Ulcerative Colitis :: Salofalk Enemas Seem To Make Symptoms Worse


Nov 20, 2015

My son had a colonoscopy and told may have Colitis..he was prescribed a month's supply of Salofalk enemas and took first one last night...but today he has had to poop about 7 times with some blood ...the frequency of the pooping is now more than it was before using the Salofalk and I'm wondering has anyone else experienced this...he is only 18 and afraid to leave the house..It is not diarrhea but it's just he needs to go so often...I am afraid he will loose a lot of weight...If this is normal using this product I can relax...can someone please reassure me

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Background:

i have always had heavy painful periods. Initially they would come every 2 weeks and last 8-10 days. I was put on the pill and stayed on it for about 10 years (2011) when we decided to start our family. It largely controlled my symptoms with the exception of a handful of times when the pain was uncontrollable.

in 2010, I was diagnosed with ulcerative colitis (UC) after 12 months of on again off again diarrhea. Nothing could be seen during the colonoscopy but is showed up on the biopsies. Between 2010 and Jan 2012 when i fell pregnant i still had "flares" every 3-4 months. 1 flare while pregnant. C sect in sept 2012. My UC seemed slightly worse after the c section. Periods were irregular again and was recommenced on the pill which mostly controlled it however had some spotting and pain mid cycle. August 2013 i became pregnant again, apart from one big flare while pregnant my UC was great. i had another c section in May 2014.

Since then i have had nothing but trouble. Diarrhea every day since August last year, a good day is 6x a bad day is 20+x and disabling pain, bloating, fatigue.

i have had basically non stop bleeding, i will have red blood but only light every 2-3 months and in between i will have old blood for 2 days, stop for 1 day, go for 3 days, stop 2 days etc.

in july i was put on a special liquid diet to try get some vitamins, i was losing 1kg a day while on this diet. My bleeding and diarrhea stopped (it was partly digested so there wasn't really anything to leave my body, it was all absorbed).

as soon as i was put on normal food again my diarrhea and pain returned and my period was so heavy, worse than after both my kids put together.

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if uc is caused by the immune system attacking the colon smoking causes a weaker suppressed immune system this giving relief from uc symptoms not advising anyone just to start smoking but it was my quick fix to relieve symptoms i take mesalamine but see this as just putting a coating  over it.

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Any help or advice will truly be appreciated please as I am longing to have a normal life with my family and friends without having a fear of needing the toilet.



Many thanks in advance.

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Is anyone else on Apriso? How much were you prescribed?

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I AM IN NO WAY ADVOCATING THAT ANYONE START SMOKING

I want to know if anyone has any experience of this as I feel someone should be doing more research into what it is exactly in cigarettes that is helping with UC, as I have previously tried patches, herbal cigs, etc etc and nothing worked. I hate being a smoker but I would rather suffer the consequences of smoking at a later date than suffer the horror that I endured when I was not in remission.

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