Intense Headaches And Dizziness Whenever I Move


Apr 5, 2016

For three days now, I have been experiencing intense headaches and dizziness whenever I move. When I sit still, I cannot feel the headache, however, I do feel very lightheaded when I sit still. My eyes have also been extremely sore 24/7, and I have been experiencing the chills when it starts to get later into the night.

I have been taking my temperature very often the past few days and my temp hasn't been above 99 degrees F, so it is not a fever. I have also been hydrating myself profusely (dehydration was my first guess) and it is not dehydration. 

I am a little worried since I have never really had issues with headaches or dizziness.

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Undiagnosed Dizziness And Pressure Headaches

I am 21 year old female college student, I have been dealing with these health issues since November 2013. I used to lead a healthy lifestyle, doing great in school, had a job, and participated in school organizations. Also, I was able to exercise everyday and was in the best shape of my life and ate extremely healthy no bread, lots of veggies and grilled chicken. Happier as ever.

Then one day after exercising i began to feel this nauseated off feeling that made me feel as though im not stable. I have never fallen over or fainted (except once when i got my blood drawn to check for this problem). Then gradually over time dizziness is what i began feeling not the room spinning but i feel like i am moving when im not, i feel like i have to second guess where i walk and concentrating on the computer or driving long distances is a challenge. Then started these headaches since April 2014 where i feeling like my head is shaking and pulsing inside. This pulsing and pressure worsens when I am lying down and it takes a while for me to adjust from lying down to standing up i feel woozy when i do. Anyway I have had this constantly everyday. At first it got me really emotional but I have been practicing yoga/meditation everyday as well as acupuncture and massage therapy to help manage the stress and anxiety i was having about the dizziness/head pressure.

Heres the many doctors I have seen:
blood work - all normal according my GP; blood pressure, b12, thyroid is normal

eyes (i wear contacts) - optometrist, ophthalmologist, neuro-opthamologist - all normal; no elevated optic nerve pressure; prescription is the same

ears - saw two ENTS, had vestibular testing done - nothing wrong

finally got an MRI - it showed i have a cavum velum interpositum cyst (3x3.7 cm in sagittal views (side), 3.2x 4 cm axial view); i was most likely born with this - it is hard to say if has grown or always been this size and might be an incidental finding - hard for doctors to say which makes it super frustrating
**NO HYDROCEPHALUS, hemorrhage, midline shift, extra axial collection, or acute intracranial mass effect

i have seen about 3 neurosurgeons all with different opinions

- first was an adult surgeon at the cleveland clinic - said my cyst is very rare; suggest a shunt (but would not want this due to the risky foreign object nature of the device, i would rather an endoscopic procedure)

- second saw a pediatric neurosurgeon; put me on diamox 250 mg twice a day it has been making my head feel better so the doctor is inclined to think its the cyst

- third pediatric neurosurgeon at University of miami; was not convinced the cyst is causing my problems said it was probably incidental and wants me to wait 3-6 months to get another MRI


is anyone going through this.. i'm trying to stay as optimistic as possible. i just hope i do not have to feel like this forever i had to take the semester off of my senior year of college because i wanted to get to the bottom of these problems that have affected my whole life. just want to be normal again.

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For the past 8 months I have been suffering from dizziness, slow going at first and was manageable, but I am worried that it was a warning sign as things are getting worse.

When it first started I would get random dizzy attacks when moving my head (feel like the room around me was spinning or I was still moving when I wasn't) I went to the doctors and he explained it could be from my operation and my body getting over the anaesthetic, just a keyhole op to take appendix out. He recommended I wait and if it didn't improve within a month then to go back. I returned a month later as the symptoms hadn't improved and was put on some antibiotics to "relieve" the symptoms. When this didn't work I again returned only to be given a higher dose of them for a further month . I was then told to wait yet another month without them in the hope it would relieve the dizziness completely.

Then it started to get worse. My vision has changed and not become as clear almost a bit cloudy and I see flashing lights sometimes, I have had my eyes tested and even been to the hospital for a detailed eye examination -nothing. Then around 4 weeks ago I began getting migraines with aura and have had one a week since it started and the dizziness has become constant. I notice it really bad when I am still and concentrating and it feels as if everything around me is moving and also when I move then stand still a wave of dizziness comes over me and completely throws me off balance almost as if the ground is moving , I never fall but always feel like I am going to. I returned to the doctors last and have now been asked to get blood tests which are in 2 weeks ad have been referred to a neurologist which I have been told can take up to 8 weeks.

This week it has been extremely bad and has reduced me to tears a number of times as it really frightens me. I have had a constant headache sort of behind my eyes which feels dull and almost like there is pressure in my head, for the past 3 days and painkillers aren't helping. Every time I walk, move, or even am still the dizziness appears. It is affecting my work as I am unable to be at my computer a long time due to my vision. I was told to go back to the doctors should things get worse and plan to go tomorrow evening to out of hours. I really don't think that I can wait 8 weeks for a date to see the neurologist and feel it needs to be done sooner. I have been reading about my symptoms and have no clear steer on the possibility but I am really worried at the possibility of a brain tumor as a family member passed away of this last year.

I think it's important to note that I am 21, and generally eat well and exercise regularly (not as much as of late due to severe dizziness) At the end of last year I suffered from panic attacks, costochondritis and anxiety following the loss of a close family member. Once I went back to work January this year things improved hugely on that front. I understand that anxiety is often linked to dizziness but I am struggling to believe this has stemmed from that. I now only suffer anxiety of fear of these feelings returning.

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