Macular Hole - Visual Loss Coming And Going? On Jetrea
Jul 20, 2013
18 months ago I started getting blurry central vision in both eyes at the same time - it wasn't there all the time but when it was happening I found it very hard to do fine work.
I saw an ophthalmologist who did an OCT and retinal exam and found nothing. He suggested it was neurological so I had an MRI of my brain and orbits but nothing was found to explain the problem.
In the last three months I found that the problem had become permanent in my right eye - I could now see a faint central ring that pulsated with my heartbeat on that side. I went back to the ophthalmologist and he diagnosed a stage one macular hole. He didn't think the previous loss of vision was connected to this. He has advised me to wait and see if it gets worse but I am considering doing the surgery anyway - maybe trying the new drug Jetrea first which is very expensive but which is said to help a small number of patients.
Has anybody had a similar experience - with the visual loss coming and going? Anybody tried or considered trying Jetrea?
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I might have had 2 or 3 mild headaches in my life.
6 months ago i had most of my pituitary gland removed due to Cushing's Disease.
3 months ago i had a visual field test that showed possible swelling around the optic nerve.
6 weeks ago i started waking with headaches at about 4.30am ! i would sleep more then wake later with less of a headache but when i stood up i would get a whooshing sound in my ears and a throbbing in the top of my head. i told me GP. She said its normal when you first stand up ( Normal My #$$, if it was normal wouldnt it have been happening all my life, anyway i digress lol ). So i had these headaches, i got blurred vision and my blood pressure went up to 234/127. So off i go to hospital for 4 days.They played around with my blood pressure meds and sent me home. I still had headaches, blurred vision and my BP was 180/105( now on 4 different BP meds ).
2 weeks ago i went and had a repeat of my visual field test. The Opthmalogist wasnt too happy, basically told me one quadrant of my vision in my left eye was gone. Said he would speak to my Endocrinologist !
2 days later i noticed what i can only describe as a smudge in my vision...very annoying, but not painful and yes i can still see. but im not driving, im too scared to. I drove one day and as it got darker i couldnt tell where the other cars on the road were, kind of a distortion thing i guess
My Endocrinologist rang the next day and said i need to go for an urgent MRI...so i did.
That was 1 week ago. i have had no results, no phone calls. But i did get a letter advising me i have a Neurology outpatient appointment on 13th october ! i rang to confirm as i was waiting for an endocrine appointment. Hospital said, yes, the neurosurgeon refered you to neurolgy following your MRI. Hmmm thanks for that.
So now im trying to guess whats going on. Did my MRI show up something, if so what?, if not then why am i being referred to neurology?
I hate being in the dark. Yes i know i only have 2 weeks til i find out, but 2 weeks is hell when your second guessing.
Summary : i still have headaches ( they are for the most part mild, throbbing when i stand followed by whooshing in ears), vision has maybe slightly improved in last 2 days but still not normal. Blood pressure is still sitting around 180/105
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have been prescribed Oxytetracycline for my cystic acne. 250mg thrice a day for 20 days and then 250 mg twice a day.
I have read on internet that it causes vision loss or impairment in some patients and scared to start the treatment.
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I really don't know if the hole is above, on, or right below the clit. I finished shaving and I was checking to see if I truly shaved well and I saw something white coming out my clit and it had some hairs stuck on it. I pulled it out and saw the hole above or on my clit. This whole situation is to crazy to deal with. The thing that came out was hard and white and there was a little bit of pressure when I pulled it out.
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About a week and a few days ago,this white,sort of hole like white spot came on my top lip,like on the fleshy part in the mouth,and its been getting bigger and is painful. This has NEVER happened before and i'm really scared and I just want it to go away.
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Does anyone know why this could be. I've only recently started retracting my foreskin (I'm 18)- and have noticed my meatus is swollen at the bottom, especially on the left side. It is so swollen that it sticks out. I can't retract my foreskin back far - I think this is because I have a very short frenulum (aka banjo string)- so I was wondering if the aggravation is because my frenulum is pulling the meatus. My meatus doesn't sting or burn although it is very sensitive.
Btw-it's definitely not an std & my penis doesn't have a lot of discharge or strong foul smell.
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Okay so this is a problem i've had since i can remember. This hasn't been affected by being sexually active so its not a STI/STD.
The hole in the top of my penis, where i pee from, its swollen. It hurts to touch but DOESN'T hurt to pee from.
The head of my penis is also slightly red and when i touch it it also stings. Unless my foreskin is pulled back and penis exposed, i can live with it. I have done for many years. But i've decided today im going to get his problem sorted.
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Yesterday a rheumatologist diagnosed me with GCA and, in an attempt to remove any threat to my sight, put me on 60 mg of prednisone immediately. He based this on the PMR symptoms and some visual symptoms.
He advised me to see my eye doctor. She did not see anything at all in my visual symptoms characteristic of GCA. She was surprised and disturbed that he made this significant diagnosis without more blood work and a biopsy.
Now that I have been on the prednisone, though only 2 days on 60 mg, the inflammation will be gone and there is no way, she says, we will ever know whether I really had/have GCA.
She will talk to him today to see if he had any other information she does not know about.
I'll trust my GP to sort out the best thing to do. I certainly am not staying on 60 mg of prednisone a day longer than I have to!
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I have this white hard bubble right by my butt hole and it don't hurt and its not a pimple its been there for years it hasn't gotten bigger or anything but I'm worried about it's the size of a pea.
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24 year old and yesterday my hysterectomy has been agreed by two gynecology professionals one of them being the surgeon
And I have also had my pre-op assessment and am now just waiting for a date however the surgeon has said he will perform the surgery by robotic assisted key hole surgery.
And I was wondering if anyone else has had this type of hysterectomy and any I formation....
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Why is my vagina soo loose and swollen and looks like ground beef, like my vagina is falling apart in the hole and produces white stuff where it looks like chunks are missing. Im only 15. And don't have much sex at all. Maybe like 5-10 times ever.
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I was diagnosed 5 years ago as a paranoid schizophrenic. I have allot of auditory hallucinations, but never once a visual one.
A week ago when I was in my room I stared at the ceiling, I have a wood one. Suddenly the marks and patterns on it started to move, then dance. I just thought that I must have been tired and went to sleep.
Since then it got a little worse. Every night the ceiling would dance for me. Then inanimate objects would start to bend and move around. The weird thing is that when my keyboard against the wall moves, the shadow casted on the wall by it, moves with it. I found this a bit odd.
Tonight was the worst case. The blanked on my bed puffed up and moves around, exactly like there was a dog underneath. My closet door handle would move up and down while the closet opens and closes, with no sound.
When my laptop's light went down and I stared at my own reflection, things got weird. My reflection's hands would move while I am sitting still. "He" would blink when I do not. Then my whole face started to change. It puffed up and my hair was longer. When I turned my face one way, he turned a different way and started smiling at me. And our eyes never made contact. When I looked into "his" eyes, he would look to the sides or roll them back.
Because I have had this illness for a long time I didn't go into a panic as I kind of got the jest of what was going on.
Since this was my first visual experience, I just want to know if this is the "norm" of it. I did not see anything that was not there, just things moving and getting distorted.
And does anyone know if the visual part can come for the first time after me having this illness for so long?
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This is something I remember having as long as I've been paying attention to my vagina. But, I'm not sure if it's normal that just above the vaginal hole (inside my labia), instead of going in, my vulva (I think that's what it's called) goes out and there are tiny rough lump things.
I have ignored it until now because I assumed that it was normal. It isn't very noticeable or discolored or itchy - but if i rub it or touch it too much it is ever so slightly sore (but that could just be because the vagina is sensitive?).
Also, very occasionally I experience a very faint, not painful burning-type sensation when I pee but I always assume it is because I haven't had a shower in a while and it usually goes after I wash.
Oh, and I get a lot of discharge, too. I think this is normal because it isn't a weird color or anything but it comes out in a big lump sometimes if I haven't gone to the loo to wipe it off in a while. I wear black underwear and it appears white on top of that.
I really don't want to go to the doctor unless completely necessary, but could someone please let me know if I'm going to have to see a doctor or if it is normal? By the way, I'm a complete virgin and haven't ever had any kind of oral, penetration, or anything else, sex. But, I have masturbated.
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I'm 14 i had for about 3 days now!!! I don't know what to do when i sit it hurts but only when i sit it's almost covering my whole anus hole, I'm embarrassed of telling any one, I don't wanna trouble my parents either, should I pop it, what should I put on it, can I use hydrogen peroxide. This lump I have is pea size skin colour unnoticeable even when I poop( I know don't judge) only when I sit down, what are the procedures, how can I avoid this or is it permanent......
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Just out of interest, I get the following, although somewhat reduced by my current medication (quetiapine)
1. Flashes, peripheral disturbances;
2. Illusions -- shadows morphing into animals / people;
3. Seeing what I call 'black rats / cats';
4. Spiders on your desk...;
5. 'Throbbing' objects such as keyboards;
6. Seeing people on the street who just vanish into thin air;
7. Seeing people morph into skeletons
8. People faces screaming at your window...
9. People walking into your lounge you know but are dead / or miles away
10. Talking to people who aren't there.
Fortunately my medication stops at about number 6.
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Recently I have been diagnosed with a daily type of migraine which causes imbalance, dizziness and visual blurring although I don't always have a headache. The doctor put me on nortriptyline 10mg once a day at night. I'm on my second day and my dizziness and visual symptoms have gotten far worse? Is this normal and does it go away after a while? Feeling rather panicky as I struggle to even go to the shop. Nothing feels real. Any advice out there?
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I have been on Oxytetracycline for the past 3 months to treat acne on my back. It seems to be beginning to work now but I have a problem in that my sight has degraded quite rapidly in the past 4 months. My optician did say there is a chance this could be linked. I have done a bit of research and sight variation is a rare side effect of this medication. Does anyone know if this would be a temporary variation on a permanent deterioration?
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I've had migraines throughout my life. Mine really peeked in my early 40s going through peri menopause they would be 3 days long. Now the painful migraines have gotten so much better and shorter. I also use Imitrex as needed.
I would also get an Ocular Migraine (visual disturbances such a bright zig zag lines, vibrating bright lines in vision) about every 4-5 years. They were checked out the first time and the doc said they were not harmful.
Recently my dog decided to put me on Atenolol to prevent migraines. After 3 days of being on them I started to have the Ocular Migraines every single day now! I've never had that happen. The Atenolol has stopped the painful migraines completely but I don't think I can handle something like an LSD trip every single day. This doesn't seem right. My doc doesn't think it's causing it but suggested I go off of it to see.
Anyone else with Ocular migraines?
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A little history on me: I'm 21/F. I have generalized anxiety, panic disorder, depression, PCOS, TMJ, and IBSD. These are all issues I have been dealing with. Medication list: Prozac (20 mg). Vitamin D (5,000 IU). Vitamin B12 injection (once a month). Iron (324 mg). Birth control. Ativan (.05 as needed).
My vision has changed since the beginning of this year. I now see small, clear halos when looking at bright, solid surfaces (such as the sky, walls, etc). I also see an odd wave, jelly-like substance when looking at similar surfaces. When I squint my eyes, I see a line of 20 small dots. All of the floaters I have mentioned move in an odd way, like they're falling. When I try to focus on them, my eyes make the floaters "jump" back to the top of my vision, only to begin falling again. These always look different (never the same spots or lines) and occur in both eyes. When I am focusing on something, such as the TV, I see random dots in my peripheral vision, but when I look in that direction there is nothing there. Went to the eye doctor, said everything looked fine, I am nearsighted, and any disturbances were ocular migraines. I have had three ocular migraines, where I can very clearly see rainbow lines in my vision. These occur when I have gotten very worked up/anxious and only last a few seconds. The floaters I have previously mentioned occur ALL the time. I can look at the sky at any time during daylight, and see them. Brought these issues up to my general practitioner and said this was nothing to worry about, but keep an eye on it.
When looking down or look around quickly, I feel a visual dizziness and off-balance.
PLEASE, if you have any information on what the possible causes of these disturbances/floaters could be, let me know. My doctors aren't worried, but I 100% am. I'm young, why am I having eye issues? I don't wear contacts and only wear glasses when driving.
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I have suffered with a so called anxiety disorder now for about 6 years. It started when I was on the train home from university and all of a sudden I lost some of my vision, felt very light-headed, pins and needles all over and thought I might pass out. This was the first time I had ever felt like this and before this incident, I was a very outgoing and independent person. However, since this I have has 6 years of constant, 24/7, light-headedness with severe panic attacks. I cannot go out, I cannot be left alone so my life is basically non-existent.
I have had every medical check there is - bloods, MRI, EEG, ECG - and all sorts of differing meds - citalopram, sertraline, lamotrigine, pregabalin and the list continues. All tests have come back negative and none of the meds have made any difference really. I have also had many diagnoses - depression, GAD, depersonalisation disorder, agoraphobia and even an inner ear issue. I have had counselling, CBT, hypnotherapy and all haven't made a difference.
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I am now over a year from retinal tear/ pvd with a mass of dark floaters/ cobwebs/ Weiss ring in my visual axis.constantly blurring my vision. Makes everything a struggle and exhausting. My ophthalmologist agrees they are extreme and is willing to do a vitrectomy - I am so tempted to get this done, but at the same time very apprehensive. Would love to hear any thoughts.
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