Meniere's Disease :: Significant Hearing Loss?
Jul 13, 2015
i have had Meniere's for well over 20 years. In the early years the attacks were horrendous and frequent but gradually settled down to one or two a year. More recently they have returned with avengence. This is not the normal pattern of the disease from what i have read. Also my hearing remains almost perfect despite having suffered with tinnitus daily from the onset of this disease. Obviously i am grateful for this but was just wondering what pattern the disease is taking with others? Has anyone noticed significant hearing loss?
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In Jan 2016 I experienced minor episodes of vertigo on a near daily basis, which I believed was remnant of motion sickness during a traumatic sea crossing! I noticed they continued weeks after and seemed to correlate with instances where I was feeling stressed. During this time I moved to the other side of the world and began a new job. I was previously living at 2800 m and spending my weekend’s alternating between the high Andes and the beach (involving lots of air travel). I am now living in the humidity at sea level and wonder if this could have provided sufficient trauma to initiate these attacks.
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After a night of moderate drinking I had my first and only severe episode of vertigo, which left me violently vomiting and unable to walk. After which, I experienced a month or so of very mild vertigo attacks, lasting 4-5 hours at a time. I felt unable to exercise and spent a lot more time at home. Throughout this time I always felt unbalanced and even a drop of alcohol would exaggerate symptoms.
A hearing test came back fine, to my surprise, and I was treated for vestibular neurosis and given Betaserc for almost 3 months. I had no vertigo whilst on the medication but have had two or three minor episodes since coming off it (during yoga classes, playing football but also when lying in bed). The first specialist was happy the vestibular neurosis had been treated and any imbalance etc. was a product of my body overcompensating or lasting damage. I continued to turn to the extreme right when trying the Unterberg test. Now, my symptoms are fullness in my left ear, which occasionally proves painful and some mild tinnitus. The persistent fullness led my GP to refer me to another specialist, concerned it sounded like MD. Another hearing test and a pressure test both came back fine. I would suggest my hearing is more muffled but could this just be a sensation I notice because of the fullness? I am adamant my hearing suffered immediately after the vertigo attacks (before being treated) because I remember it being relatively distressing. I have been given Vinpocetine to try and hasten recovery of what the specialist believes is just a viral infection and to help with the tinnitus but I have seen no difference. I feel largely like I am not being taken seriously. It is coming up to 6 months now and I am desperate for some resolution or diagnosis that I can work with to try manage these symptoms. I am really active and travel a lot. If I should expect vertigo symptoms to return, I feel I would need to adjust or review my lifestyle as to not take unnecessary risks. Any one else in such situation? Or know anything about altitude and ear issues? Any advice or opinions are very much welcomed. Specifically, I was searching for information on whether it is possible to have MD but without suffering hearing loss? I am only 24 and so had wondered if my hearing could have been affected but remained within the so-called ‘normal’ range?
I've had hearing loss now for a few years but don't know whether it's down to Work, crohn's or chemotherapy, anyone else?
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About a week ago, I was at home at the computer (I believe I was listening to music at the time), and I noticed that the hearing in my left ear had been significantly diminished (but not completely gone). About a minute (perhaps even less than a minute) later, it returned completely to normal, and so I assumed that it was just ear wax or something, and everything was fine now. However, a few seconds to a minute later, it went back to being diminished again. I can't remember for certain if I felt anything physically when all of this happened, but there may have been something that I felt in my ear - which led me to believe it was probably just ear wax.
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I have researched on-line for possible solutions to this kind of problem, and I have tried every possibility that I could - peroxide, warm olive oil, blowing as hard as I can with my nose and mouth shut, blowing as hard as I can with my nose and mouth and other (good) ear shut, nasal decongestant (which successfully clears up my nose, but doesn't have any effect on the ear), hot steam bath, Similasan Ear Relief drops that are supposed to clear up water in the ears, jumping up and down with my bad ear tilted toward the ground, jogging, and of course trying to dig out ear wax with the ear wax curette that I have. Unfortunately, nothing has worked, and my hearing has been about the same ever since a week ago when it went out (diminished) for the second time.
I have been able to remove a lot of ear wax with the curette, and sometimes it seems to make it a little better, but it never restores my hearing to normal. Sometimes I feel like I am right at the spot where it is clogged up (if indeed clogged ear wax is the problem), because the curette seems to be hitting a spot that's clogged with ear wax (judging from what it feels and sounds like), but then when I dig out a bunch of ear wax at that spot, my hearing is still the same or perhaps only slightly better. Perhaps I am actually pushing the ear wax further inside, which was mentioned as a possible negative effect of trying to remove the ear wax yourself. Also, I am wary of not poking too hard or too deep, as that was also a warning given at the sites I visited in my research.
Swallowing never seems to do anything, but it's interesting that when I have a strong belch, I can feel pressure inside that left (bad) ear, and it really feels like it's about to burst out and expel whatever is stuck (if it's the case that something is stuck), but it never does. Maybe whatever is stuck in there [ear wax, presumably] is just in so tight that nothing seems to be able to remove it. However, the odd circumstance that occurred when the problem first originated - which is the fact that it got better right after getting clogged up, and then got clogged up again - would seem to suggest that there may be another reason for this happening, other than plugged-up ear wax.
Has anyone experienced significant amounts of hair loss because of being symptomatic with anxiety? Did it ever grow back??
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Ironically the hair loss induces more stress and its always been hard for me to accept because I know its premature and stress related. I know it may be vain to obsess on appearance but again, it happened unnaturally after my surgery and first anxiety attack 12 years ago. There seems to be more shedding since i've experienced symptoms.
After 5 weeks of waiting, i finally received a letter in the post yesterday fromt he Hospital regarding my MRI scan. It states in the letter that everything was normal APART from "a incidental 14mm calcified, extra axial lesion in the left frontal region, probably menigioma". It goes on to say "no further action will be required but a copy of the letter will go to visiting neurosurgeon for further clarification in this regard".
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i've just googled menigioma and it comes up with brain tumor - should i be worried about this do you think? :-( i honestly didn't expect the letter to say this as i have waited over 5 weeks for these results. Can anyone advise? thanks
Last year(2014) I started having some health issues. In March I was diagnosed with Mastoiditis. After that I began to have vision issues with pain and was diagnosed with Optic Neuritis in my left eye. I did 3 days of Solumedrol at home and followed with oral steroids. Since then I have had on and off hearing loss on left side and have lost my sense of taste 3 times for a few weeks. I recently had a mri and they found a 12mm choroidal fissure cyst on my left side. I also have tingling and numbness in my left foot and leg. I still have blurry and double vision in my left eye at times. I had previous ct scans and mris and there was no cyst present. Could this newly found cyst be causing my issues?
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I have been told I have MD but had no tests what are the tests diagnosed just by my symptoms
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Have been diagnosed with meniere's 2 years ago limit salt no coffee I now it seems silly compared to crippling attacks but is a tiny bit of chocolate a problem. I mean like a half a chocolate chip cookie?
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I'm 57 years and I'm just wondering if anyone else has just stopped bleeding about two months ago I'm confused I don't know if I'm starting MP or is God playing games with me I get bad pain every month now like there coming again, have I started or not or do I have to wait a whole year with out a period, I do have signs hot flushes cry a lot, really bad back and ankle pain and to top it off I have meniere disease
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what about stem cell and the story of dana white cured 100% from meniere's is that true?
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Diagnosed with md all usual symptoms but I am cold all the time and have pain in my knees and upper legs anyone else have this problem
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I have Meniere's Disease and I find driving in the dark increasingly difficult.
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Can my employer grant me time to leave work early so I can travel home in daylight?
Can you have meniere's but be dizzy/lightheaded,floating/nausea rather than experiencing the whole room spinning? My ENT believes I have menieres.
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Also: I went on a 100 mile bicycle ride yesterday all through the night, so i am very fatigued. Today I had one glass of wine and it has made me incredibly dizzy, nauseous, and when i move me head I feel like I'm going to fall over. Does this sound like Meniere's?
Recently told I may have Ménière's disease of right ear. Any medications or surgery has helped for you? Symptoms are constant dizziness(at times have sensation of falling or floating when really bad), lightheadedness, very unbalanced, foggy headed, at times ear pressure and constant headaches. All started after bad sinus cold in mid last September and hit me really hard a few days after cold and has never left. The only time I had relief and felt 100% percent was when they gave me antibiotics and prednisone.
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I was healthy and happy then got a headache so bad that 6 migraine excedrin did not touch it. Went to bed and woke up in middle of night with my entire left side numb and tingling.
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Went to er they told us i had a bad migraine. Over the last month symptoms have worsen. Pain in left back of head hurts all the time, left side is pain, and spells of dizziness.
Two mri later, going for a third, clean blood work, eeg, many trips to er and no answer
After talking to an aunt found out she has meniere's-disease so we are going to a ent next.
Recently diagnosed w/menieres. Does anyone find that things like a computer screen or phone screen triggers vertigo episodes?? Is there anything that can be done to help this? I have to work on a computer all day. Also noticed driving causing issues from time to time.
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do you know anyone who completely lost their hearing and got it back? im 22 and i lost my hearing in March this year
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i loss my hearing at the age of 17, doctors were shocked because this usually happens to people over 30... they said that the loss was due to stress and sadness but i couldn't figure out what exactly i was stressed about. i lost 98% of my hearing in the left ear and they send me to therapy straight away, i missed a month and a half of my senior year of high school due to this. after the therapy my ear improved drastically and now i can hear 40% and have completely lost 60%. i'm 18 now and there isn't much i can do anymore. i will soon go and get a hearing aid but i still am not so sure about it. i have coped with the loss off hearing but the ringing in my ear makes me go crazy. so my question is, do you recommend a hearing aid? will it stop of perhaps lessen the ringing in my ear?
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Last thursday all of a sudden i heard a echo sound in my right ear trying all the normal stuff popping ears blowing nose checking for wax etc nothing worked so i went to bed and noticed i could not hear at all out of this ear so i waited til in the morning and still the same so i checked like with phone and could not hear anything so i went to see my gp and she checked and said nothing looks wrong so they referred me to a ent which i could not get into see till later this week on top of not hearing i have what i assume is tinnitus anyone else had this happen to them..
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In the spring of 2015, I noticed that there was a constant ringing in my right ear. Around June, I got in with an ENT, who referred me to an audiologist, who diagnosed me with hearing loss. Progressively, the hearing loss has gotten worse. I am a teen, so to me, this seems quite uncommon.
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In the fall of 2015, I noticed a constant ringing in my left ear, as well as my right. I checked with my audiologist, and I had a mild hearing loss in my left ear, and a moderate/major hearing loss in my right.
I have also been having these dizzy spells that I like to call "flares", for the past year or so. During these "flares", I get extreme vertigo, fullness in my ear, and obnoxiously loud ringing in my ear. These attacks normally happen in only one ear at a time.
On top of all of this, I have been dealing with joint pain, fatigue, and muscle pain. My memory has gotten awful, and I like I'm in a brain fog all the time. My mom has lupus, so we are thinking it could be autoimmune.
My rhuematologist, ENT, and general doctor sent me for blood work, and my ANA was positive, along with my heat shock protein. This is all so confusing!
Does anyone advice, suggestions, or personal experiences they'd like to share? I have no idea what to do! I am on 500mg of naproxen and turmeric for my joint pain/inflammation, and a bunch of natural supplements in hopes of feeling a little bit better.