Crohn's Disease :: Hearing Loss?
Mar 23, 2015
I've had hearing loss now for a few years but don't know whether it's down to Work, crohn's or chemotherapy, anyone else?
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In Jan 2016 I experienced minor episodes of vertigo on a near daily basis, which I believed was remnant of motion sickness during a traumatic sea crossing! I noticed they continued weeks after and seemed to correlate with instances where I was feeling stressed. During this time I moved to the other side of the world and began a new job. I was previously living at 2800 m and spending my weekend’s alternating between the high Andes and the beach (involving lots of air travel). I am now living in the humidity at sea level and wonder if this could have provided sufficient trauma to initiate these attacks.
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After a night of moderate drinking I had my first and only severe episode of vertigo, which left me violently vomiting and unable to walk. After which, I experienced a month or so of very mild vertigo attacks, lasting 4-5 hours at a time. I felt unable to exercise and spent a lot more time at home. Throughout this time I always felt unbalanced and even a drop of alcohol would exaggerate symptoms.
A hearing test came back fine, to my surprise, and I was treated for vestibular neurosis and given Betaserc for almost 3 months. I had no vertigo whilst on the medication but have had two or three minor episodes since coming off it (during yoga classes, playing football but also when lying in bed). The first specialist was happy the vestibular neurosis had been treated and any imbalance etc. was a product of my body overcompensating or lasting damage. I continued to turn to the extreme right when trying the Unterberg test. Now, my symptoms are fullness in my left ear, which occasionally proves painful and some mild tinnitus. The persistent fullness led my GP to refer me to another specialist, concerned it sounded like MD. Another hearing test and a pressure test both came back fine. I would suggest my hearing is more muffled but could this just be a sensation I notice because of the fullness? I am adamant my hearing suffered immediately after the vertigo attacks (before being treated) because I remember it being relatively distressing. I have been given Vinpocetine to try and hasten recovery of what the specialist believes is just a viral infection and to help with the tinnitus but I have seen no difference. I feel largely like I am not being taken seriously. It is coming up to 6 months now and I am desperate for some resolution or diagnosis that I can work with to try manage these symptoms. I am really active and travel a lot. If I should expect vertigo symptoms to return, I feel I would need to adjust or review my lifestyle as to not take unnecessary risks. Any one else in such situation? Or know anything about altitude and ear issues? Any advice or opinions are very much welcomed. Specifically, I was searching for information on whether it is possible to have MD but without suffering hearing loss? I am only 24 and so had wondered if my hearing could have been affected but remained within the so-called ‘normal’ range?
i have had Meniere's for well over 20 years. In the early years the attacks were horrendous and frequent but gradually settled down to one or two a year. More recently they have returned with avengence. This is not the normal pattern of the disease from what i have read. Also my hearing remains almost perfect despite having suffered with tinnitus daily from the onset of this disease. Obviously i am grateful for this but was just wondering what pattern the disease is taking with others? Has anyone noticed significant hearing loss?
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About a week ago, I was at home at the computer (I believe I was listening to music at the time), and I noticed that the hearing in my left ear had been significantly diminished (but not completely gone). About a minute (perhaps even less than a minute) later, it returned completely to normal, and so I assumed that it was just ear wax or something, and everything was fine now. However, a few seconds to a minute later, it went back to being diminished again. I can't remember for certain if I felt anything physically when all of this happened, but there may have been something that I felt in my ear - which led me to believe it was probably just ear wax.
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I have researched on-line for possible solutions to this kind of problem, and I have tried every possibility that I could - peroxide, warm olive oil, blowing as hard as I can with my nose and mouth shut, blowing as hard as I can with my nose and mouth and other (good) ear shut, nasal decongestant (which successfully clears up my nose, but doesn't have any effect on the ear), hot steam bath, Similasan Ear Relief drops that are supposed to clear up water in the ears, jumping up and down with my bad ear tilted toward the ground, jogging, and of course trying to dig out ear wax with the ear wax curette that I have. Unfortunately, nothing has worked, and my hearing has been about the same ever since a week ago when it went out (diminished) for the second time.
I have been able to remove a lot of ear wax with the curette, and sometimes it seems to make it a little better, but it never restores my hearing to normal. Sometimes I feel like I am right at the spot where it is clogged up (if indeed clogged ear wax is the problem), because the curette seems to be hitting a spot that's clogged with ear wax (judging from what it feels and sounds like), but then when I dig out a bunch of ear wax at that spot, my hearing is still the same or perhaps only slightly better. Perhaps I am actually pushing the ear wax further inside, which was mentioned as a possible negative effect of trying to remove the ear wax yourself. Also, I am wary of not poking too hard or too deep, as that was also a warning given at the sites I visited in my research.
Swallowing never seems to do anything, but it's interesting that when I have a strong belch, I can feel pressure inside that left (bad) ear, and it really feels like it's about to burst out and expel whatever is stuck (if it's the case that something is stuck), but it never does. Maybe whatever is stuck in there [ear wax, presumably] is just in so tight that nothing seems to be able to remove it. However, the odd circumstance that occurred when the problem first originated - which is the fact that it got better right after getting clogged up, and then got clogged up again - would seem to suggest that there may be another reason for this happening, other than plugged-up ear wax.
I am a 24 year old who works a 12 hour rotating shift pattern (including night shifts). For the past 6 months or maybe more o have had upper left abdominal pain (cramping/aching) and more recently lower pain (sometimes across lower, sometimes left and sometimes a specific place on the lower right). I put it down to IBS due to shift work. My partner convinced me to see the GP as I have a family history of IBD. Oh and my bowel movements vary from constipated (less than once a week) to lose (not diarrhoea and multiple times per day)
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Had stool tests and blood tests. I expected them not to find anything to be honest and just did it to please my boyfriend and put his mind at rest.
Doctor phoned and said that "the stool test shows signs of inflammation indicative of inflammatory bowel disease". I couldn't really ask more questions because of where I was. Phoned in for blood results and told by reception that they were fine.
I have been referred to the gastroenterologist and have an appointment in 2 weeks.
I am tired all the time and find it really difficult to get out of bed, frequently have naps at work but put that down to shift working.
I don't want to take any laxatives because I never know when it will change between constipation and loose stools and when I'm working, I often can't get to the toilet.
I often have joint pain but I also have a knee injury and some hyper mobile joints.
I am so confused as to what is going on and hate not being in control of my body. I know I only have mild symptoms, I feel so alone (shift work doesn't lend itself to meeting people regularly).
Last year(2014) I started having some health issues. In March I was diagnosed with Mastoiditis. After that I began to have vision issues with pain and was diagnosed with Optic Neuritis in my left eye. I did 3 days of Solumedrol at home and followed with oral steroids. Since then I have had on and off hearing loss on left side and have lost my sense of taste 3 times for a few weeks. I recently had a mri and they found a 12mm choroidal fissure cyst on my left side. I also have tingling and numbness in my left foot and leg. I still have blurry and double vision in my left eye at times. I had previous ct scans and mris and there was no cyst present. Could this newly found cyst be causing my issues?
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My husband was diagnosed with crohn’s disease some time ago. It seems that he is not allowed to drink beer. I don’t know how he will be able to do this, since he is a great fan of beer. Why isn’t he allowed to take it? Can someone tell me?
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My wife has been diagnosed with crohn’s disease. We have no children yet, but we were planning to. However, this disease is something that surprised us. She manages to coup the disease with medications. However, we don’t know if this affects her fertility. What do you think about this?
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I know something about crohn’s disease. However, there is something else that intrigues me. I was wondering if this disease can be manifested with haemorrhoids. As far as I know, those are two different entities, so I would like to know if they can be linked in any way.
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I had my surgery in 98. I've been symptom free for over 10 years. I recently hurt my back at work and was prescribed Naproxen (Aleve) because of the new pain med laws. Well after taking it for a week, I just started vomiting large amounts of blood. I went to the ER and they were shocked to hear that this was prescribed this for my pain since they were aware I had Crohn's. Has anyone else had symptoms like this from Naproxen? Would it be a honest mistake or malpractice?
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I had a blood test today as I'm being tested for Crohn's disease and a load of allergies however my blood was really thick and gloopy and would flow even the nurse said that it was unusual. She couldn't get much blood out either as it would flow so ended up having to use bottles that they use for babies because there nearly any blood. I'm just wondering what this could mean or if anyone else has had this before?
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I've had Crohns for 20 years I have a structure but is under control with drugs but the tiredness and fatigue is terrible specialist isn't much help or understanding on this point how do others cope with it ? My bloods are checked regularly and are always fine. I sometimes wonder how I'm going to get through the day at work sometimes and don't have the strength to do anything when I get it at night and I cannot wait to get to bed even if it's to watch tv I wouldn't mind but I'm no party animal has anyone got any sensible suggestions please ?
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I had a high transsphincteric fistula (multiple abscesses). CRS placed a cutting seton with fistulotomy in July. CRS told me that the seton would be in prob 4-6 weeks. It is now 8 weeks later, new CRS (first one moved), told me that he doesn't use these much as they are not tolerated well and that he thinks he will have to go back in and tighten it as it is not advancing. He says this is/can be a long process. Now I am to go back in several weeks to finalize new plan. Problem is, after surgery, I had Augmentin. The fistula track was not draining like it was supposed to and I got another abscess... after the fistulotomy and seton placement. CRS gave me Augmentin which I'm not sure really helped. So, I got a total body rash from the augmentin. I lasted 5 weeks before I was so miserable that I finally took oral steroids from Dermatologist with CRS approval. After I did two weeks of steroids, which helped tremendously, the rash came right back. Derm subsequently gave me a new prescription for prednisone (for one month taper!) and told me that it is a rebound rash after I stopped steroids. CRS says he won't do next surgery until I am off of prednisone for several weeks. Do I take the prednisone? or try to power thru the rash and not tear off my skin? How long will this next seton take to cut thru? wonder if it will get "stuck" midway too? More tightening procedures? Oh.. what to do?
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I'm 28 and have crohn's disease. I have been on humira for 2 years which had worked well. The past few months, however, I have been suffering from a debilitating flair up. My Dr upped my dosage but it hasn't made a difference and am now back on steroids. I was wondering if anyone else had experienced this with humira? And if anyone had had success with any alternative medications?
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Hi I have just joined the forum and would like to know if anyone feels the same as myself or am I going mad. Was diagnosed with crohns in 2010 after doing the over 50 bowel screening ( I am 55) have been on several medications and had a very nasty abcess where you dont want one and had to stay in hospital 11 days. Last november I had been in infliximab for 2 years having infusion every 8 weeks and also taking mercaptopurine and tramadol for the pain, I now have infliximab every 10 weeks still taking mercaptopurine which I have been on for 4 years, the doctor asked me to try and stop tramadol but I only take 2 per day 4 on a very bad day, I have tried several times not to take these but when I stop the next day I feel bloated, very sick and its a struggle to get out of bed and as a full time carer for my disabled husband thats no good, it happened today so I took 2 tramadol and crawled back to bed and within an hour I felt a lot better, have explained this to 2 doctors and 1 wants me off tramadol and says symptoms are due to them and the other gives me a prescription and says if I need to take them to do that I am so confused. I take them because the option not to makes me feel so crap (pardon the pun ) has anybody got any advice please I hate this crohns
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I have been taking Azathioprine for crohn's for some time and have been lucky not to have had any side effects. For a while I have had a sore throat but not needed any medication. When I read the possible side effects on websites they mention sore throats. Any one else experience this, if so have you spoken to GP or consultant.
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I started getting the following symptoms 6 weeks ago, explosive diarrhea, blood loss, mucus in poo, constipation, 7-10 bm's a day, bloating, cramps, loss of appetite, severe fatigue.... I left it 4 weeks as thought it was a bug & have a very hectic lifestyle so didn't have chance to give it a great deal of thought but went to the docs & she said she's pretty sure it's ulcerative colitis. She was quite concerned & requested I had an urgent colonoscopy within 1 week but I have to wait 6 weeks for this to happen. My doc wasn't happy but said there is nothing she can do to expedite this. I was at my wits end yesterday so my hubby took me to a & e but again they were reluctant to run any tests as I'm already booked in to have a colonoscopy. They did the standard tests which were all normal. I'm now waiting to call a private hospital to get an appointment so that I can get this procedure done ASAP as my family are so concerned. I can't believe that I've got to pay £2k to get this issue checked out? I thought that losing blood for 6 weeks would be classed as urgent but I guess not?
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Sorry if tmi but I noticed veg in my stools this morning & that was from a meal I had last Tuesday?
Does this his sound like ulcerative colitis to anyone or could it possibly be crohn's?
do you know anyone who completely lost their hearing and got it back? im 22 and i lost my hearing in March this year
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i loss my hearing at the age of 17, doctors were shocked because this usually happens to people over 30... they said that the loss was due to stress and sadness but i couldn't figure out what exactly i was stressed about. i lost 98% of my hearing in the left ear and they send me to therapy straight away, i missed a month and a half of my senior year of high school due to this. after the therapy my ear improved drastically and now i can hear 40% and have completely lost 60%. i'm 18 now and there isn't much i can do anymore. i will soon go and get a hearing aid but i still am not so sure about it. i have coped with the loss off hearing but the ringing in my ear makes me go crazy. so my question is, do you recommend a hearing aid? will it stop of perhaps lessen the ringing in my ear?
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Last thursday all of a sudden i heard a echo sound in my right ear trying all the normal stuff popping ears blowing nose checking for wax etc nothing worked so i went to bed and noticed i could not hear at all out of this ear so i waited til in the morning and still the same so i checked like with phone and could not hear anything so i went to see my gp and she checked and said nothing looks wrong so they referred me to a ent which i could not get into see till later this week on top of not hearing i have what i assume is tinnitus anyone else had this happen to them..
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In the spring of 2015, I noticed that there was a constant ringing in my right ear. Around June, I got in with an ENT, who referred me to an audiologist, who diagnosed me with hearing loss. Progressively, the hearing loss has gotten worse. I am a teen, so to me, this seems quite uncommon.
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In the fall of 2015, I noticed a constant ringing in my left ear, as well as my right. I checked with my audiologist, and I had a mild hearing loss in my left ear, and a moderate/major hearing loss in my right.
I have also been having these dizzy spells that I like to call "flares", for the past year or so. During these "flares", I get extreme vertigo, fullness in my ear, and obnoxiously loud ringing in my ear. These attacks normally happen in only one ear at a time.
On top of all of this, I have been dealing with joint pain, fatigue, and muscle pain. My memory has gotten awful, and I like I'm in a brain fog all the time. My mom has lupus, so we are thinking it could be autoimmune.
My rhuematologist, ENT, and general doctor sent me for blood work, and my ANA was positive, along with my heat shock protein. This is all so confusing!
Does anyone advice, suggestions, or personal experiences they'd like to share? I have no idea what to do! I am on 500mg of naproxen and turmeric for my joint pain/inflammation, and a bunch of natural supplements in hopes of feeling a little bit better.