Autoimmune Disease? Tooth Decay / Lots Of Cavities


Feb 17, 2014

I'm a 24 year old female. I've been trying to figure out what is wrong with me for years. Two doctors, and two dentists, suggested that I may have an autoimmune disease, but I've had no diagnosis. I am wondering what autoimmune disease in particular this might be closest to. I've had these symptoms for a long time:

- Mild arthritis in right hand (since 17 years old) - maybe once a year, my fingers unexpectedly become swollen and arthritic, and then it goes away after a few weeks. It was most severe a few years ago, when my fingers became very swollen, hot, itchy and red, but it eventually calmed down and has not since returned with the same severity. My fingers in this hand are tilted towards the side, the joints have bended a little a bit sideways. Both of my hands and fingers are always very cold.

- Chronic fatigue

- A skin rash, cluster of small red bumps, that comes and goes on the side of legs. Also get random isolated red bumps throughout the body.

- Underweight and can't easily gain, though this might be genetic. I've always been underweight.

- Hair loss (began at age 18)

- Brain fog

- Vision getting blurrier / sensitive to light

- Eyes sore and red especially in the morning

- Poor looking skin

- Chronic sinusitis for the past 3 years. No cure or known cause (allergies were ruled out) - the sinusitis and red eyes clear up on steroids and antibiotics, but come back afterwards. So possibly a bacterial cause.

- Low blood pressure, low body temperature (96.5 - 97.5 on average)

- Tooth decay. I've had a lot of tooth cavities since I was a teen. I often wonder if tooth decay is the underlying cause of all of my problems. I've had many fillings and a root canal, but continue to have seemingly never ending problems with my teeth. My oral hygiene habits are extremely thorough though, and I try my best to prevent the cavities. I do everything I can to keep my mouth and teeth clean; electric toothbrush, brushing, flossing, special mouthwash, special toothpastes, etc.

I eat a relatively healthy diet and take vitamins and nutritional supplements. I've been experimenting to find the best diet to cope with this..whatever it is. I notice my health and energy levels are very dependent on how well I eat. If I eat junk food, or even the standard American diet, I feel very ill, exhausted and can't function. I can't have "treats" like a cookie or brownie, doing so could make me feel miserable for the next 24 hours. I keep myself semi-functioning by eating as simple and clean of a diet as possible, and consuming a lot of fruit and vegetables every day, along with tea and coffee.

My top two suspicions are that this is all a manifestation of tooth bacteria, or Celiac disease. Or maybe both. Most dentists don't believe that tooth bacteria would cause such an elaborate array of health problems, but I think it might be possible. I've heard of meningitis and heart disease caused by tooth decay. All of my symptoms started after I started to get severe tooth cavities, it was after having a root canal when I began to have severe hair falling out, and from then on my health went downhill. I had a blood test for celiac by a gastrointestinal doctor and they told me the results were negative. I never had an intestinal biopsy.

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I've known since having the preeclampsia of protein in Urine causing a foamy appearance, I still have this now, and had been testing my own urine with dipsticks over the last 2 years ranging from plus 1 to plus 4 throughout the day. Virtually all morning samples negative.

Last year I was tested at my GP office and an ACR which came back at 98mg. At the Time my GP said re test in 3 months and suggested it still might be my body settling down from the heart failure etc, I continued to test myself and never want back to the doctors because basically I wanted to forgot about illness and live life without worry bringing my daughter up. Now another year later my urine was getting even more foamy, I decided to go back to my GP, I've had the following tests and have been referred to a nephrologist which isn't until the end of September:

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24 hr urine: 0.3grams (300mg)

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I have low blood pressure naturally 100/60, I'm off all heart medications, I healed quickly and came off them after 6 months of heart failure. I'm not diabetic, it doesn't appear I have any autoimmune disease such as lupus, all my bloods are normal, so is my kidney function, yet I'm still passing quite high amounts of protein.

I know only a nephrologist can help determine what's going on, but my appointment is not until the end of September, I do a lot of googling (too much information i know can make things worse!) and know that protein can continue to make the kidneys worse, I'm concerned there is an underlying condition, and even if its primary how quickly can this progress with high levels of protein? Could I get acute kidney failure? My mother has stage 3 CKD for years and passing no protein, however she is on ACE inhibitors. My GP said I will probably go on these, I was on these for my cardiomyopathy and preeclampsia and once my blood pressure returned to normal I had to come off them as I was very dizzy and light headed. So although they may help kidneys, I'm concerned I won't be able to tolerate them.

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I have no other Symptoms at all, all this came about because I noticed my urine was still foamy.

My biggest concern is that although my kidney function is still normal, is it possible it could decline rapidly because of the protein?

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