Sjogren's - Atrophied And Scarred Over Salivary Glands
Apr 10, 2014
For the past 14 months, we have been trying to firm up my diagnosis. I went to a new rheumatologist who suspects sjogrens- maybe also UCTD. I already saw an eye doctor who confirmed that my eyes are dry. I just saw an ENT a few hours ago who biopsied my salivary glands. She did an incision by my lower lip but couldn't find any salivary glands. She said that they may have atrophied and scarred over. She had to do a second incision in another area and was able to find some salivary glands. On one hand, I am happy that I may finally have a dx but I am scared that I do have Sjogrens. The ENT said that the absence of the salivary glands in the first incision site could be consistent of a dx of Sjogren's. The eye doctor also said the same thing about the tear production.
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Does anyone know what this could be?
What will the ent do?
I am so scared it is something bad and so frustrated of feeling so rubbish!
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Anyways, for the past week and a half I have had a swollen red bump under my armpit, I am pretty sure it's a swollen lymph thingo - I had one under my right armpit, now I have one on my left.
Tis very small and I have 0 other symptoms, but I am scared to death of the doctors for some weird reason and always get anxiety when I go. So I try to go as little as possible.
While I have no other symptoms, is there a chance it could be HIV? This was about 2-4 weeks ago.
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I've had different check ups too (chest x-rays, neck scan and antibiotics). The scanning shows there are swollen glands but no-one can figure out what could cause them. I have also had loads of blood tests, including leukemia and Hodgkin's' lymphoma.
In the meantime these swollen glands are making my life a misery and I am only 26 years old
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Since then I have had bouts of soreness in my mouth, feeling like it has been scalded with hot food, though there is nothing to see. I presumed it was thrush and I know that I am resistant to many thrush treatments, so started to treat it myself with Gentian Violet that I bought off the internet (now not used in this country). It worked when I used it, but the symptoms returned every couple of months.
About 3 months ago I had a cough/cold. It cleared up within the standard time, but left me with an irritation in my throat, causing a nuisance dry cough, even though I was fully well by now. For a few weeks it felt like I had a furry carpet in my throat, just past my glands, but not in my chest. That has cleared up, but the recurrent 'burnt mouth' feeling comes and goes every few days. I have stopped treating it because I didn't know if the Gentian Violet might be making matters worse. My left tonsil is permanently swollen, though my GP says he can see no infection on it. Both glands swell and subside every couple of days and it hurts to swallow when they are up. I often get a chemical taste in my mouth. I can see some clear, blister type lumps right at the back of my tongue, at the left side, where it joins my throat. I can't see them unless I stick my tongue out and shine a light in. My GP couldn't see them, but he could see a similar lump above my left tonsil, which he thought might be a cyst.
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Ok to start from the beginning I do suffer from cysts. And do have sex frequently with multiple partners . About two years ago me n my ex got a uti from a third partner went doctors got cleared about year later had same symptoms .. went away after about two weeks .. within the last six months I've had more issues pain swelling also note small white bump on testical (no pain or swelling of testicles ), pain in tip of penis ..again having multiple partners (female) I get tested regularly and have always been negative ..classified as general infection.. anyways I've been seeing a girl n just her and we had unprotected sex n I could feel with tip of my penis if felt rough bumpy .. anyways I had a small pimple like bump on my shaft I was able pop it but now all my glands are swollen around pelvic area n where the bump was is swollen affecting girth .. I have insurance but its just been to doctor so many times for this area its really embarrassing
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