I have ulcerative colitis and found that you need to avoid alcohol this makes it 10 times worse, it took 9 months to find what meds worked for me changing meds after three months when no improvement I now take x2 oral 1200 mg x1 800 mg = 3000 mg mezaline and 1mg suposit this has calmed it down to manageable with toilet trips around 8 times a day going from 18 to 24 times a day.
View 2 RepliesMy son had a colonoscopy and told may have Colitis..he was prescribed a month's supply of Salofalk enemas and took first one last night...but today he has had to poop about 7 times with some blood ...the frequency of the pooping is now more than it was before using the Salofalk and I'm wondering has anyone else experienced this...he is only 18 and afraid to leave the house..It is not diarrhea but it's just he needs to go so often...I am afraid he will loose a lot of weight...If this is normal using this product I can relax...can someone please reassure me
View 9 RepliesAfter being ill over the Christmas with 12 to 15 toilet trips daily always with blood decided to try anything to get it under control, since December 28 I'v had no alcohol, no sugar, no dairy ,no caffeine im now on x3 oral 1200 mezzanine x1 suposit
i now have little no blood loss and average 5 toilets trips but still blotted and look pregnant was advised to try so changed to green tea during day tick tock tea evening taking olive leaf tablets omega 3 oil was told to try activated carbon but read it cancels out the meds?
From reading many other threads, it seems to me that one frustrating thing about this condition is that there's no one-size-fits-all description or solution. Is there anything outside of heavy prescriptions that soothes your pain, and are there any triggers that make it worse?
Here are things that usually provide some relief:
1.Epsom salts compresses - help calm down the skin sensations
2. Rose geranium oil - helps with the skin pain and stabbing, and the scent is calming to me
3. Heating pad - helps when the pain is deeper, or maybe it just relaxes my tense muscles
4. Ibuprofen - helps with the aches
5. Acetaminophen - I don't think this works as well as ibuprofen, but I haven't given up on it.
6. Sleeping. I usually wake up at a level 0 or 1, and it builds up as I go about my day.
7. Sitting quietly. No friction when I'm not moving.
8. Exercise. Maybe it's true what they say about endorphins.
9. Sometimes stretching or scratching provides relief.
Things that make it worse
1. Coffee
2. Lack of sleep
3. Possibly my hormone cycle; I'm not certain about this one
4. Sometimes, it's worse if I stretch, scratch, exercise, or sit still. Yup, these are also on my list of things that sometimes help. [eek]
5. Random triggers I may never be able to identify.
Do any of these things sound familiar to anyone else? Or is there a good possibility this isn't PHN but something else? Like, losing my mind?
Does anyone find eating gluten makes their Fibromyalgia worse?
View 1 RepliesI have regular blood tests and have been given Metformin for Type 2 for the past six months. I often feel the need for a nap mid-afternoon but I put that down to the after effects of lunch! I have been morbidly obese for years and considering that, my energy levels are good. I am 65 this month and still work full-time and intend to continue. I also take Tamsulosin for an enlarged Prostate. Recently I was summoned by the doctor after routine blood tests and told I had mild Hypothyroidism for which I was prescribed 50g per day of Thyroxin. They made me feel terrible - every day for two weeks so I've stopped taking them and feel fine again. Seems like the Thyroxin gives me the symptoms of Hypothyroidism - loss of sex drive, tiredness, headaches. What's the likely outcome of not taking these awful pills? Any advice gratefully received.
View 5 RepliesI have been on omeprazole for 2 months for acid reflux and I have got worse in that time - I'm sure it must be the tablets that are making it worse. My doctor's advice was to increase the dose from 20mg to 40mg.
Has anyone else had this happen to them? I'm waiting for an endoscopy so I might find out what's going on eventually!
Just wondering if people with depression find talking about it makes you feel worse. On Saturday my boyfriend had his worst ever day with depression. We spent most of it in hospital waiting for him to be seen. He lost his wife last year which set it off but til Saturday he had seemed fine. I told him to think about what he wants from us as in would he rather just be friends for now. This is looking more and more likely the more I think of it and the changes in what he's saying to me. This Saturday we plan to meet and talk about what he wants. I've said its going to be down to him what happens. I am going to listen to what he says but then I feel I do need to tell him how I feel. I think we probably will agree on everything like he needs to sort his depression out then think about a relationship when he's ready. I would like to talk about Saturday and be honest about how it was for me as he has said if I feel it's getting too much just tell him. I don't feel that it's getting too much at all right now but based on Saturday alone if that happened more often I honestly have no idea how I would cope. I do want to be there for him but with how he was on Saturday I don't know how much of him being like that I could deal with. That may sound selfish and I know he couldn't help it but I felt nothing I could do or say could help and after trying to cuddle him a few hours for him to blank me I was starting to give in trying.
View 5 RepliesI have UC and have had this for the last three years. At the moment it is quite settled however my anxiety and my social fear is taking over my life. I have a fear of not making it to the loo on time when I am out and am constantly thinking of where the nearest toilet is, and although I don’t require it I work myself up so much that I do. This mostly happens when I am stuck in traffic or if the train just randomly stops for a while- as I then get scared that I need the toilet. This brings me very down as my life has changed as I am always fearful and feel low and depressed at time.
Any help or advice will truly be appreciated please as I am longing to have a normal life with my family and friends without having a fear of needing the toilet.
Many thanks in advance.
I am a Diabetic and have been for over 10 years. Since then I have also been diagnosed with Ulcerative colitis, cervical Osteoarthritis, and recently Diverticulosis. I had a fusion and discectomy on C5/C6 August 2014. Since the operation I have had such a bad flare up and I have trouble controlling it. I am now on steroids and hopefully this will take some control. And now I have been told I have high Potassium levels, not sure why this is, could this be because of infection?
View 3 Replies21 year old female diagnosed with left sided UC after 2 colonoscopies over a 6 month period.
I went from 3 to 4 capsules of Apriso daily, which isn't working, to now having just done my 4th Remicade treatment. I still have diarrhea all the time, and occasionally with blood in the stool. I spoke to the Gastro who has said our next steps might be to increase the Apriso (I have one friend who takes 8 capsules daily!), or to try stopping the Apriso all together and seeing how I do. I have tried to get my stress under control-I am a full time student that travels between two campuses and work about 30 hours a week, and even dumped a boyfriend because he added too much stress to my life, lol. I have found stress makes me flare up quite bad.
Is anyone else on Apriso? How much were you prescribed?
Thanks for anyone's experience and wisdom you can share. My Mom and I are about at our wits end trying to find a balance for my life that lets me heal and still lead a somewhat normal life.
Will try to make this brief, first I do take 1mg Xanax er daily for anxiety and panic attacks. 2 months ago I had a vaginal ultrasound done that showed some change in one of my ovaries. Was rescheduled for second ultrasound in 2 months. My older sister passed away 10 years ago from ovarian cancer, so of course waiting 2 months really stressed me out. I woke up one morning and felt horrible chest pain and thought I was having a heart attack. My husband rushed me to the hospital where they ran a stress test, CT Scan, and chest X Ray and everything came back fine. They decided it was acid reflux brought on by worrying about the Ultra Sound and prescribed pantoprazole, took for 2 weeks and felt awful, could not eat because I was so nauseated all the time and made anxiety worse. Switched me to omeprazole and still feeling bad, I have quit taking both and am trying to wean myself off of everything but taking OTC Zantac once a day. Now the acid reflux is back but mainly in my chest and shoulders, if that is possible. Not sure what to do. Am going to see a GI doctor. Never had acid reflux before this and medicine seems to have made it worse. Is this Possible.
View 6 RepliesI was just wondering if anyone has found any particular types of exercise that help flare ups? Or help to ease the pain... I read swimming is good but is there anything I could do at home?
View 1 RepliesEvening all I was told I had colitis back in April
Was given mes 1g 4 to be taken daily.
They said I had not mild colitis but couldn't confirm
If it was colitis or crohn's. Anyway I do get blood mucus tummy pain when I go toilet. But no pain
Which I am thankful of. I am have a flare now which I meds are not helping they can't seem to kick it. So I am awaiting steroids.
The thing is my tummy makes some loud rimming noises. Is this normal with colitis. Little bit peed off
That they can't say it's colitis or crohn's.
I have been taking prednisolone since August following a severe UC flare up (my first!!) which landed me in hospital for a week. I was on a slowish taper (starting on 40 mg per day and reducing by 5mg every fortnight). I am due to take my last 5mg tablet tomorrow (I am also on 8×pentasa a day at the moment) and am worried about withdrawal/side effects. Anyone experienced any from gradually stopping the steroids?
View 2 RepliesI have recently started working in a salon and we sell the Aloe Vera range including a gel which is supposedly good for colitis? Has anyone tried it and seen improvement? I am on mesalamine oral tablets and mesalazine enemas - only been diagnosed a few weeks.
View 1 RepliesI have left sided colitis and have been on azathioprine 75mg x 2 daily and two 5mg prednisolone tablets. Have been on the full dosage of azathioprine for four weeks and now suffer from constant constipation to the point where I have to take laxatives and eat prunes. Has anybody else had this problem? Have purchased a tub of benefiber but unsure as to whether I should use it.
View 10 RepliesI've been diagnosed with ulcerative colitis yesterday and was given 30 x 500 mg suppositories but the consultant said I would have my next appointment in 3 months time.I have to use one per night.Do I use them just for 30 days or should I ask my doctor for some more after 30 days ? It's all very new to me.
View 5 RepliesI was first diagnosed with UC in my early 20's, no real problems until I gave up smoking when I found out I was pregnant at 33 years. Major problems throughout pregnancy, but symptoms stopped almost immediately when I started smoking again after the birth. 7 years later I decided I wanted to give up smoking and did so successfully - until the UC returned with a vengeance - my consultant was at his wits end what to do until I came right out and asked him - would my symptoms stop if I start smoking again. He knew I had done some research into the link between smoking and UC and indeed confirmed that although he could not advise me to start smoking again, there was documented evidence to support that smoking in patients with UC can be beneficial.
I AM IN NO WAY ADVOCATING THAT ANYONE START SMOKING
I want to know if anyone has any experience of this as I feel someone should be doing more research into what it is exactly in cigarettes that is helping with UC, as I have previously tried patches, herbal cigs, etc etc and nothing worked. I hate being a smoker but I would rather suffer the consequences of smoking at a later date than suffer the horror that I endured when I was not in remission.
Anyone on here been diagnosed with ibs as well as ulcerative colitis? I have been getting daily abdo pains and doc thinks I have Ibs alongside
uc which hopefully is in remission! Sometimes food relieves pain and sometimes a bm stops the pain but I cannot pin down any reason for the pains. I have been prescribed Mebeverine 135 but so far hasn't stopped pains. Would be pleased to hear from anyone else with IBS and UC and what their symptoms/ treatment are?
I am 25 yrs old and I was diagnosed with UC when I was 16. I am currently on 2000 mg Pentasa twice daily and 75 mg Imuran ( azathioprine) once daily. I haven't had a flare up in over a year. So all is good only now my partner and I would like to try for a baby.
I have discussed this with my consultant and she advised not to come off any medication as a flare up would be worse for the baby than the meds.
The only thing is, I have been looking into the effects of Imuran and it gives awful side effects including miscarriage and fetal deformities.
I am just looking to see if anyone has any info on what I should do. And if any women out there have taken this medication through pregnancy.