Crohn's Disease :: Tiredness - Don't Have The Strength To Do Anything
Apr 13, 2016
I've had Crohns for 20 years I have a structure but is under control with drugs but the tiredness and fatigue is terrible specialist isn't much help or understanding on this point how do others cope with it ? My bloods are checked regularly and are always fine. I sometimes wonder how I'm going to get through the day at work sometimes and don't have the strength to do anything when I get it at night and I cannot wait to get to bed even if it's to watch tv I wouldn't mind but I'm no party animal has anyone got any sensible suggestions please ?
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I am a 24 year old who works a 12 hour rotating shift pattern (including night shifts). For the past 6 months or maybe more o have had upper left abdominal pain (cramping/aching) and more recently lower pain (sometimes across lower, sometimes left and sometimes a specific place on the lower right). I put it down to IBS due to shift work. My partner convinced me to see the GP as I have a family history of IBD. Oh and my bowel movements vary from constipated (less than once a week) to lose (not diarrhoea and multiple times per day)
Had stool tests and blood tests. I expected them not to find anything to be honest and just did it to please my boyfriend and put his mind at rest.
Doctor phoned and said that "the stool test shows signs of inflammation indicative of inflammatory bowel disease". I couldn't really ask more questions because of where I was. Phoned in for blood results and told by reception that they were fine.
I have been referred to the gastroenterologist and have an appointment in 2 weeks.
I am tired all the time and find it really difficult to get out of bed, frequently have naps at work but put that down to shift working.
I don't want to take any laxatives because I never know when it will change between constipation and loose stools and when I'm working, I often can't get to the toilet.
I often have joint pain but I also have a knee injury and some hyper mobile joints.
I am so confused as to what is going on and hate not being in control of my body. I know I only have mild symptoms, I feel so alone (shift work doesn't lend itself to meeting people regularly).
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My husband was diagnosed with crohn’s disease some time ago. It seems that he is not allowed to drink beer. I don’t know how he will be able to do this, since he is a great fan of beer. Why isn’t he allowed to take it? Can someone tell me?
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My wife has been diagnosed with crohn’s disease. We have no children yet, but we were planning to. However, this disease is something that surprised us. She manages to coup the disease with medications. However, we don’t know if this affects her fertility. What do you think about this?
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I know something about crohn’s disease. However, there is something else that intrigues me. I was wondering if this disease can be manifested with haemorrhoids. As far as I know, those are two different entities, so I would like to know if they can be linked in any way.
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I've had hearing loss now for a few years but don't know whether it's down to Work, crohn's or chemotherapy, anyone else?
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I had my surgery in 98. I've been symptom free for over 10 years. I recently hurt my back at work and was prescribed Naproxen (Aleve) because of the new pain med laws. Well after taking it for a week, I just started vomiting large amounts of blood. I went to the ER and they were shocked to hear that this was prescribed this for my pain since they were aware I had Crohn's. Has anyone else had symptoms like this from Naproxen? Would it be a honest mistake or malpractice?
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I had a blood test today as I'm being tested for Crohn's disease and a load of allergies however my blood was really thick and gloopy and would flow even the nurse said that it was unusual. She couldn't get much blood out either as it would flow so ended up having to use bottles that they use for babies because there nearly any blood. I'm just wondering what this could mean or if anyone else has had this before?
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I had a high transsphincteric fistula (multiple abscesses). CRS placed a cutting seton with fistulotomy in July. CRS told me that the seton would be in prob 4-6 weeks. It is now 8 weeks later, new CRS (first one moved), told me that he doesn't use these much as they are not tolerated well and that he thinks he will have to go back in and tighten it as it is not advancing. He says this is/can be a long process. Now I am to go back in several weeks to finalize new plan. Problem is, after surgery, I had Augmentin. The fistula track was not draining like it was supposed to and I got another abscess... after the fistulotomy and seton placement. CRS gave me Augmentin which I'm not sure really helped. So, I got a total body rash from the augmentin. I lasted 5 weeks before I was so miserable that I finally took oral steroids from Dermatologist with CRS approval. After I did two weeks of steroids, which helped tremendously, the rash came right back. Derm subsequently gave me a new prescription for prednisone (for one month taper!) and told me that it is a rebound rash after I stopped steroids. CRS says he won't do next surgery until I am off of prednisone for several weeks. Do I take the prednisone? or try to power thru the rash and not tear off my skin? How long will this next seton take to cut thru? wonder if it will get "stuck" midway too? More tightening procedures? Oh.. what to do?
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I'm 28 and have crohn's disease. I have been on humira for 2 years which had worked well. The past few months, however, I have been suffering from a debilitating flair up. My Dr upped my dosage but it hasn't made a difference and am now back on steroids. I was wondering if anyone else had experienced this with humira? And if anyone had had success with any alternative medications?
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Hi I have just joined the forum and would like to know if anyone feels the same as myself or am I going mad. Was diagnosed with crohns in 2010 after doing the over 50 bowel screening ( I am 55) have been on several medications and had a very nasty abcess where you dont want one and had to stay in hospital 11 days. Last november I had been in infliximab for 2 years having infusion every 8 weeks and also taking mercaptopurine and tramadol for the pain, I now have infliximab every 10 weeks still taking mercaptopurine which I have been on for 4 years, the doctor asked me to try and stop tramadol but I only take 2 per day 4 on a very bad day, I have tried several times not to take these but when I stop the next day I feel bloated, very sick and its a struggle to get out of bed and as a full time carer for my disabled husband thats no good, it happened today so I took 2 tramadol and crawled back to bed and within an hour I felt a lot better, have explained this to 2 doctors and 1 wants me off tramadol and says symptoms are due to them and the other gives me a prescription and says if I need to take them to do that I am so confused. I take them because the option not to makes me feel so crap (pardon the pun ) has anybody got any advice please I hate this crohns
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I have been taking Azathioprine for crohn's for some time and have been lucky not to have had any side effects. For a while I have had a sore throat but not needed any medication. When I read the possible side effects on websites they mention sore throats. Any one else experience this, if so have you spoken to GP or consultant.
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I have been having bleeding from my back passage, fatigue and tiredness for weeks and finally got to the doctor today. She told me that I had IBD and that she would arrange for an urgent referral for a colonoscopy (2 weeks). She also said that I should come back if the symptoms got worse in the mean time. I am anxious that I maybe underplayed the symptoms slightly. every time I go to the toilet (5 or 6 times per day) it is bright red and seems not to be getting better. Should I go back or is it fine to wait two weeks?
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I have been provisionally diagnosed with Crohns and have been on Prednisolone for 3 weeks, starting off with 40 mg a day and reducing weekly by 5 mg.
I am having terrible headaches and no releif from the abdominal pain.No other symptoms yet.Can I expect some improvement as time goes on in your experiences ?
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I started getting the following symptoms 6 weeks ago, explosive diarrhea, blood loss, mucus in poo, constipation, 7-10 bm's a day, bloating, cramps, loss of appetite, severe fatigue.... I left it 4 weeks as thought it was a bug & have a very hectic lifestyle so didn't have chance to give it a great deal of thought but went to the docs & she said she's pretty sure it's ulcerative colitis. She was quite concerned & requested I had an urgent colonoscopy within 1 week but I have to wait 6 weeks for this to happen. My doc wasn't happy but said there is nothing she can do to expedite this. I was at my wits end yesterday so my hubby took me to a & e but again they were reluctant to run any tests as I'm already booked in to have a colonoscopy. They did the standard tests which were all normal. I'm now waiting to call a private hospital to get an appointment so that I can get this procedure done ASAP as my family are so concerned. I can't believe that I've got to pay £2k to get this issue checked out? I thought that losing blood for 6 weeks would be classed as urgent but I guess not?
Sorry if tmi but I noticed veg in my stools this morning & that was from a meal I had last Tuesday?
Does this his sound like ulcerative colitis to anyone or could it possibly be crohn's?
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I have been taking ramipril for about a year and I have started getting dizzy spells and tiredness. I feel I don't need them anymore and want to stop
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I have been on ramipril for about 3 to 4 months now. Started on the lowest dose 1.25. But that wasn't bringing my BP down. I have now been on 2.5 for about 2 weeks. I get the tiredness feeling all the time. My GP advised me to take it at night before I go to bed. But doing that I feel by the afternoon the following day that it isn't working right. I haven't had any other side effects. Although im currently fighting an reoccurring ear infection that I have suffered wither years. Which isn't helping my BP according to the doctors. Even though im on 2.5 once a day my BP still hits the 150 / 110 Mark. By tea time My heart rate feels fluttery and I can really feel my heart beating. Mostly dizzy at times but im putting that down to my ear infection. My Question is " is there anyone having similar feelings and readings.
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I am detoxing from chemical substances and am very tired how long before this will pass
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I have been on Lisinopril for the last fortnight and am experiencing only minor reductions in BP which was very high . I am very depressed that this drug is not working especially as the side effects are quite marked ie ..extreme tiredness. Anyone else out there had similar experience ? Did a higher dos eventually get the pressure down?
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On last testing I was under active again and only on 5mg of carbimazole, so as no endow appointment for another 8 weeks was advised to make arrangements with family doctor, as it's been christmas peroid I couldn't get to doctor as booked up and also couldn't even get a telephone call so I decided to go with 5 mg every other day to I arranged something, I still feel underactive tiredness, cold and puffy lips and tongue, the main concern is the appearance of my eye and face swelling has went extreme in last week , I am so depressed with this puffy face I don't know if it's as my throid is underactive or because I have cut down the medication, I find endo doctors useless , this diease has left me I don't want to leave the house, I also have dry very spotty skin which has got worse all over christmas I do not recognise the person I have become anymore
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I have been taking Esmya now for six weeks. Not had bad side effects until last couple of weeks . I keep feeling very sickly and tired. Anyone else had this and what did you do to alleviate the problem?
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