Coeliac Disease Or Just Gluten Intolerance
Apr 1, 2015
My youngest son is 3 years and 3 months old. He is very tiny and under weight and is diagnosed as failure to thrive.
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For over 2 years he has been, very cranky all the time and emotional, poor appetite refusing to eat any thing apart from bread, cereal and pasta. He has low iron and is taking iron supplements and is tired a lot.
He us under the care of two paediatricians and a dietician who so far have not been able to find a cause for his problems and why he is so small.
One of the paediatricians came to our house to see my son. She examined him and felt his tummy etc. then asked is he had been tested for celiac disease or gluten intolerance. Which he hasn't.
The paediatricians said it would be a good idea to get him tested and she would refer him to other paediatrician to arrange for tests to be done.
She also said it might be a good idea to try removing wheat and gluten from his diet.
So we removed gluten and wheat from his diet straight away. He has had no wheat or gluten in his diet for 4 weeks now and we are seeing big improvements. He is like a different boy, he is a lot more happy, less tired, he is doing normal poos fro the first time in a very long time and he is getting his appetite back. He is finally for the first time in over 2 years not refusing food and is starting to eat proper meals.
Although we are seeing big improvement I am beginning to think that the paediatricians advice to remove wheat and gluten from his diet was perhaps bad advice as I realise now that you need to be eating gluten and wheat to be tested.
My son is due to see second paediatrician in 3 weeks time. I don't know if they will do tests then or if we will have to come back another time. Should I re add wheat to his diet now so he can be tested, will 3 weeks be long enough.
Was it a bad thing to remove gluten and wheat from his diet.
Does it sound like he might have celiac disease or a gluten intolerance
my leg is five and half years old and for as long as I can remember she has had bowel trouble. It started off as constipation which the GP prescribed movicol for. She was weaned off if this and over time her symptoms have worsened. She suffers from terrible bloating, wind and constipation. She complains of "tummy bubbles" I have asked what she means by this and says either her tummy hurts or she thinks she needs to go to the toilet. We are at a loss as to what could be causing this?
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How did you know you had issues with Gluten ? I have been suffering with an itch on my scrotum on and off for a couple of years now which was just getting more and more frequent to the point that I was scratching it every night in my sleep. I kept a food diary but could not work out from that until I eliminated wheat for three weeks and over that time I did not scratch until after three weeks when I mistakenly had some wheat I itched at night. Does that mean I should never eat gluten again or is this just a phase ? I don't get any other symptoms like diarrhea or flatulence, cramps, bloating.
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I recently went on the Juice Plus diet and was told it didn't contain gluten even though it does contain Oats. Since starting the diet all my celiac symptoms have come back. Aching joints, swollen face and wrists and extreme tiredness. Has anyone else found this?
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since my son was born a couple of years ago, I have been to several doctors appointments with depression, lethargy and several other symptoms, that had gotten to a point that I felt I couldn't cope anymore. At first the doctor thought it was postnatal depression and then thyroid, but on my second blood test, when she tested for almost everything she could, my blood test came back strongly for coeliac, and as always very low iron levels. That was back in February, four weeks ago at my endoscopy, on leaving, the nurse said the procedure had shown suggestions of coeliac and disease, they had taken biopsies, and not to start on a gluten free diet as other tests would need to be taken. As I was a bit out of it at the time due to the sedation, I forgot to ask what other tests they would be doing? could anyone let me know what they went through after the biopsy in regards to further tests. I am feeling so low and desperate to start the diet, and wait eagerly for the post everyday. I have to go in for surgery for another problem possibly at the end of June, and I am wondering if just to start now, as I really want to feel stronger for that. Thank you for listening in advance.
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My daughter was diagnosed with coeliac disease end April 2014 and since then we have taken her completely off gluten. She is now hyper-sensitive to even trace amounts of gluten and can be sick for days if she eats the tiniest of crumbs. Her tests for gut damage were 300+ and she is down to around 18, but doctors would like her levels to be 7 or below. We have been seeing a chiropractor and physiotherapist to help with her muscle spasms and aching over the last few years (back and legs). She has been tested for lupus, rheumatoid arthritis, anaemia, vitamin D deficiency, thyroid problems, calcium deficiency and she came off lactose for a month. Everything has come back negative - although in January this year the consultant put her on calcium supplements to be on the safe side.
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However, she is in constant pain which gets worse by the evening (she rates most evenings as 7/10, 8/10 if she has a headache and saves 10/10 for how she remembers it feels when glutened) - her joints and muscles ache (no swelling). She has to have her legs and back which are the worst affected parts, rubbed at bedtime and she goes to sleep with heat packs to ease the pain. She gets a headache as a result of the neck pain about 1 a fortnight. She can get very tired and last Friday she was sent home from school as she was tired, headachy and achy. She came home and spent the day in bed. She used to be so active and was able to swim 4 x a week in a squad - if anything she seems to be getting worse not better and cannot attend as much training. It's horrible to watch her walking around like a little old lady at age 9. In the last three months even during the day - her best day was 3/10 pain. Naturally it really gets her down.
I have been told that the gut in some people can take 2 and half to 3 years to recover - but surely malabsorption wouldn't make her feel worse?
Can anyone list me some makes of sweets and crisps that are gluten and dairy free?
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I have an 8 year old who was diagnosed with Coeliac disease last May and has been following a gluten-free diet ever since. Her symptoms previously were pins and needles in hands and feet, mouth ulcers, calcium marks on teeth, bloating, aching joints and bones, and small pink spots on the face. She is also quite small for her age. Her symptoms have cleared up, However now and then she gets sick if we have problems with cross-contamination.
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My problem is that she is still experiencing a degree of joint and bone pain. About 2 weeks ago was the last time she got sick because of cross contamination, but last night she couldn't sleep because of the pain. Is this normal - does anyone else experience this?
Basically I am 25 years old and as i've grown up I've noticed more and more that I was getting stomach cramps and bloating more and more often. It is very sporadic and I couldn't really say exactly what was causing it but I just thought it was normal. This was until the last 12 months when I started to think a bit more about it. I do a lot of exercise and play a lot of football. I was finding that I would get some form of cramp during a football game. Usually quite mild but sometimes worse. I also like to run and when training for a half marathon found that after a certain distance I would get pains. Almost every time after about 30-40 minutes running. It would normally be worse when running in the evenings. I started thinking about it and tried taking several things out of my diet. I am 95% certain I have a lactose intolerance as since cutting that out around 6 months ago I have seen an improvement. But I would still get pains.
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This all resulted in me going Gluten Free and I finally experienced what it feels like to have a normal stomach. I was relaxed and could do whatever I wanted without any fear. So I decided for my own health I should get tested for celiacs disease and after 7 weeks of eating gluten again had the blood tests. Today I had the results and they have come back negative. I feel so deflated and just angry. What do I do now? I just feel like going back to Gluten Free and living like that self diagnosed. The weird thing I find with my disorder is it seems to be worse when i'm up and about. If me and my fiancee have gone out around town and have lunch it is often worse when walking around afterwards. I don't always get blinding pains either. It is often just severe constipation or stomach cramps just making me feel uncomfortable.
Really disheartening now and just want to know but can't carry on for much longer and really don't want to keep eating Gluten when I know I feel good when I don't. Any advise?
My 12 yr old son is experiencing no BM after 4 days of switching him to this GFDF diet ... Before he was IBS .... Not sure what to do
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I had sinus allergies , brain fog, inability to gain weight and just general fatigue when i was diagnosed with celiac disease an year back through biopsy and blood tests. I have been gluten free since then.
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I weigh around 130 lbs. at 183 m.
My other test results are:
1.Severely deficient in vitamin D at 5.4 levels, for which i am taking supplements.
2. Normal T3 and T4 but T3 in the in the lower range at 112 (80-200 is normal).
3. High Anti peroxidase antibodies at 104
4. High TSH at 7.1
I don't know what to make of low Vitamin D and thyroid tests. Do i have a thyroid condition too or is it just due to my celiac disease? Despite being gluten free, i have not put on any weight until now. I feel just generally down, fatigued, anxious, and have difficulty keeping up with demands of day to day life. I was just wondering if i could do anything to rectify these symptoms.
How many diagnosed celiacs have had their gallbladder removed because of low function? Did removal help make you feel better in spite of having celiac disease?
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I have a 8 year old daughter who i have been worried has Coeliac disease for some time now, She was under a doctor in the first two years of her life as she was not growing at the expected rate, they done many tests at the time including a blood test for Celiac which came back negative. in the end it was decided she was just small. She Is still very small and at 8 years old wears age 6 clothing, she complains often of stomach pains after eating. I have also recently noticed that the enamel on her front teeth is not forming properly, is very pitted and looks very brittle. I requested another blood test last year which also came back negative but i'm still not convinced. We do have Celiac in our family, not her immediate family but grandparents. I don't know if i'm worrying for no reason or if I'm going to cause long term problems for her by not pushing this further.
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Can I ask what symptoms other people have experienced before being diagnosed with Celiacs?? I am concerned I may have celiacs, I am due to see a doctor next week to discuss. I don't have all the symptoms but have had bloating, chronic constipation, (had issues with both for years) flaky scalp (not severe) and a skin condition on my feet. My doctor told me this was eczema two years ago but it can flare up quite extreme, soare, itchy, fluid filled blisters, flaky skin, red, rashy when at its worst. But it tends to come and go? Does anyone else suffer from the same?
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I'm 25 and over the past 6 years I've been diagnosed with 4 pretty serious autoimmune conditions. When I was 19, I was diagnosed with Rheumatoid Arthritis which is often crippling, even now. I was told this was an autoimmune condition. Shortly after, I was diagnosed with Coeliac Disease, another autoimmune condition. The Arthritis and symptoms of the coeliac disease when I hadn't controlled it obviously made me feel unwell and I often felt lethargic and unhopeful due to a lot of pain and stuff going on in my body.
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I managed to go on a clinical trial which allowed me to have a new and powerful arthritis drug which dramatically improved the condition and I managed to cut gluten out of my diet. I also lost a bit of weight - this helped.
However, after the trial, my symptoms of arthritis gradually came back but was usually kept under control with the exception of a few flare ups.
When I was 23, I was diagnosed with Type 1 diabetes after getting a very quick onset flurry of symptoms (another autoimmune condition) - I find this very difficult to manage.
I've recently moved cities and transferring all of my specialists and treatments left me with no arthritis medication, and a long wait until I see a diabetes specialist to adjust insulin levels. As you can probably imagine, I've been in an awful lot of pain and been feeling very down, tired and lethargic. I'm very upbeat although having so many conditions and I don't let it bring me down, even though I work a full-time job 8 til 5 everyday. I've been having problems with blood tests, platelet counts, that kind of thing.
I was aware that I had the antibodies for Hypothyroidism as I had the test for that about a year ago and I knew it was just a matter of time before I developed it. Upon my most recent blood tests, my TSH level was 47.7 - ten times the top end of the normal limit. I've literally just started levothyroxine but, as you can imagine, I feel completely overloaded with health issues and like my head is going to explode and quite down about it all.
I'm sorry to give you my life story but I was just wondering if any one else has any of the other conditions I have and how they manage with all of them?
Also - how should I have been feeling with a TSH of 47.7? Should I have been feeling VERY different because, like I said, I always feel fairly tired and down due to the combination of illnesses. Any advice at all would be appreciated - I feel massively alone with this.
I've just been diagnosed with Coeliacs disease and am finding it very stressful shopping so far. I am following the weight watchers diet as well but all the GF breads seem high in calories. Also I've had headaches for the last couple of days and feel like I'm in a world of my own. Could these be coz I've stopped all wheat or just coz I'm stressed. I've joined loads of groups online and have all the info but it seems like information overload.
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I've been having problems after having my gallbladder removed and was sent for an mri and coeliac screening by the consultant (general surgeon). Mri was clear but blood screening indicated one of the antibodies was high which 'may' indicate coeliac's. The consultant feels this may explain why I'm having these ongoing issues but I'm not convinced. With coeliac would there be pain in the right upper quad, including night time attacks? Any help would be really appreciated.
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I have been gluten free for 4 years. I have been tired for a long time. I just found out I am anemic (Ferritin 9 - 15-180 is normal). I took Iron pills, 6 weeks NO CHANGE in levels.
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My doctor is not taking me seriously. I am waiting for an iron infusion (maybe 6 weeks).
The iron pills completely messed up my whole lower abdomen area (I think that's the cause). constipation, then diarrhea (sp?) crazy bloating, full feeling, aches and pains.
I have an asian friend and everytime he drinks alcohol, not much, maybe 2-3 ciders, he seems normal drunk for a little while, like just running around for a little while except that he goes very bright red Then after about half an hour he suddenly collapses on the floor. We can't wake him up. Sometimes he will come round and open his eyes or talk for a little while but then he will lose consciousness again and won't be able to walk. Then he will sleep for around an hour and wake up completely normal. I know one of the symptoms of alcohol intolerance is flushing but haven't seen one of the common symptoms being losing consciousness. Do you think it is just alcohol intolerance or there is something underlying? He did drink quite a lot once and he also vomited as well as being very flushed and losing consciousness for a longer period of time
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Has anyone developed lactose intolerance while pregnant? And did your baby have it after being born? My husband has always been lactose intolerant and just recently I've become the same way and wondered if it was actually the baby's way of making me avoid it..
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how do I control hypothyroidism when I can't tolerate the meds?
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