What If Occipital Nerve Stimulator Doesn't Work


Jan 17, 2015

If anyone else has had an Occipital Nerve Stimulator fitted and if it was a success. I had it fitted in March 2014 and had to have the wires adjusted as they were causing problems in my neck and not helping my migraines. I had about 5 week of some relief and my medication intake did reduce. However, in September of this year. I felt the machine stop working and had no sensation from it on one side of my head. Over the past week I am no longer able to bend my head over or reach my arms out without getting pain and a pulling sensation at the back of my neck. I have been sent for X-rays this week and am now waiting for the whole procedure carrying out again. I had high hope's on this operation helping. I understand it's not a cure, but I just need help with reducing the severity of my daily headaches/migraines. Has anyone else had equipment failure? 

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My true issue and reason for posting is, I have had a bad headache on the right side of my head, it moves from the right base of my neck, around my ear to my front temple area. Throughout the day it is in a different spot and I can pinpoint exactly where it is, it feels like someone is stabbing a knife right in that area, but it lasts for hours, throughout the day it does get a little "better", but i can always feel it, when it gets "better" it just feels like a massive pressure in that area. I have been a headache sufferer for as long as i can remember, but this headache is different than any headache I've ever had, and it going on day 19. I have tried everything; my many different headache medications (including an injection i give myself), I've taken a dose pack of steroids along with some anti nausea medication my neurologist gave me, i have gone to get a DHE treatment from my neurologist, i have gotten a toradol shot, and pretty much anything else i could think of, and nothing is kicking this headache. After doing lots and lots of online research, it leads me to believe that this is related to my occipital neuralgia, not a "normal" headache. Has anyone has a headache like this before? Do you think it is related to the occipital neuralgia, or something else? Does anyone have any ideas to make it go away. Also, if anyone has any tips on dealing/treating neck pain from occipital neuralgia.

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