night, and other times.  Also swelling of the ankles & feet?  Also stressful discomfort  over the upper back and shoulders?  Myi ankles have become quite edematous, I avoid all added salt.

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Urinary Incontinence :: Lumbar Spine Surgery - Edema Ankle Foot - Lasix

I have urinary incontinence which presented itself following surgery on lumbar spine back in 1992 and now I also have extremely swollen legs and feet due to the fluid retention. My doctor prescribed Lasix and so now I am having to deal with pants-wetting "accidents" which are so frustrating, but because of my physical disabilities these "accidents" are unfortunately unavoidable. I've thought about stopping the Lasix but have been advised against it by several healthcare professionals. They have all told me that if I don't take the Lasix, the fluid will not only be in my feet/legs but will also get to my heart and cause fatal consequences

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Just started ramipril and got bad headache nausea and pain in feet and lower leg is this because of medication? will symptoms ease/ also on bendroflumethiazide

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Neuropathic Pain :: Numbness In Both Feet And Lower Legs

I'm not sure Wat it is I have I have numbness in both feet and lower legs but my knees are in constant pain and buckle on random occasions or if I try and jog/run at the start of this I was detoxin of of alcohol addiction and that's when it started i've had and mri of my head and back bloods etc and all seems OK so it's leaving me and doctors scratching their heads?

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Foot / Ankle :: PTTD Surgery On Both Feet

I went for all the fun preop tests today in preparation for my second reconstruction happening in two weeks. I'm starting to go a little crazy realizing everything I still need to do before the surgery. ..finish prepping my house, rent the knee walker, finish Christmas shopping! Yikes! In some ways it's easier having an idea what to expect the second time around, but in other ways knowing what the next few months will be like makes it harder.

Those of you who have had the joy of having to have pttd surgery on both feet, how did foot number one hold up to crutches, etc? Any suggestions for a successful second recovery?

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Foot / Ankle :: Grayish Toenails And Cold Feet

I have suffered from cold feet for as long as I can remember. My feet are almost always cold and that is nothing new to me. Last year I did have a problem with some toenail fungus and I was able to take care of it. Even though the nails grew back now, they are still quite thick, Perhaps still recovering.

What I have noticed is that they are often/mostly (? at least when I am not wearing shoes I can notice this) a greyish bluish color...

Is this always related to bad circulation or could it be related to a fungus that is hopefully recovering?

I also have leg cramps of late - not sure it is associated as I recently switched jobs and went from sitting down most of the time, to standing up most of the time - so perhaps this had an affect on my legs.

I am mostly worried about cardiac related issues... of course I can go run to the doctor but they will just bounce me around to other doctors and I am curious to hear from people that might have first hand experience

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Nerve Disorders :: Intense Cramps In My Lower Legs, Hips And Feet

On Sunday night my left leg started aching and I could barely walk because it hurt so much, also my hip hurt at the same time and my lower back on the left side, I stayed home from school for two days and then tried going there but that made the pain worse so both my legs started aching, it kind of felt like constant small cramps that sometimes got more intense, in my left leg it's my thigh and knee mainly and in my left leg my shin, I had to go home because the pain distracted me from being able to work.It later got a bit better but at night I had more intense cramps in my lower legs and feet.Today i've been pretty well, went to school again and now only my left leg is aching but not as much and mainly when I put weight on it but about an hour ago the left side of my face started to feel strange, I can't really explain it..but maybe a bit strained and also it burns, my jaw feels weird too.My parents says that I should not worry because I don't have any fever at all but I still want to know what the symptoms might be? I am going to see a doctor asap but there's no idea doing it now since I don't have a fever they won't take me seriously.Let me also add that I do not exercise and I sit behind my computer a lot, so it can't be some kind of injury.

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Polymyalgia Rheumatica And GCA :: FRUIT

I love fruit and eat plenty,also i have Manuka honey,  my question is as we have to be aware of diabetes should we be aware how much we eat, does our body process natural sugar in a different way to processed sugars.Just a thought, been awake and up since 5.30( and was hungry so thought have some fruit before breakfast then thought am i having too much)

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Polymyalgia Rheumatica :: Could I Have Shingles?

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I have been in contact with chickenpox lately so didn't know if Id caught anything from that at.

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Polymyalgia Rheumatica And Shingles

I was thinking about PMR and although I am very nearly stable on 10 mg Prednisolone it is a knife edge dose. I still have many side effects from 4 years use of the steroid. In some kind of order they are:-

Muscle wastage, fatigue, lassitude, thinning of skin, easy bruising, cuts which take an unusually long time to heal, glaucoma, dry eye, exacerbated and premature cataracts which necessitated operations on both eyes to replace the lenses, virtual permanent stiffness and loss of motion in neck, constant shoulder and back pain, balance problems and now a recent discovery which I believe to be bronchiectasis. The last manifested itself with a slight productive cough I have had for about a year, with a shortness of breath which is steadily getting worse. Initial exam by GP showed no ‘crackle’, X-ray was ‘normal’ blood ‘normal’, whatever that is. Have seen this GP who gave me a course of amoxicillin (5 days) which did nothing. Then just left me to get on with things, no follow up, nothing. Not sure what to do next. I can see any one of the other doctors at this particular practice and am thinking to see one of them soon; well at least I can try for an appointment, currently 2 weeks!

Now the latest manifestation…..Shingles. Or to give it its proper title

Herpes Varicella-Zoster.  A particularly painful affliction caused by the chicken pox I must have had as a child. It has affected the left side of my scalp, my left forehead, eye and face; I am not a pretty sight! By the time I knew what it was it was too late for any anti viral medication so will just have to let it take its course. Existing on Paracetamol, Codeine, Neurontin and the occasional Tramadol. All of these analgesics are for a short time only, don’t want to get hooked. Managed to see a doctor reasonably quickly about my eye who sent me to the eye unit at my local hospital, ophthalmologist examined the eye and gave me the all clear, phew!

On top of all this I have the daddy of all flares I put the cause of this down to the trauma of my new affliction. My immune system is compromised due to the daily use of 10mg. Prednisolone which I have increased to 15 mg. for a short time. It appears that any kind of trauma either emotional or physical will set off a flare.

I wondered what causes a flare in other sufferers from PMR/GCA and do they do as I do and increase the dosage of steroid and try to rest? Or is there a magical cure I should know about?

Long ramble I know but strangely feel better for writing it, apologies if you think I’m wasting your time, or a hypochondriac. (I’m not).

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Polymyalgia Rheumatica And Chickenpox

To my knowledge I have never had chicken pox. I have been taking Pred for three years and am now down to 3mgs from 15. My granddaughter is with me with chickenpox. Should I be worried please?

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Polymyalgia Rheumatica And GCA :: 40s Been Diagnosed With PMR?

I was told years ago i haf fibromyalgia but now my blood work shows a high sed rate

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Polymyalgia Rheumatica And Exercises?

Background: I am 66 years old and have suffered first attack in mid November 2015... I have been fairly active person and have done some triathlon in the past, so not being able to get out of the bed on my own was pretty shocking to me... It took about one month to diagnose PMR and I started medication (prednisone) at 15 mg/day mid December. 

If there is an interest, I would like to post about the progress in recovery, with special attention to exercise. I am seeing specialist every 2 weeks and complete blood work is done to monitor inflammation caused by PMR.

I would like to post what I have done thus far and future progress in (hopefully) successful recovery.

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