Undiagnosed Dizziness And Pressure Headaches


Oct 9, 2014

I am 21 year old female college student, I have been dealing with these health issues since November 2013. I used to lead a healthy lifestyle, doing great in school, had a job, and participated in school organizations. Also, I was able to exercise everyday and was in the best shape of my life and ate extremely healthy no bread, lots of veggies and grilled chicken. Happier as ever.

Then one day after exercising i began to feel this nauseated off feeling that made me feel as though im not stable. I have never fallen over or fainted (except once when i got my blood drawn to check for this problem). Then gradually over time dizziness is what i began feeling not the room spinning but i feel like i am moving when im not, i feel like i have to second guess where i walk and concentrating on the computer or driving long distances is a challenge. Then started these headaches since April 2014 where i feeling like my head is shaking and pulsing inside. This pulsing and pressure worsens when I am lying down and it takes a while for me to adjust from lying down to standing up i feel woozy when i do. Anyway I have had this constantly everyday. At first it got me really emotional but I have been practicing yoga/meditation everyday as well as acupuncture and massage therapy to help manage the stress and anxiety i was having about the dizziness/head pressure.

Heres the many doctors I have seen:
blood work - all normal according my GP; blood pressure, b12, thyroid is normal

eyes (i wear contacts) - optometrist, ophthalmologist, neuro-opthamologist - all normal; no elevated optic nerve pressure; prescription is the same

ears - saw two ENTS, had vestibular testing done - nothing wrong

finally got an MRI - it showed i have a cavum velum interpositum cyst (3x3.7 cm in sagittal views (side), 3.2x 4 cm axial view); i was most likely born with this - it is hard to say if has grown or always been this size and might be an incidental finding - hard for doctors to say which makes it super frustrating
**NO HYDROCEPHALUS, hemorrhage, midline shift, extra axial collection, or acute intracranial mass effect

i have seen about 3 neurosurgeons all with different opinions

- first was an adult surgeon at the cleveland clinic - said my cyst is very rare; suggest a shunt (but would not want this due to the risky foreign object nature of the device, i would rather an endoscopic procedure)

- second saw a pediatric neurosurgeon; put me on diamox 250 mg twice a day it has been making my head feel better so the doctor is inclined to think its the cyst

- third pediatric neurosurgeon at University of miami; was not convinced the cyst is causing my problems said it was probably incidental and wants me to wait 3-6 months to get another MRI


is anyone going through this.. i'm trying to stay as optimistic as possible. i just hope i do not have to feel like this forever i had to take the semester off of my senior year of college because i wanted to get to the bottom of these problems that have affected my whole life. just want to be normal again.

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For the past 8 months I have been suffering from dizziness, slow going at first and was manageable, but I am worried that it was a warning sign as things are getting worse.

When it first started I would get random dizzy attacks when moving my head (feel like the room around me was spinning or I was still moving when I wasn't) I went to the doctors and he explained it could be from my operation and my body getting over the anaesthetic, just a keyhole op to take appendix out. He recommended I wait and if it didn't improve within a month then to go back. I returned a month later as the symptoms hadn't improved and was put on some antibiotics to "relieve" the symptoms. When this didn't work I again returned only to be given a higher dose of them for a further month . I was then told to wait yet another month without them in the hope it would relieve the dizziness completely.

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This week it has been extremely bad and has reduced me to tears a number of times as it really frightens me. I have had a constant headache sort of behind my eyes which feels dull and almost like there is pressure in my head, for the past 3 days and painkillers aren't helping. Every time I walk, move, or even am still the dizziness appears. It is affecting my work as I am unable to be at my computer a long time due to my vision. I was told to go back to the doctors should things get worse and plan to go tomorrow evening to out of hours. I really don't think that I can wait 8 weeks for a date to see the neurologist and feel it needs to be done sooner. I have been reading about my symptoms and have no clear steer on the possibility but I am really worried at the possibility of a brain tumor as a family member passed away of this last year.

I think it's important to note that I am 21, and generally eat well and exercise regularly (not as much as of late due to severe dizziness) At the end of last year I suffered from panic attacks, costochondritis and anxiety following the loss of a close family member. Once I went back to work January this year things improved hugely on that front. I understand that anxiety is often linked to dizziness but I am struggling to believe this has stemmed from that. I now only suffer anxiety of fear of these feelings returning.

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The neurologist found a mass in my brain. Thanks be to God that it is benign. I just found out yesterday that I am cancer free. However, they still don't know what the mass is. It could be a tumor or a jelly bean I stuffed in my nose as a child. (joking) But we won't know for a while.Also it might be inoperable too. I will be seeing the Dr on the 13th for an MRI Rx. In a month we'll do the MRI and see what has happened with this mass. Is the edema gone, has it shrunk or grown? Things like that.

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I have an overall mild pressure feeling in the head, its not painful but is just very aggravating and feels really strange. I also have extreme brain fog with this and like a fuzzy head, there is a constant cloud over my brain and I never have any mental clarity or a clear head. My cognitive function is extremely poor now, my short term memory is non existent, its scarily bad. I often feel, detached from reality when the symptoms are bad and suffer from de-realisation, although I think this may be down to some anxiety and depression I experience when the symptoms run me down. I also get random sharp cramping pains in the head, they are quite painful but do not bother me so much as they only usually last a second or 2, it varies on how many I get of these each day but its usually less than 5. It often feels as though my brain is malfunctioning somehow and my cognitive function and senses are all out of whack, its hard to explain. There can sometimes be a build up of these symptoms throughout the day and by the night I can feel like I somehow how the flu without a fever? Like I have the head pressure, completely foggy headed, I feel super unwell, weak, sometimes even start feeling cold. Also have night sweats usually for about 4 or 5 days each month, there doesn't seem to be any sort of pattern to them that I can notice, so not sure if they are relevant. Another thing I have is ringing in ears which is mild but seems to have gotten worse recently if that sounds relevant at all. The main thing that gets me is the odd head pressure/sensation and the utterly life hindering brain fog, my brain feels like it is coated in a dark blanket constantly.

I do suffer from anxiety, I know many of these symptoms can be caused or made worse by these symptoms. I dont doubt that anxiety is a contributing factor and the way I think about they symptoms probably makes them worse but I have come a long long way with my anxiety, I have good control over it, I haven't had a panic attack in a couple of years, I manage to control most of my concious anxiety and stay in a positive mindset. No doubt I still have some subconscious anxiety underlying and I am working on that but I am not convinced this is the route cause of my symptoms. I am in therapy for my anxiety. I do not feel I will ever fully recover while I have these symptoms hanging over me though. 

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What could be causing these symptoms? Other than anxiety which i no can be a factor, but I have periods where my anxiety is pretty much non existent but these symptoms still build up out of nowhere and persist. I was thinking maybe some sort of allergy could be a possibility, I have tried cutting out gluten and lactose, this didn't seem to make much difference although I didn't stick to this for very long. I actually did a juice fast for 2 weeks with eating nothing other than fruit and veg juice put through a juicer to see if that would help but it didn't really give me any relief. Are there any other stomach issues that could cause this? I never have diarrhoea or constipation, my stools always float recently though, to the point of not being able to flush them, also whenever I have seen chance medicine doctors they check me out and say they think i have issues with digestion, i don't feel i have these issues but do wonder if there might be something in it. 

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Oh just to add I am reasonably fit, I try go to the gym a few times a week and I do some weight lifting. I am a normal weight. I have been losing some weight recently which is a concern but I am still in a normal weight range for height and age. 

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