Ischial Sit Pain - Piriformis Syndrome? Ablation OF L2, L3, L4, L5 And S5
Feb 25, 2015
I've been dealing with sit pain for almost 4 years. Mostly feels like on the bone on my left butt cheek but from time to time moves to the outside of iT (along panty line) or to the inside between bone and groin. I can't pinpoint any particular event that caused it. Been mis-diagnosed as piriformis syndrome, have had tons of injections, PT for SI joint issues, sciatica injections, ischial bursitis injections, when pudendal nerve (but didn't pursue that) & today I had RF ablation oF L2, L3, L4, L5 and S5. I've not had back pain except once in awhile an ache in lower back & hips feeling out of alignment (probably self inflicted trying not to sit on my left butt cheek). Anyone else having the same issue or found a solution?
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I cannot find any doctor to help me. It started in November .. I thought I was having some back pain and went to the DR and found out I had a UTI. I was optimistic I would take the antibiotic and all would be fine. Well after I completed the Cipro the UTI was still there. They switched me to Macrobid and it cleared up. I continued having the pain in my back, hip and near my ischial tuberosity (sit bone). The sit bone felt very tender upon palpation and when i would press on it, it would also then initiate an anal reflex. (I think a sphincter is somewhere around there). I have gone to orthopedic doctors, and I have an appointment today with a Urologist as the UTI has come back twice since then. It all seems interconnected. I also have these shooting pain up and down my labia ... to my hip as well. It is all on my right side as well.
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Has anybody been diagnosed with this? I went to see a different consultant yesterday one of the top ones at my local hospital and i'm going to be having a hysterectomy and prolapsed bladder repair but for the first time ever he mentioned he thinks I could have PATSS! It does explain a lot of my symptoms, I also have endo and suspected adeno and all this has come about since I had Endometrial ablation 4 years ago and sterilised 12 years ago.
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I've been having pain sitting, standing, & walking very far (at all) for over a year now. I had a spinal fusion done at the L -5/S -1 level back in 2002, & my docs keep close tabs on my back. I've had a tiny tear in the L-4 for many years, but most the docs feel my current problem has absolutely nothing to do with my spine - I agree. I have been diagnosed with a hip labral tear in my right hip socket about 4 months ago, but not bothered enough to do the drastic surgery. Doc injected left hip socket due to pain, but again, not my main problem.
I've had physical therapy (which aggravated the left socket), steroid injections into the ischial tuberosity bursa (both sides) - due to the doc thinking probable ischial tuberosity bursitis, which it is not, & am scheduled for an EMG down both sides of my lumbar spine (I hate those tests - they really hurt!). Meanwhile, I've been working with my chiropractor who does adjustments, percussion massage, iontophoresis, & cold laser treatment on me twice a week.
NO ONE knows what this is, WHERE to send me, or how to FIX it!
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I am having sciatica pain in my butt cheek/back of thigh only. I can walk and stand just fine with no pain at all. The thing that I cannot do is sit. The pain is horrible if I do. Does this sound like a slipped disk or piriformis muscle? Going to see an orthopedic Dr soon. What is the usual rx for this? I have been going to a Chiropractor and doing all the stretches but it's not helping. One can only stand and walk for so long. I would love to sit for more than a few seconds.
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I have been suffering from pain on the gluteal region (it worsens when sitting), sitz bones (ischial tuberosity), upper thighs, lumbar region and feet (calcaneum) for almost 2 years now. I'm 26, have always been healthy, but I have to say this condition is affecting my quality of life SEVERELY.
I have researched a lot about my ailment, read many scientific articles, have been to almost 50 doctors and still I haven't received a proper diagnose. I have already done many exams to investigate the source of my pain, namely: MRIs, CT scans, electroneuromyography of the perineum/legs, dozens of urine and blood exams, etc.
I (together with some physicians and physiotherapists) have come up with some diseases which are compatible to the symptoms (burning pain on the pelvis, ischial tuberosity, perineum, pubic bones, upper thighs, calcaneum), such as:
1. Pudendal nerve entrapment (negative result after an ANGiography)
2. Ischial Bursitis (negative after a MRI scan, no bursas inflamed)
3. Hamstring Tendinosis/Tendinopathy (negative on MRIs)
4. Prostatitis (no bacteria detected whatsoever, although I have taken antibiotics - PSA normal)
5. Autoimmune diseases (Reactive Arthritis, Ankylosing Spondylitis - negative)
6. Lyme Disease (inconclusive, took doxycycline for 3 weeks though)
7. Irritable Bowel Syndrome
8. Sciatica/Piriformis Syndrome (hypothesis ruled out after intense physical therapy, pilates for over 11 months)
The only exam that showed something not normal was a discreet enthesitis on both heels (calcaneum). That's why rheumatologists thought it could be some autoimmune disorder. Apart from that, everything seems pretty normal. My vitamin D levels are low too, but I have started taking vitamin supplements and my vitamin levels (not only D) are almost close to normal.
I was wondering if someone with similar symptoms have already received a light on that. I have visited a lot of forums on the internet with ppl complaining about the same things, but never read/learned about someone who received an ultimate/precise diagnose., nor did I found anybody who actually recovered from that.
Medication taken to date: Lyrica, Prednisone, Cymbalta, Ciprofloxacin, Doxycycline, Arcoxia, Sulphasalazine, Fluoxetine, Naproxen, Cyclobenzaprine
I have recently started a new treatment called Prolotherapy. I've read it is a helpful technique for chronic tendinopathy.
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I've had this nasty problem for almost 5 years now. I was in a severe vehicle collision where I fractured my L1 vertebrae, and then about 6 months later, I started getting this nagging pain in my left sit bone and down my leg.
I was misdiagnosed for the first 3 years of it. At first they thought I had piriformis syndrome ( which is most doctor's first diagnosis since it sends pain down the sciatic nerve. I did 6 months of rigorous physio/chiro/needling to attempt to fix the pain, but nothing helped.
Then they thought it was a bulging disc radiating pain down my back from the injury.
All the while, my pain was getting worse and worse. Taking more and more pain medication. Getting heavy into the opiates. Then after losing my career in the military, and after a year of wasting time. I finally got in to see a spinal specialist. one who teaches around the world and after 5 minutes of asking questions and a couple of manipulations, he diagnosed my with Ischial Tuberosity bursitis.
While I was happy to finally KNOW what it was. It hasn't been fixed. I get cortisone injections every six months, and unfortunately the relief is is not the best. I am taking a Fentanyl patch for consistent pain relief.
It sucks that a pain in my butt is a constant in my daily life. It's depressing and it makes it so i can't live like a normal person....doing normal things....movies, dinners, socializing, driving... etc.
All I do, is try to keep on moving......moving....trying to stay flexible...doing my stretches....trying to keep in decent shape and health.
If anyone wants to chat about their issues with Ischial Bursitis, I'd be glad to. Or if anyone wants to know about treatments etc....ask away.
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I am French. I’m 28, it’s being 2 years and a half that I have blood in the urine with horrible pain.
I had 3 ureteroscopies who have given nothing and now the professor who follows me told me I have the loin pain hematuria syndrome, and there was nothing to do. The only thing I can do is to wait till it’s going better. He refuses to make a biopsy and told me to take aspirin.
I wanted to know if you know doctors who offer other drugs. I've heard of self transplantation and kidney innervation;
I've been in different hospitals and doctors tell me that the pain is bearable and advised me to consult a shrink. I do not think my pain is psychic. I wanted to know if U.S. medical research is more advanced than the French one.
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I came across this syndrome when searching the Internet about extreme pain I have when I take the first bite EVERY time I eat and sometimes drink. That this could be a symptom of this syndrome but I don't know. I do have some of the other symptoms, i.e. neuropathy, blurry vision, muscle pain, fatigue but these can also be associated with Type 1 Diabetes which I have. Also, came across parotid/salivary glands are affected which also can cause the jaw to ear pain I'm having. Has anyone heard that the Coxsackie virus can have anything to do with it? How do you know for sure if it is Sjogren's and what type of doctor do you see about it - a primary?
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I just started reading about this and it really sounds like I may have this but I'm not sure. I have headaches sometimes that are awful and seem to start from my neck and back of my head. I see a chiropractor once a month and my x rays showed problems in c5 and c6 in my neck. I also have notalgia paresthetica which itches me too death sometimes in my right back shoulder. We figure it's caused from the c5 and c6 in my neck. I never sleep all through the night, always tossing and turning. And I feel fatigued ALL the time no matter how much rest I get. I had a blood test and my vitamin D is low. I can find "knots" on my back, usually I can find about 5 or 6 of them, even on my sides. I work a very physical and mentally stressful job and this causes me a lot of pain. When I am working usually mid day I will get a horrible sharp pain somewhere in my back and it just stops me. It's like someone taking a hot knife and stabbing me with it. It's hard for me to straighten myself up. My pain is in my mid and upper back, rarely ever in my lower back. I do get dizzy sometimes also and feel off balanced.
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I had my tubes clamped 13 yrs ago and then had an ablation almost 2 yrs ago due to heavy periods and cancerous cells. Since the ablation I have not had my period. Now I am in a lot of pain almost like really bad cramps for two days now this morning I woke up went to the bathroom and a good amount of blood came out of me and have had a constant flow of blood since then. I am scared because I have had 3 miscarriages in the past. One before the ablation and the other two since the ablation, within months of each other. I don't want to go though this again, I am newly married and my husband does not have any child of his own and we have went through two failed pregnancies together and I don't want this to be happening again.
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I am 29 yrs old and already have a 4 yr old. I have had my tubes removed and an ablation. Me and my future husband would like to conceive a child? Is that possible?
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Me and my boyfriend would like to try to have a baby . im 28 yrs. old and i have 3 kids already. i had my tubes cut and tied and burned 4 yrs ago when i had my youngest and about 2yrs ago i had a ablation ( the lining of my uterus burned) cause of heavy bleeding and i never got my monthly monster before that and now i get it every month . i was wondering if i get my tubes reversed is it possible to still get pregnant?
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Have had TMJ Dysfunction for many years which was controlled. Then 12 months ago symptoms returned and did not respond to usual methods of treatment. At the same time had some kinesio taping for back problem. 3 days later my whole body went into spasm . I have muscle spasm pain , tenderness and trigger points. Attended acupuncture , osteopathy and had exercises and foam roller. Work was getting worse and was struggling in with great difficulty in pain . Last October virtually collapsed and had to retire. Went to local Hospital Dental clinic who said I had MPS as well as TMJ. Gave me exercises for jaw. January 14 also in pain from damaged nerve from operation 30 yrs ago wisdom tooth extraction. Have pain and Tinnitus taking pain killers muscle relaxants also having massage. Feeling lost. You have to have this MPS to know what it is like. Can anyone advise on coping strategies?
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Hi, my eleven year old son has been diagnosed with SVT. He has had one attack, over a month ago, that lasted over an hour and resulted in a trip to the ER. We were referred to a cardiologist who recommends ablation. I am worried about the risks of the procedure versus the risks of just waiting it out, seeing how frequent and/or severe his attacks become.
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Is it possible to get pregnant after an ablasion and with no tunes due to a tubal twin pregnancy
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I am a 29 year old who 6 months ago had both my tubes tied and an ablation i have still had my period every month since i did this and have in recent months lost a lot of weight and have been feeling sick with everything i do and eat for a few weeks now i have very tender breasts as well and am concerned about being or falling pregnant again i have 3 beautiful girls my youngest being 6 and my eldest being 12 but made my choice due to the trauma of losing babies hand over fist with my last partner , my new partner would love me to have a baby but i am very worried about the health risks to both me and any potential baby who do i speak with about this as my gp is no help here at all and neither is my rn do i need to try and get hold of a specialist ?
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3/21/13. Just for reference, I'm 48 with 2 kids and have never had any health problems of any kind. 71 days ago, I had a fibroid resection by hysteroscopy followed by a Novasure balloon ablation - and haven't had a single day without either spotting or bleeding since. I'm very upset - and am wondering if there are others out there like me? I'd love to hear what kind of followup information you've gotten.
I'll try not to write a novel (knowing me, it'll be close), but here's how it all went down: in December my doc ordered an ultrasound to look into why my periods had gotten heavier over the past couple of years. I didn't bleed for very long (4 days exactly every 28 days) but I bled a lot and it was getting to be sort of worrisome, not to mention inconvenient, and while I was only borderline anemic, I was often tired and got out of breath easily. The ultrasound showed a small, submucosal fibroid (only about 2cm) so my doc referred me to a Seattle hot-shot gynecological oncologist to remove it. Because I have always taken a conservative approach to my healthcare, I asked my doc if I really needed to remove this thing and she proceeded to terrify me with a story about one of her patients whose fibroid had prolapsed and she'd begun to hemorrhage and ended up in the ER, after having nearly bled to death (she'd told me the same sort of horror story when I wanted to try a vbac after my first c-section - needless to say, I went ahead with the second c-section - AND the fibroid removal).
So I went to see this hot-shot. After he explained in detail what he'd be doing to get rid of the fibroid - going in vaginally to re-section with a metal scraper thingy then using a roller-ball to cauterize the site AND my entire uterus, I realized he was describing a second procedure as well... an endometrial ablation. I didn't actually understand this until I was sitting in his "library" (don't all hot-shot docs have Libraries?) waiting for my pre-op instructions from the nurse. I saw those two words: endometrial ablation on the consent form and realized that was the procedure my doc had been trying to get me to do for a couple of years and I'd always declined (in her office, they use the Her Option procedure so I'd not known it by any other name. I'd said no several times over the years. My period's not THAT bad. Like I said, I take a conservative approach. So anyway, here I am realizing the hot-shot (who actually specializes in female cancers, not necessarily fibroid removal and endometrial ablations) has tacked on something I didn't want done, without asking me, without explaining to me, without giving me any literature about it nor briefing me on possible risks or complications. So I called him back into the Library and asked point blank: "Is this something that needs to be done?" and his response: "Well yes, see, we want to go in there and do this now so we don't have to go back in in two years"... Now, I took that to mean this rollerball procedure was necessary for the successful removal of the fibroid and would prevent others from forming in the 4 or so years I have until menopause. So, once again, I fell in line with blind faith and went ahead and let them schedule me for surgery.
The fear was the worst part of the procedure. I'm not that comfortable with hospitals and even the idea of general anesthesia makes me sweat (I'd never been all the way out before) - but all seemed to have gone well because I woke with essentially no pain and no bleeding and laid low for a few days (which I never let myself do so that was a luxury). The only complaint I had at that time was that while I was coming back out of the anesthesia, hot-shot went out to the lobby and told my waiting husband that I was to be on pelvic rest for 4 weeks (news to me) which meant no sex (fine - hey, my husband and I have been married for 18 years, what's 4 weeks?) but also, no riding my horse (not so fine). He'd never mentioned that I'd be grounded from the saddle - my horse and I are in training. It's kind of a big deal to suddenly stop what we've been working toward for a month. I was upset - why the hell didn't he me this BEFORE the surgery (we discussed my equestrian pursuits during the consultation appointment)? But oh well - I scraped together the pennies to pay my trainer to ride my horse while I recovered.
But it was on the 5th day that I began to feel I'd been hoodwinked.
It was an easy day at the barn - no riding, just grooming, bending over to pick hooves and lifting the blanket up to slide it on and off my horse - when I suddenly felt a GUSH. When I checked, I found that I'd just bled about 2 tablespoons worth of pink/red blood. Because I'd been given nothing to read, no handouts, no followup literature or online links to help me know what to expect post-procedure, I called the office to ask if this was normal. The assistant who answered (she was apparently brand new there) decided it was probably that my "sutures" from the fibroid removal had dissolved and sometimes there's a gush of blood after that happens. Not to worry unless I started flooding a pad in the space of an hour. I was only spotting by that time, so I tried not to worry. But from that point on, I started doing my own research and was HORRIFIED to discover SO MANY negative after-effects of this procedure! I felt like kicking myself for not digging deeper beforehand - and mostly, for being so careless with my own body that I put it wholly and completely in someone else's hands, hot-shot or no.
During this research, I discovered that an ablation has absolutely nothing whatsoever to do with whether or not a fibroid removal is successful. And it certainly doesn't prevent the recurrence of fibroids. I hadn't needed to have this done. I'd gone into this whole thing completely uninformed. I actually wrote hot-shot a letter outlining my dismay at the lack of information I was provided prior to this surgery. I was upset and I let him know it. I let my doc know it, too. After all, she was the one who referred me - and she sent me to him specifically for the removal of the fibroid - NOT for an ablation. But, I figured, hang in there. What's done is done and he said the worst that could happen was that I would still get a period. Since I actually hadn't gone to him intending to get rid of my periods - only to get rid of a fibroid - that didn't seem like a very bad worst-case scenario to me...
Well - it CAN get worse. And it has.
During my follow-up visit at 5 weeks (at which time I was still spotting daily and had already had a post-ablation period - which was about 2/3rds lighter than my pre-ablation periods - still more than any of my friends bleed when notes were compared, but lighter for me), I learned that hot-shot didn't end up using the roller ball after all. He said after he removed the fibroid, my uterus looked so smooth and well-shaped that he used the global method of a Novasure thermal balloon instead. So not only had he not gotten my INFORMED consent to even DO an ablation, he didn't use the technique he'd told me he was going to use. Next - I found out the assistant who took my call on day 5 was mistaken - that gush of blood couldn't have been from sutures dissolving - because I didn't even HAVE sutures! I was starting to have a very bad feeling about this...
And my gut was right. Hot-shot called last week to see how I was doing and I proceeded to tell him that I haven't had a single day since surgery of NO blood (that's 71 days today!!). Some days are worse (like around ovulation when I dump a bunch of brown, mucusy stuff over the course of 5 or 6 days - sorry, TMI - and have to wear tampons to keep from having embarrassing leaks) while about three days a month consist of just a tiny bit of pink or tan on the toilet tissue. Every other day is blood. Pads. Tampons. Using them all.
Turns out, this isn't normal. Surprise surprise. He tells me: "Of all the patients I'd especially want this to work for, it would be you since we sort of got off on the wrong foot." Yeah. No sh*t. Alas - not the case.
Not only did it not "work", but it has made my life worse. Where I bled for 4 heavy days once a month before - and always on schedule - I now never know when a gush is on its way and I have cramps with nausea at least half the month (I didn't have cramps before this. At all.) I wear either a pad or a tampon at all times and sex? We weren't worried about 4 weeks. But 10 weeks is starting to feel like some kind of sentence.
I'm scheduled for an ultrasound in a month to see what's going on. Hot-shot wants me to go through a third post-ablation period first because, as he put it, "if I look into my crystal ball, I really feel this is all going to clear up on its own." But his next guess is this: the balloon didn't properly cauterize the site of the fibroid removal so it is still an open wound and just as it starts to heal, the shedding with my period proceeds to slough off any scab that might have formed. On top of that, the reason I'm still having a period, his words: "sometimes the balloon doesn't reach all the way up to the top of the uterus and some endometrial tissue can be left behind." Really???? Then why the hell use it??? Why didn't he use the roller ball he told me he was going to use? If these turn out to be the reasons for the continued bleeding - guess what? We do a repeat procedure. Hospital again. General anesthesia again. A month off my horse again. $30,000 again. Seriously, this all cost $30,000! We would then be hitting $60,000 - for something that really never needed to be done in the first place. Unbelievable!!! And we wonder why our health care in this country is in such crisis??
The whole thing was not only a bust, but has rendered me a slow-leak mess. I've been keeping a daily diary since day one and I'm exhausted. I'm sick of having to write down every dribble, smear and gush. I'm tired of describing all the different colors. I'm discouraged, depressed and angry. I feel like suing for malpractice. Some hot-shot, huh?
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Especially after an ablation? They are recommending that a few months after the ablation
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Has anyone else been diagnosed with this condition? I shall explain! for 10yrs i've been told i had arthritis in my right hip and right hand giving me chronic pain, only to be seen by 5 different doctors due to a recent change in location and investigations i've now been told i have , mild osteoarthritis in my right hip and the joint between my thumb and index finger.
Not only that but all differnet 5 doctors have said it was different things. seeing my own doctor today, she said (or applied) that the pain might be in my head, then to turn round and say that she was certain that i had A chronic medical condition and what it was she was unsure of.
Is this Chronic pain syndrome another name for they havent a clue whats going on?
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I was diagnosed with fibromyalgia about 18 months ago and I'm having a really bad flare up at the moment and still trying to work full time! I'm a beauty therapist so I Found I don't go in I let people down! I'm struggling to walk and my back and wrist is really swollen, I'm taking nurofen and paracetamol but they're not touching it.
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