Lichen Sclerosus :: Fusion Of Labia Minora And Majora


Dec 16, 2015

I am 33 years old and have just been diagnosed with LS.  I also have been diagnosed with vitiligo.  I really have no symptoms other than loss of color and a little bit of fusing of my minora to majora.  The doctor prescribed me Clobetasol to use twice a day and then he said we will monitor it and eventually use it twice a week.  Since I have not experienced pain with sex and my opening is good he told me to continue having sex.  I have really read nothing but horror stories online.  The doctor made it out like I will use this cream and it should control the LS.  I know this a life long diagnosis and there is no cure.  My question is...will my LS progress even with treatment?  Plus, what is a flare up? 

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When I received my diagnosis a month or so ago, I spent a lot of time reading this forum and learned an overwhelming amount of information. One post that stood out was someone who had managed to somewhat reverse their fusion with a baking soda spray treatment. I can't find that post, or remember what thread it was posted on, and I'm hoping someone can point me in the right direction. If there is anyone else who has managed to reverse their fusion.

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Lichen Sclerosus :: Labia Fusing

When I was diagnosed last month I had fusing toward the back of my labia minora to my labia majora. When looking today the fusing is getting worse and I almost have no labia minora. I am very upset tonight. Will it ever unfuse or is it gone forever? Freaking out!!!!

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Lichen Sclerosus :: Redness, Itching, Fusion / Adhesion And Use Of Steroids?

We are raw, irritated, red, have tears, hurt, sore, itch, and have white patches. We also have fusion and disappearance of some of our parts. Just by looking you can see it all happening except the fusing and disappearing parts.  It seems adhering occurs when you don't know..it just appears one day. Is it occurring when we itch or when we are raw and irritated?  Do the white patches causes the adhering and covering over our parts?  Does the fusing happen at the white patches or can it happen anywhere else on the vulva where we don't have redness, white patches or itching ?  Then do we use it all over the vulva when we are free of flare-ups and using steroid once week?   When we are free of a flare-up where to we use the cream?  Do we use it where we had the irritation ? Do we use it where the scars are and the fusing is even though we are flare free?  I read we use the steroid to prevent further scarring and fusion, but I'm still not sure if the fusion is the result of the other symptoms and when we do maintenance with the steroid where do we put it?
 

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Lichen Sclerosus :: Clitoral Fusion Narrowing Of The Vaginal Opening - Remedies?

I have been diagnosed with lichen sclerosus in addition to vulvodynia. My main symptoms are clitoral fusion and narrowing of the vaginal opening. For some reason I haven't been able to find a steroid cream that I could use that doesn't cause me a horrible vulvodynia flare (feels like my entire pelvis goes into spasm) and was wondering if anyone had alternatives they use that have helped with this symptom.

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Lichen Sclerosus :: Fusing Labia - Coconut Oil / Baking Soda Helped

I have suffered for 33 years with this disease.  I am 76 yrs old. LS is an autoimmune disease and a health person told me for a true autoimmune

problem is that you had to have 3.  I have arthritis, Ls and thyroid.  Jus over a year ago I had to have the thyroid removed (cancer) . That is okay now. But listen to this, The unbearable constant burning itch has all but disappeared.  There is still some very mild discomfort around the anus.  The fusing was so complete that I lost the clitorus first and than the labia minora and the labia majora was starting to disappear.  But with the regular use of coconut oil and spraying after bathroom use with water and baking soda I now have rather normal looking labia and normal colour.  i was white, gray, purple and bumps. Only the clitorus has not been uncovered but sensation is still there.   I am just very slightly  white at the entrance to the vagina both front and back.  I wish i had Known about these treatments years ago. 

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Vagina :: Lump On Labia Majora?

I am a teenage girl. I take pretty good care of myself and usually have no major issues. However, a few nights ago I noticed a small bump on my labia majora when I went to the bathroom. Besides minor soreness to the touch, I didn't notice anything out of the ordinary, so I assumed it was just an ingrown hair or pimple and vowed to deal with it in the morning. When I woke up it had grown and was more painful.

It's been only 3 days since the initial sighting and it has multiplied in size. It's also become more painful. (I'll post symptoms below)
I've taken sitz baths, thinking it may just be an abscess or something, but it won't come to a head, and honestly it doesn't feel fluid-filled at all. (I had an abscess on my shoulder last month) The lump is now covering my clitoris, I have to move it out of the way to wipe properly (ouch).

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After having a hot soak this morning it appeared to have had a pin prick sized hole and yellowy fluid started seeping out. I'm unsure if I should continue squeezing it to get the pus out, or put some tissue on it and wait to see a doctor.

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Vaginal Health :: Lump In Labia Minora

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