Headaches :: Thyroid Grew Nodules And Became A Goiter


Nov 21, 2015

I suppose a little history would be fitting first...I've been hypothyroid since birth (born without thyroid function), and was placed on a regimen of Synthroid for years. From there, my thyroid grew nodules and became a goiter, and at the age of 23, had to be removed completely. Since then, I struggled on the Synthroid, and finally found a doctor who agreed to try me on Armour. At first, I seemed to do well on it. I've been on Armour for about 2 1/2 years now.

Over the past year, I've developed migraine- like headaches that completely incapacitate me. For the most part, these would come on a frequent basis but I could go about my daily routine without disruption...until about four months ago. The headaches became non-stop. There is no break in the pain (the doctors don't understand this concept- they keep calling them "episodes"). The intensity changes, but the pain is ALWAYS there. I've been treated for migraines, but the medication for it doesn't work, and the pain isn't quite the same as a migraine. It's very hard to describe...almost like a twisting sensation in my skull and across my forehead.

That's not all of it. The pain gets worse with exertion. If I try to go out and run a few simple errands or do some household chores, my body heat goes through the roof- along with a lovely fever and I'm done. I can't do anything else for the rest of the day because I'm in too much pain (from the headache AND body aches from the fever).

I'd love to say I'm making this all up. But would I really put myself through all the blood work, a lumbar puncture that went awry (yes, it was downright awful), and bounce from doctor to doctor? I finally found one who had a brain in his head that said "it could very well be your thyroid!"

The biggest problem I've had is that every doctor I've seen has said "your thyroid levels look fine!" But they've only tested my T4 and TSH...shouldn't they be testing my T3 as well? I know I'm no doctor but...

I know I should be under the care of an endocrinologist, but they are really hard to find around my part of town (at least one that's any good). I just want some other points of view here before I subject myself to more poking and prodding.

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